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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Can't Stop Weeping...
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39 posts in this topic

I am the worst dieter in the world. I am absolutely crushed by having to admit that I have to change my life and my habits. I LOVE being low maintenance. I know that I will feel better by receiving this diagnosis (it started with Dermatitis Herpetiformis (horrible skin rash) and has led to me needing to lead a gluten-free life, so I know that I will get some relief... but I just can't imagine how this is going to work. You all seem so matter-of-fact, and I am just downright annoyed and sad. Did anyone else just feel mad and sad and exhausted by this whole thing?

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Rearranging your entire life is a hard hard thing. Your feelings are completely normal and something almost everyone goes through.

I know it's overwhelming and frightening (and maddening and scary and humorous and all kinds of feelings) but it does get easier with time. You find ways to make it work for you, whatever your lifestyle.

Hang around and read about how other people cope. And welcome. :)

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Honestly, I have felt so horrible for so long, in excrucaiting pain , so I am relieved to know I will feel better.

But YES!! I am pissed off and I cry and I get frustrated and then, I think how crippling and disabling and life-stealing this has been and I am grateful there's a way to make that hell stop.

Te hardest part was trying to figure it all out (I made a lot of mistakes at first because my BRAIN was so messed up ) but now, it's not that big a deal.

Mostly because now, My brain works again!!yaaay!!

You will grieve-- cry, shout, be mad!!---and then, you will just do it because your very life depends upon it.

There's a lot of help and hope on here! Hang tough--we are all here for you!! :)

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I am the worst dieter in the world. I am absolutely crushed by having to admit that I have to change my life and my habits. I LOVE being low maintenance. I know that I will feel better by receiving this diagnosis (it started with Dermatitis Herpetiformis (horrible skin rash) and has led to me needing to lead a gluten-free life, so I know that I will get some relief... but I just can't imagine how this is going to work. You all seem so matter-of-fact, and I am just downright annoyed and sad. Did anyone else just feel mad and sad and exhausted by this whole thing?

This disease sucks and you have every right to feel all of the emotions you are going through. Finding this forum was the best thing that's happened to me since my diagnosis last June. It's made up of the kindest, most generous and intelligent people gathered in one place. You can always come here to vent and know that no one will judge you. You're not alone in this. Hang in there!!! Feel free to PM me if you need to vent one-on-one.

Loey

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I LOVE being low maintenance. I know that I will feel better by receiving this diagnosis (it started with Dermatitis Herpetiformis (horrible skin rash) and has led to me needing to lead a gluten-free life, so I know that I will get some relief... but I just can't imagine how this is going to work. You all seem so matter-of-fact, and I am just downright annoyed and sad. Did anyone else just feel mad and sad and exhausted by this whole thing?

Let me just say OH YEAH!!!!!! I am not quite <_< as angry as I was,, mostly now it is sadness I feel ,grieving a loss, of time,health ect...., :( but even that is getting better,,,hang in there ((HUGS))

As far as low maintenance,, what is lower maintenance then : throwing some meat in the crockpot in the morning and at dinner fixing some veggies and fruit for dessert??,,, a new way of thinking for sure, but this can be as low maintenance as you want it to be.

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It is hard at first but once you start seeing the results it will be worth all the trouble. You may also be going through a bit of withdrawl as well as the greiving process so take it easy on yourself. Treat yourself to stuff you enjoy whether it is a long walk, a movie or a good dose of chocolate. Cry when you need to and ask any questions that come to mind. The only reason so many of seem so 'matter of fact' about it is because we have been doing this for a while and we have seen the positive changes. But most of us have gone through all the feelings you are right now. Hang in there.

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Been there, done that. I haven't started the diet yet, but I will be in the next few days. But I've been BITTER. Very bitter. I'm mostly over it now. I had to basically go through a grieving process in order to move forward.

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Definitely you need to let yourself go through a grieving process. When I first was diagnosed it took me at least three or four months before I didn't have a good cry every few days, but now I'm finding I am so much happier. I try to focus on all the great things that have come from my diagnosis, like not passing out from my heart condition on a regular basis. It's so true what everyone says on the forum, it does get much easier. Hang in there!

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Been there, done that. I haven't started the diet yet, but I will be in the next few days. But I've been BITTER. Very bitter. I'm mostly over it now. I had to basically go through a grieving process in order to move forward.

Me, too. I feel robbed. :angry: My husband and I travel all over the world on culinary journeys and that has changed dramatically. :( It's not fair that I as such a major foodie has been dealt such a crushing blow. <_< I teach cooking classes for crying out loud. And I felt fine before finding out I have celiac disease - better than I do now so that seems doubly unfair. Now I am drained and when I was eating gluten I was full of energy. My mind is foggy and before I felt much more clarity.

In order to keep going I tell myself that my diagnosis could possibly have saved my life. :) But I'm not going to lie - it is painfully difficult.

