• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Test Results
0

3 posts in this topic

My son-in-law has been sick for several months...he actually started getting tested around the same time as me... last back in Sept. or Oct.

He was tested for celiac in November of last year by the same GI group that I went to who said IBS...Intestinal B--- S---. Sorry, but it just means there is something there but they don't know what it is. My GI didn't do/find anything but my M.D. did.

Anyway, back to my son-in-law.

Here were his test results. They did not give him actual numbers so he really has no way of knowing how close to the normal range he was/wasn't.

Test Results Range

Reticulin IgA Autoabs <1:10 titer <1:10 titer

Endomysial IgA Autoabs <1:10 titer <1:10 titer

Gliadin IgG Abs (HIGH) 14.7 U/mL <10.0 U/mL

Gliadin IgA Abs <5.0 U/mL <5.0 U/mL

Results from other tests:

(Endoscopy)

Grade I nonerosive esophagitis of the distal esophagus

Duodenitis of the distal duodenal bulb

(Colonoscopy)

Colitis of the rectum (What is colitis of the rectum? Isn't colitis colitis???)

Moderate non-bleeding internal hemorrhoids

Mild to moderate systemic disturbance that may or may not be related to the disorder requiring surgery (???)

I have other test results from him as well but don't know if they would be helpful...CBC and others

He has upper, mid, and lower stomach pain, indigestion, back pain, digestive issues including constipation and diarrhea. He has tried to do without dairy, wheat, etc. but without a doctor giving him any answers, he hasn's stayed with any of it long enough. He has been off dairy again for about a week and is getting ready to try to get off gluten. He's trying to get an appointment with my M.D. but he didn't have any openings until the end of May. I'm trying to see if he has any openings sooner.

Sorry this is so long but I am trying to help him figure out what is going on. While I have no clue if he may have celiac, his symptoms (didn't list them all) sound so much like the all the symptoms I had and still have at times.

Would greatly appreciate your thoughts and advice!

Thanks

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


His anti-gliadin IgG was positive. All the other IgA tests run were negative. No other IgG test was done. They also did not do a total serum IgA, to see if he was a normal antibody producer, so you can't take any meaning from the IgA tests. The total serum IgA is run as a control to validate the other IgA tests. The fact that his only positive result was an IgG hints that he is a low producer of antibodies. Nor did they run the tissue transglutaminase (tTG), either IgA or IgG, nor the DGP (deamidated gliadin peptide), which is the newest test developed. I personally would like to see results of all those tests, the last two the IgG versions.

He has inflammation of the esophagus and the duodenum. Colitis of the rectum, I guess, as opposed to colitis of the colon. Your guess on systemic disturbance is as good as mine :P

What were his doctor's conclusions and findings?

0

Share this post


Link to post
Share on other sites

His anti-gliadin IgG was positive. All the other IgA tests run were negative. No other IgG test was done. They also did not do a total serum IgA, to see if he was a normal antibody producer, so you can't take any meaning from the IgA tests. The total serum IgA is run as a control to validate the other IgA tests. The fact that his only positive result was an IgG hints that he is a low producer of antibodies. Nor did they run the tissue transglutaminase (tTG), either IgA or IgG, nor the DGP (deamidated gliadin peptide), which is the newest test developed. I personally would like to see results of all those tests, the last two the IgG versions.

He has inflammation of the esophagus and the duodenum. Colitis of the rectum, I guess, as opposed to colitis of the colon. Your guess on systemic disturbance is as good as mine :P

What were his doctor's conclusions and findings?

There were no other findings except those listed. They said (based on the tests they did do) that he did not have celiac. I knew they told him he did not have it but tonight was the first time I actually saw the report and the tests they ran. I questioned them too. I really hope we can get him in to my doctor soon. I started a gluten free diet in May 2010 but did not have the tests until Sept. or Oct. but they were still positive. My M.D. is very good and seems to be very thorough and unlike many, he does not dismiss celiac. The G.I. group (he and I both saw) both said we just had IBS. I know for certain they were wrong with my diagnosis.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,434
    • Total Posts
      930,553
  • Member Statistics

    • Total Members
      63,865
    • Most Online
      3,093

    Newest Member
    nikkita
    Joined
  • Popular Now

  • Topics

  • Posts

    • I'm still really new to all this but is it common to have trouble with sleep? I swear since my symptoms got really bad a few months ago I can't get 1 good nights sleep, like a 5 hour stretch is doing real good. Wake up at 3am wide awake almost every night. Told my doctor and they've recommended melatonin, that doesn't work. Tried chamomile and lavender tea, no help. Tried zzquil, that will knock me out but maybe for like an extra hour then I'm really drowsy the next morning from it. I don't know what to do.
    • I have 2 copies of DQ9. One from each parent.
    • Obviously from the outside it's difficult to comment, but if I were you I'd leave allergies for now and pursue definitive celiac testing via your doctor and preferably a gastroenterologist. They're the first port of call for digestion issues. If you do wind up being celiac it's possible that other allergies or intolerances would resolve or improve in any case once you've been on the diet for awhile. That's been my experience.   Ps note that wheat allergy is completely different and unrelated to celiac or non celiac gluten sensitivity. 
    • Thank you ps, it may be better if the thread title was changed as we now have two 'overwhelmed' topics. If it were 'Bile ducts and celiac?' then it may attract more users with direct experience?
    • Hello and welcome Maybe? From reading others accounts there's a big variation in how quickly gluten antibodies respond to the gluten diet. I did similar to you and my doctor said that 1 week back on should be enough to show up in a test, but he didn't know what he was talking about sadly... The 2 week figure refers to the endoscopy, for blood testing 8-12 weeks on gluten is more normal.  Basically if it comes back positive fine you have your answer. If its negative it may be a false negative due to your going gluten free beforehand. If you want to pursue a diagnosis then yes. Don't go off gluten again until you confirm that all testing is complete.  Keep a journal noting any symptoms, that may be useful to you later. More info here: There's some good info in the site faq: https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/ I know how you feel! Partway through my gluten challenge I knew that too results notwithstanding. Fwiw I think you've found your answer. Good luck!
  • Upcoming Events