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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Two Different Answers From Same Company!
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7 posts in this topic

Over the past month I have noticed a disturbing trend when calling the food companies to check on their products: I am getting two different answers depending on who I talk to!

A month ago I had severe diarrhea after eating two types of Jimmy Dean sausage-the pre-cooked and the uncooked. I called the company and was re-assured the pre-cooked was gluten-free, as well as the uncooked. I asked them to send a lettter stating all of their gluten-free sausage. Well, the letter came, stating, "Our uncooked sausages are gluten-free, however, our pre-cooked sausages are NOT gluten-free." The people on the phone told me one thing, the letter said the total opposite.

Then, I called Kaopectate to check on their gluten-free status. The lady on the phone assured me it was gluten-free. I waited, called back a few days later, and a second person told me she would research that because there was no information available. She called me back to inform me kaopectate is NOT gluten-free!

So...what are we supposed to think, here? I feel like I can't trust ANY of the products now. And companies like Kraft who tell you to just look at their labels because they will put stuff in parenthesis if it comes from wheat just make me nervous. I prefer a product by product answer. Anyone else encounter this kind of inconsistency?

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I know it sounds like a pain in the rear... but trust NO ONE! Most people dont understand how important it is for us to remain gluten-free, and many could really care less sadly to say. Its their job, no ones perfect...

I stick to this theory:

"If I dont know 100% that it wont make me sick, I wont eat it"

I have learned not to trust anyone but other celiacs because you guys and gals understand the importance it is... Good luck!

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But then how do we eat anything? I always thought calling the company was the safest method, as well as checking the ingredients list. Now I feel like these companies don't know their own products, so, that leaves no food for the rest of our lives except fresh meat, vegetables, and fruit, and I know I can't go too long without at least some canned or frozen foods. It's so frustrating!

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It seems to me that getting a company to send you a WRITTEn list of their gluten-free products is a more reliable way of getting the info. the person on the phone may not care, or be tired, or read it to you wrong, but if they put it in writing, a company tends to be a lot more particular about the details. If nothing else, because in our litigious society, writng things down puts them at risk for a lawsuit if it wrong. Just my theory

Libby

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Libby,

I was thinking that very same thing. The problem is sometimes we are in such a hurry we just call their 800#, I think I will try to start planning ahead more often and get it in writing.

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I just wish more companies would put in in writing. About 70% I've spoken to so far won't, probably because they are afraid of a lawsuit. If I'm given two opposing answers about a product as I have been given lately, I don't even take the chance anyway. It just makes me wonder how many times I've taken a representative's word for something that is wrong and haven't realized it!

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what I have done is to call the 800# (I am pretty lazy, jhmom) and ask my question AND ask for any written info they have. Not all, but a number of companies (hormel, wild oats, etc) have offerd to email or mail me a written list of their gluten-free products.

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