• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Coping Methods With Current Pains. Help
0

10 posts in this topic

Hello

My wife has celiac and she has been on a gluten-free free diet for 7 years. Being new to celiac myself I find it a bit more interesting to find fun gluten free meals for us to eat and other cool gluten-free things. Right now she is having a pretty bad time because I think she has been cross contaminated from some drink or meal she ate. We were both wondering what people do to alleviate cramping, stomach pain, extreme body sensitivity, and headache etc...? There is little to no information online about this and most books only talk about prevention methods.

Also are there any foods that anyone eats during the aftermath of being contaminated with gluten? Unfortunatly my wife sometimes does not eat enough food and she needs food to eat, but right now she is in the middle of pain world. Any help or information would be good. I want to help at least reduce the pain a bit.

She is also lactose intolerant so none of that please.

Thanks,

Joshua

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Welcome to the board. When I get glutened if I have stomach pain Pepto Bismal liquid helps with that pretty quickly. Other than that asprin if my fibro gets bad or joints are bothersome asprin will help a little bit. Other than that just hot baths and a hot water bottle for my tummy is all that really helps. I do not take anything for the D because I want the offending food out of my system.

My go to for food at those times is Pocono Cream of Buckwheat, it is easily digested, has some protein and is soothing to the tummy.

I hope she is over this soon and it is great of you to come here to try and get some help.

0

Share this post


Link to post
Share on other sites

Hi Joshua, and welcome! I find that tea with mint & ginger & chamomille (sp?) help (it usually comes under some title along the lines of anti-tension or tummy-ease). I add a little bit of honey to make it more palatable. Depending on how badly inflamed her GI is, she may not be able to tolerate foods she can normally be ok with. My personal go to foods during times like this are cream of rice cereal, made with soymilk or whatever lactose free milk she can handle. (I like the gerber brand - I know it's baby food, but it works.) Then I have a meal replacement powder that i order from Environmed research in canada. It's called alphe ENF, and its designed for people with upset GI systems. Gluten and dairy free. Hopefully she can get the rest she needs while still being able to eat enough to help her body heal itself.

0

Share this post


Link to post
Share on other sites

Hi Joshua,

Those of you who are supportive and loving with us crazy celiacs really deserve some kind of honorary title or award or something. It's not easy watching someone you love hurt, and my boyfriend tells me the worst part is being helpless.

I can't take any aspirin, ibuprofen, aleve because it does tend to irritate my stomach and worsen my collagenous colitis. I would suggest tylenol and/or tramadol to help with the pain (though in my most extreme glutenings, I will take vicodin) - other than that, I usually eat bland foods (broth, rice, plain chicken) when recovering from a glutening just so it allows my body to heal and not have other issues come up. My heating pad is always nearby also!

Hope this helps!

Jen

0

Share this post


Link to post
Share on other sites

There are times that I am in pretty rough shape and that is when I turn to babyfood. Yes... babyfood. I buy jars of plain fruits (apples or kiwi), rice cereal that I mix with hot water, jars of simple vegetables and those boxes of little biscuits made from rice. It often only takes a few days to straighten out my system and then I begin with some homemade chicken soup with rice and shredded chicken. Once I can tolerate that, I increase to plain steamed fish or plain rice pasta.

It is horrible having to eat babyfood - especially at work, but it definitely helps.

Good luck.

0

Share this post


Link to post
Share on other sites
Ads by Google:


One thing I like to use is Gluten-Zyme. It works similarly to a lactaide pill but for gluten. It doesn't help so much with the pain, but it does seem to speed up the process for me so I'm in pain for less of a time. I also take it if I go out to eat at a restaurant or even to friends/family just to help alleviate cross contamination. There are many types of gluten enzymes available at your local health food store.

Also, from wife who is married to someone who is not gluten-free I want to say THANK YOU! You have no idea how wonderful it is that you are helping your wife seek answers and help. My husband has been my biggest support system because of who supportive he was.

0

Share this post


Link to post
Share on other sites

Try 10 ml of Manuka Honey 30 min before each meal and before bedtime. It's the best cure for the whole digestive system. And you should get the highest UMF. Whenever she is bloated, having cramps, or not feeling well to eat, she could only eat a lot of honey...ONLY..any kind. Also, she has to rub her tummy with mint oil, Whiterose or Vicks and place a hot water bubble and cover up well and sleep. Whenever cross-contaminated, she has to take an anti-histamine shot such as: Fortecortin or any alternative and consume large amount of water and citrus juices with 1000 mg vitamin C (lessens the histamine levels and works well for the immunity against gluten or milk). Wish IT helps!!

Niho- Multiple food allergies, Lactose-free, Gluten-Free, Fruitarian!!

0

Share this post


Link to post
Share on other sites

Try 10 ml of Manuka Honey 30 min before each meal and before bedtime. It's the best cure for the whole digestive system. And you should get the highest UMF. Whenever she is bloated, having cramps, or not feeling well to eat, she could only eat a lot of honey...ONLY..any kind. Also, she has to rub her tummy with mint oil, Whiterose or Vicks and place a hot water bubble and cover up well and sleep. Whenever cross-contaminated, she has to take an anti-histamine shot such as: Fortecortin or any alternative and consume large amount of water and citrus juices with 1000 mg vitamin C (lessens the histamine levels and works well for the immunity against gluten or milk). Wish IT helps!!

Niho- Multiple food allergies, Lactose-free, Gluten-Free, Fruitarian!!

Not sure why antihistamine helps with Celiac? It's not an allergy. Here in the US, you can't just get an injection of medications without going to a doctor. Unless you meant an Epi pen. It's an emergency thing you stick ( inject) yourself with for a severe allergy reaction. But that isn't for Celiac.

