• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Might Be An Idiot, But I Am Desperate...
0

53 posts in this topic

Recommended Posts

Dee777    20

I have had D since the 3rd of April. It doesn't matter what I eat, it doesn't matter what I drink. My diet for the past 3 days has consisted of G2 Gatorade, water, tea, rice crackers, jars of baby food bananas. If I take Imodium it helps control it but I get horrible cramps and bloating. I called the doctor and asked for Lomotil on the 14th and they called in a prescription for me for 3 days worth and that was it. I went tot he doctor for this about 2 weeks ago and I was told it would pass... I am not sure what to do. I mean, aside from seeing the doctor again. Is there something I'm missing? Is there anyone else out there who gets it this bad? I feel like a freak. I mean, I can't even drink and eat a few crackers without having to be 10 feet from the bathroom. I am scared and stressed and my husband has no idea what to do with me anymore... I want my life back! If there is ANYONE out there who has gone through this, and can tell me how they managed the big D, please, please let me know. I am so desperate. Thank you in advance, sorry for being a whiner :)

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Chiana    15

It costs a little more, but try picking up some pedialyte, or make this: http://rehydrate.org/faq/how-to-prepare-ors.htm

Gatorade really isn't for long-term diarrhea, and can sometimes contribute to the problem. Have you tried a lot of yogurt/probiotics, and what color is your stool? (Oh, what a terrible question. :D)

Share this post


Link to post
Share on other sites
Marilyn R    239

Dee, I know how awful you are feeling.

This is the regimine that has worked for my mother and I many times.

For 24 hours, have nothing but liquids, like safe chicken broth, herbal tea (no caffeine), pedialite, water.

The next day, have a banana, plain mashed potatoes made without dairy products. You can also have white rice, a peeled and sliced apple or applesauce. If you're up for it, try a little plain meat, like poached skinless chicken breast.

This is a modified BRAT diet (banans, apples, rice, toast) that pediatricians have recommended for years.

There is probably soy in the rice crackers. Could soy be the problem? (It is for me!) I'd steer away from anything you don't prepare yourself (except the pedialyte), but that could just be me. And it's really hard to cook anything because you're so weak!

Blueberries are good ... they have a natural anti-D effect. Good luck, wishing you all the best!

Share this post


Link to post
Share on other sites
etta694    40

(Just an aside.. I had some blueberry tea the other day.. made me sick and - checked the label. Yup, soy in it. :huh: Double check your labels..)

Share this post


Link to post
Share on other sites
ravenwoodglass    1,218

Did your doctor do any stool tests? If not go back and demand them. I had salmonella once for almost 3 weeks with my doctor telling me that it was just my IBS acting up (I hadn't been diagnosed celiac yet at that point). I knew this was different from the daily D I had already had for years. Even immodium wouldn't stop it for more than an hour or so and I lost 20 lbs in those 3 weeks. I finally got her to test and sure enough I had it. A short course of antibiotics cleared it up pretty quickly.

  • Upvote 2

Share this post


Link to post
Share on other sites
Ads by Google:


love2travel    396

When I get D (it is rare) I consume more fibre and that ALWAYS works. Women are to have 25 g of fibre per day; men 30 g. Apparently we only get about 10 g per day on average! Some days I struggle to get enough fibre in my diet.

  • Upvote 1

Share this post


Link to post
Share on other sites
IrishHeart    1,634

Don't be sorry--you are not a whiner, and you certainly aren't an idiot, hon!! ((HUGS))

I have been in your shoes with this non-stop D, cramps, bloating, and pain in the past, even ending up in the ER with dehydration. Even after going gluten-free, I still had D off and on, mostly because I had trouble digesting fats. I used digestive enzymes and they helped enormously! No more D for me--since about month 3 of absolutely no gluten, no dairy, no soy.

Here's what I have learned:

Gatorade actually creates diarrhea...stop using that ASAP.

Stop the tea too. Tea is a major gut irritant.

If you are dehydrated, mix a TaBLeSpoon of sugar and a TeaSPoon of salt into 16 oz. of water...it will do the same thing as pedialyte. I promise! It will balance your electrolytes quickly.

I did that when I was really ditzy from dehydration and it worked well. (my hubby-- the chemist-- thought of that for me :)

Were you glutened???

I am just wondering...what provoked this episode? What were you eating before this happened? Was anyone around you ill?Are you running a fever?

I hate to ask so many questions, but I am just trying to help you sort out what started it.

