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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Too Hot
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26 posts in this topic

Does anybody get really hot sometimes? I'm wondering if this is a symptom of Celiac.

For as long as I remember I've always been the hotest one in the room. I am miserably hot. ALL THE TIME.

I'm not talking about heat flashes. My house is so cold people that come over bring sweaters.

Just wondering if anybody else has this problem. I've never met anyone else that suffers from that.

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Does anybody get really hot sometimes? I'm wondering if this is a symptom of Celiac.

For as long as I remember I've always been the hotest one in the room. I am miserably hot. ALL THE TIME.

I'm not talking about heat flashes. My house is so cold people that come over bring sweaters.

Just wondering if anybody else has this problem. I've never met anyone else that suffers from that.

I used to be really hot and sweat up a storm. Summers were awful for me.I have been on the diet 2 months and noticed it is going away. It was always blown off as the change from Dr's or my allergies.

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Does anybody get really hot sometimes? I'm wondering if this is a symptom of Celiac.

For as long as I remember I've always been the hotest one in the room. I am miserably hot. ALL THE TIME.

I'm not talking about heat flashes. My house is so cold people that come over bring sweaters.

Just wondering if anybody else has this problem. I've never met anyone else that suffers from that.

You've just met your twin! :lol: I have always been this way, pretty much from birth. Even as a kid, when the weather got hot, I went indoors to escape the heat or had to go swimming to stay cool. I am on the other side of menopause and have hot flashes, which makes the problem worse. I think it has little to do with Celiac but was told by a person versed in Eastern medicine that people with autoimmune problems tend to produce more heat. I doubt that is true for everyone but who knows?

Like yourself, I can walk around in a 62 degree house, in winter, in short sleeves, and be comfortable. Plus, I have an under-active thyroid so go figure!

I never bring it up at the doctors because they know squat about those kinds of issues...I just dress light and live with it. I will say that I never get sick and maybe it's because all those germs cannot proliferate in warmer temps. That's the purpose behind a fever so there may be pluses to being warmer.

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I'm always hot. If someone turns the temp up at work to over 72 I feel like I'm going to pass out. I keep my house about 65 and take coolish showers.

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Does anybody get really hot sometimes? I'm wondering if this is a symptom of Celiac.

For as long as I remember I've always been the hotest one in the room. I am miserably hot. ALL THE TIME.

I'm not talking about heat flashes. My house is so cold people that come over bring sweaters.

Just wondering if anybody else has this problem. I've never met anyone else that suffers from that.

Ask your doc for a full panel of thyroid tests: TSH, free T3, free T4, TPOab, etc. You might have hyperthyroid symptoms (feeling too warm all the time).

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Before going gluten free I was always too hot. I would sit right in front of the air conditioner so that I was cool enough without freezing everyone else in the room. When I went to see the GI for the first time she asked if I was hot a lot. I said I was always hot. I was actually in a tank top at the time and she had a sweater on in the hospital. She asked if I was hot then and I said "yes" I would also sweat like crazy at night. Good luck at finding out what is causing your heat.

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for my whole adult life- ive been oversensitive to heat... easily nauseaus and EXHAUSTED from the heat... i prefer the colder weather- it gives me more energy and makes me happy... the florida summer kills me.

that being said- this oversensitivity was somewhat alleviated when i went gluten free- in fact- i dont have to keep my house as cool as i did before.

but i also have Hashimoto's AND Grave's and am still battling with overheating... but better since going gluten-free.

there's older threads somewhere on this forum- and parents talking about their kids always ripping their socks off cause they're always hot.

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I've never been able to wear socks because I get overheated too easy. I dread summertime. It can be 5 degrees outside and i'm bundled up but no socks. Lol, people think i'm nuts, but i'll start getting hot, my feet feel like they are on fire then I start having a hard time breathing then I feel like i'm gonna faint if I don't get somewhere and get cooled down fast. Yep, I know exactly how you feel.

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I'm jealous. <_<

I wear double wool socks in the summer. :blink:

No fair! :unsure:

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thank you all for the replies.

I HOPE to get some relief from the heat being on a gluten-free diet.

I have thyroid tests done and they always come back fine.

