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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Ended Up In Hospital Last Night Due To Eating Gluten After Being Gluten Free For 4 Weeks

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I am not diagnosed with anything at this point and I am 24 weeks pregnant and after talking to some of the wonderful people on this site I decided to go gluten free so that I didn't harm the baby. I have a history of connective tissue disorder (not sure which one)GORD, I have dramatic weight loss, my mother is Celiac my grandfather was diagnosed with bowel cancer at 48yrs and both my kids have bad GI issues but noone can figure our what is wrong.

I planned on doing a gluten challenge after the baby was born and then getting the Endoscopy.

Anyhow - last night I went out to a lovely restuarant and after being gluten free for about a month I ate gluten. About 30 minutes after I finished eating my meal I felt awful. I basically ended up vomiting my guts up and then this agonising pain that comes and goes and feels colicky in my stomach started -above the belly button in the middle. Its similar to labour in a way as in the pain builds and then peaks and then subsides over and over. It feels like a vice has got my intestines and is squeezing them. Anyhow - I rang labour ward and told them and they told me to come in to be checked that it wasn't pregnancy related.

The pain is so intense that I can't breath and am curled up in the fetal position crying. It lasts for around 2 hours. Does that sound like it could be gluten - it just seems so full on.

If that is gluten then there is no way in hell I can every go through a gluten challenge and feel like that again. I have had it about 4 times in 18 months.

Does anyone else have similar symptoms.

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Sure can relate. Although I don't vomit the pain you describe is quite familiar with a glutening. It comes for me in intesifying waves that are strong enough to break me out in a sweat and make me feel like I am going to faint. When the D hits me it last painfully for hours, usually about 5 to 7, and is accompanied by bleeding that continues for another 3 days, mildly. What you did was an accidental challenge, be sure to report the results to your doctor if they want you to do one on purpose for any reason. You now know you definately don't want to have gluten in your system. I hope you are feeling better today. Eat very blandly when you feel up to eating. For me Cream of Buckwheat cereal helps soothe my stomach and it has a fairly good amount of easily digestable protein as well as some carbs.

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I am not diagnosed with anything at this point and I am 24 weeks pregnant and after talking to some of the wonderful people on this site I decided to go gluten free so that I didn't harm the baby. I have a history of connective tissue disorder (not sure which one)GORD, I have dramatic weight loss, my mother is Celiac my grandfather was diagnosed with bowel cancer at 48yrs and both my kids have bad GI issues but noone can figure our what is wrong.

I planned on doing a gluten challenge after the baby was born and then getting the Endoscopy.

Anyhow - last night I went out to a lovely restuarant and after being gluten free for about a month I ate gluten. About 30 minutes after I finished eating my meal I felt awful. I basically ended up vomiting my guts up and then this agonising pain that comes and goes and feels colicky in my stomach started -above the belly button in the middle. Its similar to labour in a way as in the pain builds and then peaks and then subsides over and over. It feels like a vice has got my intestines and is squeezing them. Anyhow - I rang labour ward and told them and they told me to come in to be checked that it wasn't pregnancy related.

The pain is so intense that I can't breath and am curled up in the fetal position crying. It lasts for around 2 hours. Does that sound like it could be gluten - it just seems so full on.

If that is gluten then there is no way in hell I can every go through a gluten challenge and feel like that again. I have had it about 4 times in 18 months.

Does anyone else have similar symptoms.

I don't vomit, but I do get the intense waves of pain. It feels as you discribed " a vice has got my intestines and is squeezing" depending on how much I was CC or glutened, it last for two-three days for me. Yes, I can end up in a fetal position crying too! I also have brain fog and a headache. I don't get D until it's almost over.

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While that can certainly be a celiac response, since you are pregnant, it REALLY is important to rule out that it is not preterm labor. Please do go in to your doctor (or the ER, whichever is more appropriate now), and get evaluated. I'm not a fan of a lot of intereference in a pregnancy, but this is a good case for some!

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Yes...to a "T". Had it last night. I get nauseated but dont vomit. Last time a few months ago i almost ended in ER. It was coming out both ends, my body temp escalated to the point i had to take my clothes off, the pain was riveting, couldnt breath. I seriusly thought I was going to die. My chest hurt like nothing else as if i was in a full body vice being squeezed. This was after I ate a new product that states gluten free but is processed in a facility that also produces products with wheat...Thai Kitchen Rice.

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Oh yeah - I went straight to the hospital to make sure it wasn't pre term labour. They said whatever it was it was not that.

