Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

First Support Meeting

etta694

By etta694
in Meet Up Room

Recommended Posts

etta694 Explorer
etta694
Posted

I've decided to have the first ever Celiac/Gluten Free support group meeting in the area around our town (100ish mile radius). I have not struggled to the extent that many have nor is Celiac or Gluten problems well known in this surrounding area. I'm sure most have information from the web but I still plan to have some info for those that are not computer literate. For the most part, I am thinking this is needed for connecting with others, emotional support, some for info, possibly for sharing recipes, and some for resourcing answers to problems that others could help with. Is there anything obvious that I am missing here that I need to consider? I am not an organizer and this is totally new for me.

If you have anything I could share with this new group or any suggestions I would be very grateful.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciavyn Contributor
ciavyn
Posted

Etta -- check out GIG, which had local meetings in many major cities. If one isn't close to you, go for it. If there is one nearby, check it out to see if it provides what you are looking for. You still may want to consider doing your own. Make sure your meetings are held in an area near to several populated cities/towns. You could utilize meetup.com for gluten free support group advertising, as well as boards like these (though I'm not sure what the policy is here at celiac.com's forums, so you should probably ask first!) Put up fliers, think of what kinds of events you'd like to plan. An open potluck for gluten free folks would be a good ice breaker, and just ensure everyone brings along a dish, the recipe with specific ingredients including the brand used, and an open mind. :) That way, anyone can feel comfortable. And be prepared to manage friendships...and disagreements. They happen in every group. But it's worth it.

In fact, I'm thinking i might try to find something similar in my own town...

Link to comment
Share on other sites
etta694 Explorer
etta694
  • Author
Posted

Thank you for your thoughts, I appreciate it.. I am thinking that the group thing here is a good idea because we can't travel that far in winter (too much snow and ice) and people need something closer. The closest would be 2 hours drive. A POTLUCK!!! Yum..I'm for that! I think that will be the first event (after our initial get together - I want to see what the interest level is here.) I've done fliers.. I am going to try the local radio too.

Link to comment
Share on other sites
mamaw Community Regular
mamaw
Posted

Etta

I posted info on starting up a group back on Oct 2,2010, I think if you go back to page 3 on that date you will find info. It may not be what you are looking for but I've had a group for many years now.I run it independently . I agree the GIG is a great group & if I ever decide to join up with a national group it will be GIG>

When you go it alone you will be the person who is responsibible for the entire meeting.. So you need to be prepared for anything ...

I don't want to discourage anyone from helping others in this lifestyle but I don't want anyone who is trying to help others get in a mess... When you join a national group you follow their rules & regulations& then you ,yourself are not totally responsible if something occurs. So you said there was no group close to you , well maybe consider starting or joining the GIG. They will help you get it going & give you support..

blessings

mamaw

Link to comment
Share on other sites
etta694 Explorer
etta694
  • Author
Posted

I'm in Canada so I looked this up because I'm not familiar with it. It is Gluten Intolerance Group® of North America... I am going to look into this.. we're N. America :P . Thank you for that suggestion, all.

Sometimes it seems to take time for things to sink in... so I finally hear that having some guidelines, rules, and regulations in place is beneficial.. instead of trying to put out fires after the fact. I looked into Gig and also researched support group ground rules. Excellent. Organization is NOT my strong point.

Link to comment
Share on other sites
  • 2 weeks later...
Rome Newbie
Rome
Posted

I've decided to have the first ever Celiac/Gluten Free support group meeting in the area around our town (100ish mile radius). I have not struggled to the extent that many have nor is Celiac or Gluten problems well known in this surrounding area. I'm sure most have information from the web but I still plan to have some info for those that are not computer literate. For the most part, I am thinking this is needed for connecting with others, emotional support, some for info, possibly for sharing recipes, and some for resourcing answers to problems that others could help with. Is there anything obvious that I am missing here that I need to consider? I am not an organizer and this is totally new for me.

If you have anything I could share with this new group or any suggestions I would be very grateful.

I think this is a wonderful idea. Maybe your first meeting could just be like an icebreaker, getting to know each other, and having everyone give you some input on what they would like to get out of the meetings, what their main concerns are, find out what they know, what you think they might need to know, etc. Maybe you could have like a weekly topic for discussion. Just some ideas. I like the potluck idea, recipe exchange.

Good luck!

Link to comment
Share on other sites
etta694 Explorer
etta694
  • Author
Posted

I think this is a wonderful idea. Maybe your first meeting could just be like an icebreaker, getting to know each other, and having everyone give you some input on what they would like to get out of the meetings, what their main concerns are, find out what they know, what you think they might need to know, etc. Maybe you could have like a weekly topic for discussion. Just some ideas. I like the potluck idea, recipe exchange.

Good luck!

Thank you for those ideas! I am very excited, the meeting is less than a week away and I have had a few people contacting me including a store here that wants to order gluten free products (we just lost our old supplier here in town), and a couple of business people wanting to display product. Thanks for the encouragement. I'll post the results on the 29th.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


etta694 Explorer
etta694
  • Author
Posted

We had our first meeting last night and there were 10 people despite the icy roads. There was one diagnosed and 8 self-diagnosed and 1 attending for her niece who was going to be visiting and she wanted info.

It was very good, I shared an article from this site and some lists of symptoms and foods also from this site. I shared about how there are so many people here that have been through every kind of trial and the insight that people on here have. I encouraged them to get on here if they need help. We had someone with a skin care line and someone who talked about sources of supplies. We shared stories...and snacks..

And we talked about a potluck for next time. And .. we ran out of time, it was good.

And there were no fires to put out :P

Thanks again for the help everyone :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,183
    • Most Online (within 30 mins)
      7,748
    Bernadine
    Newest Member
    Bernadine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Not Sure What to Think

      By trents · Posted

      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      Anyone had endoscopy with a cold/cough???

      By awright24 · Posted

      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Not Sure What to Think

      By MMH13 · Posted

      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      Sore muscles

      By Eldene · Posted

      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      Trader Joe's grocery prodcuts

      By LovintheGFlife · Posted

      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
×
×
  • Create New...