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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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My son-in-law has been sick for several months...he actually started getting tested around the same time as me... last back in Sept. or Oct.

He was tested for celiac in November of last year by the same GI group that I went to who said IBS...Intestinal B--- S---. Sorry, but it just means there is something there but they don't know what it is. My GI didn't do/find anything but my M.D. did.

Anyway, back to my son-in-law.

Here were his test results. They did not give him actual numbers so he really has no way of knowing how close to the normal range he was/wasn't.

Test Results Range

Reticulin IgA Autoabs <1:10 titer <1:10 titer

Endomysial IgA Autoabs <1:10 titer <1:10 titer

Gliadin IgG Abs (HIGH) 14.7 U/mL <10.0 U/mL

Gliadin IgA Abs <5.0 U/mL <5.0 U/mL

Results from other tests:

(Endoscopy)

Grade I nonerosive esophagitis of the distal esophagus

Duodenitis of the distal duodenal bulb

(Colonoscopy)

Colitis of the rectum (What is colitis of the rectum? Isn't colitis colitis???)

Moderate non-bleeding internal hemorrhoids

Mild to moderate systemic disturbance that may or may not be related to the disorder requiring surgery (???)

I have other test results from him as well but don't know if they would be helpful...CBC and others

He has upper, mid, and lower stomach pain, indigestion, back pain, digestive issues including constipation and diarrhea. He has tried to do without dairy, wheat, etc. but without a doctor giving him any answers, he hasn's stayed with any of it long enough. He has been off dairy again for about a week and is getting ready to try to get off gluten. He's trying to get an appointment with my M.D. but he didn't have any openings until the end of May. I'm trying to see if he has any openings sooner.

Sorry this is so long but I am trying to help him figure out what is going on. While I have no clue if he may have celiac, his symptoms (didn't list them all) sound so much like the all the symptoms I had and still have at times.

Would greatly appreciate your thoughts and advice!

Thanks

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His anti-gliadin IgG was positive. All the other IgA tests run were negative. No other IgG test was done. They also did not do a total serum IgA, to see if he was a normal antibody producer, so you can't take any meaning from the IgA tests. The total serum IgA is run as a control to validate the other IgA tests. The fact that his only positive result was an IgG hints that he is a low producer of antibodies. Nor did they run the tissue transglutaminase (tTG), either IgA or IgG, nor the DGP (deamidated gliadin peptide), which is the newest test developed. I personally would like to see results of all those tests, the last two the IgG versions.

He has inflammation of the esophagus and the duodenum. Colitis of the rectum, I guess, as opposed to colitis of the colon. Your guess on systemic disturbance is as good as mine :P

What were his doctor's conclusions and findings?

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His anti-gliadin IgG was positive. All the other IgA tests run were negative. No other IgG test was done. They also did not do a total serum IgA, to see if he was a normal antibody producer, so you can't take any meaning from the IgA tests. The total serum IgA is run as a control to validate the other IgA tests. The fact that his only positive result was an IgG hints that he is a low producer of antibodies. Nor did they run the tissue transglutaminase (tTG), either IgA or IgG, nor the DGP (deamidated gliadin peptide), which is the newest test developed. I personally would like to see results of all those tests, the last two the IgG versions.

He has inflammation of the esophagus and the duodenum. Colitis of the rectum, I guess, as opposed to colitis of the colon. Your guess on systemic disturbance is as good as mine :P

What were his doctor's conclusions and findings?

There were no other findings except those listed. They said (based on the tests they did do) that he did not have celiac. I knew they told him he did not have it but tonight was the first time I actually saw the report and the tests they ran. I questioned them too. I really hope we can get him in to my doctor soon. I started a gluten free diet in May 2010 but did not have the tests until Sept. or Oct. but they were still positive. My M.D. is very good and seems to be very thorough and unlike many, he does not dismiss celiac. The G.I. group (he and I both saw) both said we just had IBS. I know for certain they were wrong with my diagnosis.

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