• Ads by Google:

    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:

       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Skin Rashes

Rate this topic

Recommended Posts

Oh my gosh! I was just diagnosed with Celiac this past Friday and as I'm reading more and more about it, more and more things are starting to make sense. A while back, I kept getting this rash all over my neck. I never did figure out what it was or why I got it. I hadn't changed anything about anything so I just couldn't figure it out. But now I realize that it's because of this!

Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

Yep. When I first was diagnosed it was like a lightbulb went off in my head and I could look back at the past 10 years and think "THIS is why! Now it all makes sense!". It's a relief isn't it? It's terrible to have something wrong with your body and not know what it is.

Share this post

Link to post
Share on other sites

It really is a huge relief. I mean, it stinks to have something like this, but at the same time, it's great to finally know all the why's and what's that have been going around all my life. When I was 12, one day I woke up and had all these watery-looking bumps all over my right knee. I went to doctor and after doctor and no one could figure out what it was and no one could cure it. Just as suddenly as it had appeared, a few years later it was gone. Last year I was suffering from really bad muscle cramps in my legs and went from doctor to doctor, again no one could figure it out. My hair has been falling out like crazy for a while now, to the point where I have all these little bald patches around my face. Now that I look back at these things, I've noticed that when these things were happening, I was also having really bad stomach problems at the same time. It's like all the pieces of the puzzle finally fit now.

Share this post

Link to post
Share on other sites

Hi shortstuff2309,

It's so cool when it all falls into place like that isn't it? :D I know what you mean. When I figured out that I had celiacs I balled my eyes out. Not because I was sad that I had the disease, but because I was so relieved to finally know what was wrong with me and that I could "cure" it (manage it, and make myself well) simply by being gluten-free.

Now that we have more knowledge and information than our doctors we can go back and tell them what we have, and get them educated. Yeahhh!!! :D Maybe we can help save someone the agony we went through by not knowing for so many years what was wrong with us.

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Popular Now

  • Topics

  • Posts

    • From the Chicago Celiac Disease Center which is one of the premier celiac disease research & treatment centers in the world: Are you scheduled for a biopsy? Are you eating gluten? Any changes in your diet can affect the accuracy of your biopsy results. It is necessary for you to be eating gluten every day for at least 4-8 weeks before the procedure. If you are scheduled for a biopsy and are not eating gluten, talk to your doctor about what is necessary to obtain accurate results. If you have
      a biopsy and have eaten gluten only a short time before the test, you and your physician will not know if a negative test result is accurate or due to your diet. Here's a link: http://www.cureceliacdisease.org/wp-content/uploads/341_CDCFactSheets5_Diagnosis.pdf Also, you might want to read this: http://www.cureceliacdisease.org/faq/can-an-allergist-help-with-celiac-disease-or-does-a-better-specialist-exist/  
    • My panel was the same as yours........all tests positive by large numbers so you can consider yourself a Celiac.  Are you very symptomatic? I will add that I did not eat Whole Foods exclusively when healing.  I needed to gain weight badly so ate gluten-free bread and a few other things that seemed to agree with me.  Never had a problem once I went gluten free, except to discover that I had a problem with dairy also. But I healed well and all is good.  You'll be fine now that you know what the problem is.  Good luck!  
    • My allergist did suggest I cut out gluten right away, but I’ll call the GI tomorrow and discuss that. Thank you!
    • He only did 2 of the full panel & you are positive on one of them, the DGP IgG. It only takes one positive to move on to an endoscopy.  Here's the full celiac serum panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA 
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG You should get the rest of the panel done OR be referred to a GI for an endoscopy. DO NOT STOP EATING GLUTEN UNTIL THE ENDOSCOPY HAS BEEN COMPLETED. Eat gluten every day. EVERY DAY.
    • That's about the most definitive positive across the board that I've ever seen. You're way positive on every one. Keep eating gluten every single day until the endoscopy! You don't have to eat a ton, 1 or 2 slices of gluten bread per day will do it. Orrrrrrrrrrr you could take this time to pig out on all of your favorite gluten foods to say goodbye to them.  Ultimately, those foods will become a distant memory. There are gluten free replacements for literally everything but for 6 months to a year, you will need to eat whole foods & none of the processed stuff so you can heal.
  • Upcoming Events