• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Do You Miss?
0

79 posts in this topic

I miss those Nilla wafers to use in some good, old-fashioned banana pudding.

I miss Krystal's hamburgers.

Oreos.

Tiramisu was my restaurant dessert of choice.

AND I miss the convenience - even of just bringing something to a potluck and being able to eat any leftovers. Now, though I like being able to share something delicious and gluten-free, the sheer injustice of bringing something that I cannot partake in once people's glutened hands and plates start hovering over it pricks something deep inside me sometimes. Not fair.

The whole idea of potluck is sharing. Not getting that give AND receive feeling. Not getting to compliment someone on their cake recipe - or their sausage balls. I had to leave for a moment or two in the bathroom in tears at my first Christmas potluck (where I couldn't have gluten). I was doing alright until someone noticed what I was eating, had forgotten my circumstance, offered me food with a questioning glance, remembered my situation with another glance, and subsequently allowed her face to show some pity.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I miss those Nilla wafers to use in some good, old-fashioned banana pudding.

I miss Krystal's hamburgers.

Oreos.

Tiramisu was my restaurant dessert of choice.

AND I miss the convenience - even of just bringing something to a potluck and being able to eat any leftovers. Now, though I like being able to share something delicious and gluten-free, the sheer injustice of bringing something that I cannot partake in once people's glutened hands and plates start hovering over it pricks something deep inside me sometimes. Not fair.

The whole idea of potluck is sharing. Not getting that give AND receive feeling. Not getting to compliment someone on their cake recipe - or their sausage balls. I had to leave for a moment or two in the bathroom in tears at my first Christmas potluck (where I couldn't have gluten). I was doing alright until someone noticed what I was eating, had forgotten my circumstance, offered me food with a questioning glance, remembered my situation with another glance, and subsequently allowed her face to show some pity.

You can buy gluten-free ladyfingers and easily make tiramisu, thankfully! I also have a recipe for homemade ladyfingers if you'd like. Then you can have your favourite dessert again!

I'm with you on the potlucks. We've been invited to one and I just don't know what to do about it. Do I not go? Not sure at this point as I, too, miss the sharing and breaking of bread in that way.

1

Share this post


Link to post
Share on other sites

I miss bagel chips and anything hostess.

0

Share this post


Link to post
Share on other sites

I'm with the person that said BEER. gluten-free beer is very terrible! And now Tyranena is brewing my favorite Chocolate Oatmeal Stout again...my mouth is watering. MMMM--

I try not to miss stuff and like to try new foods; this thread has made me melancholy though...I think I will bake something--gluten-free of course! Terri O

0

Share this post


Link to post
Share on other sites

I've never been a beer fan but I have used Guiness in making such dishes as Steak and Ale Pie. Are you aware of any gluten-free Guiness in Canada? I would like to be able to make the pie for my husband who has a hankering for it.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I miss Publix turkey sandwiches on their fresh baked bread. I miss french bread and cuban bread and hot cross buns and bacon egg cheese biscuits.

I like knowing what is in my food though. I like knowing what goes into my body. I like being healthier.

0

Share this post


Link to post
Share on other sites

I'm with the person that said BEER. gluten-free beer is very terrible! And now Tyranena is brewing my favorite Chocolate Oatmeal Stout again...my mouth is watering. MMMM--

I try not to miss stuff and like to try new foods; this thread has made me melancholy though...I think I will bake something--gluten-free of course! Terri O

They have a gluten free beer called RedBridge they sell at the baseball stadium here in STL. Not sure what it taste like.

Anyone here try that one yet?

0

Share this post


Link to post
Share on other sites

My most favorite, hot, soft, buttery crousants. :rolleyes: Uuuuuuhhhhhhhmmmmm.

0

Share this post


Link to post
Share on other sites

I miss those Nilla wafers to use in some good, old-fashioned banana pudding.

I miss Krystal's hamburgers.

Oreos.

Tiramisu was my restaurant dessert of choice.

AND I miss the convenience - even of just bringing something to a potluck and being able to eat any leftovers. Now, though I like being able to share something delicious and gluten-free, the sheer injustice of bringing something that I cannot partake in once people's glutened hands and plates start hovering over it pricks something deep inside me sometimes. Not fair.