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i felt that way at first, too. i still have little meltdowns but they are less frequent. yep, it really sucks with a capital SUCK. because (the hardest part for me, anyway) is that it is forever. in the beginning i was so angry and i was trying so hard to stick to the diet but i wasn't feeling any better at all. all a waste of time and effort! plus, i was making my family go through it as well. i didn't purge my pantry at first (denial) i didn't keep a food journal (nothing matters because i didn't feel any better) i bought alot of processed stuff that was labeled gluten-free but tasted like crap! but then one day, i woke up and didn't have to run to the bathroom twelve times an hour! i didn't feel like turning over and going back to sleep! i made a list of things to do for the day because i felt energetic (wow, what a feeling that i forgot) and i started gaining back my body weight - i have put on 20 lbs and have not gone up a size yet, which was probably all muscle weight - also, if i do chores around the house (washing windows, etc) i don't feel like i've been hit by a truck for days afterwards. that has just come back, i've noticed, in the past few weeks or so. and i've been gluten free since late july of last year. so hang in there. i cry a little for everybody who comes on here for the first time because i remember how i felt in the beginning - overwhelmed and mad as hell and sad all at once. i stood in the supermarket for an hour then i bought nothing and went home and cried. it will get easier :) i plomise ;) you are in the right place: nobody understands us like us :)

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I'm several months into this and I'm still pissed off that it took 7 years of complete and total self-destruction and a bunch of ridiculous diagnoses to finally realize the answer was at my fingertips!!??!!

I'm glad I found it, but now several months into this, I wanna know where do I go to get the last 7 years of my life back? Yeah, you are not alone. I loved being the one who never ever "special ordered". I sure ain't that girl now!

But knowing what caused the sores and my brain to be crazy is worth everything to me.

So we fight the good fight...because we have to. But there are some days....

DH and neuro symptoms were killing me. I'm thrilled to know there was an answer after all those years of hell.

Don't know how long you have been suffering, but I sure do hope you heal fast.

Venting helps. For all those years I was obsessed with "What the hell is WRONG with me?" Then when I found it I went through, "Why the hell didn't I figure this out?" And now that I'm healing it's like, "WTF? You mean I really can be WELL as long as I follow the Celiac rules? Cool!"

It is beyond wonderful not to have despair and illness and to be in control of my life again!

You will have those days too.

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Going gluten free is not the easiest thing in the world to do. Our society is overloaded with gluten containing foods. I've been gluten free for 4 months now and it does get easier with time. I'm good at home, I can find all the foods I want and need at my local grocery store. The only time I have an issue is eating out which occurs quite frequently for work or just a get together with friends. Watching television has become a pain too.. All the commercials!!! Just the other day I spouted "why does everything have to come on a bun or be breaded?" A little period of feeling sorry for myself but then I come out here and see that I'm not alone and it makes it easier. Not to mention that I feel 100% better than I have my entire life so that's a major plus.

Grieve as you must, get mad, get sad, but don't let it stop you from getting on with your life. Gluteny food is just one part of life. There is so much to be enjoyed that doesn't pertain to food that I feel dumb sometimes for having fits about missing gluten. Today, I went to lunch with two of my friends and the only thing on the menu that I could even try to eat was a salad with grilled chicken, 'the only thing' and I had to tell them to leave the croutons and breadstick in the kitchen but you know what? We had a wonderful time catching up and in the end it didn't matter what I had to eat. I saw my friends and enjoyed conversation and laughter and love. Perspective... that's what needs to change. Focus off the food and onto the real reason we gather together... :0)

Peace to all

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<_< I am glad that I have found this forum. I have been so confused since I was told that I have Celiac DIsease. My Mom just passed away from Pancreatic Cancer in October and she had Celiac Disease for ten years. She was diagnosed in July of 2010 and was told she only had 4 months. That was the worst time of my life. I miss my Mom sooooo much. I wish she was here so we could go through this together.

My thing is that she lost lots of weight due to the Celiac Disease and I am the opposite. I have been told for years that I have Irritable Bowel Syndrom. I need to pay attention to what I eat. That was all I was told. Well it never went away then they did the Celiac Disease test and ah hah guess what. But I don't loose any weight at all I just keep gaining and loose a couple of pounds then gain right back. I was also told that I have swollen Lynph Nodes in my chest area just above my stomache. If I follow a Gluten Free Diet it controls the swelling.

Has anyone else had these symtems. I need some help trying to figure it all out. I am having alot of trouble sticking to this diet because I travel all the time for work so alot of the times I eat while I drive.

Thank you and sorry if it sounds like I am whinning.

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I'm also low maintenance. I couldn't believe I would have to "think" about what to make and "PLAN".

I've only been doing it 2 weeks and I have to say it's not too bad. It's actually less fuss 'cause you eat simple. No big complex meals.

I hope you find comfort knowing you are not alone.

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<_< I am glad that I have found this forum. I have been so confused since I was told that I have Celiac DIsease. My Mom just passed away from Pancreatic Cancer in October and she had Celiac Disease for ten years. She was diagnosed in July of 2010 and was told she only had 4 months. That was the worst time of my life. I miss my Mom sooooo much. I wish she was here so we could go through this together.

