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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Acid Reflux
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24 posts in this topic

Hello everyone.

My major symptom that led to my celiac diagnosis was constant acid reflux. I have been on the gluten-free diet for four weeks now, and have definitely noticed improvement with my reflux, but it has not gone completely away. I was wondering if anyone had advice for my particular situation.

I used to have reflux every day, that responded to no medicine. I was on Nexium and carafate, and the carafate helped coat my throat so it didn't hurt as much, but the reflux still happened. When I ate solid food I felt like I was choking on it, I was nauseated/felt like retching, I would burp up acid with little chunks of food in it, and the bottom of my throat felt sore in general. The heartburn-like feeling from reflux actually didn't happen that much, but would every once in a while, and my whole chest would feel sore, like someone shot me with a shotgun or something.

Now that I am gluten-free I have whole days when I have no reflux at all. But I still have a sore throat, like the back of my throat feels "tight" esp when I swallow, but it is not a choking feeling. It will get worse and better on certain days. Right now I am having "heartburn" style reflux which is prompting this post but it is rare for me.

I am keeping a food diary and I think a culprit might be citrus, or acidic liquids. I had sprite today (I NEVER drink soda but I was at a party) and was wondering if maybe that gave me the heartburn now. Took some gluten-free tums for it. (I have been off Nexium for like, three weeks now?)

So, foods: I am completely gluten-, dairy-, and soy-free (but plan on reintroducing dairy at a later date). I NEVER drink caffeine, except maybe a green tea from time to time. I rarely have alcohol, and when I do I have only one or two drinks (wine doesn't give me reflux but I think hard liquor might). I have been avoiding tomatoes, citrus (except in fruit medley juices but that might be too much, idk), and the only "grease" I use for cooking is olive oil. I have cut out all sources of peppermint from my diet including gum and toothpaste. I never eat within three hours of lying down, and my head is slightly elevated but I don't have a bed--I sleep on the floor Japanese-style--so I can't elevate it a lot. I also eat small meals throughout the day rather than binging on big ones... but have a hard time getting in all the calories I need in a day, even so.

I have been eating a lot of bananas and almonds, and they seem to help, but don't get rid of the tight throat feeling. I have yet to try raw apple cider vinegar in case my problem is too little stomach acid, but I did buy some. I also have ginger and fennel tea that I will have at times and my toothpaste is tom's of maine fennel flavor (fluoride-free). I take allergen-free digestive enzymes derived from microbes with dinner.

For a celiac, do any foods in particular cause reflux? If I have terrible reflux and no specific reflux-causing food on my food diary, should I assume cross-contamination? I don't always wash my hands before I eat--could that be CCing me enough for reflux and headaches? I don't know what my "glutened" symptoms are yet (but I do know what my "soy'd" symptoms are <_< )

Also, someday, perhaps when my gut totally heals, will I be able to reintroduce tomatoes, small amounts of citrus, and rum into my diet? I'm a big rum fan and used to drink rum all the time without problems... I'm only 21, I shouldn't have GERD!!

any advice at all would be appreciated!

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Hello everyone.

My major symptom that led to my celiac diagnosis was constant acid reflux. I have been on the gluten-free diet for four weeks now, and have definitely noticed improvement with my reflux, but it has not gone completely away. I was wondering if anyone had advice for my particular situation.

I used to have reflux every day, that responded to no medicine. I was on Nexium and carafate, and the carafate helped coat my throat so it didn't hurt as much, but the reflux still happened. When I ate solid food I felt like I was choking on it, I was nauseated/felt like retching, I would burp up acid with little chunks of food in it, and the bottom of my throat felt sore in general. The heartburn-like feeling from reflux actually didn't happen that much, but would every once in a while, and my whole chest would feel sore, like someone shot me with a shotgun or something.

Now that I am gluten-free I have whole days when I have no reflux at all. But I still have a sore throat, like the back of my throat feels "tight" esp when I swallow, but it is not a choking feeling. It will get worse and better on certain days. Right now I am having "heartburn" style reflux which is prompting this post but it is rare for me.

I am keeping a food diary and I think a culprit might be citrus, or acidic liquids. I had sprite today (I NEVER drink soda but I was at a party) and was wondering if maybe that gave me the heartburn now. Took some gluten-free tums for it. (I have been off Nexium for like, three weeks now?)

So, foods: I am completely gluten-, dairy-, and soy-free (but plan on reintroducing dairy at a later date). I NEVER drink caffeine, except maybe a green tea from time to time. I rarely have alcohol, and when I do I have only one or two drinks (wine doesn't give me reflux but I think hard liquor might). I have been avoiding tomatoes, citrus (except in fruit medley juices but that might be too much, idk), and the only "grease" I use for cooking is olive oil. I have cut out all sources of peppermint from my diet including gum and toothpaste. I never eat within three hours of lying down, and my head is slightly elevated but I don't have a bed--I sleep on the floor Japanese-style--so I can't elevate it a lot. I also eat small meals throughout the day rather than binging on big ones... but have a hard time getting in all the calories I need in a day, even so.

