• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
shericeliac2010

Feet Problems/neuropathy/amputations

Rate this topic

Recommended Posts

Both me and my husband were recently diagnosed Celiac and have both been gluten free for about a month now. My husband developed neuropathy in his feet about 20 years ago. He was a landscaper and on his feet 10-12 hours a day and had chronic burning in his feet. In 2000, he developed an ulcer on his big toe and 2nd toe which would not heal. In 2008, when infection set in and doctors recommended amputation of both toes. Recently, he developed an ulcer on his big toe and 2nd toe on his other foot and it looks like possible amputation of those 2 toes as well. At least he has a sense of humor and refers to himself as Keith "8-toes" and even said he may have to change his name to "6-toes". And he can walk just fine without the missing toes and is not terribly upset and having the other toes removed. He has had several test for diabetes and glucose tolerance test, all test are negative for diabetes.

My question is this: Have any celiacs had similar issues with their feet(i have read that neuropathy can be a side affect of celiac)?? Could the ulcers on his feet be a side effect of years of undiagnosed celiac?? Could celiac have contributed to his feet ulcers developing or not healing??

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I can attest to having neuropathy in my feet since about the age of 15, and I also don't have diabetes. I was diagnosed with celiac when I was 47, and I'm 54 now. The neuropathy improved a little bit after going gluten free, but it's still there. I recently read that, besides malabsorption of B vitamins, neuropathy may be caused by years of iron anemia. Has he had his ferritin level checked? My anemia was so severe from age 11 until age 50, I had to receive iron intravenously for several years.

If your husband suffers from malnutrition due to years of undiagnosed celiac, I would imagine that that would have had an impact on his ability to heal. I hope you have both had blood panels run to determine which nutrients you may be low in.

  • Upvote 1

Share this post


Link to post
Share on other sites

[

My question is this: Have any celiacs had similar issues with their feet(i have read that neuropathy can be a side affect of celiac)?? Could the ulcers on his feet be a side effect of years of undiagnosed celiac?? Could celiac have contributed to his feet ulcers developing or not healing??

Share this post


Link to post
Share on other sites

I don't know about neuropathy, but I had some issues with my feet. Before I went gluten free my feet and ankles were always swollen and odd looking. Kind of blue and white in patches. They were also cold. I didn't actually realize they were cold until after I had been gluten-free a while and they started warming up. Now after 3 years gluten-free they are warm and not swollen, Still don't look just like a normal person's feet but they work ok for me. And they aren't blue and white any more but actually look warm.

Share this post


Link to post
Share on other sites

Neuropathy is not uncommon with celiac. I had it beginning in both hands and feet and it moved up the legs and arms by the time I was diagnosed. They did surgery on one hand because they thought it was carpal tunnel. The idiot doctor even chopped off a muscle he thought was overdeveloped. It was overdeloped because I was an artist and worked with woodcarving and tools a lot and it took a long time for me to get any hand strength back. Anyway I found sublingual B12 helped the nerves heal a bit faster. I even regained reflexes in my legs after losing them as a child. Since I had congenital deformities corrected then they attributed the lack of reflexes to those even though I also had symptoms of celiac at the time including severe DH that was misdiagnosed as 'poison ivy in the blood'.

Hopefully the nerve issues for your husband will resolve eventually but it does take time. I hope they don't have to do another amputation but glad for him that he has such a good outlook on life.

Share this post


Link to post
Share on other sites
Ads by Google:


There was a really good article in this month's issue of "Living Without" about peripheral neuropathy and gait ataxia. If you can't get access to the article and want to read it, send me a PM. (I sent a link to all of my siblings because it explained what Mom went through to a "tee", and it is what I'm going through. Neuropathy was my first symptom, but none of my doctors connected the dots.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,928
    • Total Posts
      943,562
  • Member Statistics

    • Total Members
      67,184
    • Most Online
      3,093

    Newest Member
    Athina
    Joined
  • Popular Now

  • Topics

  • Posts

    • Wow, I also had pyloric stenosis that was misdiagnosed for some weeks as an infant (and almost died from it).  I also have Raynauld’s and I started following celiac diet, finding an immediate improvement of my symptoms.  I thought I was the only one that had all 3 of these diagnoses.   Interesting.
    • If you are lucky enough to travel in the Spanish-speaking world, just about anywhere you go, you will very likely run into a some version of chicken and rice, or ‘Arroz con Pollo’ as it appears on countless menus. This Cuban-style version relies on annatto oil to give it a red color. You can make your own annatto oil by putting achiote chili seeds in vegetable oil and heating it up for a few minutes over the stove. Cool and store. This version of chicken and rice is tasty, gluten-free and keeps well in the freezer. View the full article
    • I was diagnosed with celiac at the end of October. My DGP IgA was tested September 12th and was 127. I just got it retested and it was 135. I have been eating gluten free since I was diagnosed. I thought the numbers should be going down. How long does it usually take for the numbers to start dropping? Right now I feel like I must be getting cross contamination somewhere.
    • Diagnosed at 57
    • Lex_, Again I am afraid Ennis_Tx is right here. Ennis_tx eats right and is eating all the right things and still has to take/supplement with Magnesium. The magnesium is a clue?  We need magnesium to make energy. I like to say as chlorophyll is to photosynthesis for the plant so is Magnesium for/to the Animal(s). Meaning we will run down without it. It is said "we waste away without enough Magnesium" Dr. Carolyn Dean wrote the book "The Magnesium Miracle" because people genuinely feel terrific when they take it. they are able to make energy again and function properly but the question remains  why? are we low in it the first place if we need it so much. Iron plays the same role in the blood/respiration but people still get IDA. It turns out low stomach acid limits our ability to absorb Magnesium and Iron. see this link about the role of gastric acid in Iron absorption. https://www.ncbi.nlm.nih.gov/pubmed/7286584/ How do we know this.  . . well it is has been studied and proven. look no further than the FDA box warning on PPI's entitled "FDA Drug Safety Communication: Low magnesium levels can be associated with long-term use of Proton Pump Inhibitor drugs (PPIs)" https://www.fda.gov/drugs/drugsafety/ucm245011.htm now this takes about 6 months of use to become low in magnesium but being low in stomach acid limits our ability to absorb Magnesium and why many people have to take it at 2x to 3x the RDA to get the desired effect. In fact the FDA says only stopping PPI's will reverses this condition.  Obviously  taking higher amount of Magnesium can help alleviate some of these symptom's but only raising the stomach acid will completely alleviate the condition. quoting "Although both patients' hypomagnesemia partially resolved with intravenous replacement, in both cases discontinuation of PPI treatment was necessary to stop ongoing symptoms and to stop magnesium loss." Hypomagnesimia is critically low Magnesiums akin to IDA. here is a thread about IDA and why this is so . . .  low stomach acid leads to low Iron levels. I think it will help explain why Celiac's often have to take Magnesium to help with their chronic fatigue symptom's. I hope this is helpful but when I helped my stomach acid levels my Magnesium begin to be better absorbed from the food I was eating. Nuts are good Magnesium sources especially Cashews and Almonds. So is chocolate hence Ennix_tx cocoa nibs etc. . . ***** this is not medical advice but I know taking Magnesium Citrate helped my energy levels. posterboy by the grace of God, 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things”        
  • Upcoming Events