• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
SusieQ

Im New To This Whole Gluten-Free Thing. Any Advice?

Rate this topic

Recommended Posts

im 13 and i recently found out that i have celiac disease 2 weeks ago. so i have tried my best to not eat it but i do by acciedent a few times. yesterday i had one bite of gluten and i think im getting a lot more sensitive to it since i haven't had it at all, for a week since i ate the gluten. is this possible? and i get joint pain when i have gluten, but is it possible for my joints to start hurting only an hour after accidentally eating gluten? thats what happened to me yesterday and my joints still hurt today.

:(

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Welcome SusieQ. The same thing happens to me within an hour or 2 after I accidentally consume gluten(achy joints, grumpy mood, brain fog, stomach issues)-Sometimes the side effects can last a few days from my personal experience but they do eventually go away and I get back to normal again. I am glad to see someone learning about gluten intolerance at such a young age. I have had symptoms of gluten intolerance/celiac disease since I was your age-I only wish that I would have known back then about this disease. Consider yourself one of the lucky ones who does not have to live with it for 30 or 40 years before we got diagnosed. Good luck and watch out for those accidental glutenings.

Share this post


Link to post
Share on other sites

My son is 10 and also gets joint pain right after he accidentally gets even a tiny amount of gluten. Joint problems were the symptom that let us finally figure out what was wrong.

It takes some time to really understand all the foods that could have gluten in them. It also takes some time to learn how to make sure you don't get gluten on accident from things you touch or that touch other foods with gluten.

At home, if other people are still eating gluten, you can make sure you are safe by making sure any kinds of dips or spreads either come from a squeeze bottle or that you have your own. (People could dip a contaminated knife in and cause you trouble). Also, cooking utensils and pans shouldn't be shared between foods with gluten and foods without.

At school or other places, you can make sure to wash your hands a lot with soap and water (not just sanitizer). Before eating, make sure your food didn't touch anything with gluten. Make sure you don't set your food down on tables or dishes that have had gluten on them.

My son hasn't been glutened in months, since we've really learned how to avoid it. It sounds like you are on the right track! Good luck getting healthy and staying healthy!

Share this post


Link to post
Share on other sites

Welcome SusieQ. The same thing happens to me within an hour or 2 after I accidentally consume gluten(achy joints, grumpy mood, brain fog, stomach issues)-Sometimes the side effects can last a few days from my personal experience but they do eventually go away and I get back to normal again. I am glad to see someone learning about gluten intolerance at such a young age. I have had symptoms of gluten intolerance/celiac disease since I was your age-I only wish that I would have known back then about this disease. Consider yourself one of the lucky ones who does not have to live with it for 30 or 40 years before we got diagnosed. Good luck and watch out for those accidental glutenings.

wow. 30-40 years?? the symptoms began 2 years ago for me. i guess i am pretty lucky, but never really realized it. do you know if someone is born with it? or can they develop it? because id be surprised if i were born with it.

Share this post


Link to post
Share on other sites

My son is 10 and also gets joint pain right after he accidentally gets even a tiny amount of gluten. Joint problems were the symptom that let us finally figure out what was wrong.

It takes some time to really understand all the foods that could have gluten in them. It also takes some time to learn how to make sure you don't get gluten on accident from things you touch or that touch other foods with gluten.

At home, if other people are still eating gluten, you can make sure you are safe by making sure any kinds of dips or spreads either come from a squeeze bottle or that you have your own. (People could dip a contaminated knife in and cause you trouble). Also, cooking utensils and pans shouldn't be shared between foods with gluten and foods without.

At school or other places, you can make sure to wash your hands a lot with soap and water (not just sanitizer). Before eating, make sure your food didn't touch anything with gluten. Make sure you don't set your food down on tables or dishes that have had gluten on them.

My son hasn't been glutened in months, since we've really learned how to avoid it. It sounds like you are on the right track! Good luck getting healthy and staying healthy!

thanks for the info! it really helped. and do i NEED to be that careful about it? not trying to be rude, im just asking. because im not sure if im that sensitive to it. i haven't had anything that has gluten touch my gluten-free food. how do i know if im that sensitive?

Share this post


Link to post
Share on other sites
Ads by Google:


You do need to be that careful about it. The reason is that celiac disease is different than an allergy. With an allergy you can tell right away if you are having a reaction. If you are "not that sensitive" you just don't get a reaction. If your reaction is not very severe, it's not doing damage to your body. Your body is attacking the thing you are allergic to, not you.

Forgive me if you know this already, but celiac disease is called an autoimmune disorder. Your immune system is what attacks invaders and "auto" means self. So with celiac disease, gluten tricks your body into attacking itself!

With celiac disease, even a tiny bit of gluten can make your body react and start attacking itself inside. Even if you don't notice the reaction, damage can be happening. Some people notice small amounts of gluten, others don't. But all celiac people have autoimmune reactions to gluten.

Really avoiding all gluten is tough, but you can do it!