I have been eating a lot of bananas and almonds, and they seem to help, but don't get rid of the tight throat feeling. I have yet to try raw apple cider vinegar in case my problem is too little stomach acid, but I did buy some. I also have ginger and fennel tea that I will have at times and my toothpaste is tom's of maine fennel flavor (fluoride-free). I take allergen-free digestive enzymes derived from microbes with dinner.

For a celiac, do any foods in particular cause reflux? If I have terrible reflux and no specific reflux-causing food on my food diary, should I assume cross-contamination? I don't always wash my hands before I eat--could that be CCing me enough for reflux and headaches? I don't know what my "glutened" symptoms are yet (but I do know what my "soy'd" symptoms are <_< )

Also, someday, perhaps when my gut totally heals, will I be able to reintroduce tomatoes, small amounts of citrus, and rum into my diet? I'm a big rum fan and used to drink rum all the time without problems... I'm only 21, I shouldn't have GERD!!

any advice at all would be appreciated!

I think it will just take time. Acid reflux was my first really noticeable celiac symptom, though of course I didn't recognize it at the time. It took me probably four months before I noticed that most of my acid reflux was gone. I've been gluten free now for almost six months and I only have a couple of days a month where I'm in enough pain to take some tums. Before I was on daily omeprazole and still took Pepcid AC.

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As you may already know, acid reflux is caused by inappropriate opening of the lower esophageal valve, NOT by excess stomach acid. In order to avoid reflux, you need to avoid foods and drugs which cause the lower esophageal valve (LES) to relax when you're not swallowing. The following foods and beverages weaken (and relax) the LES:

coffee

chocolate

peppermint

onions

alcohol

sugar

fats

any food to which you have allergic reactions (which slow down and back up the entire digestive system)

The following drugs relax the LES and should be avoided:

cigarettes (nicotine)

bronchodilators

NSAIDs

calcium channel blockers

Valium

Nitrates

Demerol

Since your throat is already irritated by years of reflux, you should also temporarily (while your throat heals) avoid the following esophageal irritants:

citrus fruits

tomato based foods

spicy foods

coffee

carbonated drinks

The following drugs can also irritate your esophagus:

Aspirin

NSAIDs

Tetracycline

Quinidine

potassium chloride tablets

Iron salts

When you have recovered somewhat (less reflux and throat irritation), I urge you to try drinking a tablespoon of vinegar mixed with 1/4 cup of water before a meal. If that helps digestion, you may actually have deficient stomach acid, which can also cause reflux. Ginger tea can also stimulate digestion. For more info about healing reflux naturally, see "Why Stomach Acid is Good for You" by Jonathon Wright, MD.

PS Acid blocker drugs will exacerbate reflux caused by low stomach acid. So when you go off those drugs, your reflux will be worse, not better.

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Thanks! It's always that patience thing, isn't it... <_<

It's good to know that I can have citrus, tomatoes, spicy foods etc. again after my throat heals. I'm not a caffeine or chocolate person thankfully and I'm getting used to having no mint around. I also take no drugs except tylenol for period cramps once a month. (I was on amitriptelyne (sp?) for headaches and fatigue, but I ran out and didn't go back for another Rx, hoping that gluten-free will solve that in time.)

so, yeah, I'll be patient and treat my stomach/throat gently, and hopefully this all will resolve!

EDIT

It is VERY frustrating right now though!!!!!! I can't eat until I'm comfortably and completely full, like I used to. I have to eat until I'm mostly full and then get hungry again in a few hours and eat again and so on...

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I was having a problem with acid reflux after eating an apple with peanut butter. Someone mentioned to get peanut butter without soy. I tried that as so far I have been fine.

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Sue: THANKU again for all the info. i knew NSAIDS were bad for my stomach, but did not know they weakened the LES, which sucks- cause i live on advil :huh:

also- i didnt know Onions weakened the LES. is that why 50% of the time, purple onions make me vomit?? (only purple). bananas by themselves do the same thing- make me vomit.

Strawberry: dont know if same for u- but bananas increase my stomach acid (or weaken the les?)... i have to eat only a 1/2 a banana, and i have to mix it with a fat or starch or i will vomit. *also- i read that Melatonin can help to strengthen the LES. you also might want to consider in the future testing out the citrus... because- for me- i can eat tomatoes and grapefruit and lemon fine, but i dont go near Orange Juice EVER- Oj makes me puke- major reflux. i prolly havent had OJ in 10 years. i hope u heal quickly!!!

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Hmmm, sleeping on the floor sounds comfy, but can you get some extra pillows and prop your head and upper body up at night? I do that sometimes if I am gassy so it is easier for the gas to get out. I do that in a bed with a mattress though... :)

Otherwise, avoiding things that make you gassy might help. I don't know off hand what things might make you gassy, but sugar would be a possible problem, or anything that doesn't agree with your digestion. Lactose in dairy can make lots of gas.

