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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Glutening Myself Tonight
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13 posts in this topic

I went to the OB today about my stomach pains, she was the last step in Dr's interested in if their specialty could be the cause. She's scheduling me for a hysterectomy in 3 weeks. Last time I had a laporoscopy done (for endometriosis), she'd noted that I had a lot of scar tissue adhering my uterus to my abdominal wall. This "may" account for the stomach pains that haven't yet been helped with gluten-free.

I'm definitely keeping gluten-free forever more as it has helped TREMENDOUSLY with the Big "D" which is almost now non-existent. BUT, a hysterectomy is a big step. A HUGE step and I want to be SURE that food isn't what is causing my stomach pain. I just recently have recovered from my latest stomach pain and I never get them continuous or back to back.

So tonight is the night. I figure I'm going to do it right and will be having GLUTEN, GREASY, Yummy Dominoes Pizza. If I get the stomach pain (appendix like pain) then I know it's food. If I don't get it (I know I'll get the Big D), then I know something else must be causing this and I'll go ahead with my hysterectomy. Not like I need those parts anymore anyway but I also don't want to have unnecessary major surgery.

So I'm going to bite the bullet (or in this case the pizza) and go for it. It's perfect timing, I don't need to go anywhere tomorrow (so Big D won't be that Big of a Deal), I've just recently had my stomach pain and I NEED to KNOW before I agree to the hysterectomy.. Either way, this will be my ONLY purposeful gluten meal. We've been trying to think all day of what the worst food I could have is and decided pizza was it.

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And then have some delicous cake for dessert!

And a buttery croissant before bed!

Hey! Ya gotta test it right?

Good luck, I hope you don't get too sick, but I hope you enjoy your pizza!

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And then have some delicous cake for dessert!

And a buttery croissant before bed!

Hey! Ya gotta test it right?

Good luck, I hope you don't get too sick, but I hope you enjoy your pizza!

OOOOHhhhhhh CAKE!! COOOKIES!! I hadn't thought of THAT! LOL Yes!

I know I'll be sick tomorrow.... and I know I'll have MAJOR Big D but if I don't have stomach pain, then I have my answer. I am only doing this ONCE. I never want to put gluten anything in my mouth ever again! :P

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You haven't been gluten free for very long. If you are reluctant to have this surgery and it isn't a life or death matter like uterine cancer you could hold off for at least a couple of months and see if it resolves on the diet. If it doesn't then you could go ahead with the surgery. You could also ask her about doing another freeup of the adhesions. They do often grow back after a few years but it would give you some relief and allow you to keep your uterus.

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Well, NancyL... I joined you in glutening myself tonight.... with PIZZA! It was soooo good going down, after 3 days of totally gluten-free. After talking with my regular doctor yet again, I may do the biopsy, and didn't want to get too far into the gluten-free thing. I read your post and laughed! What are the odds we'd do that on the same night. Its been about 4 hours and tummy hurts, heartburn started, and I now have a headache which I didn't have for 3 days.... that a rare thing for me... not to have a headache. Every little "mini test" is like this. I'm totally convinced its either celiac disease or NCGS. So once the biopsy is done.... there's no looking back! I hope you enjoyed your gluten party tonight! You'll be paying the piper tomorrow... right along with me! LOL :P

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Well, I ate the pizza and NO stomach pain (and yes, it was very tasty but I liked the gluten-free pizza from our local chain just as much) :P. Of course my other issue has returned this morning but I expected that. The most important aspect is that I have no "appendix" pain. I knew I'd had the pain on empty stomach's before and the pain didn't go away with a bm so somewhere inside me, I knew that part couldn't be intestinal but I had to try. Gastro it ain't.... Ba-bye to the female plumbing!

You haven't been gluten free for very long. If you are reluctant to have this surgery and it isn't a life or death matter like uterine cancer you could hold off for at least a couple of months and see if it resolves on the diet. If it doesn't then you could go ahead with the surgery. You could also ask her about doing another freeup of the adhesions. They do often grow back after a few years but it would give you some relief and allow you to keep your uterus.

Well Ravenwoodglass, that was darn wise advice and I should've followed it (and probably would have if I'd seen it before eating)! If I'm to have the surgery, I'd like to have it while school is still in though so I only have 1 child at home during the day while I recover. Waiting too long would incur more E.R. visits and they cost me about $200.00 out of pocket each. My ob didn't recommend going back in again to just repair it, she said we'd just have to keep doing this and since I'm done having kids (and no way to change my mind), I might as well do the hysterectomy. I just wanted to be as sure as I could be.