D is caused by a virus, a parasite, sugar or fat malasborption , food poisoning, small bowel bacterial overgrowth, among other things.

Are you newly gluten-free? your gut may just be so irritated and raw still.

Can you eat plain rice crackers (gluten-free crackers have soy and sometimes, soy is very difficult for celiacs to digest) and maybe a real banana??

(I would skip the baby food) Peel an apple and eat small bites.

I would follow the advice MarilynR suggests--small amounts of plain, boiled chicken breasts, plain rice....and you should level off.

Immodium does put a good quick HALT on diarrhea BUT it is not wise to use it for days on end.

If you have something in your gut that is causing you pain and illness (a flu bug, gluten, some other poison like Ravenwood suggests) then, you actually DO want to let it out.

The spasms that produce the big D occur because the tract is working extra hard to rid the body of whatever it does not want in there.

If there is insufficient fiber and not enough good gut flora, there's going to be watery stools.

I would suggest taking probiotics (none with dairy, though!!!) if you don't already. They provide the good bacteria you need to get your gut flora balanced out.

When I was really ill with D and lost a dramatic amount of weight(before I was DXed) I had digestive stool testing done and I had NO GOOD bacteria in my gut---that is NOT a good thing. :unsure: I read that Celiacs usually have an imbalance of good/bad gut bacteria.

Three weeks is a long time to have chronic D. I know, I had it for weeks at a time for nearly 2 years. Felt like a weak rag doll all the time.Not fun!

Please...go to your doctor if this does not stop in the next day or so, just to be sure you're not dealing with something other than the gut irritation from the celiac.

I hope this helps and I hope you feel better soon!!

  • Upvote 4

Share this post


Link to post
Share on other sites


Ads by Google:


I have been where you are. I had uncontrollable D for years. My idiot doc told me it was IBS and didn't even give me a blood test for celiac. After I finally found out I had celiac and went gluten free, things got a bit better but I still had problems from time to time.

What worked for me was to get off processed foods. I think that cc was getting me. Instead of baby food bananas, eat actual bananas. Instead of rice crackers, eat rice. Lundbergs seems to be the least cc. Get off the Gatoraid and tea. When the D stops you can try adding things back in one per week and you will know what items you can tolerate and which you don't. Keep a food diary. Good luck.

There are few things worse than letting loose in your pants.

  • Upvote 1

Share this post


Link to post
Share on other sites
Dee777    20

It costs a little more, but try picking up some pedialyte, or make this: http://rehydrate.org/faq/how-to-prepare-ors.htm

Gatorade really isn't for long-term diarrhea, and can sometimes contribute to the problem. Have you tried a lot of yogurt/probiotics, and what color is your stool? (Oh, what a terrible question. :D)

Sorry to all for my neglect in replying sooner, I was a little under the weather and lazing around in the bathroom :)

I did pick up the Pedialyte, and I have been drinking it faithfully. I have noticed a marked difference in my hydration, thank you for the tip! As for the color... it ranges anywhere from a lovely light tan to a medium brown. Quite similar to my hair color as a teenager LOL

  • Upvote 1

Share this post


Link to post
Share on other sites


Ads by Google:


Dee777    20

Dee, I know how awful you are feeling.

This is the regimine that has worked for my mother and I many times.

For 24 hours, have nothing but liquids, like safe chicken broth, herbal tea (no caffeine), pedialite, water.

The next day, have a banana, plain mashed potatoes made without dairy products. You can also have white rice, a peeled and sliced apple or applesauce. If you're up for it, try a little plain meat, like poached skinless chicken breast.

This is a modified BRAT diet (banans, apples, rice, toast) that pediatricians have recommended for years.

There is probably soy in the rice crackers. Could soy be the problem? (It is for me!) I'd steer away from anything you don't prepare yourself (except the pedialyte), but that could just be me. And it's really hard to cook anything because you're so weak!

Blueberries are good ... they have a natural anti-D effect. Good luck, wishing you all the best!

Thank you for your help! I have thus far been afraid to really eat anything solid, but tomorrow I am going to start. Heck the weight loss won't hurt me anyway. When I was diagnosed I had wanted to lose 45 pounds, now all I really need to lose is 20. I know, I know, bad bad way to lose just trying to inject some humor here. Actually I don't have any reason to have to leave the hosue tomorrow and so I will give your suggestion a try... will start with the real peeled banana, and a little white rice and see where that gets me! I am also going to eliminate soy etc. and gradually add them back in after a while one thing at a time to see what the heck is triggering it. Thanks again, you were most helpful to me!

