This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
This paper from 2015 suggests the opposite is true:
High Proportions of People With Nonceliac Wheat Sensitivity Have Autoimmune Disease or Antinuclear Antibodies.
Of course correlation does not equal causation, but it is compelling and something worth watching.
Thanks Matt again
My Doctor just moved away so i dont even have a doctor at the moment, thats why its so hard, ill pretty much be going to some random doctor who doesnt know me at all and asking for a celiac test, hopefully i pick a good one
ps you can have the ashes for being helpful
Hello and welcome
It can be scary and there's definitely a mental side to dealing with this which is at least as important as the physical. If available to you consider seeking out some counselling to help you process this. It was really useful for me, as were the people on this forum which is a great resource which you should use as much as you need to.
And, easy to say, try to be optimistic!
It may be that you've solved a huge health puzzle whilst you're still young and have lots of great years ahead of you, years which will be so much more enjoyable gluten free. Time will help you learn the diet and what at first seems impossible will become the new normal to the point where you won't have to think too much about it. We are an adaptable species and however hard it seems at the outset you will adapt and you will feel better.
Best of luck!
Long time since I lived down under but I'll give it a shot pending any Aussie members replying...
Your naturopath has helped you and put you on what sounds like the right track, but now consider that you may be better off with a conventional doctor for the testing process.
Be wary of food intolerance tests. They are notoriously inaccurate and as you've found expensive. The first priority is to get a celiac diagnosis/exclusion, you can proceed better from there.
The tests to request are:
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA
Some practices will only test one. Request a 'full celiac panel'.
Before you see the doctor make some concise notes / bullet points that detail:
Your past medical history
Your positive initial reaction to the gluten diet
Your wish now to seek a medical diagnosis and willingness to comply with any requirements
That should be sufficient for a doctor to request a test.
No! Your naturopath doesn't know what they're talking about if they're talking about the accepted celiac tests. You'll need to do 8-12 weeks eating gluten to ensure an accurate test. Otherwise you're throwing money away.
A local doctor should be able to request the tests so if you have one you're happy with try there. Alternatively you can search to see if anyone within a reasonable distance is listed maybe with Coeliac Australia or via some of the links here https://www.healthdirect.gov.au/coeliac-disease
Again, *good luck with it all and keep asking questions, this place was very helpful to me and I'm sure it will prove so to you also.
*ps But bad luck in the Ashes to compensate
I have Hashimoto's Thyroiditis, but my Mom has Graves. I have been both hyper and hypo. Had crazy swings for a while while going through menopause and being undiagnosed with celiac disease. My thyroid calmed down on the gluten-free diet. My enlargement and nodules went as well. Not sure if it was the gluten-free diet or simply reducing my immune response (inflammation) by addressing celiac disease. Does that make sense?
In the meantime, you might consider eliminating most dairy. Celiacs tend to be lactose intolerant --- at least temporarily unless you are genetically predisposed (as are some huge chunk of the world's population). It could bring you some relief while you complete testing. You might however, be one of the lucky celiacs who can eat all the dairy they want! Throw in some veggies and some healthy fats to help off set your weigh loss. Your body is probably starving for nutrients right now, so make every bite count.