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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Richmond, Va Area
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Hello all. I am needing help finding a good doctor to see if they can help figure out what is going on with me. My regular dr, and the dr's I've been referred to from them: are all pretty blase about what's going on with me and act like they can't be bothered to figure out what going on.

I have had chronic low vitamin D for about 2 years now, my calcium is now dropping. My most recent lab test showed this, as well as my hemoglobin and hematocrit are elevated. I have Dx'd gluten intolerance and casein intolerance (positive antibodies found in my intestines) but when I was sent to the GI for testing etc, he basically told me that since I didn't have positive blood antibodies for celiac that an endoscopy would be a waste of time to check for intestinal damage causing malabsorption. -_- I'm sure some of you can sympathize!

I have had autoimmune hypothyroidism for 3 years now (Dx'd) but the hypothyroidism has been around since high school, so about 9 years now...some of which I'm sure includes the autoimmune portion pre-Dx.

I'm just so tired of being bounced around and need/want answers and if anyone knows of a dr that is a good listener and genuinely cares about their patients and tries to find answers...I'd love their contact info please...

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I am new to this forum, and you are my first post. I've had many of the same issues all of my life, with medical doctors consistently shrugging their shoulders, prescribing all manners of pills and such, and basically either blowing me off when they can't "cure" me or telling me that it's all in my head. My acupuncturist here in Richmond, Remee Gemo, recommended a holistic M.D. to me, Dr. Susan Solomon. My first visit with her was yesterday, and she nailed a lot of my ills simply by examining my body. Although I've only started this journey with her, I may rarely need another M.D.! A free thinker, she understands gluten-intolerant people and vitamin deficiencies (mine are potassium, magnesium, and calcium) with issues with my adrenal glands - NOT my thyroid as doctors insisted! Contact me - we may have a lot to talk about.

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As another suggestion, my cousin lives in RVA and sees Dr. Kevin Harrison. He is an MD/OD. She loves him. I've read about him; he's supposed to be wonderful.

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    • There is also a celiac center at UCLA - Dr Weiss
    • mnburis, I'm concerned about your symptoms, especially the diarrhea being so frequent.  I experienced pellagra after prolonged diarrhea.   The symptoms are diarrhea, dermatitis, dementia and death.  Pellagra is a deficiency of niacin (B 3).  With your vitamin D and B 12 already diagnosed as low, you're very likely to be low in all the other vitamins and minerals as well.  The eight B vitamins are water soluble and need to be replenished every day.  The B vitamins all work together.  All should be supplemented if one is low.  Large doses of B 12 by itself can cause folate deficiency anemia if you're low in folate (B 9) already.  Ask your doctor about other vitamin deficiencies.  The easy ones to test for are D and B12.  Tell your doctor how severe your diarrhea is.  Ask about pellagra.  Here's some more information. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html https://www.dermnetnz.org/topics/pellagra/ I really hope this helps.  
    • thats so exciting! let me know if you need any help with finding gluten-free products or brands when you move here
    • I have had NO breath tests done. Just  blood, stool, colonoscopy and endoscopy. I'm sorry. I'm feeling so discouraged. I just know its going to be put down to IBS. And I personally feel  that IBS is a throw away diagnosis when no one wants to investigate further. 
    • Also, have you been tested for H. Pylori infection?  I think I have seen that many ulcers can be attributed to that. It is also diagnosed with a breath test.  Hang in there. Many people have been in your shoes.  I wish it were easier.  
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