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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Chronic Constipation... Is It Celiac's?
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I am 26 years old and I've always been perfectly healthy. I had my tonsils out at 13, I had my appendix out when I was one month pregnant, at 18 years old, and I've had 2 c-sections. I have a healthy 8 year old daughter and my son was stillborn, still delivered c-section. His death was caused by a cord accident. I've never had any health issues or been diagnosed with any sicknesses, or even stayed overnight in the hospital, aside from my surgeries. In January of 2009, I became pregnant. I stopped going #2. I figured, hormonal change... I'm pregnant... what the heck, I'm probably supposed to be constipated. I never looked into it or did anything about it. I went to the bathroom probably once a week, if that, and it was always aided by laxatives. I had/lost my son in October of 2009. After the surgery, I was still constipated... I figured, my bowels are sedentary, I'm taking vicodin for the surgery (and also a little for the emotional pain), and those both probably contribute. 3 months later, I still wasn't going to the bathroom... here it is, January of 2010, and one day I felt extremely nauseous. I ran in the bathroom and threw up... this is a little graphic, but literally, I could've sorted through my food and divided it into meals I had eaten over the past 3 days. NONE of it was digested. It was disgusting! I started going to the doctor and got prescribed laxative after laxative, mineral oil, drink water, exercise, fiber, this food, that food, try this, try that... I have tried every over the counter medicine or herbal remedy known to man! I've even tried herbal home remedies that my co-works uncles cousin's daughter's friend suggested! NOTHING worked... UNTIL I found a tea called herbal laxative through a website I found online. It provided overnight relief (watery, unless taken with 3 fiber gummies), and it worked like clockwork. I used that for about a year. If I didn't drink the tea, I didn't go. Well, lo and behold... it stopped working. I made a doctor's appointment and told my doctor that I don't want to be told to "try this..." I want to know the problem. I don't want to try and find something that makes me go... I want to know WHY I'm not going and fix the problem... she referred me to a gastroenterologist. I did a colonoscopy and everything looked good. I started researching gluten intolerence, as a friend suggested... and I find more and more that people are being misdiagnosed because they're constipated instead of having diarrhea. Well, my gastro flat out told me, "That's not it. You'd have diarrhea if you had that." I let him be right... but I just can't shake the feeling that he's wrong. I went in for the colonoscopy and because that came out negative for anything, he wants to run some other tests. I told him that before I go further with him, I want the test for celiac's disease. Here's the catch... LAST Tuesday, I decided to kick all gluten from my diet. It was extremely hard, but I did it... and my husband did it with me (He's such a great supporter!). Tuesday came and went, Wednesday, Thursday... and Friday afternoon, I went!!! No laxatives, no tea, no abnormal amount of water... I just went... like I haven't in 2 years! Saturday morning, I went... Saturday afternoon, I went AGAIN!!! THEN... we attended a suprise birthday party for my Aunt. I was told by the cook that the marinades she used for the chicken were gluten free. I ate some chicken and some beans... and since the party, I have gone once, and it was diarrhea. In the middle of it, it felt like my colon seized up and I haven't gone since. Everything I've eaten yesterday and today is still sitting in my stomach. I can't feel it digesting, I don't have the urge to go... I think there may have been gluten in the marinade... or the beans... however, I'm still on the fence as to whether that was originally my problem... sounds like it, right??? So now I have a test for celiac's disease scheduled for 6:30 tonight... and I went to Rubio's on my lunch break to get some gluten in me... They bread their fish, they use flour in the tortillas... I figured that should get me some positive test results... I'm just so worried. What if that wasn't the problem to begin with? What if it is, but I test negative because I haven't been eating gluten consistently? What if I test positive and I have to stop eating so many of the things I love? I did it for a week, but that was to "test" myself... seeing it as a lifestyle is so hard to imagine! I'm hoping for a positive test (so I can know and fix the reason for my constipation) as much as I'm hoping for a negative one! I'm so confused and worried... there are so many things pointing toward this, but there are so many pointing away from it. If I went the route of listening to my body... as much as I hate to admit it, I'd say it's gluten. However, if I go with research, how many of you guys have other symptoms? Skin conditions? Hair conditions, fibromyalgia, fatigue (which I do have a lot), migraines (which I get too...) Wow... maybe I do have it... Any advice? Any thoughts on hyping up the gluten before my test? Anyone with the same symptoms? I know that when someone develops gluten intolerance all of a sudden, it's caused by a "hormonal change." Pregnancy, trauma, surgery... I had all of those within a period of 8 months... that's another pointer toward celiac's. I guess I'm just super worried that I won't test positive for celiac's, but I do have a gluten intolerance... and I'll never know... Thanks for your input!!! And thanks for reading my book! LOL!