Another issue could be h.Pylori, which is pretty common, and likes a low acid environment. Low acid lets other things besides h.Pylori thrive, like alien invaders, oh my! :) Well, anyway, joking aside, it might help to try a Betaine HCL tablet once in a while 20 minutes before eating. Raises the HCL acid level in your stomach and can kill off some nasties. And don't drink a lot of water with your meals, so the stomach acid is not super diluted. Give it a half hour or so to work it's way on the invading organisms before slurping in lots of the aqua.

And don't worry so much, you are looking very pale, the aliens are actually very nice... :D

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Another issue could be h.Pylori, which is pretty common, and likes a low acid environment. Low acid lets other things besides h.Pylori thrive, like alien invaders, oh my! :) Well, anyway, joking aside, it might help to try a Betaine HCL tablet once in a while 20 minutes before eating. Raises the HCL acid level in your stomach and can kill off some nasties. And don't drink a lot of water with your meals, so the stomach acid is not super diluted. Give it a half hour or so to work it's way on the invading organisms before slurping in lots of the aqua.

Betaine HCl should not be taken by anyone who suspects H. Pylori. That bacteria damages the stomach lining. So taking HCl can be very painful, if not dangerous, until the H. Pylori damage is healed. I took mastic gum to kill my H. Pylori infection (diagnosed by stool test) and L-glutamine to heal my stomach lining. After 6 weeks of healing, I started slowly with 1 HCl capsule after 1-3 bites of a meal. When I knew I didn't have any burning sensations or pain, I progressed to 2 capsules with small meals and 3 with larger meals. People who are larger and eat larger meals may need much more (5-7 per meal). However I weigh about 100# and don't eat large meals.

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About bananas--really? I read that bananas were a natural antacid. I always seem to feel a little better after having bananas and almonds, or a larabar with either of those ingredients in it.

And I have melatonin around here somewhere... seems to be gluten- and soy-free. I'll start taking it at night and see if it helps.

I think it's too early to try the vinegar; I had a little diluted earlier and it burns, haha. I'm impatient. I know I need to wait at least a month or so before trying it but I was like, "well I have it here..." bah.

also: about H pylori. What are the other symptoms of that? Wouldn't they have been able to diagnose that with my endoscopy a month ago?

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I also get acid reflux from glutening. What helped me was to include specific brands of what I was eating in my food diary. Certain brands cereals got me more than others. Some are more careful than others when it comes to cc. You'll get it sorted out. It just takes time.

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About bananas--really? I read that bananas were a natural antacid. I always seem to feel a little better after having bananas and almonds, or a larabar with either of those ingredients in it.

And I have melatonin around here somewhere... seems to be gluten- and soy-free. I'll start taking it at night and see if it helps.

I think it's too early to try the vinegar; I had a little diluted earlier and it burns, haha. I'm impatient. I know I need to wait at least a month or so before trying it but I was like, "well I have it here..." bah.

also: about H pylori. What are the other symptoms of that? Wouldn't they have been able to diagnose that with my endoscopy a month ago?

if bananas dont make u nauseaus or burn your stomach, then maybe it's just me, and u should continue to eat them. they also help feed the GOOD bacteria in your gut- so that's good.

also i read that broccoli sprouts help to inhibit the H.Pylori from colonizing.. and cranberry juice helps too- tho test it out- and see if it settles okay in your stomach & esophagus- i dont think it should burn- but idk everything.

good luck to u... could pepto help? i know it helps sooth the stomach lining- but the esophagus?

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I like licorice. (tea, usually). Also, propping up the head of my bed (use bed risers on the head only).

Irritating for me:

ginger

gluten

dairy

alcohol (!!)

NSAIDS > two days

carbonation

excessive chocolate

I've had it since I was 19 and drank very little caffeine and alcohol in college due to it. Except, now, it's mostly gone.

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also: about H pylori. What are the other symptoms of that? Wouldn't they have been able to diagnose that with my endoscopy a month ago?

My H. pylori symptoms were burning pain in my stomach. Prior to getting H. Pylori I could take betaine HCl capsules for digestion. While I had H. Pylori I couldn't tolerate HCl capsules, citrus fruits or anything spicy without feeling burning stomach (not intestinal) pain. A DNA stool test identified my H. Pylori infection.

Endoscopies (esp. those looking for celiac disease or damaged villae) takes samples from the small intestine, NOT the stomach. I don't think they even 'look' at the stomach. However, you don't need to have HP very long to develop symnptoms. I had a stool test in early January 2010, which didn't show H. Pylori. My next stool test during June 2010 showed H. Pylori. If you have low stomach acid production (esp. after taking acid blockers for reflux), you can easily develop a H. Pylori infection.

BTW, after I treated my H. Pylori (with mastic gum and L glutamine), I returned to taking HCl capsules before meals and never again experienced stomach pain. My next stool test was clear of H. Pylori and all other gut bugs. Finally!!! LOL

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I don't have any stomach pains at all, so I don't think that would be a problem. I also wasn't on Nexium very long... maybe only a few months, and I didn't take it every day either because I would forget or just be like, whatever. In fact, the only stomach pains I ever have are associated very strongly with gas.

