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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Debbie B in MD

Anyone Have Tmj Problems?

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This seems to one of those symptoms that I have that isn't going away as quickly as the rest. I think I may have been glutened this weekend and I am still having issues. Thanks.

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I have TMJ but not aware of it being related to my celiac disease. :unsure:

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This seems to one of those symptoms that I have that isn't going away as quickly as the rest. I think I may have been glutened this weekend and I am still having issues. Thanks.

I have TMJ too. It started at the same time I trace my becoming Celiac back to so I believe it could be related.

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DITTO for me, Firefairy!

I have wicked TMJ pain :blink: and I associate it with stress and tension trying to get a proper diagnosis for so long. ARRGH!!

Trigger points in muscles can also be associated with nutritional and vitamin deficiencies (due to malabsorption) like B-12 and folate (B9)

In any case, I did not have it until I got really sick. Mine is so bad, it hurts to even lay my cheek on a pillow. Sucks.

I am having an appliance made, my teeth malocclusion fixed; I took stress reduction classes; I meditate and I get massages --(P>S> make sure you massage your neck and shoulders, too!)--and I hope it resolves.

I have met a few people on here with it and I have to think MAYBE?? it is related somehow. Any muscle/joint pain I have is connected to this, as It is NOT any autoimmune-related joint disease ... Just my take on it. :)

Hope you get relief soon!

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I have it too but was not aware it might be a symptom to Celiac D.

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My symptoms went away when I went gluten free a year ago. I packed my $400 night mouth guard away in the closet. It has only come out when I have been glutened. One night before I adjusted my daughter to a gluten free diet I had fallen asleep with her in her bed. Her teeth grinding kept me awake. That was one of my clues (among MANY) that she might also be having gluten problems.

I don't know exactly when my symptoms went away. It seemed so many positive things were happening that every once in awhile it would occur to me that I hadn't noticed some particular pain/ache/symptom in several weeks.

I hope it clears up for you. It is painful...esp the headaches.

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I have TMJ and I do think it becomes worse with glutening. Last month it was so bad I had to take prednisone to bring the inflammation down. My face was going kind of numb where the swelling was pressing on nerves! It still doesn't feel 100% right, but it stopped hurting and the numbness is resolved.

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I find this really interesting---thanks for sharing, you guys! I had/have so many symptoms--really, like a hundred---that each time someone posts one on here and someone says ME, TOO!!!--I feel so validated. I am not happy you all suffer with this, not one bit!!---yet it does make me feel less alone and encourages me that I will feel better and better with each passing day I heal. :)

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I also have TMJ. For me it developed after I got my wisdom teeth out. During this time though, I was struggling with my health, and about a year later I was properly diagnosed with Celiac. I find this thread interesting. Not sure if the TMJ is related to Celiac or not though.

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I have this too. It started about the time I had my daughter, which I think also triggered my Celiac Disease. Mine gets worse when glutenated and lasts longer than all other symptoms. I think because gluten causes inflammation, it makes TMJ worse. I have wondered about the possible correlation too!

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I've had TMJ for years and years, would LOVE for that (along with all the other symptoms) to go away! I notice I've been clenching a lot lately, though...super-stressed. I try to catch myself, but I do it a LOT!

Hope you see improvement!

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I've had TMJ for a long time and have noticed it worsening as I've been eating lots of gluten in prep. for my endo. (Among other symptoms that seem to be cropping up lately.)

It's weird how many seemingly random symptoms so many of us seem to have in common.

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I've had TMJ for a long time and have noticed it worsening as I've been eating lots of gluten in prep. for my endo. (Among other symptoms that seem to be cropping up lately.)

It's weird how many seemingly random symptoms so many of us seem to have in common.

I find it (sadly) reassuring that so many of us DO have these "seemingly" random symptoms---as it validates me and makes sense of years of horrible symptoms that doctors passed off to "stress"....WHY do you THINK I am stressed, doc??? 'Cause I feel like crap and I am in pain and you think all these symptoms are not connected and I am left feeling like a nutjob :blink:

:)

I have a giant list of all these symptoms and I take delight in checking them off as they lessen and/or disappear!! I KNEW I wasn't nuts!! Told ya so!! :lol::unsure::P

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I was diagnosed with TMJ Disorder in 2004 by an Ear Nose and Throat doctor. Going gluten free has had no effect for me.

