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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does Celiac Cause Lack Of Sleep?
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20 posts in this topic

My blood test said that I have celiac, but my biopsy said I did not. I was tested because I have Hashimotos and I guess a lot of time you get both if you have one of the diseases? But I have kept eating gluten for like 2 years since that test. I have never been able to sleep through the night..never. If I sleep 3 hrs in a row I am amazed and so I was just wondering if gluten could be a factor

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Yes! I used to feel totally wired, like my head was plugged into an electrical outlet :o

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I've been gluten free for 10 days now, and I've not slept a full 7 hours since about day two of the diet. When my husband realizes I'm awake, normally around 2 or 3pm that I start tossing and turning, he puts his arm around me and says; "come let me help you". He thinks it'll calm me to be held, but I can't lie still for longer than a few moments. It's the weirdest thing. I've never had a problem with sleeping. I love it, and normally would try get around 8 hours minimum.

Good luck to you though, hope you get it sorted out!

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I could never sleep - NEVER! I had no problem falling asleep but I would always be up three to four hours later. I was on the highest possible dose of Lunesta for almost a year it got so bad but that really only put me to about six hours a night. I have been gluten free since Jan 2nd and I have not taken a Lunesta since about a wweek later. I have very few problems sleeping now. There have even been nights I slept for 11 - 12 hours!

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I've been gluten free for 10 days now, and I've not slept a full 7 hours since about day two of the diet. When my husband realizes I'm awake, normally around 2 or 3pm that I start tossing and turning, he puts his arm around me and says; "come let me help you". He thinks it'll calm me to be held, but I can't lie still for longer than a few moments. It's the weirdest thing. I've never had a problem with sleeping. I love it, and normally would try get around 8 hours minimum.

Good luck to you though, hope you get it sorted out!

Have you tried sublingual Vit-B supplements (especially B6) and magnesium supplements? If not, give them a try.

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I was a raging insomniac for years. Always felt like I was "wired for sound" tossing and turning. Since going gluten-free, I sleep a few hours and wake up still, but now, I can almost always get a few hours more. At one point, I could barely sleep 1 or 2 hours. It was horrible.Now, I manage 5-6.

I was always surprised by people who said gluten made them sleepy.... :huh:

I notice you said in your post "I tested positive for celiac, but have kept eating gluten for two years since the test"....may I ask.... WHY ON EARTH ARE YOU EATING GLUTEN IF YOU ARE A CELIAC?? :blink: !!!!!!!

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I notice you said in your post "I tested positive for celiac, but have kept eating gluten for two years since the test"....may I ask.... WHY ON EARTH ARE YOU EATING GLUTEN IF YOU ARE A CELIAC?? :blink: !!!!!!!

Uh, second this? A false positive on a Celiac blood test is astronomically rare to the point where I've yet to actually find documentation on it. But a negative biopsy isn't uncommon at all. Celiac damage can be patchy in the intestine.

It really sounds like you should have stopped eating gluten two years ago. Either get yourself retested or drop the gluten, pronto.

(And, yes, I was an insomniac before diagnosis too. I would wake up multiple times and just couldn't go back to sleep. I usually sleep fine now.)

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I find I have trouble sleeping whenever I've been glutened. Not when I'm gluten free. Though since being gluten-free, I believe my fitness levels are much lower than they once were. I used to do really well in athletics when I was young however that seemed to change as soon as I went gluten free :(

Strange... :rolleyes:

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My blood test said that I have celiac, but my biopsy said I did not. I was tested because I have Hashimotos and I guess a lot of time you get both if you have one of the diseases? But I have kept eating gluten for like 2 years since that test. I have never been able to sleep through the night..never. If I sleep 3 hrs in a row I am amazed and so I was just wondering if gluten could be a factor

When I was diagnosed with Hashimotos my Natropaths wife who also has Hashimotos, told me it was a good idea to stop eating gluten. Some of the research I have done shows that it can increase the thyroid antibodies. It makes my normally more hypothyroid change to hyperthyroid. When I stopped eating gluten about a year ago, I started sleeping much better, I could focus better and my hot flashed became much less frequent.

About 3 months into my gluten free diet, I intentionally glutened myself to see what would happen. Sure enough I woke up that night covered in sweat, had a couple pretty restless nights, and my thyroid was swollen for over a weak. From my personal experience it really made a huge difference to stop eating gluten. Getting a good nights sleep is so important for your bodies healing.

Best of luck to you.

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One of my first symptoms of being glutened is insomnia. Then I get a visit from depression. And apathy says hello.

I'm strictly gluten-free, and my sleep is so much better now. So are a number of other symptoms. I appreciate good sleep most of all. :D

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One of my first symptoms of being glutened is insomnia. Then I get a visit from depression. And apathy says hello.

I'm strictly gluten-free, and my sleep is so much better now. So are a number of other symptoms. I appreciate good sleep most of all. :D

Ha ha. I read your post outloud to my husband, we had good laugh, as that was my pattern to. Although along with the apathy I've had a bit of denial as well. Am sleeping loads better thankfully and have found some great resources: reading Wheat-Free, Worry Free, a book about living a gluten free life, and its been super helpful and have also found a health shop that is run by a woman with Celiac Disease. Yay for these wonderful small mercies!

