• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
littlekimmie

Are Sympoms Worse After Not Ingesting Gluten And Then Ingesting It?

Rate this topic

Recommended Posts

I've been a celiac for almost a year now and have been scared to ingest any gluten . Not only because of the symptoms but also because of the long term effects. I havent intentionally ingested gluten this whole time. I think I have experienced the cross contamination tho. But never intentionally ate gluten . What will happen if I do eat a fair amount ? Will my symptoms freak out ?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I had 100's of symptoms when I was ingesting gluten but one of them was NOT vomiting. I got glutened off of a supposidly gluten free menu at a restaurant and half way through the meal I had to run to the bathroom to throw up. I have heard others say the symptoms are worse once you rid your body of gluten too.

Share this post


Link to post
Share on other sites

For me the effects are much worse with heavy accidental injestion than before I went gluten free. My intestines never bled before I went gluten free but now if I accidentally get a good dose of it I bleed for days. I am very careful with my diet for that reason.

Is something tempting you to 'cheat'? If so please post what you are craving in either the coping or food section and chances are someone can give you a good gluten free alternative.

Share this post


Link to post
Share on other sites

I had 100's of symptoms when I was ingesting gluten but one of them was NOT vomiting. I got glutened off of a supposidly gluten free menu at a restaurant and half way through the meal I had to run to the bathroom to throw up. I have heard others say the symptoms are worse once you rid your body of gluten too.

I had a feeling that the symptoms might get worse after not exposing your body to gluten . I was just hopping they didnt. Vomiting has never been a symptom of mine eather , but ive only been a celiac for a year. do you mind if i ask how long it took your body to heal ?

Share this post


Link to post
Share on other sites

I was hopping that the symptoms would get easier, but it makes sence that the body would react more drastically after not being exposed for so long.ive never experienced vomiting but i do experiance severe nausea and cant keep my eyes focused almost every time ive been glutened.I know within 15 minutes if ive had any gluten. but it has always been small amounts accidentally. I havent had cravings yet. yeah i miss some things but knowing if i eat it my health will be damaged helps me say no. But thank you id love some new recipies.i havent got very many since im a newbie. id love to hear about both of your experiences as celiacs if you wouldnt mind sharing.Im the only celiac in my family and dont know a whole lot about it.thankyou so much for your comments :)

Share this post


Link to post
Share on other sites
Ads by Google:


But thank you id love some new recipies.i havent got very many since im a newbie.

Have you checked the Gluten-Free Recipes - Baking & Cooking Tips section of the forum? Or you can post your question there as to what kind of recipes you're looking for.

Share this post


Link to post
Share on other sites

I had a feeling that the symptoms might get worse after not exposing your body to gluten . I was just hopping they didnt. Vomiting has never been a symptom of mine eather , but ive only been a celiac for a year. do you mind if i ask how long it took your body to heal ?

Oh, i have only been gluten free for about six weeks and this incident was two weeks ago. I am not completely healed yet.

Share this post


Link to post
Share on other sites

I'm new to this whole Celiac Disease, but I am amazed at how helpful all you people are....... reading and learning about this has helped me keep my sanity Thank you,Thank you Thank you

Share this post


Link to post
Share on other sites

I was wondering the same thing! I went gluten free for the first time recently. I went for about two weeks. I grabbed a bite of popcorn from the movie theater thinking that it would be safe. Not long after my throat felt kinda like it was tighter... Not like an allergy...just felt weird. Within an hour or so my stomach bloated up like crazy/hurt. It felt like there was a bowling ball in my belly. And THEN later on that night my boyfriend saw that I had this weird rash all over my back!! Ive never had that symptom before! So I looked up info on the popcorn. It said that some popcorn salts/butters might contain gluten through means such as artificial flavorings etc. Anyhoo...the rash thing was new and thats why I was wondering if my body was freaking out more than normal because it was used to being gluten free.

Share this post


Link to post
Share on other sites


Ads by Google:


I was wondering the same thing! I went gluten free for the first time recently. I went for about two weeks. I grabbed a bite of popcorn from the movie theater thinking that it would be safe. Not long after my throat felt kinda like it was tighter... Not like an allergy...just felt weird. Within an hour or so my stomach bloated up like crazy/hurt. It felt like there was a bowling ball in my belly. And THEN later on that night my boyfriend saw that I had this weird rash all over my back!! Ive never had that symptom before! So I looked up info on the popcorn. It said that some popcorn salts/butters might contain gluten through means such as artificial flavorings etc. Anyhoo...the rash thing was new and thats why I was wondering if my body was freaking out more than normal because it was used to being gluten free.

