• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Yes Or No?
0

Rate this topic

3 posts in this topic

Recommended Posts

Like the header for the title says, my test results came back with a normal tTC IgA and a slightly elevated tTC IgG. As my labwork says, I have "none detected" niacin, almost no Vitamin D, and I'm on the "low normal" ranges of the other vitamins I was tested for. Even with a little over a week of going gluten free, the nausea that has been a constant in my life for... a really, really long time (at least 15 years) is not nearly as severe. I've been able to forgo anti-emetics a couple mornings, actually, when I would have taken it if I had still been eating gluten (I suspect). D hasn't been so bad... things have been loose, but not explosive (except the morning after I ate something without reading a label... which is when the nausea came back).

So.... I trust others who live with these diseases than I do doctors who only read about them. I haven't heard from my doc about these results, actually... They were drawn a month ago, and were expected to be in after two weeks. I called yesterday and demanded they be faxed to me. I don't know if or when I would have been notified. I am supposed to get another test and see this doctor again, but after this, I'm not sure if I want to. I have been reading more and more about the effects of B3 deficiency, and it's not pretty. The same with Vitamin D. It is a miracle that I only have very, very minor skin involvement going on right now (pellegra and DH look very similar.... perhaps a connection?), and I don't have full blown Pellagra (although I'm not so sure that I don't have delirium right now. :rolleyes: ).

Sigh... I keep hearing snippets of the Hippocratic Oath, not so much "Do no harm", though that if you follow that, then providing prevention should be no question, because prevention of a disease is far superior than a cure for a disease (or something like that).

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It can take a while to heal and the fact the nausea is getting better is a good sign. False negatives are not uncommon so go with how you feel after a couple months on the diet strictly. Hopefully you are supplementing with good gluten free vitamins to help the deficiencies. It is a good idea to avoid dairy and soy for a bit until you are well healed and make sure you do all you need to do to avoid cross contamination. Change your toaster, cutting boards, replace scratched pans and don't bake with flour for others. Take it easy with gluten free replacement foods for a bit and go with whole unprocessed naturally gluten free stuff instead. Hang in there it and hopefully you will be feeling better soon.

Share this post


Link to post
Share on other sites

Like the header for the title says, my test results came back with a normal tTC IgA and a slightly elevated tTC IgG. As my labwork says, I have "none detected" niacin, almost no Vitamin D, and I'm on the "low normal" ranges of the other vitamins I was tested for. Even with a little over a week of going gluten free, the nausea that has been a constant in my life for... a really, really long time (at least 15 years) is not nearly as severe. I've been able to forgo anti-emetics a couple mornings, actually, when I would have taken it if I had still been eating gluten (I suspect). D hasn't been so bad... things have been loose, but not explosive (except the morning after I ate something without reading a label... which is when the nausea came back).

So.... I trust others who live with these diseases than I do doctors who only read about them. I haven't heard from my doc about these results, actually... They were drawn a month ago, and were expected to be in after two weeks. I called yesterday and demanded they be faxed to me. I don't know if or when I would have been notified. I am supposed to get another test and see this doctor again, but after this, I'm not sure if I want to. I have been reading more and more about the effects of B3 deficiency, and it's not pretty. The same with Vitamin D. It is a miracle that I only have very, very minor skin involvement going on right now (pellegra and DH look very similar.... perhaps a connection?), and I don't have full blown Pellagra (although I'm not so sure that I don't have delirium right now. :rolleyes: ).

Sigh... I keep hearing snippets of the Hippocratic Oath, not so much "Do no harm", though that if you follow that, then providing prevention should be no question, because prevention of a disease is far superior than a cure for a disease (or something like that).

my ttg iga & igg were both "weak positive". and my antigliadin were negative. but my endomysial was positive, and 2 yrs after those tests- i got DH, Hashimoto's and Graves.... so dont necessarily be fooled by your WEAK elevated numbers...

what about the antigliadin & endomysial antibodies? and you might as well get a Total Iga Serum test too.

this disease can be very sneaky- you'll want to see all pieces to the puzzle

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,134
    • Total Posts
      939,847
  • Member Statistics

    • Total Members
      66,115
    • Most Online
      3,093

    Newest Member
    ElenaM
    Joined
  • Popular Now

  • Topics

  • Posts

    • Please help,  I am 30.All my life from childhood I had upset stomach pain and cramps.As a child was frequently treated for giardia and still had cramps.As a child so strange I had bumps with water on skin.Not redness nothing else.Just bumps filled with water all over my body.Later I never had these.But in my early teens I started with fatigue anxiety.Then extreme fatigue.Hair fallen.Eyebrow loss over a few years to nonexistent eyebrow.Always low iron even with supplementing.Low vitamin D3.Low calcium and magnesium.Gastrointestinal for a few months now I have cramps daily.Diarheea almost daily.Treated for parasites and giradia.nothing changed. OTHER symptoms.  Bone pain.Spinal pain.Headache.Eye floaters.Done MRI and eye exams nothing all clear Low iron again at blood work. Low exercise tolerance. So bloated I seem like pregnant in 9 months even !!!if i lost weight the last three months Itchiness all over body but no bumps just redness Itchiness extreme on the scalp. Petechiae small red spots all over my body this is for years now. Tried gluten free even though in my country very hard to keep up with this. Only for few days then gave up and tried again and so on. Did some blood work but only 2 antobodies and not IGa and Igg judt one of them.Negative.this was two years ago. I don't know what to do. Oh and mouth ulcers. And have gas i am afraid because i can hardly control because i am extremely bloated. I am desperate. Thanks.  
    • I know this thread is very very old, but I want to suggest one thing to tired people. Get a sleep study. Sleep apnea is something that can cause you to be very tired, and it can kill you. A sleep study is super easy and the cost of an office visit copay. It's easy to treat with cpap and it's amazing how much better you feel.
    • Hi Monica I hope you are feeling better now.  In any case, your post made me think of something I have been reading about lately - Dr. Satsha Gominak's work. It connects sleep disorders and body aching. She corrects it by tightly controlling the levels of vit. D and B complex. Be aware that this can be caused not only by too little panthotenic acid, but also too HIGH panthotenic acid supplementation. And we celiacs sometimes rely too much on our suplemments.. I am guilty too.  Unfortunately, she is not the most straightforward speaker but her work is very eye opening. Please look into it.   
    • Always carry lots of gluten-free snacks whenever you travel, on the flight and elsewhere. Sometimes you are hungry and need something right away and it's too hard to find a place to accommodate ! I always packed one suitcase of food, which also included non gluten-free snacks for my 3 boys. We are always very thrifty, lol.
    • You may want to keep a food and symptom journal. Our reactions can be delayed and that can make it hard to pinpoint what 'got' us. A journal can help you see a pattern and help us figure it out. Enjoy that pudding.
  • Upcoming Events