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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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pondy

Cures For Constipation?

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Hi Everyone,

I'm suffering from chronic constipation and I'm wondering if anyone here has found any effective remedies.

Yesterday I had 10 (yes, 10) tap water enemas at the hospital prior to my colonoscopy. This was after having taken the full course of colon prep the day before! I had no idea I was that plugged up. Everything turned out looking pretty normal, but obviously my diet needs to change.

Tonight I'm having sweet potatoes & brussels sprouts... hopefully some relief is on the way.

Thanks in advance for your comments on what has worked for you!

Best,

Pondy

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Now that I am gluten free things move along pretty good but when I need to - stool softener and a fibre laxative (got at Walmart). LOTS of water, salads and veggies....

and massaging my abdominal area when I go to bed also relaxes the muscles (which are always sore) and helps things move.

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Many will say add more fiber, fruits & veggies. Prune juice& so on. While these are great for most folks - they are some who this just does not work...

I was in hospital for five days because of not being able to havea potty call! Believe me when I say they tried everything &some in multiable dosages....

From experience I have not to date found any one solution.

but here are a few things you may want to try.

miralax up to three times a day.....once you start going stop for a day or two or else you will have the BIG D!

Mineral oil...this is what hospitals give babies...works at the 3 tbsp dose for adults.

probiotics has helped some

Hot (boiling) water beforeany morning breakfast. This has helped along with the miralax.

A stool softner

I've eaten bags of fiber things, fuits galore, nuts & so on...

hth mamaw

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Nuts, lots of veggies, and taking a daily magnesium (500mg) seems to work for me. Also, I excercise quite a bit and I notice when I don't I start to have issues.

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Thanks for the advice!

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I forgot to mention to check with your doctor if you are on any other meds or if you have kidney issues for the extra magnesium. My husband also had issues with constipation for years and swears by it now. :)

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Hi Everyone,

I'm suffering from chronic constipation and I'm wondering if anyone here has found any effective remedies.

Yesterday I had 10 (yes, 10) tap water enemas at the hospital prior to my colonoscopy. This was after having taken the full course of colon prep the day before! I had no idea I was that plugged up. Everything turned out looking pretty normal, but obviously my diet needs to change.

Tonight I'm having sweet potatoes & brussels sprouts... hopefully some relief is on the way.

Thanks in advance for your comments on what has worked for you!

Best,

Pondy

I drink alot of water plus add in MiraLAX twice daily per my gastro to water. I also eat two big portions of fruit that I tolerate well everyday. Plus lot's of veggies and whole foods. Prunes are good, but I cannot do them well. Yogurt with live cultures are good too. (I cannot eat at this time, hope to soon) I don't eat a lot of graines, preservatives,or gluten-free replacement foods. Too soon into my healing I feel. The more fruit, veggies, nuts you add in the better, but don't forget the water!!!!

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I know what you are going through. My main complaint when I was diagnosed was constipation. The dr. had me on Miralax, but it didn't always do the trick until 3-5 days later. I was miserable by then. My gynecologist told me about Magnesium. I now take 400mg 2x/day along with my probiotic, and I am much more regular. :)

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I also would recommend magnesium, especially the oxide form. Taken with orange or other citrus juice to magnify the effectiveness, magnesium can work where bulking laxatives don't.

However, if your diet is lacking fiber, green veggies, fresh fruits, etc, then that would be the first thing to address. Green veggies contain magnesium, if for no other reason than the fact that chlorophyll (the stuff which makes most plants green) contains magnesium. This is one reason why dark leafy greens are so healthy. But if your intestines aren't working effectively at breaking down food, you may be lacking this important mineral in spite of diet.

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Thank you everyone for all of your ideas!

It's going on six days now... no movement. Tomorrow I see my G.I so I will ask about the Magnesium. I'm already taking MiraLax - no results yet.

A doctor told me that the large intestines experience "shock" after a colonoscopy, and that it is not all that uncommon to have no bowel movement for a time afterward. Anyone else experience this??

Hopefully all will be back to normal soon.

Again, thanks very much for your support!

Pondy

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Thank you everyone for all of your ideas!

It's going on six days now... no movement. Tomorrow I see my G.I so I will ask about the Magnesium. I'm already taking MiraLax - no results yet.