My thing is that she lost lots of weight due to the Celiac Disease and I am the opposite. I have been told for years that I have Irritable Bowel Syndrom. I need to pay attention to what I eat. That was all I was told. Well it never went away then they did the Celiac Disease test and ah hah guess what. But I don't loose any weight at all I just keep gaining and loose a couple of pounds then gain right back. I was also told that I have swollen Lynph Nodes in my chest area just above my stomache. If I follow a Gluten Free Diet it controls the swelling.

Has anyone else had these symtems. I need some help trying to figure it all out. I am having alot of trouble sticking to this diet because I travel all the time for work so alot of the times I eat while I drive.

Thank you and sorry if it sounds like I am whinning.

I don't have a problem thinking of it as a diet. This is a life choice. It is poison you are putting into your body. For me that makes all the difference.

I say "oh, look there is cake. Yum. Oh that's poison." It no longer feels like I'm deprived.

I hope this helps.

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When I found out that I had Celiac Disease in July 2008, I was SO relieved because of the horrible pains and problems gluten was causing me. I don't miss much that I can no longer have. I have found substitutes for most items. Yes, it is a problem to plan ahead, but my well being and mental attitude towards life is worth it. I know this is hard to comprehend at the momentm but hang in there it does get easier....

Anyoone know a good substitute for beignets, let me know.....

Wenmin

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<_< I am glad that I have found this forum. I have been so confused since I was told that I have Celiac DIsease. My Mom just passed away from Pancreatic Cancer in October and she had Celiac Disease for ten years. She was diagnosed in July of 2010 and was told she only had 4 months. That was the worst time of my life. I miss my Mom sooooo much. I wish she was here so we could go through this together.

My thing is that she lost lots of weight due to the Celiac Disease and I am the opposite. I have been told for years that I have Irritable Bowel Syndrom. I need to pay attention to what I eat. That was all I was told. Well it never went away then they did the Celiac Disease test and ah hah guess what. But I don't loose any weight at all I just keep gaining and loose a couple of pounds then gain right back. I was also told that I have swollen Lynph Nodes in my chest area just above my stomache. If I follow a Gluten Free Diet it controls the swelling.

Has anyone else had these symtems. I need some help trying to figure it all out. I am having alot of trouble sticking to this diet because I travel all the time for work so alot of the times I eat while I drive.

Thank you and sorry if it sounds like I am whinning.

Thank you that is a real good way to look at it. Poison it is.

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I am the worst dieter in the world. I am absolutely crushed by having to admit that I have to change my life and my habits. I LOVE being low maintenance. I know that I will feel better by receiving this diagnosis (it started with Dermatitis Herpetiformis (horrible skin rash) and has led to me needing to lead a gluten-free life, so I know that I will get some relief... but I just can't imagine how this is going to work. You all seem so matter-of-fact, and I am just downright annoyed and sad. Did anyone else just feel mad and sad and exhausted by this whole thing?

you hit it on the nail with "low maintenance"- THAT, and the inconvenience- is what i find difficult.. and the ADDITIONAL food intolerance i have- now has made me cry. taking the gluten out- and STILL having food put me in agonizing pain...

i feel for you- and what made all of this much easier for me (than for others including you)- is that ive been dieting my whole life- and specifically been "rehearsing" for this since about 1998/1999. off and on since then ive been about 95% wheat free... sometimes not eating a complex carb or anything with sugar for months.. so, it wasnt a huge life change for me.. but it's still difficult and tedious... making sure you dont get a speck of gluten-

it IS upsetting just how much you have to abstain from- all the sauces and gravies too, etc. etc.. soup, diner food... it just gets ridiculous... and even tho, it make come across as "old hat" for me- i sometimes get very sad missing the days when i was ONLY following Atkins/Bloodtype... it was much easier and CONVENIENT.

you're gonna be ok... you'll get more and more used to it- and you can always come here to let it all out

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I am the worst dieter in the world. I am absolutely crushed by having to admit that I have to change my life and my habits. I LOVE being low maintenance. I know that I will feel better by receiving this diagnosis (it started with Dermatitis Herpetiformis (horrible skin rash) and has led to me needing to lead a gluten-free life, so I know that I will get some relief... but I just can't imagine how this is going to work. You all seem so matter-of-fact, and I am just downright annoyed and sad. Did anyone else just feel mad and sad and exhausted by this whole thing?

Ohmygoodness, YES!!! I honestly think there is a grieving process involved in giving up gluten, and/or whatever other food group you find out you're sensitive to, as well! There are times where I'm totally fine, but there are definitely a lot of times and moments where I'm horribly sad, overwhelmed, and/or incredibly jealous. The first week was definitely the most overwhelming, and it IS getting easier as far as knowing WHAT I can or can't eat, but the emotions are still up and down.

When you think about it, your world has really been turned upside down...I know that I never imagined that this was how things were gonna go for me. We have to let go of the way of life we used to lead. It's a big change, and big changes are scary.

Sometimes I curse gluten, shaking my fist in the air! HAHA, ok, now I'm just having some fun.

But seriously...give in to it. Take it one day at a time, you'll get it in no time. And coming here helps a lot!