Share this post


Link to post
Share on other sites
Dee777    20

(Just an aside.. I had some blueberry tea the other day.. made me sick and - checked the label. Yup, soy in it. :huh: Double check your labels..)

Ah, labels labels... I have read them until I am cross-eyed!!! Dang things. I have gotten to where if I can't pronounce it, I don't eat it, plain and simple. Thank you for the reminder though, silly things us celiacs can't eat!!! I appreciate your help!

  • Upvote 1

Share this post


Link to post
Share on other sites
Dee777    20

Did your doctor do any stool tests? If not go back and demand them. I had salmonella once for almost 3 weeks with my doctor telling me that it was just my IBS acting up (I hadn't been diagnosed celiac yet at that point). I knew this was different from the daily D I had already had for years. Even immodium wouldn't stop it for more than an hour or so and I lost 20 lbs in those 3 weeks. I finally got her to test and sure enough I had it. A short course of antibiotics cleared it up pretty quickly.

I am going to the doctor this afternoon, and I will request the stool tests. My doctor is very sympathetic to my cause and generally if I ask for something like a test in particular he has no problem giving it a try. Imodium helps most of the time but I find if I take the plain Imodium I get all sorts of cramping and gas and bloating and writhe around like a fat worm until it wears off. So I tried the Imodium that covers gas and bloating as well and it is better. Will let you know how the tests come out, thanks for the information, it was very helpful!

  • Upvote 1

Share this post


Link to post
Share on other sites
Dee777    20

When I get D (it is rare) I consume more fibre and that ALWAYS works. Women are to have 25 g of fibre per day; men 30 g. Apparently we only get about 10 g per day on average! Some days I struggle to get enough fibre in my diet.

I agree that we don't get enough fibre in our diets! I will certainly keep that in mind for when I can eat again LOL Thank you for the reminder and for your advice it's appreciated!

  • Upvote 1

Share this post


Link to post
Share on other sites
Dee777    20

Don't be sorry--you are not a whiner, and you certainly aren't an idiot, hon!! ((HUGS))

I have been in your shoes with this non-stop D, cramps, bloating, and pain in the past, even ending up in the ER with dehydration. Even after going gluten-free, I still had D off and on, mostly because I had trouble digesting fats. I used digestive enzymes and they helped enormously! No more D for me--since about month 3 of absolutely no gluten, no dairy, no soy.

Here's what I have learned:

Gatorade actually creates diarrhea...stop using that ASAP.

Stop the tea too. Tea is a major gut irritant.

If you are dehydrated, mix a TaBLeSpoon of sugar and a TeaSPoon of salt into 16 oz. of water...it will do the same thing as pedialyte. I promise! It will balance your electrolytes quickly.

I did that when I was really ditzy from dehydration and it worked well. (my hubby-- the chemist-- thought of that for me :)

Were you glutened???

I am just wondering...what provoked this episode? What were you eating before this happened? Was anyone around you ill?Are you running a fever?

I hate to ask so many questions, but I am just trying to help you sort out what started it.

D is caused by a virus, a parasite, sugar or fat malasborption , food poisoning, small bowel bacterial overgrowth, among other things.

Are you newly gluten-free? your gut may just be so irritated and raw still.

Can you eat plain rice crackers (gluten-free crackers have soy and sometimes, soy is very difficult for celiacs to digest) and maybe a real banana??

(I would skip the baby food) Peel an apple and eat small bites.

I would follow the advice MarilynR suggests--small amounts of plain, boiled chicken breasts, plain rice....and you should level off.

Immodium does put a good quick HALT on diarrhea BUT it is not wise to use it for days on end.

If you have something in your gut that is causing you pain and illness (a flu bug, gluten, some other poison like Ravenwood suggests) then, you actually DO want to let it out.

The spasms that produce the big D occur because the tract is working extra hard to rid the body of whatever it does not want in there.

If there is insufficient fiber and not enough good gut flora, there's going to be watery stools.

I would suggest taking probiotics (none with dairy, though!!!) if you don't already. They provide the good bacteria you need to get your gut flora balanced out.

When I was really ill with D and lost a dramatic amount of weight(before I was DXed) I had digestive stool testing done and I had NO GOOD bacteria in my gut---that is NOT a good thing. :unsure: I read that Celiacs usually have an imbalance of good/bad gut bacteria.