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It's good to hear that so many other people have had problems with this. Before being diagnosed I'd have problems falling asleep, often waking up several times in the middle of the night. I tried melatonin, but it didn't work. I've always been the type of person to wake up early naturally, but I'm hoping that once I'm gluten-free for a while longer, I'll be able to at least sleep more deeply. Today is day #10, and I'm feeling so much better!

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I find when my iron levels are low, even though I am tired, I can't sleep - and since iron deficiency is common with having Celiac, it could be a part of the puzzle..?

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I haven't slept well in many years - I notice no difference since being diagnosed with celiac.

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I developed terrible insomnia (ie not sleeping for days) and now that I am gluten-free I have little trouble sleeping...

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This is fascinating! The first effect we noticed when we put our youngest daughter on a gluten free diet was that for the first time in her life she slept right through the night. She's nearly 9, and I'd more or less given up hope of ever having an unbroken night again. Right from the start the slightest noise would wake her up - now she sleeps like a log! Her restlessness seemed to be a combination of constant low level stomach pain and cramps in her legs - enough to give anyone nightmares! Interestingly, my mother (not diagnosed coeliac yet) also has similar problems and "restless legs" which she finds resolve when she goes gluten free.

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I'm so glad your daughter is sleeping well now, and I'm happy you found out while she's still young...you've saved her from a multitude of problems!

Yay mom!

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I am so glad to have found this forum. I've had chronic insomnia for years. Never connected it to celiac disease. But was having terrible digestive problems -- read that could be helped by going low carb. So...in going low carb, I quit eating grains. The indigestion has pretty much cleared up and some other pesky symptoms. I was having nights and days when my brain was so wired I could not sleep. Now while I still come wide awake after 3-4 hours, after a couple hours I'm able to go back to sleep so am getting about 6 hours sleep. Reading your posts on here, seems you're describing my sleep problems exactly. I'm looking forward to learning about celiac disease and perhap being able to sleep through the night.

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Hey, I have noticed that I am sleeping better now too. I am a newbie with Celiac. I tested positive about 2 weeks ago.

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Oh my...there is hope...there is hope!! :)B) B) :rolleyes:

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    • Lol!!!  Well what the heck. I'm not entirely sure how the message boards figure out the algorithm sometimes.  however, the Advice was totally informative and I appreciate it!   I am a bit nervous about taking iron so I was thinking I would take a safe dose maybe every other day or so for a little while  and ask my doctor To rerun the panel.  a friend of mine is a PA and she told me thE amount I can safely take.  I just hope my doc will be receptive to Re-running it because he told me the labs were within normal range Because the cutoff for ferritin was 13 and mine was 20.  I have no idea why they ran it a year-and-a-half ago because I didn't ask and I wasn't feeling crummy but during the first gluten challenge they did an iron panel and that's when it was in the 70s.  so I figure adding a bit more iron to my Already decent diet isn't going to hurt too much.   I did ask my primary care if it would be typical for somebody with a completely normal hemoglobin and red blood cell count to go anemic with an 18 hours of fasting.  it was mild anemia wasn't severe obviously. I had a procedure done while I was in the hospital and you can watch my red blood cell count and hemoglobin drop while I was fasting.  because they seem to Draw a CBC Like every 5 minutes in the hospital.   I was told after having a colonoscopy that Crohn's was ruled out.  Of course I was told a lot of things!   I admire how active you are.  I would love to be able to get up to a half marathon. I gave up exercising for 6 months last year to see if anything would help but it didn't so I just got back into it probably sometime in February. There are days when I really don't feel well and I'm not able to but there are days where I feel pretty good.
    • Don't pay any attention to that reply. By the way I am so sorry you are suffering so much. I have no answers for you at all but hopefully someone will! When is the next time you see your doctor?
    • Matt,  Your post has literally changed my attitude over my morning coffee today In a matter of minutes.  You have done a wonderful job summing up the experience of not only myself, and you as well, but my guess is probably a lot of people who come to this board.   I know from having some email conversations with researchers that even those in the gluten Community do not see eye-to-eye on all of this. So we certainly do have a long way to go.  As for the three months you're absolutely right, as I had already tried a strict diet for 2 or 3 months and still had a lot of symptoms. I think the doctor just wants to meet after 3 months to see if there's any Improvement, the test. But I'll give it a good 6 to 12 as you suggest.  There is that lingering fear that nothing will get better and I'll continue to go undiagnosed with something sinister.  it is hard not to think that way in my case. however, again, your post is giving me some hope. And even if that hope is not realistic at the very least it's a distraction for a little while which I need.  And hey, it may just be the answer!  I am often on the fence about whether or not I should be bitching about my doctors.  in reality, two of the things in life I would never want to be would be a doctor or a landlord.  people really do look to doctors as if they are God.  a friend of mine is a physician and told me that it's quite frustrating for doctors when they can't figure out what's wrong with the patient and they get burnt out.  so I have a lot of respect for the Physicians who keep trying to find what's wrong and do so while being polite and courteous to the patient even though they may inside be feeling frustrated. I have absolutely no respect for the ones who  fail to notice that there are recalls out on their models of the God complex.
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