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This was the symptom that did me in as well. I kept going to the doctor for bloating, pain under my shoulder blade and ribs, stiffness everywhere...yada yada, but the constipation is what made me feel like I was dieing. It was as if the food was causing a very toxic environment in me.. and the doctors said I had IBS..and stress, and blood tests for everything were normal (they didn't even think of testing for Celiac). They wanted me to take antidepressants.. I declined. I finally went gluten free 3 days before a colonoscopy, endoscopy, and biopsy (which was a last second thing because I told them I was feeling somewhat better from not eating gluten [in 3 days!]. I hadn't been able to 'go' without aids ... if I hadn't used aids.. I probably never would have gone. After 5 days gluten free I began going, sometimes 2 times a day.. :D I have never gone that well before in my life! The biopsy? - negative for Celiac. But if I eat gluten now I seize up critically, and nothing - NOTHING moves.. and I get very sick.

Sooo... that's my story.

And you can't pay me any money in the world to eat gluten again (knowingly).

I hope this helps you to sort through your own situation..

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This was the symptom that did me in as well. I kept going to the doctor for bloating, pain under my shoulder blade and ribs, stiffness everywhere...yada yada, but the constipation is what made me feel like I was dieing. It was as if the food was causing a very toxic environment in me.. and the doctors said I had IBS..and stress, and blood tests for everything were normal (they didn't even think of testing for Celiac). They wanted me to take antidepressants.. I declined. I finally went gluten free 3 days before a colonoscopy, endoscopy, and biopsy (which was a last second thing because I told them I was feeling somewhat better from not eating gluten [in 3 days!]. I hadn't been able to 'go' without aids ... if I hadn't used aids.. I probably never would have gone. After 5 days gluten free I began going, sometimes 2 times a day.. :D I have never gone that well before in my life! The biopsy? - negative for Celiac. But if I eat gluten now I seize up critically, and nothing - NOTHING moves.. and I get very sick.

Sooo... that's my story.

And you can't pay me any money in the world to eat gluten again (knowingly).

I hope this helps you to sort through your own situation..

Etta, it does, thank you! It seems that I'm the only person I know that's dealt with what I have... it seems so "odd" to everyone. Even my doctor (gastro) said, "Hmm, I've never heard that before..." My primary, before sending me to the gastro, also tested my thyroid. Everything was normal. So it seems I've had most of the testing done for what the doctors try to blame it on... but either way, no matter how the results come back, I know it's gluten. The more people I hear say that they tested negative, but still can't eat it... I'm more sure that's it. I'm glad you figured it out! However, I'm curious... how did gluten come into the picture for you?

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I, like you, suffered from chronic constip. Usually only went one time a week and that was usually diarrhea. Chronic stomach issues for 30+ years and none of my doctors EVER suggested gluten issues/celiac disease!!!. I drank Pepto-Bismol and Immodium AD regularly to deal with my symptoms. After observing all my symptoms, my wife concluded I was gluten intolerant and suggested I try a gluten free diet. A week later, with nothing to lose, I took her advice and went gluten free. Within 48 hours I was going #2 daily. Now 2 months later I go twice daily. I have not had any stomach, intestinal, or bowel issues(no constip or diarrh) for over 2 months now and I feel great. I never got tested for celiac by a doctor since I have already seen the amazing and miraculous results of keeping gluten out of my body.

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Etta, it does, thank you! It seems that I'm the only person I know that's dealt with what I have... it seems so "odd" to everyone. Even my doctor (gastro) said, "Hmm, I've never heard that before..." My primary, before sending me to the gastro, also tested my thyroid. Everything was normal. So it seems I've had most of the testing done for what the doctors try to blame it on... but either way, no matter how the results come back, I know it's gluten. The more people I hear say that they tested negative, but still can't eat it... I'm more sure that's it. I'm glad you figured it out! However, I'm curious... how did gluten come into the picture for you?