Three weeks is a long time to have chronic D. I know, I had it for weeks at a time for nearly 2 years. Felt like a weak rag doll all the time.Not fun!

Please...go to your doctor if this does not stop in the next day or so, just to be sure you're not dealing with something other than the gut irritation from the celiac.

I hope this helps and I hope you feel better soon!!

Holy COW... you are one wealth of information, aren't you??? :) Thank you thank you for it all, I have started a probiotic recommended to me by my pharmacist and it seems to have slowed things down, have been feeling better although things have not stopped yet. I started them Saturday night so haven't been on them long at all. I can't remember what I ate prior to getting ill, and I am eliminating ALL dairy for a while will slowly re-introduce it at a later time. Thank you SO much for your help!

  • Upvote 1

Share this post


Link to post
Share on other sites


Ads by Google:


Dee777    20

You might try taking L-Glutamine, which heals the gut. It ended years of D for me.

Thank you so much for the tip, I am going to go check into that today with the pharmacist who has been so patient with my questions! Your help is much appreciated!

  • Upvote 1

Share this post


Link to post
Share on other sites
Dee777    20

I have been where you are. I had uncontrollable D for years. My idiot doc told me it was IBS and didn't even give me a blood test for celiac. After I finally found out I had celiac and went gluten free, things got a bit better but I still had problems from time to time.

What worked for me was to get off processed foods. I think that cc was getting me. Instead of baby food bananas, eat actual bananas. Instead of rice crackers, eat rice. Lundbergs seems to be the least cc. Get off the Gatoraid and tea. When the D stops you can try adding things back in one per week and you will know what items you can tolerate and which you don't. Keep a food diary. Good luck.

There are few things worse than letting loose in your pants.

I haven't had the baby food since Saturday, I laid off the crackers and will try the plain rice tomorrow as per my earlier post... You made me laugh with your letting loose in the pants comment, seriously I needed that laugh thank you SO much for the advice and the humor!!! Oh and I switched from Gatorade to Pedialyte and no more tea for me for a while!

  • Upvote 1

Share this post


Link to post
Share on other sites
IrishHeart    1,634

Holy COW... you are one wealth of information, aren't you??? :) Thank you thank you for it all, I have started a probiotic recommended to me by my pharmacist and it seems to have slowed things down, have been feeling better although things have not stopped yet. I started them Saturday night so haven't been on them long at all. I can't remember what I ate prior to getting ill, and I am eliminating ALL dairy for a while will slowly re-introduce it at a later time. Thank you SO much for your help!

:rolleyes: (chuckling) yeah, what a topic for me to be so well-versed in, eh??...poo and how to stop it...geesh.... :blink:

I became a non-stop researching machine the last 4 years as I became so ill because NO ONE in the medical community was any real help...I only pass on what worked for me. (and reading and trying to comprehend it while my brain was impaired was pretty tricky indeed)

I truly hope you start to feel better soon. The probiotics are pretty miraculous. Give them a chance to repopulate your gut and you'll notice a difference.

You need some fiber --so ditch the dairy and eat that rice and peeled apples. Hang in there, hon!I never thought I'd get to where I am now either...but...here I am.

No D anymore...ta da!! B)

let us know how you're doing!!

  • Upvote 1

Share this post


Link to post
Share on other sites
Dee777    20

:rolleyes: (chuckling) yeah, what a topic for me to be so well-versed in, eh??...poo and how to stop it...geesh.... :blink:

I became a non-stop researching machine the last 4 years as I became so ill because NO ONE in the medical community was any real help...I only pass on what worked for me. (and reading and trying to comprehend it while my brain was impaired was pretty tricky indeed)

I truly hope you start to feel better soon. The probiotics are pretty miraculous. Give them a chance to repopulate your gut and you'll notice a difference.

You need some fiber --so ditch the dairy and eat that rice and peeled apples. Hang in there, hon!I never thought I'd get to where I am now either...but...here I am.

No D anymore...ta da!! B)

let us know how you're doing!!

Well, everyone should be an expert at something... your area of expertise lays in poop, and i have learned I have a new talent- I can break the speed of sound making tracks for the nearest bathroom!

I had a great day today. Ate a peeled apple, and that was wonderful! For supper I had a half cup of plain boiled white rice and a little less than half a small plain baked chicken breast, and have broken that sound barrier many many times since :(

Ah well. Should have known better maybe I pushed it? I didn't need to take Imodium at all today, had to take three of them within 15 minutes. I do have a question though, if anyone knows. Can I still take the probiotics within a short time of the Imodium? Do I have to wait a certain amount of time between both? I am asking because I forgot to take a probiotic with my supper. Ah this learning curve is so steep!

