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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Hi

I've posted before - my teenage son had a positive blood test but negative biopsy.

I was reading on another thread that false positive blood tests are extremely rare? My GP said that the blood tests were not terribly reliable, although one of the consultants later said they had a high rate of reliability!!!! I am confused - also my son had a second blood test at the hospital before his biopsy and that was negative - has anyone else experienced this and is there any reason why this should happen? (he was still eating heaps of gluten before the second blood test and biopsy).

I also feel annoyed that I couldn't go to hospital with him as my daughter was ill - his father accompanied him - I had wanted to ask how many samples they would take for biopsy - it turns out they took three! :angry:

Thanks in advance - you have all been very helpful and supportive!

Lola

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It all depends what blood testing they did the second time. Perhaps they only did the TtG. Some people test positive on some celiac tests and negative on others; this is why they should do a celiac panel. Can you get copies of his test results (blood and biopsy) and post them here on the forum. This would help us understand what is going on perhaps.

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It all depends what blood testing they did the second time. Perhaps they only did the TtG. Some people test positive on some celiac tests and negative on others; this is why they should do a celiac panel. Can you get copies of his test results (blood and biopsy) and post them here on the forum. This would help us understand what is going on perhaps.

Thank you Mushroom - I've not seen any results for the blood tests, we were just told verbally, but I will ask the GP for a copy. I did get the biopsy result which said no sign of coeliac disease, villus architecture in tact etc. The endoscopy showed patches of Duodenitis.

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Thank you Mushroom - I've not seen any results for the blood tests, we were just told verbally, but I will ask the GP for a copy. I did get the biopsy result which said no sign of coeliac disease, villus architecture in tact etc. The endoscopy showed patches of Duodenitis.

i would advise to ALWAYS request copies of all results- in my experience-> 90% of the time- they neglect to tell me something important, or they dont examine the results to fully understand or diagnose.

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