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<_< I am glad that I have found this forum. I have been so confused since I was told that I have Celiac DIsease. My Mom just passed away from Pancreatic Cancer in October and she had Celiac Disease for ten years. She was diagnosed in July of 2010 and was told she only had 4 months. That was the worst time of my life. I miss my Mom sooooo much. I wish she was here so we could go through this together.

My thing is that she lost lots of weight due to the Celiac Disease and I am the opposite. I have been told for years that I have Irritable Bowel Syndrom. I need to pay attention to what I eat. That was all I was told. Well it never went away then they did the Celiac Disease test and ah hah guess what. But I don't loose any weight at all I just keep gaining and loose a couple of pounds then gain right back. I was also told that I have swollen Lynph Nodes in my chest area just above my stomache. If I follow a Gluten Free Diet it controls the swelling.

Has anyone else had these symtems. I need some help trying to figure it all out. I am having alot of trouble sticking to this diet because I travel all the time for work so alot of the times I eat while I drive.

Thank you and sorry if it sounds like I am whinning.

Don't ever apologize for whining. We're here to help each other in any way that we can. Feel free to PM me if you want to vent one-on-one.

Loey

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I am the worst dieter in the world. I am absolutely crushed by having to admit that I have to change my life and my habits. I LOVE being low maintenance. I know that I will feel better by receiving this diagnosis (it started with Dermatitis Herpetiformis (horrible skin rash) and has led to me needing to lead a gluten-free life, so I know that I will get some relief... but I just can't imagine how this is going to work. You all seem so matter-of-fact, and I am just downright annoyed and sad. Did anyone else just feel mad and sad and exhausted by this whole thing?

I'm right there with you. Gives me a headache just thinking about how inconvenient this is going to be.

I'm still eating gluten because I'm getting an endoscopy next month to get the "official" diagnosis; I REALLY don't want to restrict my diet unless I have to. (I am a vegan which already requires a lot of label reading, and avoiding most restaurants and being a general nuisance to my relatives, ha ha.)

I keep telling myself I should feel lucky that the treatment is "just" going gluten free and that it's not cancer or some equally horrible thing, but I can't help feeling bitter and sorry for myself. I feel like I've had enough bad stuff in my life (haven't we all), and I don't want to deal with this.

BUT -- I think I'll be glad for an official diagnosis so I'll at least know what's wrong with me and I can actually DO something about it.

Hang in there!

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I keep telling myself I should feel lucky that the treatment is "just" going gluten free and that it's not cancer or some equally horrible thing, but I can't help feeling bitter and sorry for myself. I feel like I've had enough bad stuff in my life (haven't we all), and I don't want to deal with this.

AGREED!!!!

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I know just how you feel. I've been at this for a year in April and I am still angry. My family is tired of me calling them "tribe Wheaterites" in an joking/antagonistic manner. I thought it was time for me to particicipate in the support forum because I need it really bad. Your post and the replies made me cry cry cry.....I feel like I found my tribe, "the Gluten-free-darites" I'm so tired of being high maintenance!!!

This is part of an email I wrote to my sister on Sunday. Sunday, I was at my lowest point so far in this journey. She has Reumatoid Arthritis, so she understands, and we vent to each other.

By the way, I have a wheat allergy. It's hard to find other wheat allergy peeps, am I welcome here?

To my sister on Sunday:

I am very depressed today about my wheat allergy. I got glutened all week by Splenda. It use to be a safe food, but I think they must have changed their maltodextrin supplier to one that is not in the U.S, because the bag I opened last week has been breaking me out in hives and migraines all week. I thought it was the coffee, but I eliminated splenda first, just this morning and did not break out. So, raw sugar it is for me. Maltodextrin made outside the U.S. is not safe.

Then I had to be a pain in the butt at church with communion. They have you dip the bread into a large goblet of grape juice. It did not occur to them that the rice cracker dipped in the grape juice full of wheat crumbs was a problem. But they were so nice and rinsed out the cup and put fresh juice in it for me......while 20 people waiting in line.....once again, I was a pain in the butt.

Then I went to my weight loss meeting, where they were all sampling this wheat bread. but, Jessica's fiance' made them take the bread into the kitchen to try. He's a chef and somehow knew that I would get sick from it in the air. I didn't have to say anything. That was nice...however, I was a pain in the butt.

Then we went to a neighbor's BBQ. I had to ask about every single ingredient in every dish before I found something to eat.....The host had to ask people things like "what brand of mayo did you use in the potato salad?" Did you make the Spanish rice from scratch or did you use a box mix?"

Again....I was a pain in the butt.

And I still got sick. It happened at the BBQ with all the cakes, wheat products, beer and wine in the room. I get sick from wheat in the air. I have a migraine.

I need a support group. My family is soooo sick of hearing about the wheat allergy, and I'm tired of being a pain in the butt.

I'm angry about this wheat allergy. I'm so sensitive now that I can't even be in a room with wheat without breaking out in hives.

I learned that the reason I cannot handle fragrances is because they have wheat in them. The manufacturers do not have to declare it. I saw that on "The doctors", believe it or not. They said if you have a wheat allergy and can handle certain scents (me) chances are that they are wheat free, but most have wheat ingredients and therefore make me sick!!!!