Thanks! And good for you having no D anymore!!! I am dreaming of that day and will throw the biggest party this town has ever seen when it finally arrives LOL I'll put a big banner in my front window "Come celebrate with me, I no longer suffer from the big D!!!

  • Upvote 1

Share this post


Link to post
Share on other sites
IrishHeart    1,634

I hear ya...I know where every public bathroom is within a 150 miles radius of my house. :unsure:

For the first time in 20 years, I am NOT carrying Immodium caplets or antacids. No back-ups in the glove compartment either. :D

Miracles occur with healing the intestines. Whenever I think I am not making progress, I recall just how bad it was (I hardly left the house some days because I was doubled over in pain and my husband picked me up off the bathroom floor many times. He held cold cloths on my forehead and on the back of my neck because I was passing out from the pain). (shudder) that was ugly...

But, now, I am so much better and I want you to feel encouraged because I NEVER thought that nightmare would end. But it did!!

This WILL happen for you, too!

How long have you been gluten-free?

I think you may be overdoing the Immodium, in my humble opinion.

I also think you need more solid food in a day than 1 apple, a bit of rice and chicken. I know you are not hungry (been there) and I know you associate eating with having the D...but the truth is, you need some bulk-forming FIBER. And that comes from FOOD. Eat more rice--spaced throughout the day. NO dairy, okay??

Are you still feeling dehydrated? If so, please consider drinking the salt/sugar/water drink I explained above so your electrolytes balance out.

Again, if this does not clear up soon, you may need to see your doctor.

I take the probiotics (mine are powder--mixed into water)on an empty stomach every morning and one dose before bed.

Okay, that's all I got....I hope you're feeling better today, Dee!

Share this post


Link to post
Share on other sites
IrishHeart    1,634

I have had D since the 3rd of April. It doesn't matter what I eat, it doesn't matter what I drink. My diet for the past 3 days has consisted of G2 Gatorade, water, tea, rice crackers, jars of baby food bananas. If I take Imodium it helps control it but I get horrible cramps and bloating. I called the doctor and asked for Lomotil on the 14th and they called in a prescription for me for 3 days worth and that was it. I went tot he doctor for this about 2 weeks ago and I was told it would pass... I am not sure what to do. I mean, aside from seeing the doctor again. Is there something I'm missing? Is there anyone else out there who gets it this bad? I feel like a freak. I mean, I can't even drink and eat a few crackers without having to be 10 feet from the bathroom. I am scared and stressed and my husband has no idea what to do with me anymore... I want my life back! If there is ANYONE out there who has gone through this, and can tell me how they managed the big D, please, please let me know. I am so desperate. Thank you in advance, sorry for being a whiner :)

DEE! Read this post from today...! maybe it applies to you?

How are you feeling??

  • Upvote 1

Share this post


Link to post
Share on other sites
Dee777    20

DEE! Read this post from today...! maybe it applies to you?

How are you feeling??

Ah, Irish Heart, you dear! I must apologize for not responding sooner, btu truth be told I have been gorked out of my head on Lomotil (it really makes me sleepy!) for days and I did come one, follow your link above and read it, then back to sleep I went. I went to see my doctor on Thursday last week, but he was away and had another in his place for the day. She admitted me to the hospital for fluid therapy as my electrolytes were whacked out of balance. After that I came home and went back to sleep lol.

Today I had to go back to my doctor this morning and I shared with him the information you passed on to me, and he immediately asked me if I would like to try the medication Cholestyramine. He said it would not hurt me, and that one of the most common side effects is constipation :) I told him if that happened I would invite him over for a barbecue! He is trying to get me in to see a gastroenterologist but they are horridly difficult to get into here where we live but he said he would see what he could do. In the meantime I am scheduled for an abdominal ultrasound this Thursday morning (I have been having discomfort in the gallbladder area) and have a prescription filled for lots more Lomotil in the meantime.

But, a funny thing happened today. I didn't eat or drink anything when I got up this morning because I had a 30 minute drive to see the doc and there are no restroom facilities between there and here. So upon arriving home at about 1 pm today I was absolutely dehydrated and famished and in a "what the heck" kind of mood (rather grumpy) so decided to make myself 2 pieces of rice toast. And I followed that with three slices of black forest ham. And a big old glass of water. I figured I was going to be sick anyway... and I wasn't. No meds, today either... This lasted for 4 hours and the D hit again afterwards but that was the longest time in between the dreaded D I have had in over a month. Maybe things are looking up? Anyway, I took some more Lomotil, just in case :) Don't want to have a miserable night to spoil my good mood.