One of the chronic symptoms that the doctors had no answer for was a dry cough that wouldn't go away. It set in about the time my bowels began to really slow down and I was beginning to feel very ill. My Dr. sent me for x-rays that came back clear but the cough persisted. My instincts told me it was food related because I would cough after eating carbs. But when I told the Dr. she just looked at me like I had a screw loose. So I googled.. and read and read. And I found something that talked about gluten intolerance. And it answered so many of the issues I was fighting with. So I decided to go gluten free to try it. And the rest is history.... thankfully. And the cough is gone, for the most part, except if I eat way too many carbs, sugars..junk food basically.

There are so many stories on here.. so many people who figured it out themselves and many who have the big C (constipation).

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One of the chronic symptoms that the doctors had no answer for was a dry cough that wouldn't go away. It set in about the time my bowels began to really slow down and I was beginning to feel very ill. My Dr. sent me for x-rays that came back clear but the cough persisted. My instincts told me it was food related because I would cough after eating carbs. But when I told the Dr. she just looked at me like I had a screw loose. So I googled.. and read and read. And I found something that talked about gluten intolerance. And it answered so many of the issues I was fighting with. So I decided to go gluten free to try it. And the rest is history.... thankfully. And the cough is gone, for the most part, except if I eat way too many carbs, sugars..junk food basically.

There are so many stories on here.. so many people who figured it out themselves and many who have the big C (constipation).

Wow I'm surprised you found it online. With all of my research, I NEVER came across it. It's insane that something you'd never think of could cause two things so different from each other... constipation and a cough... but I'm glad you've found some relief! I just called my doctor's office and they said it'd be 3-5 days before they'd have test results. Waiting is so hard!

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Yes, don't be disappointed if it is negative although I sure hope there is something conclusive for you. The proof is what your body tells you. If gluten free fixes you.. celebrate and join the crowd! :P

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Thanks to you all for sharing your experiences. I have been to several doctors over the past few years about the cough, fatigue, and GI symptoms. They would usually hand me a bag of acid inhibitors, allergy meds and nasal spray, which worked in the short run but didn't really cure anything. In January I had a bout of constipation which made me feel like my body had shut down completely. Going gluten free is helping immensely. Twenty years ago I was diagnosed with wheat intolerance via the elimination diet, but no one ever suggested cutting out other glutens. Now I have done the (Company Name Removed - They Spammed This Forum and are Banned) test and it showed many food intolerances...I spoke to an allergist, who said it isn't a reliable test, but I get the "cough" after eating many of the foods which showed up positive. So right now I am waiting to see a GI specialist in 2 weeks. I am hoping he will be modern and open minded. In the meantime, I'm not sure what to eat..a nutritionist was advising me, but it sn't covered by my insurance and I was running up quite a bill. So now I eat chicken for breakfast, soup for snacks, etc!

Sorry this post is so scattered...it's a reflection of my inner thoughts. It's nice to know I am not alone! People have been commenting on my cough and I couldn't wait to get rid of it, and now it's mostly gone.

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Thanks to you all for sharing your experiences. I have been to several doctors over the past few years about the cough, fatigue, and GI symptoms. They would usually hand me a bag of acid inhibitors, allergy meds and nasal spray, which worked in the short run but didn't really cure anything. In January I had a bout of constipation which made me feel like my body had shut down completely. Going gluten free is helping immensely. Twenty years ago I was diagnosed with wheat intolerance via the elimination diet, but no one ever suggested cutting out other glutens. Now I have done the (Company Name Removed - They Spammed This Forum and are Banned) test and it showed many food intolerances...I spoke to an allergist, who said it isn't a reliable test, but I get the "cough" after eating many of the foods which showed up positive. So right now I am waiting to see a GI specialist in 2 weeks. I am hoping he will be modern and open minded. In the meantime, I'm not sure what to eat..a nutritionist was advising me, but it sn't covered by my insurance and I was running up quite a bill. So now I eat chicken for breakfast, soup for snacks, etc!

Sorry this post is so scattered...it's a reflection of my inner thoughts. It's nice to know I am not alone! People have been commenting on my cough and I couldn't wait to get rid of it, and now it's mostly gone.

The term "shut down" is exactly what I used when my bowels stopped moving. Weird, isn't it?! You're definitely not alone! As far as food goes, I'm totally new to this, so I haven't figured out much! However, I've been sticking with mostly whole foods... not only because of the price of gluten free food, but because I'm absent minded sometimes and I'm sure I'm going to stick SOMETHING in my food that I shouldn't if I'm preparing it. I have a George Foreman grill and it works WONDERS! It cooks everything perfectly... and fast! I cook chicken on it some nights, fish other nights... There are a lot of gluten free cereals... all fruits and veggies are gluten free. There really is a wide variety of stuff you can make, it's probably just not stuff that's usually on the menu, so it seems overwhelming. I know it is for me! I made a chicken stir fry the other day w/ gluten free soy sauce and some olive oil... it was awesome! Good luck finding more foods you can tolerate... and if you find anything great, please share!