A doctor told me that the large intestines experience "shock" after a colonoscopy, and that it is not all that uncommon to have no bowel movement for a time afterward. Anyone else experience this??

Hopefully all will be back to normal soon.

Again, thanks very much for your support!

Pondy

Ask your doc to run a full panel of thyroid tests, including TSH, free T3, free T4 and TPOab. Many celiacs develop Hashimoto's thyroiditis, esp. if they had long undiagnosed celiac disease. That last test (TPOab) is the test for Hashimoto's antibodies, which can be very high even when the other 3 tests are normal range. Chronic constipation is a common symptom of hypothyroidism. You may need to see an endocrinologist to evaluate your test scores, because many docs continue to use the outdated TSH 'normal range' and misdiagnose hypothyroid patients.

I tried all the usual 'cures' (actually treatments) for constipation, but none of them worked consistently, because they were just treatments which did not address the real cause of my constipation. I took extra magnesium and vitamin C for years. I didn't want to use laxatives, because most gave me severe cramping pain. I ate loads of fruits, vegies and fiber, while drinking lots of fluids. After my diagnoses I abstained from gluten and 6 other food allergens. Then I was diagnosed with and treated for 8 different gastrointestinal infections (5 bacteria, 2 parasites and a fungus). I also was diagnosed with hypochloridia (low stomach acid) which slowed my digestion. Taking HCl capsules for hypochloridia also helped somewhat, but like all the other 'treatments', nothing gave me regular, soft stools. (I went daily, but often had hard stools which exacerbated hemorrhoids.)

Finally a new doc requested tests for thyroid function. My TSH was high, T4 was low normal, but T3 was really low. So I started thyroid supplements. That finally resolved my chronic irregularity UNTIL I overdosed on vitamin D. (Taking too much vitamin D can caused constipation, as can certain drugs.) After a few months abstaining from vitamin D and continuing to take thyroid supplements I'm 'regular' no matter how much fiber I consume or how much fluid I drink.

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Pondy

I hope the doc finds something to help you I know how sick this makes you feel. I know X-lax are not good to take or ducolax but maybe you could try them, I would do the full strength for adults.3 pills if you try ducolax. Instead of going back to a hospital stay I broke down & did the ducolax, I had cramps & pain but by morning I was going. But again not something to use on a regular basis.

GoodLuck

mamaw

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Thank you everyone for all of your ideas!

It's going on six days now... no movement. Tomorrow I see my G.I so I will ask about the Magnesium. I'm already taking MiraLax - no results yet.

A doctor told me that the large intestines experience "shock" after a colonoscopy, and that it is not all that uncommon to have no bowel movement for a time afterward. Anyone else experience this??

Hopefully all will be back to normal soon.

Again, thanks very much for your support!

Pondy

Pondy, I'm so sorry you're going through this!

Six days is alarming, I hope you are okay. Even though I know you've tried everything, and despite other posts, have you heated 2-4 oz prune juice, then followed it with 2 T. heated honey?

I'm worried that you could have a bowel obstruction if you've gone so long without having a bowel movement, and hope you'll seek medical treatment ASAP.

This is something really serious, I know you know that already, and I wish you the best of luck.

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Thank you everyone for all of your ideas!

It's going on six days now... no movement. Tomorrow I see my G.I so I will ask about the Magnesium. I'm already taking MiraLax - no results yet.

A doctor told me that the large intestines experience "shock" after a colonoscopy, and that it is not all that uncommon to have no bowel movement for a time afterward. Anyone else experience this??

Hopefully all will be back to normal soon.

Again, thanks very much for your support!

Pondy

Hi Pondy -- just want to let you know about a book that a friend showed me, called "Great Taste, No Pain!" by_______ Brescia. It talks about combinations of foods that don't digest well and others that do, focusing on keeping your system more alkaline than acidic. I'm trying to eat this way and am getting a bit more health in this area....and am taking digestive enzymes with meals, while taking 6 billion probiotics 2x a day and B50, with an abdominal health formula for 2 rounds to heal the villi in my intestines. I sure hope it helps me, and I hope you find your answers.

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I know how awful you can feel! i have terrible C issues, worse now since going gluten-free which is strange. Miralax doesn't touch it. I eat fruit, veggies, drink a gallon of water every day, take suppls and everything that has been suggested I try. The only things that moves me now (no pun intended!)is a tea called Smooth Move that is, of course, gluten-free. That and 2T of blackstrap molasses every night and 1T in the morning is helping - at least for the past 2 weeks has helped. Every time I think I have found the magic formula it seems like it works for a couple of weeks and then quite. Maybe the tea would help you???