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I was diagnosed with TMJ Disorder in 2004 by an Ear Nose and Throat doctor. Going gluten free has had no effect for me.

I suspect just going gluten free is not the cure, for sure. If only! That would make this easier, wouldn't it.

I have been evaluated by a TMJ and facial pain specialist and he said it is "possible" the inflammation is a contributor to the muscle and joint pain, as well as the stress of being ill (for many years) and not knowing why, as well as neck pain and my poor posture from accomodating the pain. I have been fitted with a TMJ appliance, had my teeth malocclusion realigned, took a stress-reduction class and I learned yoga (as much as I can do) and meditation and deep breathing...all in an effort to reduce the pain in my cheeks and jaw.

That's a lot of "work" to do to relax the muscles, :D (ha!) but it has helped somewhat. The most important thing is for me to relax my clenched teeth now that I know what ails me!

It will be sweet to lay my cheek down on the pillow at night once more and not have it hurt so much. :unsure:

I have wondered why it developed right around the time I started being really ill with this disease...and I decided it was ...um, gee, let's guess ...stress? :blink:

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Don't have TMJ, but I definitely would grind my teeth at night before going gluten free. I have been glutened a few times since, and noticed the grinding/clenching again. You might want to talk to your dentist. I believe there are mouthgaurds that you wear at night that help relieve the TMJ.

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I also was diagnosed with 'TMJ' a few years ago, by an ENT. I never did anything for it.This is really interesting. I just went to the orthodontist yesterday and she brought up the TMJ again, so I figured I'd google "TMJ and celiac disease" and it brought me to this thread. It must be related...this is crazy. I'm definitely not going to seek treatment for it, I'm sure this will be yet another issue that will resolve itself in time. 

 

I also just got glutened this weekend, so I'm not sure if that made my TMJ more apparent or not. I haven't really thought about it in the past few years. Wow!

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Don't have TMJ, but I definitely would grind my teeth at night before going gluten free. I have been glutened a few times since, and noticed the grinding/clenching again. You might want to talk to your dentist. I believe there are mouthgaurds that you wear at night that help relieve the TMJ.

 

I too tend to clench/grind my teeth at night and the dentist tried to sell me a $400 customized mouth guard, that of course insurance does not pay for.  I went to CVS and found one for about $25 that lasts 6 months.  I just soak it for a few minutes every morning in Polident to keep it clean - and buy a new one every 6 months.  Works great.

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I don't know much about TMJ, though I am a teeth grinder.  Times of stress definitely bring out the worst of my grinding.  My naturopath had suggested that I take magnesium powder before bed when I was having grinding issues.  I tried it for a while, and can't say that I noticed a big difference, and I have read conflicting reports on the relationship of magnesium to grinding.  

 

However, I wonder if the relationship between celiac and TMJ (particularly the variety caused by grinding) has something to do with nutritional deficiencies.  

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I have severe TMJ also.  My TMJ is 24/7 pain.  I'm part of several Facebook groups related to TMJ and really don't hear about the pain being this constant.  I have an official diagnoses but treatments are expensive and knowledge about it is limited.  I can't even lay on a pillow without being sent in severe pain.  It's crazy.

 

Anyone have any luck with treatments?

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I struggled with TMJ pain for years. It's really awful. Mine was caused by something called a "premature swallowing pattern," which is what happens when a young person, for whatever reason, does not develop a normal adult swallowing pattern, but still pushes the tongue forward when swallowing, the way that an infant does. It can wreak havoc on your jaws. Every swallow exerts five pounds of pressure, and if the tongue is pushing agains the teeth as it was with mine, that can put a lot of stress on the jaw joints and cause a lot of damage. 

 

I have a theory that some people with allergies or intolerances develop this kind of swallowing because their body is trying to say "No way dude, I don't want to eat that!" (That's an extremely scientific viewpoint of mine)  :P

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