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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Did You Have Weird Symptoms When You Went Gluten Free?
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So, I'm soooooo new to this whole gluten free world (I keep forgetting to check the chopping board for bread crumbs and the tea towel for example). Anyway, I've been feeling really vague, VERY tired, lots of dizziness etc. I have been diagnosed with chronic fatigue as well, but I've noticed that these symptoms have become 10 times worse since starting this diet. I'm wondering if it's just a coincidence that everything is getting so much worse of if my body is adjusting to the new diet.

Did anyone else have trouble adjusting to the new diet or did you feel better pretty quickly after starting?

Thanks

Cathy

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Most of our posters have reported going through a period of withdrawal from gluten, and they seem to react in their own unique way. Some get migraine headaches, some get very fatigued and lethargic, some crave gluten so badly they can hardly stand it. Gluten is like an opioid to the body and, just like cigarettes, when that opioid is withdrawn you are most likely going to feel bad for a while, You just have to ride it out and realize that this, too, shall pass, and you will enter a whole new field once you have walked through all the cow patties in this one :lol: - there may even be some edible mushrooms there :D

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Yes, I am feeling alot worse too. I am only gluten free for a week now, as newly diagnosed a week ago today for Celiac. I quit cold turkey and my body is freaking out. I get gushes of dizziness too. It is unsettling to have our lives one way one day and the next day it is completely different. A major adjustment. We will make it through this.

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I definitely had a period of gluten withdrawal -- at one point I was so exhausted I couldn't sleep. It was wretched! But luckily, at least for me, it passed fairly quickly. I hope it passes just as quickly for you.

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Yes, I am feeling alot worse too. I am only gluten free for a week now, as newly diagnosed a week ago today for Celiac. I quit cold turkey and my body is freaking out. I get gushes of dizziness too. It is unsettling to have our lives one way one day and the next day it is completely different. A major adjustment. We will make it through this.

Oh thank you so much for your replies, I thought I was going mad!!!

I too am extremely dizzy and can't function properly. I'm struggling to hold a conversation at the moment and these symptoms have only happened since going gluten free. My doctor told me that the dizziness wasn't related to the gluten free diet, but I found it a coincidence that it happened only a couple of days after giving up gluten and lactose.

Thanks again for all the replies :)

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I felt terrible for about a week- I was shakey, dizzy, very very irritable, and I had to bed at 7pm for a few nights. I remember fighting with myself not to be as rude to people as I felt like being, and I remember standing up and falling back down again, and my workmates buying me energy drinks because they were worried about me. The tiredness and dizziness went away quicky and I felt much better than before, but the irritablility took a while ;)

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Yes, gluten withdrawal is real. Many people who go on low carb diets, for example, experience the same thing. I didn't know what it was 15 years ago when I first experienced it because I didn't know it was gluten. Low carbers call it "carb withdrawal".

My symptoms always are: headaches, weakness, periods of brain fog, fatigue, flu-like feelings, occasional dizziness, sadness/melancholy to name a few. The same thing happened when I went gluten-free.

Hope you feel better soon.

FooGirlsMom

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In addition to the withdrawl you need to get your own dedicated cutting board. You also should get a new colander, replace scratched non-stick pans and avoid baking with wheat flour for others.

It can take some time to heal. Hang in there and I hope you are feeling better soon.

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Sigh, I hate that any of us are going through this withdrawal, but honestly am comforted that I am not the only one. I almost went off the deep end last week, super irritable, brain fog, crappy memory, my depression, anxiety, and insomnia are worse and my skin is more sensitive than before. I'm into week two and still not feeling great...really tired, mood swings, etc. It really is frustrating, especially the depression, I might have to go see my doctor about my meds...but I'm trying to believe that, as everyone seems to say...this too shall pass. I'm excited for the possibility of my mental health issues actually subsiding from going gluten-free, as well, of course, all the gastrointestinal issues. It's just too bad we can't take a vacation from life until all our symptoms improve :P

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I just want to add that when a person removes carbs suddenly from a diet, this lowers one's sugar levels. When sugar levels drop suddenly, symptoms of hypoglycemia crop up--like dizziness, brain fog, fatigue. I believe that this is probably the main reason why people who jump into a gluten-free diet have these types of issues at the beginning. Now, I'm not telling you to eat sugar, but you might wish to add some extra fruits into your diet until your body adjusts to fewer carbs.

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