Sigh........

I hope I can be a part of your group as I am still working on coping...........

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I know just how you feel. I've been at this for a year in April and I am still angry. My family is tired of me calling them "tribe Wheaterites" in an joking/antagonistic manner. I thought it was time for me to particicipate in the support forum because I need it really bad. Your post and the replies made me cry cry cry.....I feel like I found my tribe, "the Gluten-free-darites"

This is part of an email I wrote to my sister on Sunday. Sunday, I was at my lowest point so far in this journey. She has Reumatoid Arthritis, so she understands, and we vent to each other.

By the way, I have a wheat allergy. It's hard to find other wheat allergy peeps, am I welcome here?

To my sister on Sunday:

I am very depressed today about my wheat allergy. I got glutened all week by Splenda. It use to be a safe food, but I think they must have changed their maltodextrin supplier to one that is not in the U.S, because the bag I opened last week has been breaking me out in hives and migraines all week. I thought it was the coffee, but I eliminated splenda first, just this morning and did not break out. So, raw sugar it is for me. Maltodextrin made outside the U.S. is not safe.

Then I had to be a pain in the ass at church with communion. They have you dip the bread into a large goblet of grape juice. It did not occur to them that the rice cracker dipped in the grape juice full of wheat crumbs was a problem. But they were so nice and rinsed out the cup and put fresh juice in it for me......while 20 people waiting in line.....once again, I was a pain in the ass.

Then I went to my weight loss meeting, where they were all sampling this wheat bread. but, Jessica's fiance' made them take the bread into the kitchen to try. He's a chef and somehow knew that I would get sick from it in the air. I didn't have to say anything. That was nice...however, I was a pain in the ass.

Then we went to a neighbor's BBQ. I had to ask about every single ingredient in every dish before I found something to eat.....The host had to ask people things like "what brand of mayo did you use in the potato salad?" Did you make the Spanish rice from scratch or did you use a box mix?"

Again....I was a pain in the ass.

And I still got sick. It happened at the BBQ with all the cakes, wheat products, beer and wine in the room. I get sick from wheat in the air. I have a migraine.

I need a support group. My family is soooo sick of hearing about the wheat allergy, and I'm tired of being a pain in the ass.

I'm angry about this wheat allergy. I'm so sensitive now that I can't even be in a room with wheat without breaking out in hives.

I learned that the reason I cannot handle fragrances is because they have wheat in them. The manufacturers do not have to declare it. I saw that on "The doctors", believe it or not. They said if you have a wheat allergy and can handle certain scents (me) chances are that they are wheat free, but most have wheat ingredients and therefor make me sick!!!!

Sigh........

I hope I can be a part of your group as I am still working on coping...........

Oh, I am SO sorry for all you are going through. At first it seems impossible and overwhelming and you definitely do go through a grieving phase. Emotions run high (speaking from experience). We understand what you are going through - we really do. Last week I had some corn tortilla chips after checking the ingredients and website. However, today I received an email from them in response to my email last week telling me that they apologize but the product DOES now contain gluten. I was being SO stringent! Thank God I do not get GI issues when glutened. However, as a silent celiac I have no clue when it happens which is very scary.

Unfortunately it can be far easier to just stay home and avoid potlucks, BBQs, restaurants and so on. But then you also have to have to live in order to have normalcy. At our church there are three of us with Celiac who go to the front to get our rice crackers for communion before the bread is passed around in the congregation so I am happy they are aware. BUT there are no gluten-free friendly restaurants in town at all.

I can relate to grilling people on ingredients they put into their food before I feel safe to eat it. I feel like a dork for having to do it but I have become more assertive! ;) It seems as though more people "get" other diseases such as diabetes.

So, I have been doing things that I enjoy, such as continuing to cook and eat very well at home. I'm actually having fun experimenting with all sorts of flour blends for yummy coconut cakes, cookies, pies, brownies, breads, English muffins, tortillas... Sure, some things SUCK but some actually taste remarkably good. Sometimes you need a treat. Unfortunately when I hear "treat" I think FOOD.

Keep hanging in there. Be kind to yourself! :) And WELCOME! You will find a lot of wisdom here. :D And don't forget - we UNDERSTAND.

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It's interesting -- I saw your title, and I thought, oh, come on! It's not that bad. But then I reviewed the last year and a half that I've been gluten free, and I remember the days when I cried because I didn't know what to order at the restaurant I was driving to in order to meet some friends. And when I wasn't sure what to make for dinner because I'd tired of my tiny repertoire of food choices. And when I got (get) sick and feel like crap for three weeks in a row, with a few days of torturing relief, all because I wasn't careful -- or maybe I was, and it still screwed me up. All this to say: I promise, it gets better. It seems impossible now. Grief is a normal process of giving something up. It's easy for me to sound blase about it, because...well, I feel great most of the time, so it's worth it. But when you are still new, and aren't always feeling fabulous (I felt like crap my first six months and wondered what the point of all of this was), it's hard to see the light at the end of the proverbial tunnel. You have a great support group here, and look to those around you who struggle with similar issues -- perhaps not food issues, but others in your life struggle with illness. My BF has clinical depression. Another friend has ongoing mental and physical issues. I have several gluten-free folks I know now. And you'll find your recipes that rock your world, the restaurants who will be thrilled to be careful just for you, and the people in your life who will want to cook for you (carefully...very carefully) because they love you. Don't give up hope -- it's so worth it on the backside. :)