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I'm not celiac but have had this problem off and on. It was bad when I was a kid. I would sweat at the drop of a hat.

For some reason, shopping would do this to me. I hated trying on clothes because I would get soooo overheated.

Then when I was pregnant, I developed a thyroid problem. The overheating was severe. It was so bad I demanded that my husband install an air conditioner in our spare bedroom. I moved in there. Pretty much lived in there with the cold air blasting as cold as it could be.

After the baby was born, I kept her in there with me, but kept her well dressed. It was summer and Cape Cod.

Eventually I learned of the connection of soy (I was eating a lot of it) and my thyroid. I stopped eating the soy except for soybean oil (only if no other option) and soy lecithin. No soy protein, no soybeans at all.

My thyroid is normal now. I am no longer on meds. I do still overheat at times but it is not at all like it used to be.

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I used to keep my apartment at 62-65 and I was comfortable in shorts. I could go outside in the snow in my bare feet and shorts and not get cold for a while. Two years into gluten-free/CF/SF that has changed. Multiple thyroid tests over the years, all ok. I think that soy was the cause. I didn't remove soy from my diet until 6 months into the gluten-free but when we look back on it, within a couple months I started getting cold at night, then wanting to have a fire built, and for a while I was colder than my wife most of the time! Eventually (another year) it started to even out, and I'm now pretty comfortable between 68-70 in jeans and normal clothes. But I still sweat at the drop of a hat!

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For me, soy is not the issue. I have been like this from the time I was a small child and back in the 60's and 70's, soy products were not marketed like they are today and people were not consuming them, for the most part. I am also post-menopausal, and my hormone bank is empty so the soy should actually help with that and it has not. There is no difference in how hot I run, except it has gotten worse post-menopausal, which is normal. Not fun, but normal for most women.

I would expect that soy could definitely play an issue for some, as it can affect hormone levels. I am glad to hear there are others who have this problem because people treat me like I am really weird because of it. It actually has it's benefits because I live in New England, it gets very cold here in winter and I love it and am never uncomfortable....except in summer when I hibernate with the AC going! :blink:

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thank you all for the replies.

I HOPE to get some relief from the heat being on a gluten-free diet.

I have thyroid tests done and they always come back fine.

Which thyroid test was done? How long ago? Most docs only consider TSH, which can be normal, when you have autoimmune thyroid problems. Also the 'normal range' for TSH was revised to a narrower range in 2003. Many docs still use the older, outdated wider normal range of TSH. So many people with thyroid problems go undiagnosed.

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I'm not celiac but have had this problem off and on. It was bad when I was a kid. I would sweat at the drop of a hat.

For some reason, shopping would do this to me. I hated trying on clothes because I would get soooo overheated.

Then when I was pregnant, I developed a thyroid problem. The overheating was severe. It was so bad I demanded that my husband install an air conditioner in our spare bedroom. I moved in there. Pretty much lived in there with the cold air blasting as cold as it could be.

After the baby was born, I kept her in there with me, but kept her well dressed. It was summer and Cape Cod.

Eventually I learned of the connection of soy (I was eating a lot of it) and my thyroid. I stopped eating the soy except for soybean oil (only if no other option) and soy lecithin. No soy protein, no soybeans at all.

My thyroid is normal now. I am no longer on meds. I do still overheat at times but it is not at all like it used to be.

hey julie- i am trying to avoid the soy too- as i also just read it specifically aggravates the Grave's antibodies (i have all 3 antibodies..)... and im glad you mentioned that- because it's IN EVERYTHING!!!!! i dont eat regular soy- but it's in every freaking oil & dressing & choco chips :( even my beloved gluten-free Chipotle bowl... they use soybean oil :(

but you're not on meds anymore???? how long did it take being gluten and mostly soy free to get there?? did you get your antibodies re-tested? or do you just go off your thyroid numbers??? what were your numbers to start with?