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I, like you, suffered from chronic constip. Usually only went one time a week and that was usually diarrhea. Chronic stomach issues for 30+ years and none of my doctors EVER suggested gluten issues/celiac disease!!!. I drank Pepto-Bismol and Immodium AD regularly to deal with my symptoms. After observing all my symptoms, my wife concluded I was gluten intolerant and suggested I try a gluten free diet. A week later, with nothing to lose, I took her advice and went gluten free. Within 48 hours I was going #2 daily. Now 2 months later I go twice daily. I have not had any stomach, intestinal, or bowel issues(no constip or diarrh) for over 2 months now and I feel great. I never got tested for celiac by a doctor since I have already seen the amazing and miraculous results of keeping gluten out of my body.

Your wife is a smart one! It never crossed my mind that it could be an allergy... or intolerance. I mean, hello... I'm a perfectly healthy person, right? But didn't we all say that at one point or another? lol... Things change! I say that if it's working for you, GREAT! Keep it up! You don't need a doctor to tell you what your body is already screaming... I'm 99.9% positive that my test is going to come back negative for celiac's, but I know otherwise... so, gluten FREE it is!!!

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I can remember at the age of 7 me fighting with my mom and grandmother because they were trying to give a an enema because I was so constipated. Wasn't unusual for me to only go once every 3 to 4 weeks. To me it was normal. Been that way since I was 7. All, and I mean all of my differnt problems includeing constipation went away after eliminating all the foods I had problems with.

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Well, I got my results back... celiac's disease it ISN'T! Good to know... but like I said, I KNOW I'm intolerant to gluten to an extent... so... to what extent is it? How do I find out? Is the only way to do my own experimenting? On Easter, my mom forgot to make the deviled eggs w/ gluten free mayo... needless to say, she forgot other things as well. I said, "Oh well... it's Easter, I'll deal with it." Pfft! Wish I hadn't done THAT! I still haven't gone to the bathroom!!! And I'm SO frustrated! I've been eating gluten free since then. I want something else to eat! I have a Nature Valley chewy trail mix on my desk and I've been researching for 15 minutes whether it contains gluten or not (because it doesn't say on the label) and I'm over it. I don't even want to eat it anymore. I'm SO sick of researching stuff! But I'm so sick of eating the same things over and over... when am I gonna go to the bathroom? How long does this have to last? And how bad is it???

Signed... SO FRUSTRATED!

Melissa Long!

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Boy was I glad to read this thread. I thought I was the only one that could feel my bowel "freeze up" and the food just sitting there. I know when I wake up whether this will be "a poop day" or a "no poop day". My problem is that although I have had chronic C all of my life it has become worse since going gluten-free. The rest of me is so much better, no more gut pain and all the other symptoms, but the C is unrelenting. I too drink an herbal laxative tea every night. If i don't then I don't go. It's that simple. Even with it sometime I don't go. Frustrating! Don't know where to go from here................ My dr doesn't want me drinking the tea all the time but...... what are my options.

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Boy was I glad to read this thread. I thought I was the only one that could feel my bowel "freeze up" and the food just sitting there. I know when I wake up whether this will be "a poop day" or a "no poop day". My problem is that although I have had chronic C all of my life it has become worse since going gluten-free. The rest of me is so much better, no more gut pain and all the other symptoms, but the C is unrelenting. I too drink an herbal laxative tea every night. If i don't then I don't go. It's that simple. Even with it sometime I don't go. Frustrating! Don't know where to go from here................ My dr doesn't want me drinking the tea all the time but...... what are my options.

Well, your doc's right... you definitely shouldn't drink it every day. I know, it feels great to go, but the last thing you want is for your bowels to become dependent on it... then you can't do ANYTHING! I wish I had some advice for you, as far as how to go... Actually, I do! I had a colonoscopy done and I had to do a liquid diet the day before I started the "cleanse." I was SO hungry, so I was drinking everything! If you can stand it, try this: Jello, One 2 cup packet, prepared, of course... 24 ounces of water, 2 cans of beef broth, really warm, and some gatorade! I don't know if it was one of those things, or all of them... but that's why I drank that morning and by noon... I went! A good one! Sort of like everything in there just soaked it all up and cleared out! I was amazed... and then of course after the colonoscopy, the misery started all over... but other than with my tea, and that one day, I haven't gone. It's literally crappy! I'm at the point now where I'm SO fed up, I'm about to pick one thing to eat... something I can stand for a long period of time, and eat JUST that! I'll eat it until I go, and then add something else. If I still go, I'll add something else! And we'll see how it goes.

