• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Im New To This Whole Gluten-Free Thing. Any Advice?
0

Rate this topic

10 posts in this topic

Recommended Posts

im 13 and i recently found out that i have celiac disease 2 weeks ago. so i have tried my best to not eat it but i do by acciedent a few times. yesterday i had one bite of gluten and i think im getting a lot more sensitive to it since i haven't had it at all, for a week since i ate the gluten. is this possible? and i get joint pain when i have gluten, but is it possible for my joints to start hurting only an hour after accidentally eating gluten? thats what happened to me yesterday and my joints still hurt today.

:(

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Welcome SusieQ. The same thing happens to me within an hour or 2 after I accidentally consume gluten(achy joints, grumpy mood, brain fog, stomach issues)-Sometimes the side effects can last a few days from my personal experience but they do eventually go away and I get back to normal again. I am glad to see someone learning about gluten intolerance at such a young age. I have had symptoms of gluten intolerance/celiac disease since I was your age-I only wish that I would have known back then about this disease. Consider yourself one of the lucky ones who does not have to live with it for 30 or 40 years before we got diagnosed. Good luck and watch out for those accidental glutenings.

Share this post


Link to post
Share on other sites

My son is 10 and also gets joint pain right after he accidentally gets even a tiny amount of gluten. Joint problems were the symptom that let us finally figure out what was wrong.

It takes some time to really understand all the foods that could have gluten in them. It also takes some time to learn how to make sure you don't get gluten on accident from things you touch or that touch other foods with gluten.

At home, if other people are still eating gluten, you can make sure you are safe by making sure any kinds of dips or spreads either come from a squeeze bottle or that you have your own. (People could dip a contaminated knife in and cause you trouble). Also, cooking utensils and pans shouldn't be shared between foods with gluten and foods without.

At school or other places, you can make sure to wash your hands a lot with soap and water (not just sanitizer). Before eating, make sure your food didn't touch anything with gluten. Make sure you don't set your food down on tables or dishes that have had gluten on them.

My son hasn't been glutened in months, since we've really learned how to avoid it. It sounds like you are on the right track! Good luck getting healthy and staying healthy!

Share this post


Link to post
Share on other sites

Welcome SusieQ. The same thing happens to me within an hour or 2 after I accidentally consume gluten(achy joints, grumpy mood, brain fog, stomach issues)-Sometimes the side effects can last a few days from my personal experience but they do eventually go away and I get back to normal again. I am glad to see someone learning about gluten intolerance at such a young age. I have had symptoms of gluten intolerance/celiac disease since I was your age-I only wish that I would have known back then about this disease. Consider yourself one of the lucky ones who does not have to live with it for 30 or 40 years before we got diagnosed. Good luck and watch out for those accidental glutenings.

wow. 30-40 years?? the symptoms began 2 years ago for me. i guess i am pretty lucky, but never really realized it. do you know if someone is born with it? or can they develop it? because id be surprised if i were born with it.

Share this post


Link to post
Share on other sites

My son is 10 and also gets joint pain right after he accidentally gets even a tiny amount of gluten. Joint problems were the symptom that let us finally figure out what was wrong.

It takes some time to really understand all the foods that could have gluten in them. It also takes some time to learn how to make sure you don't get gluten on accident from things you touch or that touch other foods with gluten.

At home, if other people are still eating gluten, you can make sure you are safe by making sure any kinds of dips or spreads either come from a squeeze bottle or that you have your own. (People could dip a contaminated knife in and cause you trouble). Also, cooking utensils and pans shouldn't be shared between foods with gluten and foods without.

At school or other places, you can make sure to wash your hands a lot with soap and water (not just sanitizer). Before eating, make sure your food didn't touch anything with gluten. Make sure you don't set your food down on tables or dishes that have had gluten on them.

My son hasn't been glutened in months, since we've really learned how to avoid it. It sounds like you are on the right track! Good luck getting healthy and staying healthy!

thanks for the info! it really helped. and do i NEED to be that careful about it? not trying to be rude, im just asking. because im not sure if im that sensitive to it. i haven't had anything that has gluten touch my gluten-free food. how do i know if im that sensitive?

Share this post


Link to post
Share on other sites
Ads by Google:


You do need to be that careful about it. The reason is that celiac disease is different than an allergy. With an allergy you can tell right away if you are having a reaction. If you are "not that sensitive" you just don't get a reaction. If your reaction is not very severe, it's not doing damage to your body. Your body is attacking the thing you are allergic to, not you.

Forgive me if you know this already, but celiac disease is called an autoimmune disorder. Your immune system is what attacks invaders and "auto" means self. So with celiac disease, gluten tricks your body into attacking itself!

With celiac disease, even a tiny bit of gluten can make your body react and start attacking itself inside. Even if you don't notice the reaction, damage can be happening. Some people notice small amounts of gluten, others don't. But all celiac people have autoimmune reactions to gluten.