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    • Post thought here, how much gluten were you eating for your challenge? You do know only have to eat like 1-2 crackers like a saltine, wheat thin, or ritz a day or a half slice of bread. If it is just the drugged feeling you might try it at night before going to bed and sleep it off. This was still too much for me years ago and now days would lay me out puking for hours.
    • Sounds like my hell years ago in a way, heavy anxiety, thought I was dying, I was running a bucket list, random bouts of anger and frustration at why my hands, feet would not do what I wanted, and my brain would not process things right, thoughts just seemed to loop, I was constipated for 4-10 days at a time. Layed out in bed someday. Had a few occasions where my body would just go out on me, like collapse to the floor once with only one arm responding. Eventually found out it was celiac, had to get my own place trash everything and start my life over from scratch in a gluten-free dedicated environment, soaps, foods, dishes everything gluten-free. Been slowing healing over the years and gotten much better.  Had some other complication develop from the disease but at least I am not dead. I might suggest getting tested, eat gluten in small amounts for the test like a cracker or half a slice of bread a day, need to be eating it for 12 weeks for the blood test and 2 weeks for the endoscope. Ask you doctor for a FULL Celiac panel blood test, also see about getting that endoscope with several biopsies. Welcome to the forums. this place is great for support and you will find many of us have had similar issues. Thank god I never had the eye issues not being able to watch anime would have killed me -__- Still to this day wish I had the immortal body of Alucard. Anyway few links to help you out and give you some ideas, and make life easier.   https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/ https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/      
    • Could be the gluten. Could also be the excess carbs and sugar. Which, if you are anything like me, you certainly have added a few things you have been missing. Try some protein when you intake gluten. 
    • So, my long journey has brought me here, from several health anxiety and autoimmune forums I've finally arrived at something I hope is the cause of my problems. My more debilitating symptoms started about a year ago, when I got food poisoning, although it may have been even before that. Looking back into my childhood, I had anxiety and a lot of the behavioral symptoms of a celiac. The only thing I'm not quite sure of is that, standing at 5'11, I'm not sure if I could be so tall, or perhaps I would be even taller. When I was a kid, I threw a hissy fit whenever my grandmother tried to drag me to the doctor. I kicked and screamed when she tried to take me to get a blood test. I hated anything invasive. The standard cognitive tests and dentist visits were fine, but I absolutely refused to have my blood drawn, except with the prick of my finger, which still bugged the hell out of me, and I teared up when that thing scraped me. I probably would have been diagnosed with celiac a long time ago, if I had it.   I've been depressed for most of my life with a touch of anxiety. I did terrible in school because I didn't feel like doing the work. I had great test scores. At the end of the year, whenever we would have those tests I would pass with high scores even though I did poorly in about half of my classes. My work ethic paled in comparison to my intellect.    I ended up getting kicked out of school because of an incident I became involved in my junior year. I had finally made friends I struggled so long to get, and in the blink of an eye they were all gone. I held firmly the belief that those I had gotten into trouble with would come after me for revenge because they were part of a bad crowd. I was forced to keep going to school because I was still underaged, but tried as hard as I could to stay inside and away from people. I had to go to counseling because I told the police I had anger issues and that was why I snapped in that situation.  I became reclusive, and only stayed in contact with my closest friends. I honestly wanted them to think that I was dead. I ended up going through 2 rough situations, one where my grandmother's husband died of colon cancer, and one where my uncle died of liver/kidney failure - both related to heavy drinking and drug use. My anxiety spiked. I heard the death rattle for the first time in my life. I was convinced that my family didn't do enough to help my uncle, but in fact it was him that had been doing it to himself. He passed away the night I learned that he "had 2 weeks left". He wasn't even on any painkillers. I started to develop strange thoughts where I was convinced that I would be the next to die. These instances were just the beginning of my emotional problems. It took a very long time for my symptoms to fester. In the November 2015, I started working my first job. Manual labor at that. I was helping my boss install air conditioners and heaters in pristine houses in different parts of LA that cost up to 5 million. My boss started to talk about having me work there more and as someone who had plans that involved going to college you can probably imagine the discomfort I felt at the idea of working on air conditioners for the rest of my life, even if the money would be good. This was when the anxiety attacks began. Although there weren't any physical symptoms then, I started to feel my depression and anxiety weighing down on me. On Christmas 2015 I had an anxiety attack that presented with pain behind my right eye, something that sent shivers down my spine. I eventually got laid off by my boss in January and went back to lounging around my house for another month. I didn't really notice much wrong then, I was convinced that I might have to start taking antidepressants for my anxiety attacks pretty soon, as they would bother me a lot. One night, I got hungry. It was 9pm and my grandmother wasn't home yet to make dinner, so I asked my Grandfather to take me to Panda Express, one of my favorite places to eat.  