• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Parents
0

12 posts in this topic

I am wondering about people still living with their parents and who need to be gluten-free (and in my case also dairy free).

Mom and dad seem to think that little amounts of things (flour in pudding, crackers in meatloaf) are fine. I cannot seem to convince them otherwise. My mom even said she lets stuff like this go in one ear and out the other. I've told her about this webpage and she seems only mildy interested in looking at it.

The other night at supper, dad was re-heating a steak from the night before when they ate out. He kindly offered me some and when I asked what it ws cooked in, he got defensive and rolled his eyes at me. He doesn't seem to think that it matters, and didn't believe me when I said that many places cook their steaks in butter (which usually has milk).

They seem more inclined to believe the dairy allergy (though mom's convinced that it was caused by the Paxil CR and that in a few months I'll be just fine again), since they've been there for those attacks (and usually in the ER with me afterwards before we knew what was wrong).

Any idea how to change their attitudes? I know it sucks that I have some limits now, but it's a good thing for me, and it explains a lot of the stomach troubles I've had over the years.

*sighs* :(

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


you should all go to a dietation and have the dietition talk to them about it and have them tell your parents that this diet is very important for you to follow or have all you go to the doctor who dx you because that doctor probably knows what you were like when you were not following the diet

how old are you? if you are a teen you should look at the teens message board i am 13 and if you need any help ask my e-mail is in my signature

0

Share this post


Link to post
Share on other sites

Hi Aightball: :D

I agree with flagbabyds, I think going to a dietitian is a good idea or have the doctor who diagnosed you with this speak to your parents about it.

Also try printing out some information on Celiac and giving it to them. They need to understand the seriousness of this disease and the problems you may have if you do not stick to a strict gluten-free diet!

I applaud you for taking control of your health and wanting your parents to become more knowledgeable, hang in there it will get easier. :D

0

Share this post


Link to post
Share on other sites

:D I never thought about either of those options and I will look into them!! I did bring home a packet from the dietation, but mom tucked it away and never looked at it. I will be sure to print off some information for them and might just have to sit there while she reads it!!!!

Thank you fo the suggestions! I refuse to eat things that are bad for me, no matter how many times mom and dad roll their eyes or get upset.

Stacie: my sister spells her name the same way, lol :). We thought she was the only one!

-Kel

0

Share this post


Link to post
Share on other sites

Kel:

You may have to sit with her while she reads it, but if it works that's all that matters. I don't blame you for not wanting to eat anything that will hurt you and that is an AWESOME attitude to have.

Don't take it personal when your mom and dad roll their eyes at you, they just doesn't understand. You just keep pressing on and looking out for yourself and they will come around soon!!!

Yeah I don't see many people who spell the name that way either, we must just be unique!!!! :P

Have a great day

0

Share this post


Link to post
Share on other sites
Ads by Google:


I was just wondering, are you officailly a Celiac? I can't imagine parents being this cavalier towards a child who has a life-threatening disease. That is downright abusive! I'm sure they love you very much, but if you've been diagnosed with celiac disease they need to look into the facts of this disease and see what can happen if you ingest ANY gluten at all-even small amounts. Their disinterest could cost you your life.

0

Share this post


Link to post
Share on other sites

gillian502> I think they are coming around a little bit. Dad actually checked a can of beans last night before he made chili, so that's a good first step. I am still going to make mom and dad read things, though, so they get my point.

I forget who asked how old I was, but I forgot to answer you :(. I am 25, and due to financial problems had to move back home to mom and dads for a while. Am hoping to move out in the summer, esp. so I can keep a gluten free home!

I am hoping they will come around to this. One thing I've noticed in my parents over the years is that unless it's really serious (diabetes, or something like it), or it happens to them *or* they were there and heard the doctor say it, it's almost like it's not real to them. I know that as a child I was a hypochondriac, but no more!!!

My diagnosis as I understand it is: allergic to all dairy prodcuts (which they are taking seriously, as I was allergic as a child and they've seen those reactions), and then intolerant of gluten and wheat. I assume that means Celiac, esp. since I was referred to this s$#&e by the allergy doc :). I don't know how/if I should be tested for celiac disease, though.

-Kel

0

Share this post


Link to post
Share on other sites




Hey kel-

I am 23 and have also moved back in with mom and dad since I got sick. Lucky for me, the people who are really close to me, mom, dad, boyfriend and sister saw exactly how bad it got (including *carrying* me to the ER), so they are all behind me.

Family is great, but still it can be hard to lose your independence. I am not sure why yours would be so resistant, except for maybe the "ostrich effect." Maybe they think if they deny it, it won't be true. to many people, this diet seems like a fate worse than death, and they don't want their little girl to suffer, and make sacrifices.

I hope they come around soon, and are supportive and helpful to you. And until they are, we are here.