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Many thanks to everyone here for your replies!

I saw my G.I - he told me to use the MiraLax 3 times per day (just as someone here suggested ;) ).

I'm happy to say that I'm finally getting back to normal!

Don't know if it's the fruit & veggies, the tons of water, or the MiraLax, but somehow things are beginning to move...

All Best,

Pondy

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What does wonders for me is magnesium glycinate (600 mg/day, mostly at bedtime), lots of vitamin C and lots of water. When I'm really desperate, I take Epsom salts (2 tablespoons) in a glass of hot water on an empty stomach: tastes very bitter but it works!

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I wanted to say a big THANK YOU :D to those of you that suggested the magnesium supplements

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Hi Pondy,

I can't remember if I have mentioned this before on this forum (my husband accuses me of being a paid spokesperson!)...

I've had the big C to such an extreme that going to the bathroom 2x/month was not that unusual. I would frequently look 5-6 months pregnant. I've been hospitalized for it twice, when it got the point that I couldn't even stand up for the pain.

The only natural relief I have found is going on the "Eat to Live" diet. Not only was it the beginning of finding out I have Celiac's, but it completely, 100%, cured the C. I'm convinced 100% that this is truly how we are supposed to eat as human beings, because when I stick to it, I feel SO great. Better than I thought it was possible to feel.

I've been eating badly & got glutened TWICE last week, so I'm in misery right now. It's back to eating properly for me, because nothing else works.

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I take Constipation Stop by Renew Life. It's the only thing that works for me. I take two once or twice a week, and it does the trick everytime. It's kind of hard to find in stores though - you may have to order it online.

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imstill having problems myself, ive been taking OTC polyethylene glycol 3350, Rite aid brand, its a stool softner, but also says laxative, so im worried about using it too much, so im going to try the magnesium,

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imstill having problems myself, ive been taking OTC polyethylene glycol 3350, Rite aid brand, its a stool softner, but also says laxative, so im worried about using it too much, so im going to try the magnesium,

I take MiraLax twice daily - that's the non generic polyethylene glycol. Been doing this since my hospitalization two months ago - so far it has worked. I also drink at least 4 liters of water each day & try to avoid processed foods.

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I went to see a natropath and she put my on HMF Probiotics to get the flora back in my system and it seems to be working, not holding my breath because my system seems to go in cycles and I could possibly be in a "good" place. But it did get things moving.

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Isn't the norm 1-2 days? or is it different for a Celiac? I am also still learning about celiac disease... I also have always had C problems.

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I went to my naturopath after I was having problems, and she put me on two probiotics I take at night to aid with digestion.. and I find if I accidentally ingest gluten and I take a couple at night it works out of my system faster and with less pain!! It's the best thing I've found and I had problems for years! I haven't had any problems now for ages and you could time me! LOL Just a thought!

