• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Colon Spasms
0

Rate this topic

10 posts in this topic

Recommended Posts

Well all of you have given me some courage, so thanks for encouraging me to write this.

I have put off going back to college, I have given up better jobs for one reason. MY COLON SPASMS! and trust me it's not a cute little rumble, its LOUD...but more importantly it comes from my COLON and its hugely embarrasing!! I honestly hate being in a quiet room.

Well, that is my problem...

Here is what I have done, and what I plan to do. PLEASE feel free to suggest ANYTHING that will help me out.

1) Currently I take hyoscamine for the colon spasms, and trust me they have helped ALOT. (But still in the morning if I eat BEFORE taking the pills its back to the Fourth of July in my colon!) Oh, and I still have to re check if hyoscamine is GLUTEN FREE.

2) I have FORCED myself to take some college courses for the fall. (I successfully took 2 night classes which I completed last week, which gave me some confidence.) But this fall I have two classes for the MORNING which is the worst part of the day for my spasms!! ARGGHHHH!!

3) I also have just re visited a doctor and got perscribed some Celexa (obviously Im stressed about things, and hopefully that will help out.

I'm thinking of looking into OTHER medications that might help my spasms...and I was also thinking that maybe I should introduce some FIBER into my diet...I feel that when my Colon spasms its makes lOUDER noises because its EMPTY! Also, I was thinking of using some of those simethicone pills like Gas X or Phazyme? So maybe someone has any suggestions or advice on this "game plan" of mine? It would be great to hear!!

As you can tell I feel really embarrased about posting this type of post....I just honestly feel that I have dealt with SOOOOO many OTHER medical problems in my life that I just lack the strength to deal with this one.

Thanks

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


If you are going to use Gax-X, make sure you DO NOT USE the chewables.... they contain gluten. I found this out the hard way!!!!

Karen

Share this post


Link to post
Share on other sites
If you are going to use Gax-X, make sure you DO NOT USE the chewables.... they contain gluten. I found this out the hard way!!!!

Karen

Thanks!

I just wanted to add that my Dr told me I have IBS as well. (I left that off of my original post)

Share this post


Link to post
Share on other sites

I used to take hyosciamine. It sort of helped me, but not greatly. I am now taking a generic version of Librax and it seems to help more than hyosciamine did. It contains a med that makes your gut relax as well as a sedative - doesn't quite put you to sleep but helps if you are anxious about how you are feeling. GasX used to be my mainstay - I always had the worst gas pressure (not always rumbling but definitely feeling bad because of it). Now when I have gas I know I've eaten a bad thing, just have to determine which one. I keep finding GasX pills (and generics) stashed away in all my old purses and wallets. It's a reminder to me of how far I've come.

Stephanie

Share this post


Link to post
Share on other sites

How long have you been gluten free? Also are you dairy free? (sorry if you have already said) I've learned that a lot of gas in the large intestine comes from food that cannot be digested in the small intestine. That's probably why gas is a common symtom of celiac disease becasue the intestine cannot absorb certain foods due to damage in the small intestine. Maybe your intestines hasn't healed yet and a lot of undigested food is passing through or maybe you have another food intolerance. Dairy, soy, eggs and corn are also quite common. IBS medication like Modulon may help too since they reduce spasms in the intestine. I have also been diagnosed with IBS and was on Modulon for a few months. I stopped taking it becasue it stopped working (one of the drawbacks of the medication apparently) However, I don't really need it anymore anyway. Modulon is gluten-free.

Here is a good website on the causes of gas that may help you: http://www.wrongdiagnosis.com/g/gas/causes.htm

Share this post


Link to post
Share on other sites
Ads by Google:


I used to take hyosciamine. It sort of helped me, but not greatly. I am now taking a generic version of Librax and it seems to help more than hyosciamine did. It contains a med that makes your gut relax as well as a sedative - doesn't quite put you to sleep but helps if you are anxious about how you are feeling. GasX used to be my mainstay - I always had the worst gas pressure (not always rumbling but definitely feeling bad because of it). Now when I have gas I know I've eaten a bad thing, just have to determine which one. I keep finding GasX pills (and generics) stashed away in all my old purses and wallets. It's a reminder to me of how far I've come.

Stephanie

Could you tell me the name of the generic Librax? I remember years ago taking Dicyclomine as well...

I really appreciate your advice!!

Share this post


Link to post
Share on other sites
How long have you been gluten free? Also are you dairy free? (sorry if you have already said) I've learned that a lot of gas in the large intestine comes from food that cannot be digested in the small intestine. That's probably why gas is a common symtom of celiac disease becasue the intestine cannot absorb certain foods due to damage in the small intestine. Maybe your intestines hasn't healed yet and a lot of undigested food is passing through or maybe you have another food intolerance. Dairy, soy, eggs and corn are also quite common. IBS medication like Modulon may help too since they reduce spasms in the intestine. I have also been diagnosed with IBS and was on Modulon for a few months. I stopped taking it becasue it stopped working (one of the drawbacks of the medication apparently) However, I don't really need it anymore anyway. Modulon is gluten-free.