For right now, I'm trying ONE more thing before I go that route. I'm eating gluten free and dairy free. I had a friend tell me last week that dairy constipates her. I know that a lot of cheese does it to me, moreso than anything else, but she said that sour cream is the worst. I said, "Really?! It's hard to imagine that something not solid can constipate you..." So, I've been researching and I think that might be a problem. So, I drank my tea last night, I'm good right now... and I'll keep you updated! Let me know what you decide to try! And GOOD LUCK! :)

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Probiotics!!! They work wonders for me and won't cause any diahrrea. Solgar, Solaray.. those are some good qual brands. Make sure they're refrigerated. otherwise not really effective. Try to get several diff. strains (in one bottle.) I like the ones w/ lactobacillus.

I have the same problem and I think I'm just very wheat intolerant.

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You might benefit from the GAPS diet which is aimed at restoring gut health. It starts off in stages - homemade bone broths and thoroughly cooked veggies, and homemade probiotic foods are first, then you slowly add more foods. I've posted a lot about it and you can message me or search on my other posts if you want more info. It's also completely grain-free. It can feel like a full time job getting started on GAPS, but it has been truly worth it for our family. My kids are much better eaters now, and we've had many health issues resolved.

It's funny, because I used to think I was perfectly healthy and could eat anything, but when I really look back, I was not perfectly healthy. Mood issues, weird neuro stuff, passing out, getting up to pee at night, dandruff, bad breath and BO, migraine auras, herpes outbreaks, on and off constipation, the runs when I was really anxious... These things have mostly resolved since changing our diet.

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    • Welcome, Josh! You have two choices: 1) go back on gluten and get tested.  This will help confirm if you have celiac disease or not.  Some 10% of celiacs are seronegative.  You should confirm if you had the complete celiac panel.  I personally am only positive on the DGP IgA, even on follow-up Testing.  Okay, if you have NCGI, the treatment is the same.  But with a celiac disease diagnosis, that puts you at risk for other autoimmune disorders or cancer (though rare).    You could have both IBD (Crohn’s or Ulcerative Colitis) and celiac disease or maybe Hashimoto’s Thyroiditis.  Knowing this, your doctors can be on the alert for future problems.  It can also help you adhere to a LIFELONG gluten free diet because you will have NO DOUBT.  The endoscopy also provides an initial baseline.  2) stay gluten free for life.  Learn all that you can about cross contamination, avoid eating out (it is like Russian Roulette).  Eat fewer processed foods.  Learn to read labels.  Keep a food and symptom diary to identify other food intolerances.  Read our Newbie 101 advice pinned at the top of the “Coping”section of the forum.  Healing can take months to YEARS.   I have a formal diagnosis (four years ago) and my only known symptom was anemia.  No GI issues.   My hubby went gluten-free 16 years ago per the poor advice of two medical doctors.  We both know odds are that he has celiac disease, but we can not afford for him to be sick for a three month gluten challenge.    He will tell you that I get way more support from medical, family and friends.  We were easily able to get our daughter tested because of my diagnosis.  Easy for me to get a bone scan confirming osteoporosis, etc.   Only you can decide what is best in your case.  I wish you well.  
    • You might have to try cooking ALL fruits & veggies to death to make it super easy for your gut to handle them without putting undue stress on your body. Another thought is ditch every single processed food. Eat everything fresh that you cook yourself. No frozen foods, no canned foods. You can do dried beans but be sure to sort & wash them carefully first.  6 months in is early for many people. It sounds like you're one of those people. Saying that you definitely feel better than when you started is a good thing. You know it's working. It just isn't working as fast as you hoped/wanted. Take heart that you are feeling better and try to be patient. I know it's hard. You want to GOOOOOOOOOOOOOOO & get on with your life. You feel like you're sitting at the starting line with your engine revving & you just want to race ahead but you can't get off the starting line, as if someone put a chain around your rear axle.  Be kind to yourself, be patient with yourself. 
    • There is a HUGE difference between grass and grain fed meats. The grass fed longhorn that I use when I Cook for others is 100% different then any other grain fed beef I have gotten in the store. THe stuff is SOO lean you have to ADD oil to the hamburger sometimes because it is so lean there is no oil to fry it up in. The meat is leaner then turkey. The omegas content is different in it also. I love cooking with it because it rarely needs any seasoning and anything I do apply seems to just explode in flavor with it. NOW I can not really eat it, but as a chef what we do is set a bit aside in a tasting dish and go do a chew and spit it out test. Not something to be done with a allergen or gluten but with stuff I do not digest like rice, beans, meats it is a means for me to know if seasoned and cooked right. >.< Note I lack the digestive abilities to break down actual meats, even with enzymes they just sorta float til I puke them up or they come out undigested out the back in the case with fish and crab. I have not tried meat since March....side thought my doctor had told me when my UC damage heals up I might be able to eat meat again....might try some fish tomorrow.