My acid reflux plain is primarily in the bottom of my throat. Periodically I will get chest pains--typical "heartburn"--but my throat hurts much more often.

If my symptoms don't completely resolve, let's say six months into the gluten-free soy-free diet, I'll look into other things. But I do think it's getting better, just slowly is all.

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I don't have any stomach pains at all, so I don't think that would be a problem. I also wasn't on Nexium very long... maybe only a few months, and I didn't take it every day either because I would forget or just be like, whatever. In fact, the only stomach pains I ever have are associated very strongly with gas.

My acid reflux plain is primarily in the bottom of my throat. Periodically I will get chest pains--typical "heartburn"--but my throat hurts much more often.

If my symptoms don't completely resolve, let's say six months into the gluten-free soy-free diet, I'll look into other things. But I do think it's getting better, just slowly is all.

unfortunately- just like celiac... h.pylori can sometimes thrive without u ever feeling any symptoms... of course, right? :/

i THINK they can also do a blood test for h.pylori? i think my sis had one... but idk.

h.pylori are very stubborn, and require stronger antibiotics and for longer- and they love to return in a low-acid stomach. so, all of burdee's advice is helpful- if you overdo the antacids- the h.pylori will continue to return.

i would also suggest looking into GSE for all future infections. i used it for a month when i assumed i had an ulcer caused by h.pylori- and it worked. ive been having a little heat/nausea lately & some reflux- so i started with the GSE again, and the melatonin at night. wanted to get broccoli sprouts the other day, but forgot.

***always follow instructions on the GSE bottle- its very very toxic if not diluted.

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Acid reflux is most often times an issue of too little stomach acid. Excessive carbohydrate consumption inhibits the development of sufficient stomach acid. Most people when they switch to a gluten free diet, do so by replacing all of the gluteny things that they used to eat with the specialty "gluten-free" bakery/pasta items which are almost all pure sugar. This causes terrible things to your digestive system. Alternatively really anything high in carbs can cause this, like fruits or even an abundance of nuts.

Basically:

Have problems with your intestine? Quit wheat (preferably all grains imo).

Have problems with acid reflux or heart disease? Quit Carbs.

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Acid reflux is most often times an issue of too little stomach acid. Excessive carbohydrate consumption inhibits the development of sufficient stomach acid. Most people when they switch to a gluten free diet, do so by replacing all of the gluteny things that they used to eat with the specialty "gluten-free" bakery/pasta items which are almost all pure sugar. This causes terrible things to your digestive system. Alternatively really anything high in carbs can cause this, like fruits or even an abundance of nuts.

Basically:

Have problems with your intestine? Quit wheat (preferably all grains imo).

Have problems with acid reflux or heart disease? Quit Carbs.

From what I've read in books by docs who test for stomach acid production and treat acid reflux naturally (w/o acid blocking drugs), I've never read that carb consumption causes low stomach acid. Where did you hear/read that? What's the physiological mechanism by which carb consumption decreases stomach acid? Thanks for any explanation you can provide.

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Hello everyone.

My major symptom that led to my celiac diagnosis was constant acid reflux. I have been on the gluten-free diet for four weeks now, and have definitely noticed improvement with my reflux, but it has not gone completely away. I was wondering if anyone had advice for my particular situation.

I used to have reflux every day, that responded to no medicine. I was on Nexium and carafate, and the carafate helped coat my throat so it didn't hurt as much, but the reflux still happened. When I ate solid food I felt like I was choking on it, I was nauseated/felt like retching, I would burp up acid with little chunks of food in it, and the bottom of my throat felt sore in general. The heartburn-like feeling from reflux actually didn't happen that much, but would every once in a while, and my whole chest would feel sore, like someone shot me with a shotgun or something.

Now that I am gluten-free I have whole days when I have no reflux at all. But I still have a sore throat, like the back of my throat feels "tight" esp when I swallow, but it is not a choking feeling. It will get worse and better on certain days. Right now I am having "heartburn" style reflux which is prompting this post but it is rare for me.

I am keeping a food diary and I think a culprit might be citrus, or acidic liquids. I had sprite today (I NEVER drink soda but I was at a party) and was wondering if maybe that gave me the heartburn now. Took some gluten-free tums for it. (I have been off Nexium for like, three weeks now?)

So, foods: I am completely gluten-, dairy-, and soy-free (but plan on reintroducing dairy at a later date). I NEVER drink caffeine, except maybe a green tea from time to time. I rarely have alcohol, and when I do I have only one or two drinks (wine doesn't give me reflux but I think hard liquor might). I have been avoiding tomatoes, citrus (except in fruit medley juices but that might be too much, idk), and the only "grease" I use for cooking is olive oil. I have cut out all sources of peppermint from my diet including gum and toothpaste. I never eat within three hours of lying down, and my head is slightly elevated but I don't have a bed--I sleep on the floor Japanese-style--so I can't elevate it a lot. I also eat small meals throughout the day rather than binging on big ones... but have a hard time getting in all the calories I need in a day, even so.

