• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Joni63

Other Issues - Where To Start?

Rate this topic

Recommended Posts

For whatever it's worth, I react more violently to soy than gluten. You may want to try eliminating soy. It's tough because soy is in everything including cosmetics but it made a huge difference for me. Also have you eliminated all dairy or only lactose. It could be a casein problem. I got testing through enterolab.com and it helped with the guess work.

I did attempt to eliminate the soy, but wow yes it is in a lot of my vitamins. I have a pretty large stock pile of those that cost so much $$$. I did finally eliminate all dairy and my sinuses are so much clearer.

My doctor gave me the name of an allergist to visit and I'll be making the appt. this afternoon. Hoping to get some kind of answers. It's hard doing this on my own....it does feel like a guessing game. What kind of test does enterolab do? I know the allergy testing is not 100%. Just hoping for a guide and not too many surprises!

At least the stomach pain and belching are almost gone now. Unfortunately the bloating remains.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I did attempt to eliminate the soy, but wow yes it is in a lot of my vitamins. I have a pretty large stock pile of those that cost so much $$$. I did finally eliminate all dairy and my sinuses are so much clearer.

My doctor gave me the name of an allergist to visit and I'll be making the appt. this afternoon. Hoping to get some kind of answers. It's hard doing this on my own....it does feel like a guessing game. What kind of test does enterolab do? I know the allergy testing is not 100%. Just hoping for a guide and not too many surprises!

At least the stomach pain and belching are almost gone now. Unfortunately the bloating remains.

Glad to hear some of the symptoms are easing for you and good luck with the appointment.

Enterolab does testing for gluten, soy, casein, chicken egg and yeast as well as genetic testing. You can order the test yourself without a script and you pay for the tests directly and some insurances will reimburse for the testing. I found it very helpful but still feel like I have additional intolerances which I need to narrow down.

I hear you on soy in vitamins. I have thrown out a bunch myself as well as ALL lipsticks and lip balms. Freeda vitamins are all gluten, soy and casein free and pricing is reasonable.

Share this post


Link to post
Share on other sites

Glad to hear some of the symptoms are easing for you and good luck with the appointment.

Enterolab does testing for gluten, soy, casein, chicken egg and yeast as well as genetic testing. You can order the test yourself without a script and you pay for the tests directly and some insurances will reimburse for the testing. I found it very helpful but still feel like I have additional intolerances which I need to narrow down.

I hear you on soy in vitamins. I have thrown out a bunch myself as well as ALL lipsticks and lip balms. Freeda vitamins are all gluten, soy and casein free and pricing is reasonable.

Thank you irisheyes13. I never answered your question about casein...I did eliminate it totally. A couple days after I totally stopped eating it, my sinuses cleared up completely.

On a good note, had a 2 week check up with the gastro yesterday and my catscan showed NO diverticulitus - yay I'm cleared to eat nuts, seeds and popcorn again! Wooohooo!!!

Share this post


Link to post
Share on other sites

Good for you Joni! It's always fun to be able to add a variety back into our diet and more importantly that you no longer show signs of diverticulitis.

I am a big fan of Enterolab testing since I finally got some answers recently after YEARS of suffering with no answers from multiple GI physicians. None ever suggested going gluten free or anything free for that matter after my endoscopy came back negative; as a matter of fact they told me to feel free to eat all the gluten I wanted after I went gluten free for 1 month. I want to also mention that I am in no way affiliated with or have any vested interest in the lab. I named the lab testing in two posts and I have been flagged as a potential spammer but I am just enthusiastic about finally feeling better.

Let me know what you think about the lamb. I have never tried it as well. I remember my grandmother cooking leg of lamb when I was a kid and hated the smell but maybe it's time to give it a try.

