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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gallbladder Malfunctioning/inertia
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4 posts in this topic

I had to have my gallbladder removed because it was malfunctioning. It was not contracting to squeeze out bile. My ejection rate was only 8% based on the Hida scan. I am just wondering how many others have had this problem (not stones). I have found several links to this same issue as a symptom or seeming result of years of untreated Celiac disease.

I was given a blood test for Celiac. I don't think it was the full panel, but I had already been gluten-free for 5 days before the test. I had such great results from the diet that I decided to decline further testing with the agreement from my PCP after a negative result. He said I obviously have a problem with gluten otherwise I'd have not gotten such a positive result from the diet, which I had decided to try before seeing him because I was so sick and hardly eating anything. I was desperate for food. And I wanted to go to him with some sort of information since all my symptoms sounded like Celiac.

So, just wondering how common the gallbladder malfunctioning issue is with Celiacs.

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I read a study that untreated Celiacs have at least a 30% connection to non-functioning gallbladder.

I was about 7 years gluten free and still had to have my gallbladder removed last year.

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My gallbladder was taken out almost 5 years ago in October of 2006 at age 20. I, too, had no stones, but I had symptoms since I was at least 15 years old (throwing up constantly and horrible stomach pain... although that could have been from eating gluten my whole life at that time). However, according to all of the GI doctors I saw from age 15-20, I was suffering from an immense amount of stress, so much that my body actually created my symptoms. :unsure::(:blink: Riiiight!

They found no stones in the multiple ultrasounds and CT scans and MRIs they ran at the time. No doctor thought to see how my gallbladder actually WORKED, they were too busy looking for structure issues (like stones blocking up ducts). Finally, after 5 years of HELL, one doctor decides to order a HIDA scan (I don't know the functioning level, but it's enough for him to immediately say I need to have it removed). It's, unfortunately, the same GI who now keeps stating emphatically that I have IBS and Barrett's esophagus, and refuses to check for celiac, even though I have EDS, which makes me a higher risk. Oh well, I just have heard of another GI in my area, who isn't in the same office as her, who is speaking at my local area's upcoming gluten-free vendor's fair, and he's in-network on my insurance.

I am not sure how long that I've been sick, but I do remember having stomach aches that made my mom take me to the doctor when I was 7 or 8 years old... it must have been long enough to take out my gallbladder, at least...

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I also have no stones but a suboptimal functioning gallbladder that was found last year. However, my ejection fraction was above the 35% that they want to even consider surgery. I also was having some celiac related problems also. I feel I have corrected the gluten issues but all of the sudden since Saturday I bloated up, was belching a lot and started with the D and having the pale, foul greasy stools. I do not think I got CC so I'm thinking my gallbladder is acting up again. I'm going to have the tests done again to see how it is doing. I had to start taking my creon again (been off since Nov.) to manage it. I'm back to eating fat free and it is slowly helping, but I can't go on like this forever, it's not going to get better only worse. I think the hidden gluten issues I had last year contributed to it getting worse.

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    • Caro..............monitoring only the TSH to gauge thyroid function is what endo's do who don' t do a good job of managing thyroid disease.  They should do the full panel and check the actual thyroid hormone numbers.........T3 and T4. The importance of the TSH comes second to hormone levels. In order to track how severely the thyroid is under attack, you need to track antibody levels.......not the TSH. I did not stay with endocrinologists because I found they did not do a very good job and found much greater help and results with a functional medicine MD.  You should not have a goiter if your thyroid is functioning well and your TSH is "normal".  Maybe they should do a full panel? Going gluten free can have a profound affect for the better on thyroid function and that is something that is becoming more and more accepted today.  Ask most people with Celiac and thyroid disease and they will tell you that. My thyroid never functioned well or was under control under after I discovered I had Celiac and went gluten free.  It was the only way I got my antibody numbers back down close to normal and they were around 1200 when it was diagnosed with Celiac.  I was diagnosed with Hashi's long before the Celiac diagnosis.  I am not sure Vitamin D has anything to do with thyroid antibodies but who knows?  Maybe it does have an affect for the better. It is really hard to get Vitmain D levels up, depending on where you live. Mine are going up, slowly, even after 12 years gluten-free but I live in the Northeast in the US and we don't have sun levels like they do in the South.  I take 5,000 IU daily and that is a safe level to take, believe it or not.  I get no sun on my job so the large dose it is! Having Celiac Disease should not stop you from being able to travel, especially S. America. I travel, although I do agree that some countries might be very difficult to be gluten free in. You can be a foodie and travel with Celiac so no worries on that front. You may not be able to sample from someone else's plate, unless they are eating gluten-free too but I have had awesome experiences with food when traveling so you can too!
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    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
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