I have been eating a lot of bananas and almonds, and they seem to help, but don't get rid of the tight throat feeling. I have yet to try raw apple cider vinegar in case my problem is too little stomach acid, but I did buy some. I also have ginger and fennel tea that I will have at times and my toothpaste is tom's of maine fennel flavor (fluoride-free). I take allergen-free digestive enzymes derived from microbes with dinner.

For a celiac, do any foods in particular cause reflux? If I have terrible reflux and no specific reflux-causing food on my food diary, should I assume cross-contamination? I don't always wash my hands before I eat--could that be CCing me enough for reflux and headaches? I don't know what my "glutened" symptoms are yet (but I do know what my "soy'd" symptoms are <_< )

Also, someday, perhaps when my gut totally heals, will I be able to reintroduce tomatoes, small amounts of citrus, and rum into my diet? I'm a big rum fan and used to drink rum all the time without problems... I'm only 21, I shouldn't have GERD!!

any advice at all would be appreciated!

I had severe problems with acid reflux. I know exactly what you are talking about. It was at times so bad that I went to the doctor thinking I had Strep throat. Glutenfree alone did not do it, I had to give up all dairy (big issue) and all food additives that are "MSG" related or "Free Glutamate". Here is a list of ingredients to watch out for:

http://www.truthinlabeling.org/hiddensources.html

It took me many years to figure this out, but I am completely acid reflux free today (and no longer need Prevacid). I used to sleep on a large triangle pillow, that helped significantly with the soar throat. I am not sure if you tried that yet. Something to ease your pain until you can figure out what works for you.

Evelyn

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Acid reflux was a problem for me, as well. But I hadn't had it since going on the diet except for the two times that I've eaten hard boiled eggs - is that weird? I'm going off of pure egg dishes for now. Hopefully I'll still be able to tolerate them in baked foods.

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I have had celiac for a few years, and had it under control. Then I had what I thought was a asthma attack.I couldnt breathe at all. went to the dr and she said i have (had)pneumonia, asthma,celiac,fibromyalgia. started me on prednisone, biaxin,singular,and of course blood pressure meds. I bloated so much i couldnt eat. to make a long story short i lost 12 pounds in 10 days, very weak.vision blurry. so then she suggested mylanta 2 to get me to eat..i went to a different dr and he showed no tumors/etc in my throat and nose, chest xrays shows no pnemonia, heart good. but because of the acid reflux in my mouth(the acid was fillling my mouth extremely) caused my throat to be "raw meat" he told me to stay on broth. My stomach felt like it was in cramps, and I really felt like I was going to die. Then I was sent to a Gastriologists, and he said "eat,eat,eat" and couldnt believe I had been on broth for 4 days, prior to that I hadnt eaten food in about a week. He changed my acid reflux meds, and today --2 days later- my acid is almost gone, I can sllep more than 2 hrs(with head elevated), and am trying to get my weight up. I am having a upper GI in 3 weeks. I am trying to think what CAN I eat with both acid reflux, celiac, and fibromyalgia. Can I have Skippy Peanut butter(I believe thats gluton free)..but contains oils which I was told people with Gerd couldnt eat..I am getting tired of rice and white food..would broccoli, green beans be okay? what about the fruit? PLEASE help!!!

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I think that if you have severe reflux you should have an endoscopy done to check and see if you have Barrett's Esophagus which is caused by the damage done by the acid.

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Shhhhh.... i eat skippy natural peanutbutter all the time and it doesn't cause my GERD to rear its head :ph34r: But don't tell it that. Never once has it bothered me.

There are lots of things you can eat, but what i found helps the most is if i eat something starchy with each meal. I also only drink water (and milk on occasion).

.

No spicy, no fatty, no greasy. On occasion cheese will get it going, but not often. So no fried food, no chillis, and no overly rich stuff.

My GERD was severe enough that i too could not eat much and my throat was damaged (took a year to heal :blink: ). Meds did not work for me, rather they made it worse. Was told i was intolerent to them :blink:. I sleep on a wedge pillow which helps at night (else i would wake up feeling like i couldn't breathe). So i control it through my diet.

On my lowest point i was eating sweet potatos, white potatos, rice, chicken (boiled), apples & peanutbutter, carrots, lettice, and prunes.

You should be fine to expand outward some. Broccoli is fine if its not slathered in butter.

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This may sound really simplistic... but I had terrible GERD and was on Protonix for more than a year. There were a few times when the pain in my "chest" (Iike near my sternum) was so bad I thought I was having a heart attack!! I lost 20 lbs... and the GERD disappeared. I was simply eating too much and eating too late.

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^ i went through that pain in the chest. I still have mine despite loosing weight (went from near 190 lbs to about 130). One of the biggest helpers is to eat at certain times throughout the day, eat smaller meals more frequently, and to avoid foods that set ya off.