God i really hope one day to not have to rely on meds.... or at least have the grave's antibodies go to below range, and just deal with the hashi... its been a rollercoaster

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hey julie- i am trying to avoid the soy too- as i also just read it specifically aggravates the Grave's antibodies (i have all 3 antibodies..)... and im glad you mentioned that- because it's IN EVERYTHING!!!!! i dont eat regular soy- but it's in every freaking oil & dressing & choco chips :( even my beloved gluten-free Chipotle bowl... they use soybean oil :(

but you're not on meds anymore???? how long did it take being gluten and mostly soy free to get there?? did you get your antibodies re-tested? or do you just go off your thyroid numbers??? what were your numbers to start with?

God i really hope one day to not have to rely on meds.... or at least have the grave's antibodies go to below range, and just deal with the hashi... its been a rollercoaster

Not everyone with thyroid disease needs to avoid soy. I have Hashi's and I was able to get my antibody level down from an all time high of 1200 (when 40 or below is considered normal range) to 35, by going gluten-free alone. I have also cut my "meds" in half. I eat soy of all kinds but I don't overload on it..just normal amounts. Soy is not good for those who are sensitive to it but for many people, it won't cause a problem.

The ability to wean off "meds" entirely does not happen for most people, either. Depends on how old you are, how much damage was done and other factors but for many, the ability to lower hormone dosage is good enough. They are not pharmaceutical meds....just a replacement hormone for what your body does not make enough of. I don't consider that the same as products that aren't naturally occurring in the body.

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Not everyone with thyroid disease needs to avoid soy. I have Hashi's and I was able to get my antibody level down from an all time high of 1200 (when 40 or below is considered normal range) to 35, by going gluten-free alone. I have also cut my "meds" in half. I eat soy of all kinds but I don't overload on it..just normal amounts. Soy is not good for those who are sensitive to it but for many people, it won't cause a problem.

The ability to wean off "meds" entirely does not happen for most people, either. Depends on how old you are, how much damage was done and other factors but for many, the ability to lower hormone dosage is good enough. They are not pharmaceutical meds....just a replacement hormone for what your body does not make enough of. I don't consider that the same as products that aren't naturally occurring in the body.

from 1200 to 35 is IMPRESSIVE!! how long did that take??? ya, i presume it's not always possible for everyone to get off or lower meds- but i am hoping for my graves antibodies to die, and my hashi to lower- so i dont have so many conflicting symptoms to deal with. cause sometimes i feel like every single cell in my body is physically bipolar.. and the shortness of breath really is debhilitating sometimes.

my tpo were 512 (but im guessing the damage could have been starting even 7 or 8 years ago).

my graves were 280

and that 3rd antibody (that can occur in hashi & graves-) was like 180.

ive been gluten free since july 2010 because of celiac. and i know gluten can affect the thyroid antibodies. a doctor i highly respect said that Wheat & Soy specifically aggravate Grave's antibodies. that is why im also trying to avoid the soy.

anyways- id love to know how long it took for you to lower your antibodies being gluten free!

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I was always hot as a kid and later in life too. I wore a t-shirt when doing work outdoors in the winter snow while my brothers were wearing coats and gloves. Always turning down the thermostat on the heater after the wife-unit had turned it up not long before. It wasn't a popular move on my part.

Then I started having night sweats years later when my celiac was undiagnosed. I think it is caused by a low level fever from the body fighting the gluten invaders. My night sweats went away eventually after changing my diet and getting rid of soy and the other nasties.

There are some threads about night sweats in the sleep forum.

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Does anybody get really hot sometimes? I'm wondering if this is a symptom of Celiac.

For as long as I remember I've always been the hotest one in the room. I am miserably hot. ALL THE TIME.

I'm not talking about heat flashes. My house is so cold people that come over bring sweaters.

Just wondering if anybody else has this problem. I've never met anyone else that suffers from that.

I cannot tell you how many tower fans with remotes I have gone through!! I would be at that fan all night. On and off and low or high!!!LOL I do not use it much anymore and I actually get cold now.