Actually, most, if not all movie theater popcorn and fake butter is gluten-free. What's in the fake butter might be scary.

http://www.glutenfreeliving.com/Upload/plate-vol9-1

Also, in the US you can't " hide" wheat. It must be declared in the ingredients. It's really not that sneaky.

Share this post


Link to post
Share on other sites

Actually, most, if not all movie theater popcorn and fake butter is gluten-free. What's in the fake butter might be scary.

http://www.glutenfre...ad/plate-vol9-1

Also, in the US you can't " hide" wheat. It must be declared in the ingredients. It's really not that sneaky.

Yeah Ive read most is safe. I was at a non-chain movie theater so i'm wondering what they used on it. After the reaction I saw lots of sites saying the flavorings etc could be a problem. Im not sure since im still new to this but thats the only thing I ate at the time. So now i'm scared of trying out the mom and pop places, lol. I guess I should stick to Cinemark.

Share this post


Link to post
Share on other sites

Yes your symptoms can get worse.

In fact, I recall reading a thread just the other day on the forum that had a link to an abstract to a paper. The thread was about wishing some treatment used on mice were available for people to use, since the results were promising.

When I read the abstract, I was actually more surprised about how they got gluten sensitive mice to use for the study. They bred 3 generations of mice that didn't eat any gluten...

Share this post


Link to post
Share on other sites

I'm new to this whole Celiac Disease, but I am amazed at how helpful all you people are....... reading and learning about this has helped me keep my sanity Thank you,Thank you Thank you

May I just "ditto" this message? :)

Share this post


Link to post
Share on other sites

dumbfounded and Wendy Lee

I could not agree more. I was just diagnosed with Celiac, Dermatitis Hepetiformis and Hashimoto's all within the last 7 weeks. My Dr gave me a list of resources and this forum was on it. I am so grateful. Aside from one friend, who now lives in another state, I knew no one with Celiac. The people here have given me so much information, hope and inspiration. I can't imagine what it would have been like to have Celiac disease 20 years ago with no gluten-free products to speak of, no support groups and no Internet to access it all!

The whole lifestyle change is tough enough but going it alone would be terrifying. Thank you all from the bottom of my achy, itchy, depressed but hopeful heart!!!!!!!

Share this post


Link to post
Share on other sites

ravenwood,

Do you mind me asking how you know if you are having intestinal bleeds in your small intestine? How scary for you.

Share this post


Link to post
Share on other sites

ravenwood,

Do you mind me asking how you know if you are having intestinal bleeds in your small intestine? How scary for you.

I'm not ravenwood, but I get internal bleeding from gluten too.. basically when you go to the bathroom there's blood. For me, a pretty significant amount (sorry TMI). Or you can have blood showing up in your stool, it makes your stool look black & 'tarry'.

Before I was diagnosed I lived exclusively on gluten, not even kidding. I couldn't get enough. I had lots of symptoms, but none immediately after eating. Now, since I have been gluten free I have the same symptoms when I eat gluten, but much more intense & symptoms I haven't had before, too. I can tell halfway through the meal if there is any gluten in it. In a way I've come to look at it as a good thing; at least I know right away.

Share this post


Link to post
Share on other sites

That is interesting. My understanding was the bleeding was a sign that the issue is not celiac but something else like crohns.

Share this post


Link to post
Share on other sites

I was wondering the exact same thing and was about to post before I saw this thread. I was gluten-free for a little over two weeks as a "home test," and had to start eating gluten again (for medical testing purposes) beginning last Friday. I am so much more miserable now than I recall being before. I know I was already reaping the benefits of increased energy, no bloating/pain/nausea, etc. when I was off gluten, so there's definitely the comparative aspect (knowing the difference between feeling great/feeling bleh)... but I think, even taking that component out, that symptoms after re-glutening are more intense and misery-making. Mine seem to be, anyway.

Share this post


Link to post
Share on other sites

for me at least symptoms are more severe when keeping to the diet strict and then cheating. still not eating gluten feels like a much better choice to me.

Share this post


Link to post
Share on other sites


Ads by Google:


It will completely depend on your own body. Mine tends to freak out when I have large amounts of gluten and I get very severe joint paint with a mirgraine but it doesn't always come with a stomach ache. The joint pain is a new phenomena for me as I usually have IBS and other stomach problems.

It might take days/weeks for your body to heal completely after ingesting gluten.