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    • I'll be going on vacation to Europe for a few weeks in June, and there will likely be times that I can't avoid gluten - or at least can't confirm the food is gluten-free it in every case.  There might even be a time when I really want to try something that may have gluten.  I'm fortunate enough that even though I've been diagnosed with Celiac disease, the symptoms are fairly mild - just a bit of diarrhea, generally, and so it's fairly tolerable.  I would, of course, try to avoid gluten whenever possible. My question is: I know I'm doing damage to my intestinal villi when I eat gluten-containing foods, but is it a big deal if I eat those foods for just a few days, or on and off for a week or two, and then return to my regular gluten-free diet afterwards? Thanks for your thoughts. Cheers.
      Len
    • Post thought here, how much gluten were you eating for your challenge? You do know only have to eat like 1-2 crackers like a saltine, wheat thin, or ritz a day or a half slice of bread. If it is just the drugged feeling you might try it at night before going to bed and sleep it off. This was still too much for me years ago and now days would lay me out puking for hours.
    • Sounds like my hell years ago in a way, heavy anxiety, thought I was dying, I was running a bucket list, random bouts of anger and frustration at why my hands, feet would not do what I wanted, and my brain would not process things right, thoughts just seemed to loop, I was constipated for 4-10 days at a time. Layed out in bed someday. Had a few occasions where my body would just go out on me, like collapse to the floor once with only one arm responding. Eventually found out it was celiac, had to get my own place trash everything and start my life over from scratch in a gluten-free dedicated environment, soaps, foods, dishes everything gluten-free. Been slowing healing over the years and gotten much better.  Had some other complication develop from the disease but at least I am not dead. I might suggest getting tested, eat gluten in small amounts for the test like a cracker or half a slice of bread a day, need to be eating it for 12 weeks for the blood test and 2 weeks for the endoscope. Ask you doctor for a FULL Celiac panel blood test, also see about getting that endoscope with several biopsies. Welcome to the forums. this place is great for support and you will find many of us have had similar issues. Thank god I never had the eye issues not being able to watch anime would have killed me -__- Still to this day wish I had the immortal body of Alucard. Anyway few links to help you out and give you some ideas, and make life easier.   https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/ https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/      
    • Could be the gluten. Could also be the excess carbs and sugar. Which, if you are anything like me, you certainly have added a few things you have been missing. Try some protein when you intake gluten. 
    • So, my long journey has brought me here, from several health anxiety and autoimmune forums I've finally arrived at something I hope is the cause of my problems. My more debilitating symptoms started about a year ago, when I got food poisoning, although it may have been even before that. Looking back into my childhood, I had anxiety and a lot of the behavioral symptoms of a celiac. The only thing I'm not quite sure of is that, standing at 5'11, I'm not sure if I could be so tall, or perhaps I would be even taller. When I was a kid, I threw a hissy fit whenever my grandmother tried to drag me to the doctor. I kicked and screamed when she tried to take me to get a blood test. I hated anything invasive. The standard cognitive tests and dentist visits were fine, but I absolutely refused to have my blood drawn, except with the prick of my finger, which still bugged the hell out of me, and I teared up when that thing scraped me. I probably would have been diagnosed with celiac a long time ago, if I had it.   I've been depressed for most of my life with a touch of anxiety. I did terrible in school because I didn't feel like doing the work. I had great test scores. At the end of the year, whenever we would have those tests I would pass with high scores even though I did poorly in about half of my classes. My work ethic paled in comparison to my intellect.    I ended up getting kicked out of school because of an incident I became involved in my junior year. I had finally made friends I struggled so long to get, and in the blink of an eye they were all gone. I held firmly the belief that those I had gotten into trouble with would come after me for revenge because they were part of a bad crowd. I was forced to keep going to school because I was still underaged, but tried as hard as I could to stay inside and away from people. I had to go to counseling because I told the police I had anger issues and that was why I snapped in that situation.  I became reclusive, and only stayed in contact with my closest friends. I honestly wanted them to think that I was dead. I ended up going through 2 rough situations, one where my grandmother's husband died of colon cancer, and one where my uncle died of liver/kidney failure - both related to heavy drinking and drug use. My anxiety spiked. I heard the death rattle for the first time in my life. I was convinced that my family didn't do enough to help my uncle, but in fact it was him that had been doing it to himself. He passed away the night I learned that he "had 2 weeks left". He wasn't even on any painkillers. I started to develop strange thoughts where I was convinced that I would be the next to die. These instances were just the beginning of my emotional problems. It took a very long time for my symptoms to fester. In the November 2015, I started working my first job. Manual labor at that. I was helping my boss install air conditioners and heaters in pristine houses in different parts of LA that cost up to 5 million. My boss started to talk about having me work there more and as someone who had plans that involved going to college you can probably imagine the discomfort I felt at the idea of working on air conditioners for the rest of my life, even if the money would be good. This was when the anxiety attacks began. Although there weren't any physical symptoms then, I started to feel my depression and anxiety weighing down on me. On Christmas 2015 I had an anxiety attack that presented with pain behind my right eye, something that sent shivers down my spine. I eventually got laid off by my boss in January and went back to lounging around my house for another month. I didn't really notice much wrong then, I was convinced that I might have to start taking antidepressants for my anxiety attacks pretty soon, as they would bother me a lot. One night, I got hungry. It was 9pm and my grandmother wasn't home yet to make dinner, so I asked my Grandfather to take me to Panda Express, one of my favorite places to eat.  