Share this post


Link to post
Share on other sites

You do need to be that careful about it. The reason is that celiac disease is different than an allergy. With an allergy you can tell right away if you are having a reaction. If you are "not that sensitive" you just don't get a reaction. If your reaction is not very severe, it's not doing damage to your body. Your body is attacking the thing you are allergic to, not you.

Forgive me if you know this already, but celiac disease is called an autoimmune disorder. Your immune system is what attacks invaders and "auto" means self. So with celiac disease, gluten tricks your body into attacking itself!

With celiac disease, even a tiny bit of gluten can make your body react and start attacking itself inside. Even if you don't notice the reaction, damage can be happening. Some people notice small amounts of gluten, others don't. But all celiac people have autoimmune reactions to gluten.

Really avoiding all gluten is tough, but you can do it!

thanks for your support! do you know if any pizza places sell gluten free pizza?

Share this post


Link to post
Share on other sites


Ads by Google:


Z-Pizza has gluten-free pizza. I am sure there are other chains that have it but I don't remember them at the moment.

You can also buy pre-made frozen gluten-free pizza crusts by Kinickinick to make your own pizza. Many gluten-free breads are kept in the freezer section because they usually don't have any preservatives and would go bad too fast on an unrefrigerated store shelf.

Many stores mark their gluten-free food items with a special tag, often it's a green tag with gluten free written on it. Some stores keep all their gluten-free products in one section but others spread them all through the store.

If you do a Google search on the store name and gluten free you can usually find some info on what they carry.

Share this post


Link to post
Share on other sites

Hi SusieQ,

I am 46 yrs old and I have had these symptoms since I was 7 or 8 years old. Didn't find out about the gluten until I was 44. That's like 35 years I was sick all the time. I haven't tried any gluten free pizza so I can't help you there. But you are a very lucky young lady to have found this so early. You won't spend years of feeling sick and helpless like a lot of us.

Good luck,

Txplowgirl

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,422
    • Total Posts
      941,187
  • Member Statistics

    • Total Members
      66,347
    • Most Online
      3,093

    Newest Member
    Pamela Illian
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yes the crumpets are excellent. I have them quite often in the winter. Look and taste is excellent. They're probably not as chewy as the gluten ones but that's not really an issue as they are chewy in comparison to what I eat now. 
    • Wow! Didn't realise that was a possibilty! I've had the little biscuits they make, they're really nice and the only danger is finishing the entire bag at a sitting! The weird thing is that I wasn't that fussed about panettones until I couldn't have them any more, now I really want one  The BeFree wraps are the best for burritos and the Newburn ones are good for sandwiches and even mini pizzas. They're each expensive but very good as a treat or if travelling. 
    • If you are still worried you can also ask that the dry ingredients be mixed/poured outside (eg. on a deck, balcony etc.) and only be brought inside once combined with the wet ingredients. I believe someone else on the board once posted this as a suggestion, and I took it up to avoid roommate mutiny. Before I insisted on this, I would always get sick when roommates baked, even if I wasn't there at the time or hid in my room during. It might be however, that your current method is fine for you though - not a lot of studies in this area to prove anything either way.
    • I am more stressed about what sales will be out on cyber Monday and black Friday then the actual thanksgiving holidays lol. Cooking is just cooking, I do it daily, just doing more and some special dishes. NOW once a year sales on products I use daily like supplements, spices, foods, flours, etc....now that has me stressed. Like I have a limited budget but if I get them on these sales I save money for the next few months buying in bulk on sale......but then the stress of borrowing money and doing so....which purchases to make, what saves me the most in the long run, will it last me til the next sale...balancing all this out with a limited budget when your bad with numbers is scary/frustrating. Damnest thing is I do not care for the specials on technology. vanity items, etc. I am just focusing on essentials and stuff I use or would use daily to improve my life and make savings in the long run. I think the only actual 2 items I am looking at is a charm for my mother for Christmas and a water filtration system for my kitchen. Other then that it is all food, supplements, spices, and medications lol.

      OH another funny thought due to lack of orders, I am opting to go help cook a community dinner at a church for over 450 people. I already brought/opted in to bring my own spices, starches, etc for the areas to keep it safe for my stations and will be helping with the turkeys and serving up a bunch of gluten free/corn free desserts so I will be in a safe element for my health risk. Got 16 turkeys, 1 food service pan of gluten free pear cobbler, 1 pan of pumpkin chocolate brownies gluten free, pumpkin pies to pull out and do starting in the morning.
    • http://www.newburnbakehouse.com/supermarket-products#wraps Starbuck's also had wrap sandwiches in London and this was the company they used.  Warburton's bread and wraps put everything in the US to shame.  The wraps are moist, delicious and do not SPLIT!  I could actually consider a move to the the UK just to have access to this bread.  I will say it again.....the UK has the BEST gluten-free bread I have ever had.  If I could afford shipping a cooler of the stuff to the US, I would.  Really miss my good bread.  And now I see they have crumpets........ Costa coffee is great...never had a problem with it.
  • Upcoming Events