Here is a good website on the causes of gas that may help you: http://www.wrongdiagnosis.com/g/gas/causes.htm

I had symptoms since about 1988, but went undiagnosed til 1993 or so. Way back then I got tested for Dairy intolerance and it was negative, I dont think I was ever tested for soy or corn...actually back then I did go to a allergist and they did that multiple test where they stick tons of needles in your forearm and test for a bunch of stuff. All I remember was it all came back negative.

Should I have all those tests again?? Or maybe I should just eliminate soy, and corn for awhile and see how I feel? Personally I always thought that I had to live with the LOUD Colon rumbles because I assumed Celiac/IBS destroyed my villi and that was the price I had to pay. I have been diligent at getting colonoscopys and barium enemas and that other test where you drink that magnetic drink and they take a picture of your entire digestive process. And all that has checked out perfect. But my priority now is to reduce/eliminate the gas inside my Colon. So now I should investigate Modulon and that other "spasm" medication that was mentioned in the last post on this thread...

I hope im making a little sense here...Its very late and Im very tired.

but again to alll of you....thanks for your help/advice and please dont hold back on anything..

Im all ears!!

Good night for now... :D

Share this post


Link to post
Share on other sites


Ads by Google:


I also have IBS as well as gluten intolerance. My GI doc gave me a good recommendation, increase fiber. I take at least 2 Citrucel tabs or more daily. It helps both diarrhea and constipation. It has helped me immensely. The tabs are gluten-free. He said patients with IBS have more gas than the regular population. There are good books out by Heather Von Vorous who has a lot of helpful tips about IBS, she also has a web site. I always start my meals with soluble fiber, such as a banana. If you get a good start in the morning then your day will go well. If you have any questions please let me know.

If you learn to eat and live on her simple tips I think you will feel better in a few weeks. You don't have to suffer.

Share this post


Link to post
Share on other sites
Should I have all those tests again?? Or maybe I should just eliminate soy, and corn for awhile and see how I feel?

I believe that the skin prick tests only test for allergies and not intolerances, so they wouldn't pick up intolerances to other foods. I actually had them done myself before I was diagnosed to find out what was wrong with me. The test said I had problems with wheat and yeast but not barley and rye, but obviously I do since I am celiac! That's why I think they just test for allergies. So I guess I also have a wheat allergy...

Many people also develop allergies or intolerances so it may be worth to do over again. Or maybe ask your doctor if other food intolerances may be causing your problems.

Share this post


Link to post
Share on other sites

Generic for Librax is this:

5 mg chlordiazepoxide hydrochloride and 2.5 mg clidinium bromide

Your doctor must write that on the rx paper. My doctor had written my script for Librax and I asked at a few pharmacies and they said there was no generic - Librax was recently reformulated. But they said if I asked him to re-write it like above, they would fill the generic version. My pharmacist then gave me the insert for the generic drug so I could confirm it is gluten-free.

Be careful because there is a sedative in it and that can be addictive (Librium). I don't take them everyday unless it's pretty bad - I haven't taken them for more than three days in a row yet.

Stephanie

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,146
    • Total Posts
      939,917
  • Member Statistics