So I will see how things go, my pharmacist didn't have the Cholestyramine in and had to order it so it won't be in until tomorrow. I will see how I am feeling when I pick it up and go from there. For now I am just trying to decide if I should try it or wait for a specialist to do tests first. Thank you so much for the link, for thinking of me and taking the time to send it, so very very kind of you and I DO thank you from the bottom of my heart!

Dee <3

Share this post


Link to post
Share on other sites
IrishHeart    1,634

Ah, Irish Heart, you dear! I must apologize for not responding sooner, btu truth be told I have been gorked out of my head on Lomotil (it really makes me sleepy!) for days and I did come one, follow your link above and read it, then back to sleep I went. I went to see my doctor on Thursday last week, but he was away and had another in his place for the day. She admitted me to the hospital for fluid therapy as my electrolytes were whacked out of balance. After that I came home and went back to sleep lol.

Today I had to go back to my doctor this morning and I shared with him the information you passed on to me, and he immediately asked me if I would like to try the medication Cholestyramine. He said it would not hurt me, and that one of the most common side effects is constipation :) I told him if that happened I would invite him over for a barbecue! He is trying to get me in to see a gastroenterologist but they are horridly difficult to get into here where we live but he said he would see what he could do. In the meantime I am scheduled for an abdominal ultrasound this Thursday morning (I have been having discomfort in the gallbladder area) and have a prescription filled for lots more Lomotil in the meantime.

But, a funny thing happened today. I didn't eat or drink anything when I got up this morning because I had a 30 minute drive to see the doc and there are no restroom facilities between there and here. So upon arriving home at about 1 pm today I was absolutely dehydrated and famished and in a "what the heck" kind of mood (rather grumpy) so decided to make myself 2 pieces of rice toast. And I followed that with three slices of black forest ham. And a big old glass of water. I figured I was going to be sick anyway... and I wasn't. No meds, today either... This lasted for 4 hours and the D hit again afterwards but that was the longest time in between the dreaded D I have had in over a month. Maybe things are looking up? Anyway, I took some more Lomotil, just in case :) Don't want to have a miserable night to spoil my good mood.

So I will see how things go, my pharmacist didn't have the Cholestyramine in and had to order it so it won't be in until tomorrow. I will see how I am feeling when I pick it up and go from there. For now I am just trying to decide if I should try it or wait for a specialist to do tests first. Thank you so much for the link, for thinking of me and taking the time to send it, so very very kind of you and I DO thank you from the bottom of my heart!

Dee <3

You're so welcome, hon and I hope it resolves the D for you.

I knew your electrolytes must have been off, that's why I recommended the water,salt,sugar drink. I commiserate as I went through that awful D and abdominal pain for a very long time. Had the abdominal scans, stool samples, scopes, everything. They could never "see" anything except the tests revealed an absence of good bacteria in the gut.

The bottom line? Time and Probtiotics. Trust me. Your gut flora is all out of whack. No doctor will tell you to supplement with these, but celiacs have unbalanced gut flora for sure.

Please get some and try it. I get mine from Custom probiotics. (If they edit the name out, PM me and I'll tell you where)

TOTALLY Stopped the D, the C and now, I have normal BMs for the first time since....um :unsure: ,...well, EVER in my whole life. :) :)

Geesh, did you ever think you would be discussing poop with other people on the internet?? :lol: :lol:

me neither, but there it is... ;)

Please, keep me posted. I want to hear you are feeling better!! ;)

Share this post


Link to post
Share on other sites
Dee777    20

You're so welcome, hon and I hope it resolves the D for you.

I knew your electrolytes must have been off, that's why I recommended the water,salt,sugar drink. I commiserate as I went through that awful D and abdominal pain for a very long time. Had the abdominal scans, stool samples, scopes, everything. They could never "see" anything except the tests revealed an absence of good bacteria in the gut.

The bottom line? Time and Probtiotics. Trust me. Your gut flora is all out of whack. No doctor will tell you to supplement with these, but celiacs have unbalanced gut flora for sure.

