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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

False Positive?
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My daughter has been diagnosed with Lactose Intolerance and Irritable Bowel Syndrom. These are both symptoms of Celiac. She had the blood test and it came back as a false positive. This means the IGG were irregular but the IGA and IGE were negative. Does anyone know exactly what this means. The doctor said it means she does not have celiac. Could he be wrong? Any information you can give me would be helpful.

Thank you

Robin

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well, I guess you could call it inconclusive, but until you can otherwise verify that she's not celiac, you can't call it a false positive. celiac is NOT an IgE mediated response (from my understanding it can also cause an IgE response due to inflammation, but that's not the primary mechanism) (that's a "classic" allergy), and if he didn't do a total IgA count, a low IgA reading doesn't really tell you anything. The fact that the IgG was elevated suggests that she _could_ be positive. Based on a single raised IgG, my doc had me do a dietary test (which turned out positive).

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Guest jhmom

Hi Robin- Welcome :)

In my opinion blood test are not conclusive or accurate. I suffered for over a year with the classic Celiac symptoms including losing 40lbs in 2 months and my doc still thought I had IBS. I had an endoscopy, which showed patchy inflammation and he STILL thought it was IBS because my blood-work came back negative! The docs think they have to see everything in black and white and when they don't they quickly dismiss celiac disease. Of course there are other docs who think celiac disease is so rare and they his/her patient couldn't possibly have it!!!

I finally decided to order the stool panel tests from Enterolab and received positive results and immediately began a gluten-free diet! This particular stool test is more sensitive than blood and you do not have to be on gluten for it to be accurate. I could tell a difference in the way I felt within days and very thankful that I took this route and do not have to live in pain on a daily basis!

Good luck to you and your daughter, I hope she feels better soon! :D

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