Share this post


Link to post
Share on other sites

Yes, thank you -it is a relief. Let me tell you though...he wanted to do a colonoscopy, but was refusing to do an endoscope. I figured if I was going to get one test and prep for it, I might as well have both done. He said there was no need since I know I have celiac disease and am gluten free. Funny all my symptoms were on the left side just below the rib cage...sounds like endoscope territory to me. I'm not going back there again...2 local GI's down. One day I will find a good one...or at least one that will listen. My family doctor is pretty good about listening and testing me for the tests I really believe I should have. And I have a great Nurse Practitioner I see for vitamins and nutritional advice.

I'm glad you found Enterolab and their tests. Many people on this forum have used them when doctors refused to test them or they were seeking answers. I totally understand your enthusiasm about them. Finding answers and feeling better means so much!

How long have you been gluten free? How long did it take you to find out you needed to be gluten free?

Share this post


Link to post
Share on other sites

EnteroLab stool test for gluten, yeast, egg, dairy and soy. $99 per food. This test is the most reliable.

Then for the other foods, I suggest www.NowLEAP.com for $500. They will test over 250 foods. This test caught over 80% of my other sensitivities and their tips of starting a food diary and doing an elimination diet has helped me catch the remaining foods.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,908
    • Total Posts
      943,436
  • Member Statistics

    • Total Members
      67,032
    • Most Online
      3,093

    Newest Member
    RetaDoll
    Joined
  • Popular Now

  • Topics

  • Posts

    • I have had rolling food intolerance issues and stuff crop up for years....but this time it was seemly triggered by a cold.  I got a cold this weekend standard fever, stuffy nose, coughing gunk up, head pressure, random dizzy spells etc. Anyway I was eating on my chia seed rotation before getting it just fine...but about halfway into my cold I started having vomiting issues after eating. I assumed this was the cold perhaps it was instead a flu. But I got over it now with just a bit of congestion and sore throat left BUT I noticed a pattern in my food diary and confirmed it yesterday...within 30-60mins of eating anything with chia seeds I am puking ....... it seems I got a new intolerance to them? I found this odd that it was seemly triggered by the cold. I guess it could have happened with the compromised system and fever. Has anyone else had a new food intolerance crop up after a cold?
    • Thinking I saw this earlier on another post....anyway I do have a thought on this. I get little blood blisters and sores in my mouth, and on my tongue from things I ended with allergies to. With celiac being a autoimmune disease it can sometimes effect your immune system, like make you more prone to random food allergies, histamine issues, food intolerance issues, and sensitivities. You might want to keep a food diary and mix up what you eating avoiding foods you have been eating for up to a week changing out sauces, oils, spices completely and see if you notice anything. If I eat anything with corn I get blood blisters in my mouth by example, a high PH food like if I use a undiluted vinegar on something had in the past giving me little sores...not had this happen in awhile. In the food diary keep track of the sores, body temperature, stool habits, how you feel, etc. Every little detail and see if you find some connection with foods you eat. Try a lower histamine diet perhaps if it is related to that.
    • Hi been diagnosed as celiac over 2 years ago have a bad episode at present with tongue and swollen sore nose looks like little blisters has anyone else had these symptoms and if so what made it stop please any advise would be fab 
    • As mentioned above is true, I used to love fruit I got other AI diseases and some other issues that prevent me from eating fruit but I am a freak lol. ANYWAY since your new I will link you the newbie 101 threads. I would be more concerned with hidden gluten in your old condiment filled with crumbs, your pasta strainer, cutting boards and and scratched pots in your house then say the banana you got at the store....peeled off the outside that might have been touched or handled by anything else and eaten the safe clean insides lol....banana come with their own wrapper perhaps the safest bet, funny they used to give celiac babies a mostly banana diet before they understood this disease well.
      https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/
      https://www.celiac.com/gluten-free/topic/120402-gluten-free-food-alternative-list-2018-q1/  
    • Some people can be asymptomatic, I know a few celiacs like this. Needless to say, this doesn't mean that gluten isn't still wreaking havoc in your intestines. 
  • Upcoming Events