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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Body Aches
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hello, eveyone. my daughter (6yr old)has her first GI visit on the 24 and i am waiting and waiting. but for last 2 weeeks my daughter has been complaining of body aches. the doctor said it could be a virus since no high fever is present. then we went again and she said it could be her allergies. but i don't think the doctor even know. Does anyone have similiar problem? i read in one of the boards that celiac can cause fatigue. what do you do? take motrin everyday? i am confused. should i change doctors? i can't go gluten free yet until teh GI says right?

sarah naser

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It could be that she is so malnourished that her bones are starting to disenigrate and that happened to me and besically they said that my bones were so thin that i couldn't walk becuase it hurt me so much maybe you should ask you doctor about that becuase when i was sick they did a muscle biopsy becuase it i couldn't walk and they put me on vitamins and after the diet started i got better and was able to walk again

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Hi Sara, I am sorry your daughter is in that kind of pain. Since everyone has different symptoms with Celiac it is possible the "pain" is related!?!?!?

As far as the fatigue goes, I have not found anything that helps with it. Right now, I rest when I need to and try not to overdo it. However when your daughter comes off Gluten she should feel a difference within a couple of days and it can take up to months to feel 100% better.

You can put your daughter on a gluten-free diet at any time but if your GI wants to run blood work or other tests she MUST be on gluten for it to come back accurate. There is another option for you which is Enterolab they perform a stool panel test which is more sensitive than the blood and a lot more accurate and you DO NOT have to be on gluten!!

I know how you must feel my 8 year old has had problems since she was a baby and after I was diagnosed with celiac disease I had her tested through Enterolab and she has it also. After being gluten-free since Sept we are both feeling better, she seems to have more energy and does not complain of abdominal pain!

Hang in there! :D

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My daughter definitely has body aches related to gluten. They went away while she was gluten-free for 7 weeks and are back now that she is consuming gluten again for her biospy tomorrow. Mainly it is her legs that ache and not much helps. Warm showers or baths are better than using the motrin for a little one. Good Luck!

KathyB

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    • Thankyou for your advice i am getting so confused as some people are saying you dont need the biopsy and others are saying you do need it as it comes with other tests connected to thyroid, iron etc? just want to start being gluten free asap! did you go for the endoscopy? 
    • Hello One drawback is that there are no guarantees. You may go through the testing process and not get the answer you want or need. I did go through testing after having been gluten free and was stunned when I was told it was negative. By that point I'd gone through the challenge and seen various symptoms return so I thought I'd definitely be diagnosed celiac. The consultant advised me to go gluten free anyway and because I'd good evidence to support that I've not had any problems staying on the diet since then. So it can be done, it just requires a certain mind set, essentially I live my life as if the diagnosis was positive. No exceptions.   I think  this is where people make a mistake, if it's 'just' gluten sensitivity' then they can make exceptions on special occasions etc. I think that makes it harder to live gluten free because you still have to make choices and judgments about whether to eat gluten or not. For me, it's never an option so I don't have the conversation. Everyone around me understands that as well. Only you can decide on this. I don't regret doing it because I learned more about my bodies reactions but I found the challenge unpleasant as my reaction to gluten had become more extreme after removing it from my diet. You won't gain much for yourself, the answer is still the same and you already have enough info to know you should never eat gluten again, but your kids may gain if your positive diagnosis keeps them monitored in later life.  Best of luck!  
    • For me personally a medium result, in that situation,  would be enough to convince me that I had celiac disease.  Probably the standard of care is to also get a biopsy. Going gluten free is difficult so some people want to do all the tests they can so they can make the best choice. Generally more testing is thought of as providing better patient care. I think it is a personal preference thing though.   
    • Hi all i hope you can help me i have just had blood tests for celiac and they both come back as a positive result the 1st test was a low reading but the 2nd test was a medium result, i am now waiting a 4 week wait for a endoscopy/biopsy. Not trying to get out of the endoscopy as i have had this procedure before but is it really necessary to have this done when it has been confirmed in the blood tests, i know that they look to see if damage had been done but surely the damage is already been done. Any advice would be great
    • I have been eating dark chocolate bars as well as cocoa powder. Both are highly processed (this is an exception to the no processed food rule) which I am sure removes a lot of the nutrients.  I might try the nibs as I am sure they are more nutritious and they look really good.  I am suspicious of using hemp, for myself,  but it is interesting that chocolate and chilly peppers have some of the same chemicals!  I actually tried chocolate as it has flavinoids which act as a "xanthine oxidase inhibitors".  I have gouty arthritis which is caused by a build up of uric acid in the blood. Coffee and an chocolate are thought to help with that. I might react negatively to coffee  though so I am trying chocolate. 
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