Really avoiding all gluten is tough, but you can do it!

Share this post


Link to post
Share on other sites

You do need to be that careful about it. The reason is that celiac disease is different than an allergy. With an allergy you can tell right away if you are having a reaction. If you are "not that sensitive" you just don't get a reaction. If your reaction is not very severe, it's not doing damage to your body. Your body is attacking the thing you are allergic to, not you.

Forgive me if you know this already, but celiac disease is called an autoimmune disorder. Your immune system is what attacks invaders and "auto" means self. So with celiac disease, gluten tricks your body into attacking itself!

With celiac disease, even a tiny bit of gluten can make your body react and start attacking itself inside. Even if you don't notice the reaction, damage can be happening. Some people notice small amounts of gluten, others don't. But all celiac people have autoimmune reactions to gluten.

Really avoiding all gluten is tough, but you can do it!

thanks for your support! do you know if any pizza places sell gluten free pizza?

Share this post


Link to post
Share on other sites


Ads by Google:


Z-Pizza has gluten-free pizza. I am sure there are other chains that have it but I don't remember them at the moment.

You can also buy pre-made frozen gluten-free pizza crusts by Kinickinick to make your own pizza. Many gluten-free breads are kept in the freezer section because they usually don't have any preservatives and would go bad too fast on an unrefrigerated store shelf.

Many stores mark their gluten-free food items with a special tag, often it's a green tag with gluten free written on it. Some stores keep all their gluten-free products in one section but others spread them all through the store.

If you do a Google search on the store name and gluten free you can usually find some info on what they carry.

Share this post


Link to post
Share on other sites

Hi SusieQ,

I am 46 yrs old and I have had these symptoms since I was 7 or 8 years old. Didn't find out about the gluten until I was 44. That's like 35 years I was sick all the time. I haven't tried any gluten free pizza so I can't help you there. But you are a very lucky young lady to have found this so early. You won't spend years of feeling sick and helpless like a lot of us.

Good luck,

Txplowgirl

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,109
    • Total Posts
      939,723
  • Member Statistics

    • Total Members
      66,096
    • Most Online
      3,093

    Newest Member
    grgygrrl
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thanks desirun. I have takenhim off gluten and he has improved out of sight. Only times he hasbeen sick since was when he ate something with gluten. His 14 yr old brother has just been diagnosed with type 1 diabetes and now coeliac screen has come back positive for him as well. Ttg was 745. normal is anything under 20.  Waiting on gene test for him before scheduling biopsy. Makes it more likely that my younger son does have coeliac now I think. Will also be getting my daughter tested asap. 
    • I've done a lot of "hotel hobo-ing" pre-gluten-free and post-gluten-free. Previously, I did a lot of traveling for university sports and was concerned with saving money/having reliable food that would be nutritious while competing. Now I am more concerned with not getting poisoned. Bring [dry] rice or corn grits and cook them like oatmeal using either a kettle at the hotel or in the microwave. This does not take up much room in a bag for flying. I personally make my own rice grits using my coffee grinder (do not use brown rice though - it'll take a long time to cook!), but you can probably buy them pre-made.  You might also be able to snag single serving honey, peanut butter, jam, sugar, salt from the hotel itself if you're super thrifty . But I usually just buy a jar of peanut butter, tub of yogurt and some fresh fruit or vegetables from a grocery store. Maybe some jerky if I'm feeling fancy.   If the hotel room doesn't come with a kettle or microwave, you can ask for one. I have never had a problem asking for either a kettle or a microwave when I told the staff I had "severe food allergies" or a "medical reason." . You could also use the coffeemaker to boil water/prepare stuff, but I would not if you are sensitive. Lots of people like old, gluten-eating me use the coffeemaker to cook instant noodles and oatmeal (yes, it does actually work). I would hazard that unlike the mugs/cups they give you in the room, the coffeemaker only gets a superficial rinse between customers. I personally bring a single use drip cone and filters for my coffee or just get the hotel coffee.
    • If it were my child, I'd keep him off of gluten and dairy as recommended by the dietician, especially since he's not well and this is possibly celiac.  It won't hurt him to be off of gluten and he may even improve, but if this is celiac disease or gluten intolerance, he will not improve on the gluten.  Right now your goal is for him to be well as soon as possible. I personally would wait until your son is healthy and recovered to even consider reintroducing gluten for a challenge. There is nothing worse then not having clear answers. I would encourage you to be persistent. Eight weeks is not typical for a "bug." Follow your gut, if you are getting the cold shoulder see another doctor/doctors.  Get and keep copies of all test results as part of your son's history to help new consults avoid retesting and to help determine the next steps in his care. Have you seen an allergist...?  
  • Upcoming Events