I brought the food home and one of the first things I noticed was that it tasted vile. There was something off about the rice. I couldn't quite put my finger on it. It was my favorite food, so naturally, I ate the rest anyway without a second thought.  A couple hours later I had a nauseous feeling in my stomach. I knew I had gotten food poisoning. I spent the next 24 hours vomiting and squirming around on the floor until my symptoms went away.   But this wasn't like other times I had gotten sick. This time was different. When I woke up that morning, there was something wrong with me. Not with my stomach, but with my vision and my eyes. No, my vision wasn't blurry, but there was something else incredibly wrong with me. I take pride in reading and enjoying my foreign programs in which I have to read subtitles, but for some reason, I just couldn't focus. I couldn't read. I couldn't watch TV. I couldn't do anything that required a decent level of mental acuity. I brushed it off and figured it would probably go away in a couple of days. When I walked to the liquor store the next night, I noticed something strange. The halos around the street lights seemed larger and more pronounced. Although I'm not sure what it was, if that was even the problem in the first place, I knew something was wrong. My anxiety was the worst it had ever been. I hadn't been to a doctor in years, let alone care about my health. Most of my anxiety had to do with my surroundings, but suddenly I was compelled to google my symptoms. I had a strange feeling behind my eye and I started to see rings around lights. I thought I had glaucoma. The visual symptoms became worse. I started to see visual migranes, hard to explain, but they're like patches in my vision, kind of like visual fog but larger and more pronounced, and with afterimages whenever I see lights. It's aggravating to say the least. Anyways, I had about a week of these symptoms before I dragged myself to the eye doctor and told her I was convinced I had glaucoma. She looked at my eyes and said they were perfectly fine. I was a tiny bit nearsighted, but I had enough visual prowess to drive or doing anything else without having problems. This came as a surprise to me,  I couldn't even read or watch my favorite movies! I was convinced that all of this was just anxiety at that point. Loss of concentration didn't seem that bad. I was just glad I wasn't going blind. Then I REALLY wouldn't be able to watch TV.   A week passes by before I develop another debilitating symptom. Severe neck pain. I woke up one morning and it was agonizing. I'm not sure when I noticed I had tinnitus, but this was aggravated to say the least. The migranes and anxiety reached their peak. At that point I was convinced I had developed some form of meningitis. Falling asleep at night was like passing out after a long day of not being able to do anything. I was having panic attack after panic attack. I thought that it might be a tumor instead and I was convinced that I wouldn't even be alive for 20th birthday. There was a weakness that radiated down my left arm and leg. At this point, I was desperate to get even a month left to live. I was constantly pleading to a god I stopped believing in a long time ago for more time. I went to the doctor for the first time in years, convinced that I had meningitis. Both my grandmother and my GP laughed at the notion. The GP diagnosed it as nerve pain, gave me antibiotics for my constipation, antidiarrheal medicine, and an antianxiety and sent me on my way for a couple weeks. I took the antibiotics for a bit but ended up spilling them into the sink at which point I figured I probably couldn't use them anymore I don't remember any of my gastro symptoms then as i didn't think anything of them. All I can remember is being constipated for days on end, which wasn't very fun either. Eventually, I went back to the GP and she prescribed me elavil for my tinnitus and my nerve pain, which made just about everything that bothered me wither away at that point. The strangest thing, actually, was that my symptoms went away BEFORE I started taking the pills. Of course, I didn't know what happened, but I had a day when my symptoms went away before coming back again and I didn't want to take a chance, so I started the medication right away, and they never did come back. Swell right? WRONG.   I had a happy few months between Late March and August that seemed swell, except that I couldn't quite enjoy things like I used to, and I was saying things to my online friends that made them shy away from me. I was convinced at this point that I was just going crazy. My mother is schizophrenic so I just sort of took it as is and was getting ready to tell my doctor and see if the symptoms would go away if i stopped the pills. I didn't do this in reality, as a matter of fact, I told the GP I felt great and she suggested that I increase the dose from 10mg to 20mg. I didn't do this for a while, but I got into an argument with someone that I was just starting to become friends with and decided that enough was enough. I popped that extra 10mg and was ready to crank it up a notch to keep the depression at bay. It seemed to be working, but about a week later, I began to develop a burning pain under my right rib. Uh-oh! I started to google again, but my anxiety was still pretty much under control. I tried to convince myself I had colon cancer, but it didn't hit me hard until I told the doctor I thought the pills were causing the pain and that I was going to stop taking them. This is pretty much where things took a turn for the worst. One day, after I had a couple corn dogs and