Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Did You Have Weird Symptoms When You Went Gluten Free?


CathyG

Recommended Posts

CathyG Rookie

So, I'm soooooo new to this whole gluten free world (I keep forgetting to check the chopping board for bread crumbs and the tea towel for example). Anyway, I've been feeling really vague, VERY tired, lots of dizziness etc. I have been diagnosed with chronic fatigue as well, but I've noticed that these symptoms have become 10 times worse since starting this diet. I'm wondering if it's just a coincidence that everything is getting so much worse of if my body is adjusting to the new diet.

Did anyone else have trouble adjusting to the new diet or did you feel better pretty quickly after starting?

Thanks

Cathy

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Most of our posters have reported going through a period of withdrawal from gluten, and they seem to react in their own unique way. Some get migraine headaches, some get very fatigued and lethargic, some crave gluten so badly they can hardly stand it. Gluten is like an opioid to the body and, just like cigarettes, when that opioid is withdrawn you are most likely going to feel bad for a while, You just have to ride it out and realize that this, too, shall pass, and you will enter a whole new field once you have walked through all the cow patties in this one :lol: - there may even be some edible mushrooms there :D

Link to comment
Share on other sites
Noche22 Rookie

Yes, I am feeling alot worse too. I am only gluten free for a week now, as newly diagnosed a week ago today for Celiac. I quit cold turkey and my body is freaking out. I get gushes of dizziness too. It is unsettling to have our lives one way one day and the next day it is completely different. A major adjustment. We will make it through this.

Link to comment
Share on other sites
tea-and-crumpets Explorer

I definitely had a period of gluten withdrawal -- at one point I was so exhausted I couldn't sleep. It was wretched! But luckily, at least for me, it passed fairly quickly. I hope it passes just as quickly for you.

Link to comment
Share on other sites
CathyG Rookie

Yes, I am feeling alot worse too. I am only gluten free for a week now, as newly diagnosed a week ago today for Celiac. I quit cold turkey and my body is freaking out. I get gushes of dizziness too. It is unsettling to have our lives one way one day and the next day it is completely different. A major adjustment. We will make it through this.

Oh thank you so much for your replies, I thought I was going mad!!!

I too am extremely dizzy and can't function properly. I'm struggling to hold a conversation at the moment and these symptoms have only happened since going gluten free. My doctor told me that the dizziness wasn't related to the gluten free diet, but I found it a coincidence that it happened only a couple of days after giving up gluten and lactose.

Thanks again for all the replies :)

Link to comment
Share on other sites
LivesIntheSun Apprentice

I felt terrible for about a week- I was shakey, dizzy, very very irritable, and I had to bed at 7pm for a few nights. I remember fighting with myself not to be as rude to people as I felt like being, and I remember standing up and falling back down again, and my workmates buying me energy drinks because they were worried about me. The tiredness and dizziness went away quicky and I felt much better than before, but the irritablility took a while ;)

Link to comment
Share on other sites
FooGirlsMom Rookie

Yes, gluten withdrawal is real. Many people who go on low carb diets, for example, experience the same thing. I didn't know what it was 15 years ago when I first experienced it because I didn't know it was gluten. Low carbers call it "carb withdrawal".

My symptoms always are: headaches, weakness, periods of brain fog, fatigue, flu-like feelings, occasional dizziness, sadness/melancholy to name a few. The same thing happened when I went gluten-free.

Hope you feel better soon.

FooGirlsMom

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

In addition to the withdrawl you need to get your own dedicated cutting board. You also should get a new colander, replace scratched non-stick pans and avoid baking with wheat flour for others.

It can take some time to heal. Hang in there and I hope you are feeling better soon.

Link to comment
Share on other sites
  • 5 weeks later...
healinginprogress Enthusiast

Sigh, I hate that any of us are going through this withdrawal, but honestly am comforted that I am not the only one. I almost went off the deep end last week, super irritable, brain fog, crappy memory, my depression, anxiety, and insomnia are worse and my skin is more sensitive than before. I'm into week two and still not feeling great...really tired, mood swings, etc. It really is frustrating, especially the depression, I might have to go see my doctor about my meds...but I'm trying to believe that, as everyone seems to say...this too shall pass. I'm excited for the possibility of my mental health issues actually subsiding from going gluten-free, as well, of course, all the gastrointestinal issues. It's just too bad we can't take a vacation from life until all our symptoms improve :P

Link to comment
Share on other sites
rosetapper23 Explorer

I just want to add that when a person removes carbs suddenly from a diet, this lowers one's sugar levels. When sugar levels drop suddenly, symptoms of hypoglycemia crop up--like dizziness, brain fog, fatigue. I believe that this is probably the main reason why people who jump into a gluten-free diet have these types of issues at the beginning. Now, I'm not telling you to eat sugar, but you might wish to add some extra fruits into your diet until your body adjusts to fewer carbs.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

    2. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

    3. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

    4. - Smith-Ronald replied to Soleihey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lymph nodes

    5. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    • Smith-Ronald
      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
×
×
  • Create New...