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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Doctor Help For Florida
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Ok this is my first post as I'm new to celiac. I'm trying to find a good doctor around the Lakeland Florida area. I don't mind driving a little bit as my health is more important than convenience. My primary care doctor is sort of an idiot for lack of better words and wouldn't do any tests when I told him the symptoms I was having, such as constant diarea, sore joints, constant weakness and weird blood sugar readings. My mother in law is a RN in Texas and she was actually the one that said it sounds like it could be celiac disease after the glucose tests came back negative for diabetes. Any help anyone can provide is greatly appreciated.

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Ok this is my first post as I'm new to celiac. I'm trying to find a good doctor around the Lakeland Florida area. I don't mind driving a little bit as my health is more important than convenience. My primary care doctor is sort of an idiot for lack of better words and wouldn't do any tests when I told him the symptoms I was having, such as constant diarea, sore joints, constant weakness and weird blood sugar readings. My mother in law is a RN in Texas and she was actually the one that said it sounds like it could be celiac disease after the glucose tests came back negative for diabetes. Any help anyone can provide is greatly appreciated.

Cleveland Clinic or Mayo Clinic are two I'd suggest. I think Cleveland Clinic is closer to you...the closest Mayo Clinic is in Jacksonville, about four hour's drive time, possibly more. Good luck!

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I am not sure what you are looking for or how far you want to travel. I was impressed with Dr. Kharrazian's book, but he is selective with the cases he takes and he is across the country (he is in CA), but he has trained doctors who use his methods. They use herbs, supplements, and natural methods to promote healing. They focus on diet since digestion is so key to health. They focus on testing and functional ranges.

If I lived closer I would try to see Dr. Danny Quaranto in Vero Beach, FL - http://www.amfcc.info/Index.htm

If I had money and lived in the area I might see Dr. Steven Noseworthy in Sarasota/Bradenton, FL

Another option would be Dr. Lee S. Barbach in Miami, FL - www.miamithyroiddoc.com

Dr David Peterson works long distance - http://www.wellnessalternatives-stl.com/staff.htm

Dr Mark Flannery also works long distance - http://www.livehealthwise.com/Dr-Mark.html - I have "seen" him and it was not a good fit, but my boyfriend liked his responsiveness and other things about him

Hope this helps. I would be interested in what you find since finding a good doctor is so difficult.

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    • I will say what everyone else says and get tested again with the endoscope and biopsy to confirm, you will need to be on gluten for 12 weeks for blood test 2 weeks for endoscope at least a slice of bead a day.  The thing about celiac is many symptoms can be quite minor, hell even before I had my MAJOR symptoms show I had some of the other issues show up in my every day life and I just thought it was normal.  Regardless if you keep eating gluten with celiac disease it will slowly eat away at your body internally til it does become a problem. Celiac is a autoimmune disease that reacts to the gluten proteins, and has misdirected attacks on your own body internally by mistake trying to kill the gluten. Now the damage can lead to all kinds of other auto immune diseases, random allergies, food intolerance, and even cancer.   I suggest if you do have it, stay on the gluten-free diet, your just basically changing brands there are many gluten-free food versions of everything now days. Be thankful you got this early, I developed issues with dairy, corn, peanuts, and a whole list of others along with another autoimmune disease Ulcerative Colitis that makes it so I can not eat sugars or carbs or my intestines swell.  Getting on a gluten-free diet before your damage progresses will not only keep you healthier for longer, and let you live a pretty normal life but also save you from this pain and very limited diet if the damage progresses too much. As to your fatigue, you changed over to gluten-free diet, you stopped eating a bunch of the Fortified foods, and depending on the route you took of either whole foods ore more processed foods. You could be eating to many empty carbs, starches, and not enough nutrients. OR if you took the whole foods approach you be lacking in your daily calorie intake or not the right ratio of nutrients. You might have to supplement a few of them.
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    • Hi Jennifer, This thread might have some information that would help you.   Your doctors are pretty lame IMHO.  Perhaps you can find a celiac group in your area that has local meetings for support.  They might also suggest a different doctor who knows how to treat celiac patients.  
    • All the above posts are full of good advice. What I'd like to add is, if you have coeliac disease and continue to eat gluten, you run the risk of other autoimmune diseases in the future as well as osteoporosis, malnutrition and even cancer, so even if you had no symptoms at the beginning, and may also not have any symptoms if you eat gluten (not all coeliacs do), the damage is still being done to your gut and the rest of your body, so please be aware of this.
    • You could possibly try calling the places in Texas and Chicago to see if they can refer you somewhere that does accept your insurance. Oh good luck to you!
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