• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

+ Blood Test, - Biopsy And More.
0

Rate this topic

6 posts in this topic

Recommended Posts

My daughter was positive on a blood test and negative on a biopsy. She is IgA deficient. She is also pre-diabetic.

Question #1 what does that mean???

My son has been having horrible stomach pains for 2 years. The Dr. was only willing to check him if my daughters biopsy came back positive. His blood test came back negative but he is severely IgA deficient and that changes blood tests.

Question #2 Should I push the issue and talk to the Dr. AGAIN about checking my son or just remove glutin from his diet on my own.

My husband and I are very frustrated with all this. Our son has horrible joint pain, horrible stomach pain, asthma, IgA deficiency, allergies (wheat, oats and eggs). We don't know what to do or where to turn to get our boy some help. If our daughter would have been positive in the biopsy then our son would be checked next. Now we are left to "monitor his pain" for a few more months. There is only 1 pediatric gastro in the area otherwise we would get a 2nd opinion.

PLEASE HELP!!!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi ship.

The Dr. who did the biopsy may have missed the damaged areas, damage can be patchy, or maybe didn't do enough biopsies. Since her blood was positive you should try gluten-free and see if it helps her.

Can you list the blood tests and ranges for your children? There are many people here that are very good at understanding the results. Also to make sure they have had all the correct testing for celiac. Other testing you could have done is vitamin and mineral levels to be sure they are not deficient in any of those. Vitamin deficiencies are also symptoms.

  • Upvote 1

Share this post


Link to post
Share on other sites

My daughter was positive on a blood test and negative on a biopsy. She is IgA deficient. She is also pre-diabetic.

Question #1 what does that mean???

My son has been having horrible stomach pains for 2 years. The Dr. was only willing to check him if my daughters biopsy came back positive. His blood test came back negative but he is severely IgA deficient and that changes blood tests.

Question #2 Should I push the issue and talk to the Dr. AGAIN about checking my son or just remove glutin from his diet on my own.

My husband and I are very frustrated with all this. Our son has horrible joint pain, horrible stomach pain, asthma, IgA deficiency, allergies (wheat, oats and eggs). We don't know what to do or where to turn to get our boy some help. If our daughter would have been positive in the biopsy then our son would be checked next. Now we are left to "monitor his pain" for a few more months. There is only 1 pediatric gastro in the area otherwise we would get a 2nd opinion.

PLEASE HELP!!!

I just have a question. Are you seeing a Gastro Dr. or is it your Pediatrician that won't do the testing? As mom's we know when our children are hurting and it is hard when we don't get the help we need.

Share this post


Link to post
Share on other sites

Blood test results for things that were a little off are:

Calcium 9.8 Normal being 8.0-9.5

RDW-SD 34.7 Normal Being 36.4-54.5 I don't know what that is

Lymphocytes 18.5 Normal Being 30.0-65.0 Don't know what that is

Gliadin IGG AB 15.0 Nromal under 10

IGA 63 Normal being 64-246

Hemoglobin 6.0 Normal being 4.0-5.7

Estimated Average Glucose 126

ALT (SGPT) 28 Normal 30-65 Don't know what that is

We are currently seeing a Pediatric Gastro for 2 of my kids. We started off with my son but his blood work came back normal. His IgA is 12 with 64 being the low normal. The Gastro would only be willing to do the Endo if my daughters biopsy came back normal. My daughter has only been in pain for less than 3 months. My son has been in pain for 2 years but has never been checked out. We are very frustrated.

Thank you both for looking at my post.

Share this post


Link to post
Share on other sites

Blood test results for things that were a little off are:

Calcium 9.8 Normal being 8.0-9.5

RDW-SD 34.7 Normal Being 36.4-54.5 I don't know what that is

Lymphocytes 18.5 Normal Being 30.0-65.0 Don't know what that is

Gliadin IGG AB 15.0 Nromal under 10

IGA 63 Normal being 64-246

Hemoglobin 6.0 Normal being 4.0-5.7

Estimated Average Glucose 126

ALT (SGPT) 28 Normal 30-65 Don't know what that is

We are currently seeing a Pediatric Gastro for 2 of my kids. We started off with my son but his blood work came back normal. His IgA is 12 with 64 being the low normal. The Gastro would only be willing to do the Endo if my daughters biopsy came back normal. My daughter has only been in pain for less than 3 months. My son has been in pain for 2 years but has never been checked out. We are very frustrated.