Libby

0

Share this post


Link to post
Share on other sites

that is good that they are coming around, i was dx when i was 20 mnts so i don't remember it but from my moms book about it and i have heard that i was in the hospital for 3 mnts and the doctors gave me 2 more weeks to live because i was starving to death. my parents remolded our house just after i was dx so i have my own counter and fridge and everything that is close to me is gluten-free i hope you feel beter

0

Share this post


Link to post
Share on other sites

Kel,

Oh, I didn't realize you're an adult! Thought you were a teen, but your situation and other's sounds a lot like mine...I lived alone in NYC for 10 years, went to college there, totally independant, then Celiac struck! Back home I was with my Mom! I wasn't able to live alone any longer due to the effects of the illness. My mother does most of the cooking for the household and it took a while to make her understand that she must question EVERYTHING I ate, including every spice, watching every bread crumb, the whole bit. She still doesn't get how serious cross-contamination is, and I still deal with unclean counters and unclean refridgerator a lot that I try to wipe down from time to time.

You were also asking if your gluten intolerance makes you an official Celiac. My understanding is, a person is not really a Celiac unless they are blood and biopsy tested for the disease, however, I'm sure there are plenty of celiac disease patients out there who have it but are misdiagnosed. I guess what you are is called "gluten intolerant" which is basically the same thing.

0

Share this post


Link to post
Share on other sites




I wonder if it would be helpful for those whose family members are resistant to acknowledging the seriousness and requirements of the disease to draft a letter for your own doctor to sign that gives a concise description of the illness. You can explain to your doctor that you need it for restaurants and other situations to convey the seriousness of the problem and what you can and cannot eat. Include references to cross-contamination and possible long term outcomes (intestinal cancer should be dramatic enough for most people). Just a thought.

0

Share this post


Link to post
Share on other sites

I think things are coming around, with mom at least. She did finally look at this site and she seems more willing to understand a bit of what I am going through. I explained that I was unhappy when dad rolled his eyes at me when I asked about the steak. She said that she knows, so I hope that's a good sign of things to come.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,330
    • Total Posts
      935,521
  • Member Statistics

    • Total Members
      64,991
    • Most Online
      3,093

    Newest Member
    Cz28
    Joined
  • Popular Now

  • Topics

  • Posts

    • Re. gorilla munch - Made with corn, says gluten free on the box, I don't know why it wouldn't be. It's quite yummy. Corn pops and Post golden crisp used to be my favorites, before celiac.
    • I buy the Chex cereals( except wheat). I had recently been buying Puffins from Barbara's bakery but got a very unsatisfactory answer to my question about where they source their oats so I have decided to stop buying them. See below.... "Thank you for your recent email about the oat flour in our Puffins cereal.  We appreciate the time you took to contact our company.

      Approximately 90% of our ingredients are sourced from North America. However obviously there are some crops that do not grow here, and items that are not manufactured here. In those cases, we source from other areas, mainly UK, EU and South America. Regardless of where the supplier is located, we have a very robust Supplier Assurance Program that ensures that we purchase only from approved, high quality suppliers. 

      We thank you again for your comments and hope you continue to enjoy our products.  If, at any time, we can be of further assistance, please don't hesitate to contact us again."
    • Hey guys!  I have been suffering from NCGS for almost a year, and have recently been diagnosed with IBS.  Although I was finally getting used to the gluten free routine, this has been really hard to get used to.  I'm currently having a major flare, so I'm off pretty much all fodmaps (although mainly beans, dairy, nuts, and gluten). Additionally, my stomach can't handle more than a 1/2 cup portion per meal, and even then, I'll occasionally have pain after eating.  Does anybody have simple, fast meals that they could share? As if this isn't restrictive enough, I'm also allergic to eggs, so I'm pretty much living off smoothies, rice, and allergy free chicken sandwiches.  I know this is pretty restrictive, but I thought that if anybody could help, it would be you guys.  Thanks!  Claire 
    • Great advice everyone! So the envirokids gorillla munch by natures path is safe?. As for cinnamon Chex is that ok too? 
    • Alright, so I'm 3 months into being gluten free, And in terms of how I feel, the "best fit" line on the graph would be a very slow incline, which is good, but day to day, I would mark as all over the place. I don't understand. I pretty much do the same things every day, and eat the same things every day at around the same times, even in the same order. I cook all my own food and am super careful about CC. I even have my own pans, cutting boards, even my own sponge for washing my own aforementioned kitchen supplies. What I eat is very limited. I don't even do dairy, grains, or added sugar. (for now) Yesterday I actually felt okay. The brain fog was fairly thin, I felt more based in reality, rather than like I was in the matrix, on drugs, or in a dream. Today I'm back in the matrix again. I can't think, I have anxiety, I'm overly emotional, short fused, angry, and scared of my own shadow. This up and down for no apparent reason stuff seems to be the norm for me. Is this unheard of or somewhat common? It seems like how I feel is completely out of my control, and the disease just does whatever it wants. I know 3 months isn't that long in the usual recovery time frame, but I want to get off this ride. I just need to know if it's normal to be so up and down day to day during the recovery, or if I should give in to my assumed unfounded panic attacks and be worried. As a side note, I'd much rather have the typical gastro issues usually associated with celiac. Blowing chunks and crapping my pants constantly would be way easier for me to deal with than all the neurological problems mine manifested as. Ugh.
  • Upcoming Events