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I cannot tell you how many tower fans with remotes I have gone through!! I would be at that fan all night. On and off and low or high!!!LOL I do not use it much anymore and I actually get cold now.

good to hear. There is hope

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from 1200 to 35 is IMPRESSIVE!! how long did that take??? ya, i presume it's not always possible for everyone to get off or lower meds- but i am hoping for my graves antibodies to die, and my hashi to lower- so i dont have so many conflicting symptoms to deal with. cause sometimes i feel like every single cell in my body is physically bipolar.. and the shortness of breath really is debhilitating sometimes.

my tpo were 512 (but im guessing the damage could have been starting even 7 or 8 years ago).

my graves were 280

and that 3rd antibody (that can occur in hashi & graves-) was like 180.

ive been gluten free since july 2010 because of celiac. and i know gluten can affect the thyroid antibodies. a doctor i highly respect said that Wheat & Soy specifically aggravate Grave's antibodies. that is why im also trying to avoid the soy.

anyways- id love to know how long it took for you to lower your antibodies being gluten free!

Hi Cass.....it took me 5 years to accomplish this. Kind of a long time and I despaired along the way that it would never happen. I was 46 at time of diagnosis for Celiac so I was in the older camp. :angry: The Hashi's started in my early 30's so that is how long I was poisoning myself with gluten and how long it was affecting my thyroid. I had Celiac symptoms for 25 years before it was figured out.....the typical BS Americans have to go through.

I know exactly how you feel regarding the bipolar feel to your thyroid. In 2009, I had a shift because I was now absorbing nutrients and meds well. The 150 mcg. dose of thyroid hormone was now way too much and I went seriously hyperthyroid. That was one of the most unpleasant things I have ever had happen. Absolutely no sleep was to be had, racing heat beat, weight loss...I felt like I was on speed. I had to re-adjust my dose and that took about 9 months to accomplish because I was now swinging back and forth between hyper and hypo and we had to figure out the correct dose. It finally rested on 90 mcg. and I have to be re-tested more often because I started an exercise program and that can affect thyroid levels and need for hormone. I am pretty comfortable at 90 mcg but who knows? Maybe it will be lowered in future but you never know when you get older how that will play out. I am now 51 but feel pretty good these days...the exercise helps tremendously.

I do not seem to have a problem with soy and I am thankful for that. I have cut out gluten and most dairy, which was not nearly as hard as quitting smoking. Honestly, if I had to cut out even more, my head would spin. Sounds strange but I do not miss gluten and never cheat but I miss smoking.

Good luck and I am sure you can straighten everything out with your thyroid. It does take some time and tweaking but hang in there and think positive. If I can do it at my age, after all the years of gluten damage, anyone can do it!

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You might also want to have your adrenal gland function tested. As far as diet, I don't know about the gluten connection, but if you are eating a lot of processed foods, you're likely eating a lot of hidden MSG which can affect the hypothalamus. Do you get hotter/sweatier after eating?

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GEMINI:

thanks for the info! ya, when u look back at my symptoms, i probably went undiagnosed with celiac for over 20 years... maybe longer.. really really frustrating.

and let me just tell u- i would MUCH rather just have my hypo symptoms than any hyper symptoms.. i would much rather be tired and depressed than feel like im on meth.

apart from the shortness of breath- which seems to go with either.

i hope to improve years from now as you have. it's frustrating when others dont listen to me or understand the gluten connection. my mom has hashi's and she knows i have celiac, AND that she at least has 1 DQ8, and she has no plans to go gluten free :(

but anyways- thanks for your input

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Does anybody get really hot sometimes? I'm wondering if this is a symptom of Celiac.

For as long as I remember I've always been the hotest one in the room. I am miserably hot. ALL THE TIME.

I'm not talking about heat flashes. My house is so cold people that come over bring sweaters.

Just wondering if anybody else has this problem. I've never met anyone else that suffers from that.

Favorite quote of me (mom) in the house... "Is anyone else hot in here?" They all make fun of me, and at 44 I don't have a family history of early menopause, so it is the gluten. I am convinced after reading the other posts too.

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Favorite quote of me (mom) in the house... "Is anyone else hot in here?" They all make fun of me, and at 44 I don't have a family history of early menopause, so it is the gluten. I am convinced after reading the other posts too.

That's funny. I always ask my husband. Is it really hot in here? Usually he says "no". I'm so hoping that I'll be "normal" after getting my sensitivities in check.

I can't tell you how relieved I am hearing stories like mine. I've never met anyone that has had this problem.

thank you, thank you....

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