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    • Hello all! I am new on here, and I was wondering if it worth a look for me to get tested for celiac disease. I've been experiencing severe stomach aches accompanied by issues with loose stool, constant fatigue, lots of infections, worsening of skin on my face, frequent nausea, lots of trouble losing weight. I'm asking because I was feeling better at home from vacation after having a very rough semester at school and I'm not very good at keeping track of what I eat typically, but at home it is mostly vegetables and meat, with the occasional rice thrown in. This morning I had my first bagel in months and was extremely nauseous with severe pains and urges to run to the bathroom.  Do y'all think it is worth a try to get tested for celiac disease or some type of gluten intolerance? I'm so tired of being sick and not knowing why... Thank you <3 
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    • I am sorry that I was not clear.    I only mentioned  your diagnostic background, not to discredit you, but because without any lab results (other than a positive gene test), how can you be sure that gluten (shampoo containing wheat protein) was the actual culprit (not a guess) of your symptoms?  It is common for celiacs to receive follow-up antibodies to monitor their dietary compliance.  This is not perfect, but it is the only tool in the toolbox for now.   My husband has been gluten free 12 years prior to my diagnosis.  He went gluten free per the poor advice of his GP and my allergist.  So, I am not trying to discount your diagnosis at all.  I am just trying to see if other lab tests (e.g. liver tests that were elevated previously for you when you were still consuming gluten) were measured after your shampoo exposure.   I am curious because I have had issues over the last year.  I was glutened last January, had the flu, a tooth infection, a cold and a tooth extraction, three rounds of antibiotics (verified to be gluten free) within a month or so.  Like, you, I am very careful.  I have no idea as to how I was exposed.   The last time I ate out was a year ago and even then it was at at 100% gluten free restaurant.   My hubby did not have any symptoms at this time.  He is like my canary.    I went to my GI and my DGP IgA was off the charts even some three months later.   My celiac-related symptoms diminished in three months, but I struggled with autoimmune hives for six.  My GI offered to do an endoscopy in the summer.  Instead I chose to follow the Fasano diet.  I still was not feeling well.  In December, my antibodies were 80.  They were either on a decline or they were increasing again.  I opted for the endoscopy.  My biopsies revealed a healed small intestine (you could see the villi on the scope too).  But I was diagnosed with chronic gastritis and had a polyp removed.   So, all this time I thought my celiac disease was active, but it was NOT the source of my current gut issues.   Again, my apologies.  I just wanted to know how you know for SURE that hydrologized wheat protein from someone else’s shampoo and conditioner could reach your small intestine to trigger an autoimmune reaction.  Maybe, like me, Gluten was not the actual culprit.    
    • The reason I think it was the shampoo? Process of elimination. Our house is almost entirely gluten free (except for this shampoo which slipped through the cracks until I read the ingredient label). My husband has bread that he eats at lunch, but he practices something that resembles aseptic technique from the lab when he's making his sandwiches. He's been doing this for years now and I've never been glutened from within my home. The previous week I hadn't eaten out, I cooked all my food, I don't eat processed food and I never eat something from a shared facility.  Usually if I get glutened it's a single dose sort of thing and it follows a very predictable course, to the point where I can estimate when I got glutened within 24 hours of when it happened. However, this time, I was feeling achy and arthritic and moody for about a week before it got bad enough for me to recognize it as the result of gluten exposure, at which point we went searching and found the shampoo (and conditioner, which does leave more of a residue than shampoo), which he immediately stopped using. Within three days I was feeling back to normal (which is the usual course for me).  Sure, it could have been something else, but I know how sensitive I am, and, as silly as it sounds, it was the only thing that made sense. The other thing you said: You're correct, mine was not a rock solid celiac diagnosis, but I have no doubt that gluten is the problem. I was SICK. I went through two different gluten challenges in an effort to get a more straightforward diagnosis during which I was a barely functioning human being. Consuming gluten may not have given me blunted villi or elevated antibodies, but it did inflame my gut, and actually started to damage my liver. If you look at my diagnosis thread, I had elevated liver enzymes, which have been correlated with celiac disease in the past. There was no alternative explanation for the liver enzymes, he checked EVERYTHING.  I too am a scientist and I have spent a lot of time with the literature trying to make sense of my condition.  https://www.ncbi.nlm.nih.gov/pubmed/26150087 I also have no doubt that gluten was damaging my intestines in some way, as any prolonged gluten exposure in the past has inevitably been followed by a severe FODMAP intolerance that goes away once I've eliminated the gluten and given myself a month or so to heal.  I also had a very fast diagnosis following the onset of symptoms (~1 year) so it's possible that the disease never had a chance to manifest as full celiac. I wasn't willing to eat gluten long enough to find out. As a result of my diagnosis, hazy as it was, I am *meticulously* gluten free. It is not a fad for me. I don't occasionally cheat. It is my life, for better or worse. All of that being said, I'm not sure what my diagnosis has to do with your question. You say you're not trying to be rude, but when you bring up my diagnosis in a thread that has nothing to do with diagnostics, it seems like you're trying to undermine the validity of my disease or the validity of my input in this forum. If I'm being hypersensitive, I apologize, but that's how you came across on my end. I'll admit that the fact that my diagnosis wasn't more straight forward does make me a bit defensive, but I promise that even if I didn't have a solid diagnosis, I interact with the world as though I did, and I'm not out there giving people the wrong idea about celiac disease by not taking it seriously. If there was a connection between your question and my diagnostics that I missed I would appreciate you giving me the chance to better understand what you were asking. 
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