I brought the food home and one of the first things I noticed was that it tasted vile. There was something off about the rice. I couldn't quite put my finger on it. It was my favorite food, so naturally, I ate the rest anyway without a second thought.  A couple hours later I had a nauseous feeling in my stomach. I knew I had gotten food poisoning. I spent the next 24 hours vomiting and squirming around on the floor until my symptoms went away.   But this wasn't like other times I had gotten sick. This time was different. When I woke up that morning, there was something wrong with me. Not with my stomach, but with my vision and my eyes. No, my vision wasn't blurry, but there was something else incredibly wrong with me. I take pride in reading and enjoying my foreign programs in which I have to read subtitles, but for some reason, I just couldn't focus. I couldn't read. I couldn't watch TV. I couldn't do anything that required a decent level of mental acuity. I brushed it off and figured it would probably go away in a couple of days. When I walked to the liquor store the next night, I noticed something strange. The halos around the street lights seemed larger and more pronounced. Although I'm not sure what it was, if that was even the problem in the first place, I knew something was wrong. My anxiety was the worst it had ever been. I hadn't been to a doctor in years, let alone care about my health. Most of my anxiety had to do with my surroundings, but suddenly I was compelled to google my symptoms. I had a strange feeling behind my eye and I started to see rings around lights. I thought I had glaucoma. The visual symptoms became worse. I started to see visual migranes, hard to explain, but they're like patches in my vision, kind of like visual fog but larger and more pronounced, and with afterimages whenever I see lights. It's aggravating to say the least. Anyways, I had about a week of these symptoms before I dragged myself to the eye doctor and told her I was convinced I had glaucoma. She looked at my eyes and said they were perfectly fine. I was a tiny bit nearsighted, but I had enough visual prowess to drive or doing anything else without having problems. This came as a surprise to me,  I couldn't even read or watch my favorite movies! I was convinced that all of this was just anxiety at that point. Loss of concentration didn't seem that bad. I was just glad I wasn't going blind. Then I REALLY wouldn't be able to watch TV.   A week passes by before I develop another debilitating symptom. Severe neck pain. I woke up one morning and it was agonizing. I'm not sure when I noticed I had tinnitus, but this was aggravated to say the least. The migranes and anxiety reached their peak. At that point I was convinced I had developed some form of meningitis. Falling asleep at night was like passing out after a long day of not being able to do anything. I was having panic attack after panic attack. I thought that it might be a tumor instead and I was convinced that I wouldn't even be alive for 20th birthday. There was a weakness that radiated down my left arm and leg. At this point, I was desperate to get even a month left to live. I was constantly pleading to a god I stopped believing in a long time ago for more time. I went to the doctor for the first time in years, convinced that I had meningitis. Both my grandmother and my GP laughed at the notion. The GP diagnosed it as nerve pain, gave me antibiotics for my constipation, antidiarrheal medicine, and an antianxiety and sent me on my way for a couple weeks. I took the antibiotics for a bit but ended up spilling them into the sink at which point I figured I probably couldn't use them anymore I don't remember any of my gastro symptoms then as i didn't think anything of them. All I can remember is being constipated for days on end, which wasn't very fun either. Eventually, I went back to the GP and she prescribed me elavil for my tinnitus and my nerve pain, which made just about everything that bothered me wither away at that point. The strangest thing, actually, was that my symptoms went away BEFORE I started taking the pills. Of course, I didn't know what happened, but I had a day when my symptoms went away before coming back again and I didn't want to take a chance, so I started the medication right away, and they never did come back. Swell right? WRONG.   I had a happy few months between Late March and August that seemed swell, except that I couldn't quite enjoy things like I used to, and I was saying things to my online friends that made them shy away from me. I was convinced at this point that I was just going crazy. My mother is schizophrenic so I just sort of took it as is and was getting ready to tell my doctor and see if the symptoms would go away if i stopped the pills. I didn't do this in reality, as a matter of fact, I told the GP I felt great and she suggested that I increase the dose from 10mg to 20mg. I didn't do this for a while, but I got into an argument with someone that I was just starting to become friends with and decided that enough was enough. I popped that extra 10mg and was ready to crank it up a notch to keep the depression at bay. It seemed to be working, but about a week later, I began to develop a burning pain under my right rib. Uh-oh! I started to google again, but my anxiety was still pretty much under control. I tried to convince myself I had colon cancer, but it didn't hit me hard until I told the doctor I thought the pills were causing the pain and that I was going to stop taking them. This is pretty much where things took a turn for the worst. One day, after I had a couple corn dogs and french fries, I went to the bathroom to find that my stool was yellow and there was blood. Immediately I panicked and called my GP. A lot of things have scared me these past few months, but none more than that instance. The occult blood test came back negative, what do you know. I was pretty healthy at around 147 pounds, my average weight. I told myself at that point that I would turn my life around before things got any worse. I wanted to go