Thank you both for looking at my post.

Have you considered taking him to a different Dr. ?

Share this post


Link to post
Share on other sites
Ads by Google:


Do you have a copy of your son's test results? A serum IGA of 12 is extremely low. How many of the IGG tests did they run? I notice you listed only Gliadin IGG for your daughter. What tests did they run on your son? You should be looking on there for tTG, EMA and DGP. These are the other tests that constitute the celiac panel, and since your son is not an IGA producer they should have run the IGG versions of all these.

I believe the ALT is a liver function test.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,160
    • Total Posts
      939,999
  • Member Statistics

    • Total Members
      66,143
    • Most Online
      3,093

    Newest Member
    honeyboss
    Joined
  • Popular Now

  • Topics

  • Posts

    • Pretty sure it's 12 weeks recommended by experts. Good luck to you!
    • Starch is gluten?  Ive been teaching all day and way too tired to make sense of this article.... http://healthyeating.sfgate.com/gluten-starch-same-thing-7317.html
    • I added some onion powder to my dinner today.After eating it i became curious and send an email to manufacturer.They told me its not gluten free they add starch to it.And on package it was saying we dont add anything else:( i dont have symptoms yet but they were selling a range of gluten free products so i remembered like it was gluten free and ugh im so tired of getting glutened by random and useless stuff like this i was doing great for more than a month then this happened im just exteremely sad right now Motivate me for tomorrow guys :((())  
    • Thank you both for the replies. The article is very insightful. Right now I am trying to reason with the thought of being miserable for 4-8 weeks to get a diagnosis. I feel so good right now it seems almost not worth it, but I also need to know if something is wrong and if there are potentially any other digestive system issues. I will likely go on a gluten challenge and deal with the side effects... after all, Thanksgiving is coming up 
    • Cheetah, We all have to make our own health decisions based on our individual circumstances.  There is not any “one size fits all” approach.  ☹️In your daughter’s case, she was asymptomatic.  I also would find it hard to believe that she had celiac disease despite confirmed biopsies and antibodies tests.  I get the denial.  I just had anemia that was disguised by a genetic anemia.  I was shocked at the suggestion of celiac disease.  My hubby had been gluten free for 12 and I knew exactly what the treatment meant — gluten free for life.  A total game changer.   Because we have bought our health insurance for over 20 years, we have lived through the times that I was uninsurable due to my Hashimoto’s, Rosacea and toe nail fungus (yes, that is right).    I never went without, but I could not freely jump from plan  to plan.  My premiums were higher than my hubby’s.  So, we worry that health insurance could change and I would be uninsurable again.  (Did I mention that our annual premium is $24,000?) However, the genetic test can be invaluable but is mostly used to help rule out celiac disease.  There are other genes associated, but they have not been studied well.   “So far, scientists have identified over a dozen possible non-H.L.A. genes that may be associated with celiac disease, but whether these genes actually play a role remains to be seen.”  (Sheila Crowe, now head of the American GI Association).   https://consults.blogs.nytimes.com/2010/01/13/genetic-testing-for-celiac-disease/ The antibodies test, in conjunction with the biopsies is the best means of diagnosing celiac disease to date.  The blood test is the least reliable as there are false positives (rare).    It is hard to dispute villi damage.  Too bad your Aunt did not get a biopsy, but understandably, an endoscopy can be costly if you lack insurance and there are many other reasons, so many are forced to forgo this procedure.   https://www.ueg.eu/education/latest-news/article/article/mistakes-in-coeliac-disease-diagnosis-and-how-to-avoid-them/   It is unfortunate that we must weight the risks and benefits of everything.    
  • Upcoming Events