The whole idea of potluck is sharing. Not getting that give AND receive feeling. Not getting to compliment someone on their cake recipe - or their sausage balls. I had to leave for a moment or two in the bathroom in tears at my first Christmas potluck (where I couldn't have gluten). I was doing alright until someone noticed what I was eating, had forgotten my circumstance, offered me food with a questioning glance, remembered my situation with another glance, and subsequently allowed her face to show some pity.

oh man, oreos, and hamburgers, what I would do to eat those.. :(

0

Share this post


Link to post
Share on other sites

My mom's canaloni

French bread

Cheeseburger (with the bun)

REAL spagetti

Chocolate croissant

Croquettes

0

Share this post


Link to post
Share on other sites

I miss:

Triscuits

Whole wheat tortillas

Timbits

Fresh french bread from the bakery (Hubby and I ate this for YEARS every Saturday, gluten-free bread does NOT cut it)

Hot, fresh pizza

Fast food of ANY KIND (and I NEVER used to eat it but now that I can't have it, i want it more!!!)

I just hate reading every label. If the list is too long, I just abort and don't bother.

BUT really, as we all know, there are so many things we CAN eat, so I try to celebrate those as much as I can!!!

1

Share this post


Link to post
Share on other sites

I miss being able to go out with my husband and run to the new doughnut shop in town or picking up a pizza on the way home, stopping at the bagel shop. I didn't realize how much of our outings revolved around food until I couldn't do it any more. The fun part though is finding new things to do and places to explore like going to the city and trying a new restaurant we found with a gluten free menu or taking that hour long drive through the trees and along the water and ending up at the Gluten free bakery and having picnic by the water with new goodies to try........ actually as I read this I think I like the new life better :)

1

Share this post


Link to post
Share on other sites

I miss my Mom's homemade pizza. I miss Yorkshire Pudding. It's not that I miss the easy, and I didn't realize it until people mentioned it, I miss the fitting in. I'm pretty introverted and you can't be introverted when everyone is asking why you aren't eating. I'm incredibly sensitive, and I was a receptionist and had to set up and tear down potlucks, I ate before set up to prevent glutening.

I miss being able to eat at a restaurant. I miss being able to share a drink with my roommate without discussing what she's eaten that day. I miss being able to kiss my boyfriend without a 20min detox before hand. I miss being able to buy inexpensive food. I miss being able to waitress and feel fine after every shift. Most of all, I miss mother flipping YUENGLING. I'm a Pennsylvania girl, I tell my tables (here in DC where I now live) that Yuengling is in my blood, I was born to raised to love it. That is what I miss most of all (don't tell the BF that I miss more!).

0

Share this post


Link to post
Share on other sites

- I miss going out for dinner to celebrate special occasions with my fiancee.

- I miss my Oma's amazing cakes and cookies.

- I miss having the option of taking a vacation at an all-inclusive resort.

- I miss ordering in when I'm tired and lazy after a long week.

- I miss being able to get through a day without somebody patronizing my meal with "well THAT looks good". . .because gluten-free is usually not good???!

- I miss being able to join in on bake exhanges with my friends at Christmas.

- I miss having drinks with friends at a bar or pub without worrying about contamination of the soda gun or the beer splashed on the bartender's hands.

- I miss being able to go to a friend's place or family member's place for dinner without feeling like an inconvenience.

Most of all, I miss feeling like everybody else.

Watching commercials or TV shows, sometimes I am baffled by how easy it is for people to go out to a restaurant or to a wedding and eat/drink whatever they want. It's one of those amazing luxuries in life that you don't know you have until it's gone. . .

2

Share this post


Link to post
Share on other sites

I miss oreo double stuffs and butter finger candy bars

I totally hear ya on the Oreo's... but I think the gluten-free version I've had (KinniToos, by Kinnickinick) are just as good, of not better.... but they don't have a double stuffed version (yet...)

as far as butter fingers, are you referring to the candy bar? My understanding is that the Butterfinger candy bars are gluten-free... at least the regular size ones.

1

Share this post


Link to post
Share on other sites

I miss oreo double stuffs and butter finger candy bars

Butter finger candy bars are gluten free....Can't say that about the oreos though!