vegetarian and avoid meat for the rest of my life. That seemed like the best option at that point. Well, I was wrong, because I was probably b12 deficient, and where does b12 come from? Yeah.... Well, it probably wasn't colon cancer, so what else could I convince myself it was you ask? Pancreatic cancer. I rolled around in bed, night after night, feeling extremely tired, and at the same time, not being able to sleep. When I closed my eyes I had visions of what my organs would have looked like with cancer spreading everywhere. Other times I would envision my own funeral 2 months later after a very painful death. I was very spaced out. It was beyond brain fog. Not only was I so bloated I couldn't eat, but I just made it worse by taking immodium. After that it was god awful. If I was dying, I just wanted to know what was wrong with me, if I had any fighting chance at that point. I think I went down to 136 at this point. I got the blood test and was prescribed a different antidepressant by my doctor. I waited until my test results came back to take it. By that time, I had dark circles under my eyes and white patches on the insides of my cheeks. I came back to get the results of the test, and to my surprise there was absolutely nothing wrong with me (at least that could be seen from my blood). I already started eating meat again by this point. WBC 8.7 (normal) RBC 4.94 (normal) I wasn't even anemic. I swore that my skin started to yellow. I was constantly checking my eyes and suffering. I decided this was the last straw. I started to take the medication the doctor prescribed me, and I felt great! But a couple days later, I took the full dose and woke up the next morning, not being able to breathe and with a super fast heart rate and dilated pupils. This was my first time in the ER. The docs were dumb as rocks. They told me that it was "just anxiety". I couldn't even feel the move the left side of my body. I nearly died, and those kooks told me that I had anxiety! They made me sit in a chair for 30 minutes while the reaction went away! (not to mention I got the bill recently from that ridiculous debacle and they're trying to charge me $4000 for letting me in the door and sending me out.)   Anyhow I'll summarize the next few months between the ER incident and now, including a 2nd time I landed in the ER, wowee! -Lost 6 more pounds between that point and about a month ago. -Kept taking paxil and had several more reactions similar to the one that put me in the ER. -Learned about b12 deficiency and was convinced I had pernicious anemia for a while. Taking multivitamins staved off some of the symptoms, including the bloating. -Some mulitvitamins I bought actually made me feel worse including making my joints hurt, although this may be actually due to wheat, as i've learned -Fatigue became progressively worse. I've got Lymph nodes raised all over my body and I was sleeping most of the day before I stopped eating gluten entirely -Was constipated for days on end. My bowel movements improved with experimentation, although I still couldn't figure out what the problem was. I knew that things like French Toast would make my stomach hurt, but I didn't draw the conclusion because I was convinced that fatty foods would help me gain all that weight back (It obviously didn't. As a matter of fact it was probably why. I'm still sitting at around 132 but at least I'm not dead or getting worse from what I can gather.) -Extreme brain fog until I started taking large dose of sublingual b12. I play a lot of video games and my coordination was god awful.  -Took a non-sublingual b12 pill which made me bloat big time. I should have checked to see if those pills had wheat. -My hands and feet felt like blocks of ice, and my feet burned when I got in the shower. -Developed Tachycardia. I'm not sure when, but my resting heart rate is unsettling. Doctors said nothing about it -Diagnosed myself with several cancers and had several panic attacks which I used my b12 tablets to quell. -Tried to take Elavil again, and woke up with a strange feeling in my left arm, so I stopped taking it.   I ended up in the ER for the 2nd time a few weeks ago. This time I was sure I was going to get the answer I didn't want to hear. "We've examined your chest X-ray and found cancer spreading throughout your body" or something along those lines. I knew that there had to be something going on. I went in there for chest pain, but I had to tell the GP about what was going on. The weight loss, the abdominal pain that mysteriously disappeared months beforehand after I took the pills. He suggested that it must be some sort of malabsorption/malnutrition that was doing this, and I was convinced that an H Pylori infection was the cause. Anyhow, my chest X ray came back normal, as did my blood test, and when I got home, my grandma suggested that I look into Therapy. (as if that would somehow help with the chronic fatigue and other debilitating symptoms) I had nobody else to turn to, so I emailed my grandma and told her everything that was going on. She told me that she thought I had celiac disease, and so far, the results aren't too bad. I've gotten "glutened" a couple times so far, but my constipation is gone, and I've gained a little bit of my weight back. I'm not even sleeping as much as I was. I'm still going to see a gastro, a dentist, and a derma about my more serious concerns, but overall, I don't feel too crappy. I've even got my appetite back. Anyhow, if you've made it this far, I'm glad, as it has been a really bumpy ride for me. I've still got a lot of health anxiety about cancer, but I finally feel like I'm on the right path. I didn't even think I would be alive right now, especially not at 2 in the morning, with only minor aches and pains. I hope I can eventually get diagnosed and get used to this place.        
    • https://www.starbucks.com/menu/food/hot-breakfast/gluten-free-breakfast-sandwich "It's all prepared in a certified gluten-free environment and sealed for your safety. We then warm and serve it in its own oven-safe parchment bag to avoid any cross-contamination."
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