Rebecca

Share this post


Link to post
Share on other sites

I was wondering the same thing! I went gluten free for the first time recently. I went for about two weeks. I grabbed a bite of popcorn from the movie theater thinking that it would be safe. Not long after my throat felt kinda like it was tighter... Not like an allergy...just felt weird. Within an hour or so my stomach bloated up like crazy/hurt. It felt like there was a bowling ball in my belly. And THEN later on that night my boyfriend saw that I had this weird rash all over my back!! Ive never had that symptom before! So I looked up info on the popcorn. It said that some popcorn salts/butters might contain gluten through means such as artificial flavorings etc. Anyhoo...the rash thing was new and thats why I was wondering if my body was freaking out more than normal because it was used to being gluten free.

I am new to the gluten free diet, and still trying to figure out exactly what is wrong with me. I have started a gluten free diet as a trial, and after going completely gluten free for two weeks I accidentally ingested some gluten in a rotisserie chicken. I had the same throat problem as you! I thought I was crazy! It felt like I had something stuck in my throat. And my stomach got really distended like I was 3 months pregnant, cramped like crazy, and I thought for sure I was going to throw up. It's reassuring to read that I am not the only one going through this

Share this post


Link to post
Share on other sites

I know everyone's body is diffrent but for me my symptoms are more severe the longer it has been between accidental ingestion. This last time was extremely painful. I had all of my normal symptoms of gluten ingestion- too many to list- but this time in addition to my usual post gluten kidney infection i now have an outbreak of shingles. So to me it's not worth the few moments of guilty pleasure.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,947
    • Total Posts
      943,634
  • Member Statistics

    • Total Members
      67,295
    • Most Online
      3,093

    Newest Member
    Kristenmc33
    Joined
  • Popular Now

  • Topics

  • Posts

    • It sounds like your hives resolved.  I had a six month bout with them.  Antihistamines really helped.  My doctors are not sure if Mast Cell or autoimmune is the root cause.  
    • My kid has Raynauds.  It freaks her classmates out.  She wears shoes and wool socks all year round and we live in a warm state.  It is autoimmune.  She manages it by layering, turning up the heat, use lots of blanket throws.   I have Hashimoto’s and celiac disease.  So, having multiple autoimmune issues is common.  
    • Well, you do need to replace some things because they are too porous or damaged to remove gluten.  Things like old wooden spoons, scratched non-stick pans, toaster, colander, sponges, etc.  Honestly, the list is long, so try getting a few celiac books at the library or Amazon.  Consider reading through the Newbie 101 thread under the “Coping section”.    You should see some minor improvement soon.  It does take time to heal.  Most  around here will say it takes a year!  
    •   When I woke up from my Endoscopy and was told I definitely had celiac disease the first thing I asked my doctor was do I need to get all new kitchen stuff? He assured me that I did not, and as long as my pots and pans and everything else was washed after being used to cook gluten I would have no problems. Well, I'm 10 weeks into my gluten-free diet and still feeling crappy as ever.  I have not been eating out unless the restaurant is 100% gluten-free (I'm lucky there are several near me).  I am very careful that everything I use to cook my food is thoroughly cleaned at home, but is this really enough?  Did you guys need to replace most kitchenware in order really avoid being cross contaminated?   I'm curious to get some opinions before I spend a bunch of money on new/separate stuff.  Thanks!  
    • They have all given you good advice. Like Ennis_Tx said this is not medical advice. Just some observations. Ennis_Tx mentioned already a good B-complex. But people who have Perncious Anemia low B-12 have "Pens and Needles' feeling in their extremities. Mine was much more pronounced when sleeping. . . while sleeping my nerve ending would go to sleep. This would wake me from my sleep.  I would shake them awake/loose much like a leg that had fallen asleep while awake.  We have all felt that feeling before except the whole side of body's nerve ending would tingle/fall asleep enough to wake me from my sleep. Once taking a homocysteine tablet (B6,b12 and folic acid) tablet call FABB for the abbreviated ingredients under doctor's supervision this "pens and needles' went away. This also happened in my finger and toe tips while awake as if I had pinched a nerve in my back. These sensations are now in remission. Also if you think it is Rynaud's then try Niacin or Niacinamide.  It is a natural vasodialotor and the 'warm sensation" people take when using Niacin especially in a work out supplement is Niacin they add to enhance athletic performance for body builders.. . . because this opens capillaries approx. 10 % more allowing more air into the muscles thus improving their work out. This flushing goes away after a couple days of using Niacin.  The Niacinamide form does not flush the way the Niacin form does but provides the same benefit. Both Niacinamide and Magnesium each lower blood pressure approx. 10% each this way.  But if BP is a real problem for you  take the Homocysteine tablet mentioned above or just Folic Acid by itself. My BP is now normal after taking Folic Acid because it controls' how/what triggers constriction in our blood vessels thus effectively controlling BP. These are some times that I have used to improve my circulation. *** again this is not medical advice just things that have helped me with similar issues.  I hope this is helpful. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
  • Upcoming Events