• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Came So Close To Thinking I'd Found The Answer
0

Rate this topic

10 posts in this topic

Recommended Posts

Ok, so my reasons for suspecting gluten were chronic daily diarrhea for 2 years and occasional (up to a couple of times per month) stomach pain (below my belly button) that was so bad that several times my doctors and I thought it was my appendix and went to the E.R. After I suspected gluten, I started discovering a lot of other things that going gluten-free could help with, such as scatter brain (you guys call it "brain fog") and joint pain.

I'd been doing so well, my Big D had almost disappeared and had not had the stomach pain since going gluten free 2/11 but it's disappeared for months before. Saturday, I had some mild stomach cramping but knew my monthly cycle was due so attributed it to that. I was craving Hot Wings like a fiend. Our local chain of hot wings is called Plucker's and they swear and advertise they're gluten free. I got my hot wings and an hour later had horrible stomach cramping and the Big D. Now I know you might think I'm not used to spicy food, but even though I'm doing gluten-free, I have migas most mornings with my gluten-free HOT sauce and chicken enchiladas with spicy sauce (on corn tortillas). I LOVE spicy food. And my migas and enchiladas were not bothering me a bit and my diarrhea was almost non-existent.

Later Saturday evening, my monthly cycle started. I've been keeping a diary of my stomach pains, monthly menstrual cycles, food changes and such since January and this is the first time that my menstrual cycle coincided with my appendix pain". My OB is next stop, she was planning on checking to see if I have scar tissue that is causing intestinal blockage as the next step for my "appendix pain" diagnosis. My appointment is Thursday.

So gluten-free, seems to have helped with the Big D TREMENDOUSLY but not the stomach pain... or should I consider myself "gluttoned" from the chicken wings and still hope for gluten-free to also help with future stomach pain? Or can I rule gluten-free out as helping my appendix like pain?

What do you guys think? I'm not sure to tell my doc on Thursday that the gluten-free was helping both things or just the one.

Have I confused everyone?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It is possible the wings were cross contaminated if the place also serves gluten food. I hope you are feeling better soon, hang in there and don't give up on the diet yet.

Share this post


Link to post
Share on other sites

It could certainly be cross contamination--but when you check in with your OB, you may want to ask about the possibility of endometriosis. I had similar symptoms for years until the pain got so bad I almost passed out. By that time I was 49 and underwent a hysterectomy. It was only through the pathology report that they found out I had it.

Share this post


Link to post
Share on other sites

If your Dr. listens, I would tell her all of it just like you said it above!

It is a puzzle. Could have been CC or glutening, but you never know. It is worth following up with whatever you can. Sometimes you just can't know if you have been glutened. But if it is something else, you will definitely need to know.

Good luck at the Dr.

Share this post


Link to post
Share on other sites

OH, I'm DEFINETLY staying gluten-free! First time of no Big D in 2 years! That reason enough not to eat gluten ever, ever again! :D

It could certainly be cross contamination--but when you check in with your OB, you may want to ask about the possibility of endometriosis. I had similar symptoms for years until the pain got so bad I almost passed out. By that time I was 49 and underwent a hysterectomy. It was only through the pathology report that they found out I had it.

Cross Contamination is possible. I know for their kids meals, they serve battered chicken tenders and they serve burgers on buns, etc... As for endometriosis, I have it and have had it since I was a teen. In order to have my babies, I had to get my uterus (sorry guys!) scraped. I've now had ablation done (as well as tubes tied) a couple of years back to reduce my monthly bleeding down to almost nothing (but it's picking up speed again). When she did the ablation she mentioned that I did have uterine adhesion's (both my sons had to be emergency c-section)and I called her after my last E.R. trip, she mentioned these adhesions and wondered if they were twisting my intestines or causing an obstruction.

btw... ALL of you Rock! Thank you SO much for all of the support you give!

edited to fix all of my typos!

Share this post


Link to post
Share on other sites
Ads by Google:


OH, I'm DEFINETLY staying gluten-free! First time of no Big D in 2 years! That reason enough not to eat gluten ever, ever again! :D

Hey NancyL! Glad to see you're still here... I sort of lost track of you for a while and was wondering how you're doing with going gluten-free. We both posted for the first time on the same day, I think... so I sort of feel like your battle is my battle. So happy to hear you're feeling better with gluten-free! That gives me hope for the future. ;) You asked if you should tell your OBGYN that gluten-free helped one or both ... and to that I would say, tell her that you "thought" it was helping both until your recent pain, but that you're definitely sure it DOES help with the "D", so now you're not sure. That might help her figure things out to... just be as honest and detailed as you can with her. Hope she can put an end to the pain for you. Good luck and keep us posted on your progress! It's really good to see progress by people on here.. gives the rest of us hope!

Share this post


Link to post
Share on other sites


Ads by Google:


Hey NancyL! Glad to see you're still here... I sort of lost track of you for a while and was wondering how you're doing with going gluten-free. We both posted for the first time on the same day, I think... so I sort of feel like your battle is my battle. So happy to hear you're feeling better with gluten-free! That gives me hope for the future. ;)

Hey Ms.Curious! I've been MIA because my 3 yo had pneumonia (AGAIN! 2 times since Jan 30th!) and my oldest son got suspended from school AND my mom has a possible breast cancer recurrence scare so I've been going to her dr.s appts. It's been VERY challenging over here. :) But yes, I've stayed gluten free and don't really miss it! I hope you're seeing some good results now? I'll try to find some of your posts so I can catch back up. :D

Share this post


Link to post
Share on other sites

Maybe you're also intolerant of something else--I would guess soy....and there may have been soy in those chicken wings. In the past, the very few times I ate soy, I ended up in the hospital thinking that I had appendicitis. The pain and subsequent D were horrible! Just a thought...