    • Total Members
      66,132
    • Most Online
      3,093

    Newest Member
    Whhyyy
    Joined
  • Popular Now

  • Topics

  • Posts

    • Please check the date on post, you just responded and tried talking to a person from 7 years ago. On consideration to the subject Poatoes are a huge flare factor for my UC and cause my blood sugar to sky rocket...I am not even diabetic but for some reason potatoes (hash browns) that I tried a few months ago with some eggs shot it up over 400. not even a control test with table sugar managed that.
    • Have you tried eliminating high glycemic foods? Fruits, added sugars, starchy grains, potatoes. etc? Also adding in slow digesting fibers and fats can prevent insulin spikes, MCT oil is also known to help and protein. Many find consuming nuts and seeds higher in fiber early on in the meal or before a meal can slow down insulin responses and prevent spikes. I always tend to eat a hand full of whole shell pumpkin seeds, hemp seeds, cocoa nibs, etc. while fixing my food, this gets me starting to feel fuller sooner, and seems to help in over all down the road. I know I had some references somewhere to these. I know I read somewhere about the antioxidants in in whole shell seeds like pumpkin and hemp also helped the body regulate insulin levels.
    • Dear AWOL Cast Iron Stomach, Your husband is right bread is bad for you. Of course it's more than bread and gluten, until now it was amateur hour trying to self diagnose and tame this "lion". However they let you down. You slipped through the cracks over and over again it is not your fault your not the Dr. You made mistakes and errors acting like a celiac , not knowing for sure you were, and not feeling like you could fully claim to be or reach out for support . Now you know your husband was closer than any Dr. up until now to determine your illness. Now something is in your record, now hopefully you will be dismissed less,respected more, maybe they will realize its an actual condition going on- not all in your head. Will they? Who knows! Do you care? This is now official, now explained, you not only have to give up gluten, but milk, and corn. In fact give up 98% of processed anything. The cluster of lifetime symptoms were not  "just you", "in your head", "you are not a difficult patient", "when the Dr or nurse looks at you like a nut job you don't have to feel the dismissiveness and condescension. It's an illness and nothing to be shameful of  what is shameful is they and their colleagues missed you failed you. In fact being missed for 4 decades is unjust to you. You were missed time and time again from age 5 to 43, decade after decade after decade, symptom after symptom. It's not that you didn't try from the 5 year old begging to go to the Dr, to the 20 going to the hospital again for another bout of gastroenteritis hoping to get an IV, to the thirty year old saying something is wrong why is this happening, to the forty something a restaurant fed me gluten when I asked for gluten-free, I have been gluten free for 3 1/2 years ,  I have more symptoms and pain than before . I felt so good for those gluten-free years- please help me-make it stop. So many things explained it makes you experience a range of emotions. Grateful: Relief and gratefulness someone finally agreed to send you to someone to test you. She saw past the other diagnosis' and the albatross IBS diagnosis. All the ages and stages of symptoms are explained they all fit. Everyone of them! Someone else also has had them. You are not alone. Read the forum-you fit like a glove. Anger: Anger for the way you have been treated by the medical community, family, some ex boyfriends, friends and coworkers. Anger for the length of time you endured this. Hurt: Hurt for the times people said unkind things to you when you were symptomatic or flaring . you are experiencing symptoms that change your body people are rude to congratulate you on a "pregnancy" you didn't announce or ask why you are not slim when you hardly eat. you are not over emotional -  you are suffering from neuro symptoms, you are not making this up for attention Sad & Guilty: Can I work again? Do I want to work again? What kind of work can I do now? Can I find a job and work PT from home? You didn't envision this your husband having to be sole bread winner now what? I am overwhelmed thinking about this-stop? You now have closure and know how and why you lost your first pregnancy. You now know why you were high risk, complications,  with your children in Pregnancy & Delivery that they couldn't be explained back then It explains why in pregnancy you lost weight and why your morning sickness was extreme and seemed to last longer than anyone you knew,  that your Puppp rash was likely misdiagnosed DH It is not your fault none of it. Please forgive yourself for what you did not know. Your children forgive you. Believe them when they say its not your fault. You can cry, but you can no longer blame yourself. You are a good mother just one with an illness your children will learn to accept. Withdrawn: Why are you withdrawing from your husband? Should you ask him if he wants a divorce? Should you push him away? You didn't know before marriage what was happening you knew something autoimmune was brewing shortly after, but nothing showed on tests. Was this unfair to do to him? Doesn't he deserve someone better? Someone well? Now you can't retire and travel the world as society retirement cliché dictates. Can you afford this illness ? How will this financially impact your spouse, your family?. Why did you do this to this poor man? You are so selfish, you wanted marriage and kids, but was this fair to them? Don't your kids deserve a healthier mom? How will this impact them? Oh my gosh are they going to get this too? Will they grow to resent you? Your illness and diet has taken over their lives! Oh gosh no one say hi to me-please. I hate people and I am too sick to pretend and be fake friendly today. I don't want to tell you I am ill. I don't want to talk about this. I have to absorb this. I hate you people for being healthy. Don't tell me I don't look well. I will snap, I don't want to snap, I am irritable ,and don't feel well. Just keep giving off the unapproachable vibe keep them away.  Am I strong enough to do this? Acceptance: Calm down the inflammation, lack of nutrients, and GI damage is messing with your head. Your husband said for better for worse. Your kids have no choice you are their mother and you are a good mom -you have always been, always will be even on your worst day. If they get this they will be ok. You are strong enough to do this you are just ill and most importantly you must remain here in case they get this so you can guide them and be there for them. Got it? Go on the forum you are not alone it will be ok. You will get this lion back in the cage and manage it. It will be ok. If you can't travel in retirement one day you will find other hobbies or things to occupy your time. He's not going to leave you over this. If he does it will be ok. You'll manage-you always do. You have an answer, you knew it was coming, keep reading, learning, seeking support, and one day it will all work out. You will process all this and will be at peace-until then keep going and above all AVOID GLUTEN!    
    • I know for certain gastritis  is one of the main reasons I had the scope. That and my EOE symptoms . If it wasn’t for those I would have never been diagnosed 
    • Sometimes when those chilly winds begin to blow, and the temperatures fall, the days get visibly shorter, what we need and what we want is comfort food. Well, look no further than this simple, easy twist on scalloped potatoes. A little ham and a bit of cheese work wonders to turn that old favorite into a meal all its own. View the full article
  • Upcoming Events