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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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busybee

Here Is My Story... Would Love Some Help!

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Here is what I got....

My son is currently 23 months old. He was born with jaundice but wasn't sever enough for anything and went away after a few days. That was the only problem we had at birth. When he was about a year old some test showed he was anemic and we put iron in his milk. We have never had really serious happen except the occasional trips to the er or doctor's office with 105 temps, which they now say is ok. Totally freaked me out still. We have been very fortunate until about 3months ago.

In late October he got really ill with one of those 105 fevers I told you about. We waited it out and just gave him medicine. He seemed to get better with the fever but you could just tell he was really sick. Took him to the ped and they did a blood count and determined his white blood cells to be abnormally high. they were at 22.5. Crazy high. The doctors just treated it as a bacteria infection and we moved on. My son has always drank excessive fluids no matter what it is. It is pretty crazy looking but this is what always kept us out of the hospital from dehydration with those high fevers. He can literally drink a full capri sun in one breath!!

December 22 he threw up one night after drinking milk. He had no fever or anything, he just could not drink milk. Then the diarrhea started. I had never seen anything like this before. It was horrible. Just pure fluid. This lasted for about 2 weeks. In the mean time I knew that dairy was not good with an upset tummy so he was drinking my soy mild instead. The diarrhea lasted for a month in this form. It was happening 3 or 4 times a day. Not Good! Took him to the doc and they put him on an antibiotic. It helped for like one diaper change. Oh and his stool is the worst smell ever. I mean it really stinks. He had two hard stools finally so I slowly started hiving him dairy back and now his stool is super soft (like thick runny, if that makes sense) and smells really bad still.

Yesterday I noticed he had a few more bruises than normal. Yes he is a typical boy jumping and flying off everything but these bruises are really bad! They are covering his legs three on his back, one big on on his hip, little ones on his arms, and 4 bruises on the front of his head. I am afraid for any body to see him!! First thing in the morning I am taking him to his pediatrician with my list of symptoms from the time he was born. I am worried that there is a link between all of it... Can someone let me know what they think! I am a worried mommy!

Symptom recap...

born with jaundice

Anemia at 9 month old check up

Excessively drinks fluids

At 18 months had white blood count of 22,000

Dec 22 threw up once

Dec 23 Started having very foul smelling diarrhea and has lasted 1 month now

Lost 1 lb in the last month (25lbs to 24lbs)

Red, tired eyes

Loss of appetite

more irritable than usual (expected in a 23 month old... terrible twos!)

Just recently excessive bruising all over

I really need some input. The weird thing about this list of symptoms is that I have most of symptoms as well. This is why I started on soy milk.

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You must be suspecting Celiac for both of you.

Talk to the Dr. about testing, or go gluten free and see if it helps. All of the symptoms appear to be consistent with Celiac from what I have read and experienced. You are right to be concerned.

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Ask to be reffered to a ped. gastro. It is not an easy dx for Celiac and you should work with a specialist. (I would lie and say a close relative was just dx. and you need to be screened for it.) Remember tests for patients under 24 months are notoriously false negative. Do NOT start the diet, until all testing is completed!

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Your story sounds like I wrote it. I have twins that are 26 mon and we had one dx at 23 mon. All the things you said happened to us. I have the same issues myself and also am anemic. We have noticed night and day diffrences since changing her diet. To dx her we had taken her to get a second opinion with another ped dr after frequent trips to the hospital and the last 6 months of dealing with nonstop issues. who then sent us to a ped allergist who blood tested her. We started the celiac diet a few weeks before she was tested and noticed big changes within around 2 wks of the diet. Have you tried the diet? It's a tough diet to follow at thier age, especially having a twin with no celiac problems but you will notice the change if thats the problem.

we had a possitive result even on the gluten free diet.

Good luck to you both. Hope you let us know how you're doing

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Just another question here, don't mean to hijack your post :P Is jaundice typical for babies with celiac? Both my girls had jaundice. Our youngest was sent home with light therapy for it. Just curious.

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