Please get some and try it. I get mine from Custom probiotics. (If they edit the name out, PM me and I'll tell you where)

TOTALLY Stopped the D, the C and now, I have normal BMs for the first time since....um :unsure: ,...well, EVER in my whole life. :) :)

Geesh, did you ever think you would be discussing poop with other people on the internet?? :lol: :lol:

me neither, but there it is... ;)

Please, keep me posted. I want to hear you are feeling better!! ;)

Now that you mention it, no. I never imagined I would ever be discussing my poop condition with anyone, least of all on the internet :)

I received a call today from the office of a gastroenterologist. It appears my GP called and begged for me to have an appointment with him and lo and behold I have one for tomorrow morning at 10. I have been taking the probiotics but I am not sure if they are inside me long enough to work. Every time I have a little drink of something even water, whoosh. Down the drain. Do you order your probiotics online? I live in a small community (pop. ~5,000) in Canada, there aren't a whole lot of places here to get them so my options are limited! The ones I currently have are bought at my local drugstore.

I am a little leery about seeing the gastroenterologist. I looked him up online and have read that his bedside manner is atrocious. I guess I can go see what he has to say, I don't HAVE to do anything he suggests if I don't feel right about it, right? I am just so tired of doctors and tests and D! Not that anyone else in here isn't either! I am certain I would be insane by now if I didn't have this forum and you wonderful people!

Thank you, Irish!

Dee

  • Upvote 1

Share this post


Link to post
Share on other sites
ravenwoodglass    1,218

I am a little leery about seeing the gastroenterologist. I looked him up online and have read that his bedside manner is atrocious. I guess I can go see what he has to say, I don't HAVE to do anything he suggests if I don't feel right about it, right? I am just so tired of doctors and tests and D! Dee

Glad your doctor was able to get you in. Sometimes the doctors with the worst bedside manners are the best at figuring out what is going on. Hopefully that will be the case for you. I do hope you are feeling alot better soon.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,896
    • Total Posts
      938,533
  • Member Statistics