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And then have some delicous cake for dessert!

And a buttery croissant before bed!

Hey! Ya gotta test it right?

Good luck, I hope you don't get too sick, but I hope you enjoy your pizza!

I resisted the cookies.. lol I ended up snacking on some of my gluten-free cookies last night. It made me laugh to remember this post. :P

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Well, NancyL... I joined you in glutening myself tonight.... with PIZZA! It was soooo good going down, after 3 days of totally gluten-free. After talking with my regular doctor yet again, I may do the biopsy, and didn't want to get too far into the gluten-free thing. I read your post and laughed! What are the odds we'd do that on the same night. Its been about 4 hours and tummy hurts, heartburn started, and I now have a headache which I didn't have for 3 days.... that a rare thing for me... not to have a headache. Every little "mini test" is like this. I'm totally convinced its either celiac disease or NCGS. So once the biopsy is done.... there's no looking back! I hope you enjoyed your gluten party tonight! You'll be paying the piper tomorrow... right along with me! LOL :P

LOL, we're in synch. I hope you enjoyed your pizza and that you're not feeling too bad today. I have a headache myself today and of course the cramping and the Big D. :D I just hope it only lasts for a day or two this time.

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Ba-bye to the female plumbing!

You'll be delighted when it's over. :)

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You'll be delighted when it's over. :)

I agree :D

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NancyL-

I can NOT believe you ate gluten free cookies last night! :blink::o

I think you like gluten free food more than anyone I know!

I woulda had a big fat piece of chocolate cake topped with a buttery croissant! :D

Glad I made you laugh though. ;)

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Hey NancyL, How did you do with your gluten party? :P I'm fairly miserable today... just as anticipated. :blink:

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When I went on my three-month gluten-free challenge I made a list of over 60 things to eat for one last time (which I did!), including:

pain du chocolat

English muffin

doughnut

tons of homemade fresh pasta

cannoli

Steak and Ale Pie

Chicken and Leek Pie

phyllo

puff pastry

bagel

pizza

tons of ciabatta bread, homemade sourdough croutons, crostini, etc.

sauces including kecap manis

miso

beef wellington

cream scones

all kinds of biscuits

blue cheese and so on...

What a pig! :P

I cannot imagine wanting a gluten-free snack when on gluten! But then I am asymptomatic. I had a blast enjoying all this delicious stuff and was so sad when I had to stop... :( But now that I've been into it for a month things are ok.

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    • Yeah. I went off gluten, doing Whole30 for 2 months. Then found out it was a mistake. Oops. So, I'm back on gluten and have a GI appointment at the end of June. 3 weeks so far. :/  It is easier than it was at first. I had a headache for 2 weeks straight. Thankfully that has passed. My symptoms are more constant and dull now instead of extreme. How much gluten are you eating? I started at just 1 slice of bread, but have been trying to up it, since Google seems to be mixed on how much is necessary. 
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I want to quote from the discussions section the heart of most good research from the American Journal of Clinical Nutrition research article linked in my posterboy blog thread about how to take niacinamide and why you would want too Faq. poster here again for those who want to do the deep research from their discussion section. http://ajcn.nutrition.org/content/85/1/218.full "Random spot urine sampling, together with the measurement of 1-MN and 2-PYR concentrations, has been suggested as an alternative because it avoids these issues and would provide a guide to status (22). However, the ratio of these metabolites has been shown to vary according to the time after the last meal because they are sequential intermediates on the same catabolic pathway (21). This makes the ratio an intrinsically unstable variable for use in population surveys; in the present study we chose to use cutoffs previously established for the excretion of individual metabolites expressed relative to creatinine. 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Prousky wrote about this 15+ years ago and still people are not aware of this fact that Niacinamide treats digestive problems. http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm and if they are are aware of it are they are slow to accept that a vitamin could help with their GI problems. the gluten free works site also has a great article on this topic. http://glutenfreeworks.com/blog/2010/06/23/niacin-vitamin-b3-deficiency-in-celiac-disease/ while it is recognized that celiac's have many of these deficiency it is not well accepted/understood today low Niacinamide alone can treat many GI problems though the research is 15+ years old .  . . still people suffer. 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