Wenmin

1

Share this post


Link to post
Share on other sites

As others have said, I miss convenience, and the freedom to eat whatever, whenever, wherever, without thinking about it. I miss being anonymous when we eat out. Sometimes it feels like there's a spotlight on me that says "DIFFERENT!!", as I explain my dietary needs to the server. :( Often I'd rather just eat at home or bring my own. It's so much easier.

Fortunately, the concept of gluten free eating is becoming more commonly understood. I'd still rather not have to deal with it, though!

And then there's bagels, sourdough breadbowls filled with steaming hot clam chowder, 'real' chocolate chip cookies... sigh. (ok, stop thinking about that stuff NOW!!. :lol:

And, I'm off to the market, to read labels and supply us for the coming week.

0

Share this post


Link to post
Share on other sites

They have a gluten free beer called RedBridge they sell at the baseball stadium here in STL. Not sure what it taste like.

Anyone here try that one yet?

i tried redbridge- and it was AWFUL... i wanted to spit it out. so far, ive only liked gluten free cider.

0

Share this post


Link to post
Share on other sites

i tried redbridge- and it was AWFUL... i wanted to spit it out. so far, ive only liked gluten free cider.

Ditto on the Redbridge....New Grist isnt too terribly bad but it still isnt BEER. Now I am looking to find Greene's...supposed to have 3 flavors including a dark!

0

Share this post


Link to post
Share on other sites

Ditto on the Redbridge....New Grist isnt too terribly bad but it still isnt BEER. Now I am looking to find Greene's...supposed to have 3 flavors including a dark!

The Redbridge does leave a lot to be desired but dang, I want an ice cold beer!!! :(

0

Share this post


Link to post
Share on other sites

I miss the social aspect...potlucks, family dinners etc. I feel like an outcast sometimes but I do not miss being sick at all!

I do miss:

Picking up a quick cheeseburger meal..

A REAL smothered (flour tortilla) burrito at a mexican restaraunt

Pizza (as dairy kicks my butt too...)

1

Share this post


Link to post
Share on other sites

Watching commercials or TV shows, sometimes I am baffled by how easy it is for people to go out to a restaurant or to a wedding and eat/drink whatever they want. It's one of those amazing luxuries in life that you don't know you have until it's gone. . .

1

Share this post


Link to post
Share on other sites

i tried redbridge- and it was AWFUL... i wanted to spit it out. so far, ive only liked gluten free cider.

well thats good to know so i didn't waste 10 bucks on a 6 pack or 10 on a 20 oz at the stadium.

Oh well, i probably shouldn't be drinking anyway with my gut problems.

0

Share this post


Link to post
Share on other sites

I miss going to our neighborhood bar and having a beer with our friends. (a mixed drink just isn't the same, and in the middle of the afternoon it seems rather hard-core drinker)) Also I miss sharing in the bar food on the table. Even though I don't mind Redbridge, no bars or restaurants around here offer it.

Other things I really miss:

Fried shrimp Po boy

gumbo

Popeye's chicken

All things commercially fried

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,797
    • Total Posts
      932,506
  • Member Statistics

