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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Pain Right Under Diaphragm
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6 posts in this topic

It seems that people have pain all over the place. I have the same issues but when it is worst, I feel a semi-pain right under my diaphragm, over liver area (had GB removed many years ago) right where one might say a GB pain was coming from. That area is always sensitive to touch. Apparently I am finding gluten in foods I think are safe, grr. Do others experience discomfort/pain in this area as well? Do digestive enzymes help at all? I have heard say that the fat metabolism could be goofed because of no GB so I was wondering about the enzymes.

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That is where my pain first began last year before my scope. I thought it was my GB and want on a bread and pasta diet to quiet my GB down! little did I realize I went on an unintended gluten challenge! have you had a recent scope? Mine showed significant irritation at the base of esophagus where meets stomach, hiatal hernia causes the acids to come up into esophagus and can cause tenderness in that spot. this is all conjecture on my part.

I have also heard that some can have bile salts empty into intestines and cause considerable pain, especially if you have GB removed.

have you just been diagnosed w celiac? how long on gluten free diet? I found digestive enzymes very helpful. after i began to heal I stopped taking them but I have had recent problems and am thinking of restarting...

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I had a GI suggest it years ago and then that was the end of it although she did some blood work (never heard back) that I am trying to get a hold of. At the time I did not know enough to pursue it more. I just assumed the issues were post-GB removal issues. I had all the symptoms for a year with the worse being nausea, vomiting, dizziness, anxiety, brain fog 24/7. After a year that comment of "you ever been tested for celiac" dawned on me, so I just gave gluten free a try since there are no meds for it. Within 2 days I was 90% better. I went from multiple daily barfing to maybe once a month and that seems to be from accidental goods. Before the change I was a gluten eating machine. Whenever my issues died down I just ate whatever was quick and easy not knowing it might be hurting me. It has been about 3 months now. I get glutened at times not realizing it and think I need to eliminate corn, milk, and soy as each seem to cause me issues.

I am really burnt out on the docs as after 10+ years none had any clue except that passing comment. I have read better "medical" advice on these forums. At some point I will talk to a new GI, but I am in no hurry and do not want to have to introduce gluten just to be scoped. I am considering the test people recommends. The change works for me and I am 100% gluten-free unless it is an honest accident. Whether gluten intolerant, wheat allergy or Celiac, I am treating as if Celiac and being extremely diligent as the reminders of the year past keep me on track.

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These kind of pains are hard to pin point in my celiac experience. I had gone through a whole battery of probing and tests for years from doctors that never found an answer. For years I was having severe pain which I thought was coming from my heart and was eminating from that area. After I learned I had celiac disease I found out most of the pain was from gas buildup in my intenstins and stomach. The actual spot that was causing the pain was in my lower abdomen but I was feeling it in my heart/upper stomach area.

Now that I know when I have pain in my stomach area (which is rare because I follow the diet) I press on my intenstines and it somehow gives a little relief.

To sum it up....probably gas buildup due to the fact that your body is not properly digesting the food.

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It seems that people have pain all over the place. I have the same issues but when it is worst, I feel a semi-pain right under my diaphragm, over liver area (had GB removed many years ago) right where one might say a GB pain was coming from. That area is always sensitive to touch. Apparently I am finding gluten in foods I think are safe, grr. Do others experience discomfort/pain in this area as well? Do digestive enzymes help at all? I have heard say that the fat metabolism could be goofed because of no GB so I was wondering about the enzymes.

I had my gallbladder removed a few years ago and that is were my pain was the worst before I went on GFD. It could be that area was more sensitive to the intestine bloating? I have been on the GFD over a month (just started the FODMAP diet for food intolerances) and the pain has eased off. How long have you been on the GFD?

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I just now saw your reply. I went gluten-free in about March with some challenges to it since I was not officially diagnosed. Each time about 1-2 days later and sometimes earlier I notice I am a dingbat. Sunday I had a small piece of cake and yesterday I ate at KFC (famous bowl). So blechy now.. Bad Chad. My discomfort is definitely over the liver area. I have a hiatal hernia a well.

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