french fries, I went to the bathroom to find that my stool was yellow and there was blood. Immediately I panicked and called my GP. A lot of things have scared me these past few months, but none more than that instance. The occult blood test came back negative, what do you know. I was pretty healthy at around 147 pounds, my average weight. I told myself at that point that I would turn my life around before things got any worse. I wanted to go vegetarian and avoid meat for the rest of my life. That seemed like the best option at that point. Well, I was wrong, because I was probably b12 deficient, and where does b12 come from? Yeah.... Well, it probably wasn't colon cancer, so what else could I convince myself it was you ask? Pancreatic cancer. I rolled around in bed, night after night, feeling extremely tired, and at the same time, not being able to sleep. When I closed my eyes I had visions of what my organs would have looked like with cancer spreading everywhere. Other times I would envision my own funeral 2 months later after a very painful death. I was very spaced out. It was beyond brain fog. Not only was I so bloated I couldn't eat, but I just made it worse by taking immodium. After that it was god awful. If I was dying, I just wanted to know what was wrong with me, if I had any fighting chance at that point. I think I went down to 136 at this point. I got the blood test and was prescribed a different antidepressant by my doctor. I waited until my test results came back to take it. By that time, I had dark circles under my eyes and white patches on the insides of my cheeks. I came back to get the results of the test, and to my surprise there was absolutely nothing wrong with me (at least that could be seen from my blood). I already started eating meat again by this point. WBC 8.7 (normal) RBC 4.94 (normal) I wasn't even anemic. I swore that my skin started to yellow. I was constantly checking my eyes and suffering. I decided this was the last straw. I started to take the medication the doctor prescribed me, and I felt great! But a couple days later, I took the full dose and woke up the next morning, not being able to breathe and with a super fast heart rate and dilated pupils. This was my first time in the ER. The docs were dumb as rocks. They told me that it was "just anxiety". I couldn't even feel the move the left side of my body. I nearly died, and those kooks told me that I had anxiety! They made me sit in a chair for 30 minutes while the reaction went away! (not to mention I got the bill recently from that ridiculous debacle and they're trying to charge me $4000 for letting me in the door and sending me out.)   Anyhow I'll summarize the next few months between the ER incident and now, including a 2nd time I landed in the ER, wowee! -Lost 6 more pounds between that point and about a month ago. -Kept taking paxil and had several more reactions similar to the one that put me in the ER. -Learned about b12 deficiency and was convinced I had pernicious anemia for a while. Taking multivitamins staved off some of the symptoms, including the bloating. -Some mulitvitamins I bought actually made me feel worse including making my joints hurt, although this may be actually due to wheat, as i've learned -Fatigue became progressively worse. I've got Lymph nodes raised all over my body and I was sleeping most of the day before I stopped eating gluten entirely -Was constipated for days on end. My bowel movements improved with experimentation, although I still couldn't figure out what the problem was. I knew that things like French Toast would make my stomach hurt, but I didn't draw the conclusion because I was convinced that fatty foods would help me gain all that weight back (It obviously didn't. As a matter of fact it was probably why. I'm still sitting at around 132 but at least I'm not dead or getting worse from what I can gather.) -Extreme brain fog until I started taking large dose of sublingual b12. I play a lot of video games and my coordination was god awful.  -Took a non-sublingual b12 pill which made me bloat big time. I should have checked to see if those pills had wheat. -My hands and feet felt like blocks of ice, and my feet burned when I got in the shower. -Developed Tachycardia. I'm not sure when, but my resting heart rate is unsettling. Doctors said nothing about it -Diagnosed myself with several cancers and had several panic attacks which I used my b12 tablets to quell. -Tried to take Elavil again, and woke up with a strange feeling in my left arm, so I stopped taking it.   I ended up in the ER for the 2nd time a few weeks ago. This time I was sure I was going to get the answer I didn't want to hear. "We've examined your chest X-ray and found cancer spreading throughout your body" or something along those lines. I knew that there had to be something going on. I went in there for chest pain, but I had to tell the GP about what was going on. The weight loss, the abdominal pain that mysteriously disappeared months beforehand after I took the pills. He suggested that it must be some sort of malabsorption/malnutrition that was doing this, and I was convinced that an H Pylori infection was the cause. Anyhow, my chest X ray came back normal, as did my blood test, and when I got home, my grandma suggested that I look into Therapy. (as if that would somehow help with the chronic fatigue and other debilitating symptoms) I had nobody else to turn to, so I emailed my grandma and told her everything that was going on. She told me that she thought I had celiac disease, and so far, the results aren't too bad. I've gotten "glutened" a couple times so far, but my constipation is gone, and I've gained a little bit of my weight back. I'm not even sleeping as much as I was. I'm still going to see a gastro, a dentist, and a derma about my more serious concerns, but overall, I don't feel too crappy. I've even got my appetite back. Anyhow, if you've made it this far, I'm glad, as it has been a really bumpy ride for me. I've still got a lot of health anxiety about cancer, but I finally feel like I'm on the right path. I didn't even think I would be alive right now, especially not at 2 in the morning, with only minor aches and pains. I hope I can eventually get diagnosed and get used to this place.        
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