      I do have some other thoughts, you say B12...what about the other B-vitamins? How much magnesium are you taking? Magnesium is a relaxent when your getting enough your feel relaxed, you have very vivid dreams and sleep like a rock. This is why many people take it right before bed.

      I have always praised and sworn by Liquid Health Stress & Energy and Liquid Health Neurological Support for B-vitmains due to the nature of how they work with the body I take 1tbsp each 3 times a day before each meal to keep optimal levels and prevent that wane feeling. I also use KAL nutritional yeast in my meals often (look up the nutritional label on these)
    • Hey everyone,  I am new to this and relatively new to figuring out I was gluten intolerant.  I had lost about 20 pounds over the course of 2 months and had a colonoscopy and scheduled endoscope to see what was going on.  I was getting massive stomach cramps whenever I ate bread, explosive diarrhea when I had anything with lactose, and was in a state of continual brain fog and anxiety.  The medication the doctors gave me, including PPIs didn't seem to help.  I literally thought I was dying of stomach cancer.  A week before my upper endoscope I started a gluten free diet and saw a massive reduction in my symptoms.  My brain fog and anxiety went away almost immediately, so did my heartburn, I got this whenever I ate bread, and I didn't have the massive cramping feeling in my stomach, I gained back about 7 pounds, and my diarrhea began to go away.  I had a blood test for celiac but was negative for it, the doctor told me the best way to tell was to continue to eat gluten and get my endoscope and have a biopsy done.  Since I felt so good I decided not to get the endoscope, since the GI surgeon said I was either one of two things: celiac or had non-celiac gluten sensitivity.  He said the treatment is the same for both; no gluten.   The questions I have is I am still having some issues, it seems like if I eat anything with corn or soy I get diarrhea.  I also still have a nagging discomfort under my left ribs.  I have been gluten-free for about 2 weeks and that is what I am still experiencing. I have read that I may need to cut out soy, sunflower oil, safflower oil, and corn as well as the lactose and gluten to really start seeing good results.  Has anyone else experienced this stuff before?  Do you guys think I should have gotten the upper endoscope?  Thank you so much for your input. When I was researching on what I could possibly have wrong with me, it was this site that made me try to go gluten free and it saved my health.  I know most doctors don't recognized NCGI so I don't know how long I would have suffered though this, as no doctors I worked with suggested going off gluten. Thank you for your responses and God Bless! Josh  
    • Thanks for all the input guys. Yeah I've had the vit/min panels and all that done and it was all normal. Regardless I've been supplementing with 1,000mcg sublingual B12 daily, 5,000iu sublingual D3 every few days, and since going keto, "ketovitals" which gives me some magnesium, potassium, sodium, and calcium. Also douse everything in pink sea salt and drink a ton of water. For months now I've tended to get at LEAST 10 hours of sleep per night... Usually. I still at times have terrible insomnia, which is what happened the other night, then had to get up early. Got a total of maybe 5 hours and still feeling it now 2 days later despite sleeping closer to 14 hours a night since. So Ennis, you mentioned about lectins, which I'm now reading about, and interestingly, certain things I don't do well with (usually uncooked veggies, aside from onions) seem to correspond to this. I even do fine with peas, but, I cook those. I'll have to start experimenting. The only part that gets me is that I'm reading grain-fed meats are high in lectins. I've read before that the supposed grain/grass fed difference is BS, and in fact the one thing that has never let me down through all of this is chicken, and I just buy the regular stuff for that. Can anyone confirm or debunk?
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