    • Total Members
      64,282
    • Most Online
      3,093

    Newest Member
    lyoncallies
    Joined
  • Popular Now

  • Topics

  • Posts

    • Certainly seems likely if those levels dropped due to gluten removal. I am just curious, when you had the scope eventually, were you eating it?  Are you feeling any better? 
    • 1. Double checked your antibodies? 2. Those of us with celiac have issues with some nutrients for various reasons, being either we can not absorb enough of them from our foods due to damage to intestines or the new gluten-free foods you changed to are non fortified and do not contain the nutrients you which is especially true if you eat a bunch of processed gluten-free foods. A combination of both of these can lead to extreme fatigues. I found taking Magnesium, and B-Vtitamin supplementation helps (Liquid Health Stress & Energy along with Neurological support same company, Liquid version is easy to absorb and no pills). Look into KAL Nutritional Yeast also, I use it to make condiment cheese sauces, toppings, blend it with egg whites. it contains many nutrients we are lacking and is a great supplement/food to have in your diet. 3, Look into what cycling lady mentioned, this could also be a issues. 4. Had your blood sugar checked?
    • I'm going to play Captain NCGS to Posterboy's Professor Pellagra (No doubt the Marvel and DC Cinematic Universes will soon be bidding for our services) and say that regardless of the blood test results, this: is exhibit one. You have a reaction to the gluten free diet. That doesn't necessarily eliminate fodmaps or issues with other components of wheat, but it's at least suggestive and the main reason I think you need to get back on it and give it a longer go. In fact, as I hinted at in the previous post, I'd be doing my 'goodbye gluten' top 10 croissant and bagel bucket list because I don't think you should go back to it simply based on exhibit one. It's messing with you in a way that it shouldn't. I had sciatic back pain for 20 years which I attributed to a disk injury. It was left sided and when bad travelled down my left leg following the sciatic nerve. I had all the scans, treatments, exercises etc. Nothing really worked and it was at times intensely debilitating.  Drum roll... Gluten free diet cured it. My new theory is that gluten related inflammation was localised in that area and it caused the pressure on the nerve. Now why there and not elsewhere? No idea, but it could be inflammation causing your pain? I went for several diabetes tests because I would suddenly become very weak, hungry and I would feel unwell. Weak, hot, light headed, on the verge of passing out. The tests were normal but I knew that I seemingly had a blood sugar issue. Another win for the gluten-free diet.  It sorted the tremors in my hand (begone thoughts of early onset parkinsons or ms) and the nerve twitching under my eye and etc etc. well you get the point. I've said above I sometimes wonder if I'm undiagnosed celiac but there are certain aspects of NCGS which seem to fit me and maybe you too. My digestion stomach etc is much better now but I wouldn't have said before all this that it was particularly bad. I read this http://www.bmj.com/content/345/bmj.e7982 and I have a similar experience that neuro symptoms were more apparent than digestive in the 'classic celiac' model. (more of that sort of thing here though I already sent you the Umberto Volta I think. I would be fascinated if you, your brother and myself were to do the gluten challenge and then take this test: http://www.medicaldaily.com/non-celiac-gluten-insensitivity-blood-test-392850 what the result would be. But you know what, unless the scientists put out a call for more volunteers I won't be doing it. In the search for answers, validation, certainty, it's easy to forget the real goal, feeling better. After several years on the gluten-free diet I feel better. I'm no longer thinking that the next bout of chest pain will be my last minutes on earth. I no longer worry about going blind because half my vision has gone grey, I'm not trembling, I don't have cardiac arrythmia, I don't have rheumatic pain, I don't have crippling back ache like I'm 40 years older, I don't get  faint, dizzy and heart pounding when I stand up,  I don't have brain fog, anxiety, depression (well sometimes!), painful stomach cramps, weird white tongue, rashes on my torso, horrible greasy skin on face, horrible dry peeling scalp, sores on my scalp and neck, white spots on my fingernails, I'm not sweating so much I have to douse myself in antiperspirant, I don't have all this and more and I don't have a letter from a doctor saying I have celiac and I don't give a **** about it. I don't have gluten and as the Godfather of soul would say...  I feel good  Feel good IT. You've done as much as anyone could to find an answer. Maybe there's one around the corner or maybe there'll be one in 5 or 10 years when the likes of Marios Hadjivassiliou, Umberto Volta or Alessio Fassano have completed their research. Or maybe not or never. It's in the 'nice to have' than the essential's for me now. Do the diet, note your symptoms, stay connected with your doctor so that if there is anything that sticks around suggestive of other things you're on top of it, but feel good and focus on that and enjoying life.  All the best!    
    • I think he's right. It's a hard burden at times at any age but there will be particular challenges for your daughter as kids don't want to stick out or have to be continually monitoring things like their food. Check out this advert from a UK retailer. Beware it's so sugary it could probably give a diabetic person a sugar crash! Maybe you could do similar? Just get or make a selection of kid friendly foods but don't say anything about it to your daughter, just everyone go in and start filling their plates.  If she asks you if you've done anything for her you just tell her that she can eat everything on the table. At least this would show both that choice is still available to her and that because everyone is eating the same thing that she won't feel like she's being singled out?  
  • Upcoming Events