Please don't take this the wrong way- but I am glad I am not the only one. This gluten stuff is so full on confusing and hard to diagnose. Drives me insane!

Thanks for your replies.

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Oh yeah - I went straight to the hospital to make sure it wasn't pre term labour. They said whatever it was it was not that.

Please don't take this the wrong way- but I am glad I am not the only one. This gluten stuff is so full on confusing and hard to diagnose. Drives me insane!

Thanks for your replies.

Glad to hear you got checked out and I hope your feeling better today.

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My daughter's stomach pain is intense and she'll have her knees to her tummy. Glad it wasn't pregnancy related however feeling terrible on top of being pregnant is surely no fun. Hope you feel better soon.

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Sure can relate. Although I don't vomit the pain you describe is quite familiar with a glutening. It comes for me in intesifying waves that are strong enough to break me out in a sweat and make me feel like I am going to faint. When the D hits me it last painfully for hours, usually about 5 to 7, and is accompanied by bleeding that continues for another 3 days, mildly. What you did was an accidental challenge, be sure to report the results to your doctor if they want you to do one on purpose for any reason. You now know you definately don't want to have gluten in your system. I hope you are feeling better today. Eat very blandly when you feel up to eating. For me Cream of Buckwheat cereal helps soothe my stomach and it has a fairly good amount of easily digestable protein as well as some carbs.

Okay - I am in a big dilemma here. Because they do want to do an endo. It was put off because of my pregnancy - but by the time I give birth and am well enough I will have been gluten free for 6 months - thats long enough for a negative to show even if there was damage isn't it?

There are a couple of reasons they want to do it - they think that my esophagus may be damaged due to my Severe GERD, I get ulcers alot, Obviously the celiac thing as well, also my two kids are sick - they both handendoscopies recently my 4 year old has gastritis with no obvious cause, he also has malabsorption symptoms for over a year - he was neg for celiac. My 18 month old has GERD, Eosophagus ulcers, Gastritis, Duedonitis, haven't recieved the rest of the results yet (get them tomorrow) though I wouldn't be surprised if he was neg for celiac. Anyhow their Paed GI wants to see if anything shows up on my endo - because basically he has no idea what is going on with my boys - and he is one of the top celiac specialists in the city.

So this is my dilemma - I know I cannot go through a gluten challenge if I get that sick - I will have 4 kids to look after soon - so,should I

a) Get an endo now - whilst pregnant (it has been mentioned) before I have a chance to heal (assuming that it could be celiac)

b)or get one after the baby comes- without a gluten challenge - but then - whats the point you know?

Arrghhh!!

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Your in a tough spot. How are you feeling on the diet? Is it helping? Blood work and biopsies both have high rates of false negatives so you need to keep that in mind. If you stay on the diet and it takes care of the problems you are having that is really an answer in itself. Kids have an even higher rate of false negatives than adults, when you are done with all testing for them that is celiac related there is no reason not to try the diet with them and see if it helps.

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Yeah - there is absolutely a difference on the diet.

I think I am just going to go gluten free and forget about the endo- gluten hurts too much!

Thanks for your help!

Your in a tough spot. How are you feeling on the diet? Is it helping? Blood work and biopsies both have high rates of false negatives so you need to keep that in mind. If you stay on the diet and it takes care of the problems you are having that is really an answer in itself. Kids have an even higher rate of false negatives than adults, when you are done with all testing for them that is celiac related there is no reason not to try the diet with them and see if it helps.

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:D Your tummy is not going to know whether you have that piece of paper or not.
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:D Your tummy is not going to know whether you have that piece of paper or not.

I know :lol:

I guess I just thought it might help my kids get a diag of something.

I had my 18 month old results back today. Non diagnostic from a celiac point of view - but he does have increased

lymphoplasmacytic lamina propria inflammation in the villi - which the Paed GI said can happen in Celiac before the Villi gets damaged? He also had GERD, Eosophagitis, Gastritis and duedonitis plus ulcers in is Esophagus. Poor little man - GI dr suggested going gluten free for him as we have nothing to lose at this point!

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If I were you, I'd stay gluten-free until the baby is born. Then you can talk to your doctor about a gluten-challenge when your body isn't under quite so much stress, and you can do it with everyone knowing what you're up to and what you're doing, just in case things go horrible bad.

Provided you're gluten-free, I don't see that there is a hurry to diagnose celiacs just yet. Just my take on things, but that's what I'd do. FWIW I broke my foot in pregnancy and had to hobble around until the baby was born so I could have an x-ray! The things we mothers do for our kids!

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I won't be doing a gluten challenge - I am too scared to eat gluten agian ;)

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