0

Share this post


Link to post
Share on other sites

I love herbal mint teas with honey when my stomach and I aren't getting along so well. I would say though that it is important to be herbal and caffeine free, since caffeine can make you feel pain more intensely. (My doctor told me this and I discovered that it is definitely true for me.)

I take ibuprofen for my aches and pains, or if my head hurts I take excedrin. (The generic stuff I have is gluten free but I have no idea if the brand names are.) Heating pads are also a great help, but when it's all over pain I really wish I had heated footie pajamas.

0

Share this post


Link to post
Share on other sites

Not sure why antihistamine helps with Celiac? It's not an allergy. Here in the US, you can't just get an injection of medications without going to a doctor. Unless you meant an Epi pen. It's an emergency thing you stick ( inject) yourself with for a severe allergy reaction. But that isn't for Celiac.

Yes, you are right as it's not an allergy, but antihistamine works well for the rash and itching.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,805
    • Total Posts
      932,565
  • Member Statistics

    • Total Members
      64,299
    • Most Online
      3,093

    Newest Member
    Lauren Leon
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi kelzz..........the only way you will find out if the increase is from gluten exposure is to have your doctor run the correct test.  I have said this a million times on this forum but I will say it again.....the DGP/IgA tests for reaction to gluten ingested. The tTg/IgA tests for intestinal damage and that can be elevated from other autoimmune diseases, or from ingested gluten.  So you are either being glutened in sneaky ways OR you may have another autoimmune issue going on. Sorry my answer is so late but I have been on vacation. I hope this information helps you!
    • Ok, so long story, but I'm hoping some knowledgeable folks can chime in and tell me if a) I'm not crazy for thinking this sounds a lot like celiac and not a lot like anything else and  are the tests being run the right ones? I had malabsorbtion symptoms my whole life, rashes on the inside of my elbows and knees, chronic constipation, chelisis, brittle cracking nails, my hair sheds a ton, irritation on the edges of my scalp, blistery rashes on my hands, low iron, low blood sugar, bloating, painful gas (like bring me to my knees type). I pretty much just accepted it as my normal, and when I went to get the skin issues checked out in my early 30s, I was just told it was eczema and sent away. The rashes on the insides of my elbows and knees went away when I was about 15 or so, but in my 20s I started seeing a blistery, itchy rash on my elbows occasionally. Fast forward to 2015, and I have a terrible outbreak of GI symptoms (always constipation with me, with the occasional horrible D experience sprinkled in) along with a pretty bad itchy rash on both elbows. I start researching and find that a lot of what I have experienced sounds like DH/celiac. By the time I get my referral in and appointment to the GI doc, I've decided to cut milk out of my diet. I thought back to when I had the last period of time where I had no GI symptoms, and it was when I was last deployed. The dairy in the chow hall was either expired or near it, so I lived on eggs, rice, and chicken, and hot sauce. ;p. Once I cut out milk, and I saw a pretty impressive relief of most of my symptoms. The chelisis is gone, my rash disappears, bloating is much better, gas pains are gone. I get tested for celiac- negative, lactose intolerance- negative, SIBO- positive. Two rounds of antibiotics 6 months apart and my SIBO (methane type) clears up. Basically they said I had IBS-C and my skin issues were likely unrelated. I'm pretty sure my issue with milk is casein-related, because my son has the same issues with casein, and I sure have GI issues when I drink it. (TMI... mucousy rabbit poo). So I figure most of my issues have cleared up, no active rashes, good right? Nope. Since then, I had a couple outbreaks on my elbows, but they went away fairly quickly, My scalp rash thing ebbed and flowed, and my hair still sheds a ridiculous amount. About a month ago, I had another rash outbreak on both elbows, a couple blisters on my hands... and it stayed. After a month of rash, I finally contacted my doc and said "look, this rash is active, please take a look." Just as if it sensed it, the rash started clearing, that same day. :-< By the time I saw her a week and a half later, it was gone, save for a couple scabs. So, good news is my doc disagreed with the GI doc and said it sounded auto-immune to her. I'm military, so I get what I get for referrals, labs, and doctors, but she's luckily very good and knowledgeable. She ran the following tests: Complement Panel: Awaiting results C-Reactive Protein: Awaiting results Celiac Disease Ab IgA Panel: Awaiting results Tissue Transglutaminase Ab IgA: Awaiting results
      Gliadin Ab IgA: Awaiting results Endomysial Ab IgA: Awaiting results Rheumatoid Factor: NEG Comprehensive Metabolic Panel W/eGFR: Normal with the exception of a higher than normal Urea Nitrogen/Creatinine (indicates poor kidney function or bleeding in intestines (ding ding ding) My GFR was normal, so kidneys are probably okay. ESR: 9 (normal is 0-20) Indicates inflammation  
    • I've tried 3 shampoos and a skin cream, sorry can't recall names! It can keep it under control but I want to know why it happened in the first place. I was already gluten-free, and never had it in my life beforehand. Just looking for a magic cure
    • There isn't a cure that I'm aware of. Mine is much, much better since I went gluten free but it's liable to recur, especially if I get run down. Nizoral is most effective shampoo but it contains wheat protein so take care!
    • Currently, a gluten-free diet is the only way to manage celiac disease. Can a celiac vaccine change that? One company thinks so. ImmusanT corporation has developed a therapeutic vaccine, Nexvax2, that is specifically designed to treat celiac disease. The vaccine is an adjuvant-free mix of three peptides that include immunodominant epitopes for gluten-specific CD4-positive T cells. The vaccine is designed to neutralize gluten-specific CD4-positive T cells to further antigenic stimulation. View the full article
  • Upcoming Events