Share this post


Link to post
Share on other sites

Hey Ms.Curious! I've been MIA because my 3 yo had pneumonia (AGAIN! 2 times since Jan 30th!) and my oldest son got suspended from school AND my mom has a possible breast cancer recurrence scare so I've been going to her dr.s appts. It's been VERY challenging over here. :) But yes, I've stayed gluten free and don't really miss it! I hope you're seeing some good results now? I'll try to find some of your posts so I can catch back up. :D

OMG... they never told us at birth being female meant becoming grand-master juggler, did they? You poor dear! Just having a child with pneumonia is bad in itself, but you've really got a plateful! I'm sorry... let me know what I can do to help....which isn't much from here, but I'm a good listener if you need an ear. ;) Just shoot me a msg. Hang in there!

I still haven't gotten to the gluten free diet yet!!! I postponed my biopsy with "G I Jerk" as my husband calls him. :P Because my regular Dr sent me off to the allergist first... which confirmed that I'm not allergic to much other than mildly to shrimp and oak trees, and strongly allergic to birch trees.. but like I said before... not planning on eating a tree anytime soon. :lol:

I'm actually sitting on pins and needles ... expecting a call from my DR any minute now (its 5:15 pm here) regarding the results of my EMA. Something else occurred to me last night though... when I was thinking through the years, and my medical history...which has been relatively complaint free (except for the chronic digestive stuff that I thought was hereditary...and fatigue and headaches..and lol all the stuff I put up with cuz I'm not a whiner). Anyway, I'll investigate that tomorrow, but in the mean time... hoping to find out what the next step is today.

Keep smiling... even though at times its hard... it does help. ;) Wishing the best for your mom and kiddlings..and YOU!

Update: 10:15PM Doctor never called :( And the wait continues...

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,109
    • Total Posts
      939,714
  • Member Statistics

    • Total Members
      66,093
    • Most Online
      3,093

    Newest Member
    RowdyPope
    Joined
  • Popular Now

  • Topics

  • Posts

    •   My mistake... HUGE Oops... She hasn't been diagnosed with anything as of yet. I couldn't remember the name so I googled and DH came up. Well that was wrong.... it is Keratosis pilaris she has. i just really don't want her to get to 20 years old and finally become allergic to lactose like her father, and continue to gain so much weight that she needs knee replacements, and diabetes,  and depression, and bipolar, and brain fog and dementia beginning at 48 and dead at 50 like my MIL, or like my mother having allergies to soy, egg, now corn and milk too, also a diabetic.... because of all these allergies she's allergic to a lot of antibiotics and much OTC medicine as well Thank you for your advice thus far
    • i was at a meeting recently, where they serve dinner, ironically the meeting is at a communitiy room at our local hospital (where the meal is catered by the hospital cafeteria and i do not eat BECAUSE THEY CAN'T DO GLUTEN FREE.  AT A HOSPITAL.)  but i digress.... 'oh, my doctor told me i have that, too.  i just can't stop eating bread ha ha ha' as she chomps a bite of dinner roll.   worse?  she's a doctor's wife    ya can't fix stupid 
    • If she was actually diagnosed, by a skin biopsy, for DH, then she has Celiac.  NO need for further testing. http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/  
    • i find that i can tolerate some foods that were off limits to me (soy, certain veggies, ice cream, chocolate, etc) if i do not eat them two days in a row, for whatever reason.  i'm thinking histamines.  whatever it is, i can eat many more/different foods.  i usually eat the same sort of food/meal every 3 days.  i was puzzled why i could eat something one day and be fine.  then eat the same thing the next day and not fine.  seems to be working i thought i had a problem with eggs bc i was eating them nearly every day for breakfast, but if i rotate it with cereal one day, a bagel or waffle or pancakes etc for day 2 then i can have eggs the third day as long as i go back to cereal the next day (for example) i can even tolerate fresh (and frozen lolz) fruit once every 3 days when i thought i couldn't tolerate fruit at all.  so long as i don't eat it tomorrow it's trial and error, and what works for one may not work for another.....  but this seems to be working for me.  right now lolz
    • An oldie, but a goldie! Myself, I'm not a celiac sufferer, but I have a sensitivity that is somewhere in the 5ppm range and I get symptoms within about 20 minutes of ingestion. I'm sort of a bloodhound for celiac sufferers. I was trying a particular brand of honey at someones request and I did get a reaction. I was kinda surprised at that one. Honey is a product of nature and depending on the location the contents will vary. I have not been able to find a product that actually carries a gluten free certification. I know manufacturers want to avoid costs, but that should be the first indicator of trouble. At work, someone is offering honey from their own bees and they have pictures of two samples. One sample is from the bees next to their wheat patches (which they plant specifically for the bees) and the other is from a different hive. The wheat locality bees produced significantly darker honey. Take this with a grain of salt. Myself, I no longer eat out and if it isn't a raw vegetable I look for gluten-free certification. I'm pain and inflammation free. Well, some days it's still worth it to get a nice steak at a restaurant.    
  • Upcoming Events