    • Total Members
      65,804
    • Most Online
      3,093

    Newest Member
    Junimoon
    Joined
  • Popular Now

  • Topics

  • Posts

    •   Hello linzk8! I would suggest you to go with natural foods as you are allergic to latex. One of my friends had the same problem. She also had latex allergic. She used Indian nuts to lose weight purchased from the official site of Nuez Dela India and achieved a success. You can also check the same. Eating at the right time is also important. Avoid eating very late at night. It's fine to eat in between meals, but limit your proportions. Never starve yourself! Hope this could help you!
    • My family visited Peru (my 13 year old has celiac) last Christmas, and we found Peru rather gluten free friendly. Peru is the land of corn and potatoes, and they have lots of grill meats.   Their cooking ingredients tend to be naturally gluten-free.   We did the 4 day Inca trail hike to Machu Picchu, and our chef did a great job making gluten-free meals for my daughter.  
    • Most physicians follow the joint commission’s guidelines on prescribing HTN medications which usually begin with a diuretic and calcium channel blocker (the amlodipine) - see below. Is it possible that your bp was still not controlled on the CCB (amlodipine)? So the ARB was added? Again, I’d just like to say that just bc a drug does have certain adverse effects does not mean you will have them, but I understand if you would not even want to take the chance, given a previous history of celiac disease. http://www.aafp.org/afp/2014/1001/p503.html “In the general nonblack population, including those with diabetes, initial anti-hypertensive treatment should include a thiazide diuretic, calcium channel blocker, angiotensin-converting enzyme (ACE) inhibitor, or angiotensin receptor blocker (ARB). In the general black population, including those with diabetes, initial treatment should include a thiazide diuretic or calcium channel blocker. If the target blood pressure is not reached within one month after initiating therapy, the dosage of the initial medication should be increased or a second medication should be added (thiazide diuretic, calcium channel blocker, ACE inhibitor, or ARB; do not combine an ACE inhibitor with an ARB). Blood pressure should be monitored and the treatment regimen adjusted until the target blood pressure is reached. A third drug should be added if necessary; however, if the target blood pressure cannot be achieved using only the drug classes listed above, antihypertensive drugs from other classes can be used (e.g., beta blockers, aldosterone antagonists). Referral to a physician with expertise in treating hypertension may be necessary for patients who do not reach the target blood pressure using these strategies.” Drugs for BP in different classes work by different mechanisms. It may be worth it to print out those huge, long drug information sheets and go over them with a fine toothed comb. As for CoQ10, have you checked for coupons online? Can your doctor write you an Rx and get your insurance to pay? They might say it’s on OTC and you have to pay out of pocket, but it may be worth it to find a way around that - would a prior authorization do the trick? I don’t know, just bringing up the questions. In the report you cited, these concluding words were to me, chilling:
      “Therefore, we suggest the possibility of a class effect.” Losartan, olmeseartan - doesn’t matter. And I'll say it again, there must be a way to disseminate this information more widely as I had no idea about this adverse effect, and never heard any docs speaking about it either. It really warrants wider sharing. Finally, one person who is often an overlooked resource is your pharmacist. They have just tons of knowledge and should be able to talk to you in some depth if asked, in an articulate, easy to understand way. They may even be able to do some digging and research for you. Plumbago
    • Plumbago et al, Thanks for letting me know  about the "artan" drugs being ARBs. I think Cyclinglady was right the Losartan research is not free and thus not public. I saw the link with no abstract but wanted to read it to confirm as you noted in your ETA that it was another "Artan" drug Losartan causing the problem. I believe it is. I found a great (after more digging) review of all the "artans"/ARBs or most of them about whether they can contribute to sprue symptom's in addition to Benicar. here on wiley as studied by the alimentary pharmacology and therapeutic journal (AP&T) for short. http://onlinelibrary.wiley.com/doi/10.1111/apt.14176/full I wish I knew how to post the able alone it is very informative.  Please scroll over the table to the end of it since it even tells how long to expect before your sprue symptom's/conditions improve IF the "artan" drug is causing your symptom's which I find the most helpful thing about the table.  They also note histological feature (degree of villi blunting) to expect on biopsy. They note Losartan can cause "total atrophy of duodenal villi" by their reporting. I also recently had an issue with my potassium levels so I feel sure it is the Losartan. I remember reading a study about how losartan was better at the "chronic cough" I had developed using Lisinopril so I changed to Losartan a few years ago . . . now I find I could of been making my GI symptom's worse. But to answer  your other question since I began taking Folic Acid a few months ago my BP numbers went down to a healthy level of 120/80 or less sometimes . . . but with medicine. I had already been thinking I wanted to try get off the BP medicine (for good) so this is more motivation. C0q10 worked well but it is too expensive for me to take all the time! I called my doctor to have them put me back on Amlodipine/Norvasc and I can't remember why I changed off that medicine to begin with now.  I do remember needing two medicine's back then to control my BP so maybe we stopped the Norvasc instead of the Linsinopril. But now that they have put me back on Norvasc I hope my potassium levels will correct themselves. I just don't feel safe anymore taking Losartan after learning it could be making my GI symptom's worse or causing the to be unreliable. I first thought my touch of D. was from an antibiotic round but when kefir didn't get me back on track I suspected something else when my Vitamin D levels showed up low too again! Thanks everybody for ya'lls great suggestions and good research on my behalf. I also recommend this verywell article if you are still having GI problems and you suspect an "artan" like ARBs BP medicine and looking for a medicine that might have less severe  or more manageable symptom's for your lifestyle because it comprehensively list's the medicine's by drug types. https://www.verywell.com/hypertension-drugs-1745989 no medicine is without a side effect as (I) am learning but I never thought sprue would be one for my BP medicine and why I prefer Vitamins when I can find out which one too take. Now that I have the Norvasc approved as a replacement for the Losartan I might see if my BP goes up again if I stop my medicine all together as I was hoping the Folic Acid might help me with it (without medicine) and it explains why I was low in Folic Acid to begin with again. posterboy,    
    •   Ironic, We went entirely gluten-free in our home after 2016 for how bad my neurological , joints, mood gets now in addition to my former gi, skin, and other issues . My son shows signs of my early symptoms and voluntarily went off gluten, corn, and milk like me as he did his own food like diary symptom tracking. My daughter continues on gluten outside the home. We warn her of our concern for at times in toddler hood she was constipated and would bloat.  We asked their Dr to test them as I was undergoing my testing and she said no until I had my diagnosis. As we know these things take time and my son went gluten-free . He said after watching mom on my gluten challenge that he will not go back on it .  We await technology further research and we silently watch our soon to be teen girl for we know even if tested negative it can show up one day.  She says I know mom I know. The more Whole Foods here in the home we notice she actually craves gluten / processed foods less and is slowly transitioning as well.  Does your child also naturally eat less gluten and processed as well away from home? I wonder if the taste buds / craving change as the parents diet changes food options.  Thoughts?
  • Upcoming Events