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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long Are You Sick For?
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10 posts in this topic

Does anyone but me get sick for an entire month? I am super sick for about 8-10 days but have lots of pain for the entire month and of course Celiac brain.

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If I get glutened, which I still do cause I'm new to this, I seem to have bad symptoms for a day, maybe 2, and then slowly get better. I've had it take up to a week to get better before, which is beyond frustrating, especially starting out like I am.

I doubt you're alone, I think we each kind of "personalize" the symptoms, and it probably depends on how much gluten you get in your system as well.

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I agree with Josh. It depends on how much gluten I've taken in. Usually, the worst of my symptoms are the first several hours, but I do find that getting a good night of sleep does help. Then they will gradually go away over a week or week and a half, and I'm pretty close to 100% in two weeks.

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When I went gluten-free at first I did not realize how much I was cross contaminating myself. I went to a gluten-free deititain that helped a lot. I kept a food diary and slowly learned what bothered me. You have to understand your digestive system is shot. You won't digest normal, sugar gets digested late and causes issues too. Hang in there, it took me 6-7 months in to feel somewhat better. I'm almost a year and finally had a pain free day yesterday!!!! It's a learning thing, what works for you beyond being gluten-free. Look at your kitchen also, protect yourself there.

When I get CC or glutened? Depends on how much, it can last a day to up to 4! I would suggest looking at ways you might be getting cross contaminated. Look into all meds and products as well as food! Hang in there!!!

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Since you brought this up, I got glutened yesterday... By, of all things, dry roasted peanuts. It's been 24 hours and I'm still feeling symptoms, though they aren't as bad as normal because I didn't get much. At any rate, I'd be willing to bet that by Friday I might start clearing up, and Saturday or Sunday will return to near 100%.

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Were they peanuts out of a bin? Those can get CC. I did eat Planters nuts and trusted them. I was eating a lot of almonds etc this past summer. I was still having a lot of side cramping and tummy bloat. I was allergy tested and found out I'm allergic to peanuts, tomato, almonds, and some melons. My reactions to these food were all gut related. It took me a few months to learn my bodys reaction to certain things. Going whole foods really helped alot. I now know the true gluten feeling versus a food reaction. Keeping a food diary will help alot! Hang in there!

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They were Kroger dry roasted peanuts. I didn't think to check the label, cause I'm still new to this. Turns out Kroger uses MSG in the dry roasted nuts. 2 days later, I'm still sick, but not as bad. I get a lot of bloating, nausea and lower abdominal cramps. Good news is, since I caught it before I'd ate a lot of the nuts (a handful is all it took to do this to me) I'm not as bad as I've been known to get.

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They were Kroger dry roasted peanuts. I didn't think to check the label, cause I'm still new to this. Turns out Kroger uses MSG in the dry roasted nuts. 2 days later, I'm still sick, but not as bad. I get a lot of bloating, nausea and lower abdominal cramps. Good news is, since I caught it before I'd ate a lot of the nuts (a handful is all it took to do this to me) I'm not as bad as I've been known to get.

MSG doesn't have gluten in it but you can be sensitive to MSG as well as gluten. Sorry you had to find out the hard way, ALWAYS CHECK THE LABEL!

________________

To the original poster: I get sick for at least a week from cc, longer if I get a large amount. The last time I was severely glutened was when I ordered gluten free pasta at Olive garden and the server brought me regular pasta instead. I was so sick and after that I ended up with brochitus which turned into pnuemonia. I really don't think the pnuemonia was just a coincidence. I think my immune system was fighting the gluten so hard that it made me vulnerable to getting sick. That said do make sure that yoru have eliminated all sources of cc. Small amounts could be keeping you sick.

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MSG doesn't have gluten in it but you can be sensitive to MSG as well as gluten. Sorry you had to find out the hard way, ALWAYS CHECK THE LABEL!

________________

To the original poster: I get sick for at least a week from cc, longer if I get a large amount. The last time I was severely glutened was when I ordered gluten free pasta at Olive garden and the server brought me regular pasta instead. I was so sick and after that I ended up with brochitus which turned into pnuemonia. I really don't think the pnuemonia was just a coincidence. I think my immune system was fighting the gluten so hard that it made me vulnerable to getting sick. That said do make sure that yoru have eliminated all sources of cc. Small amounts could be keeping you sick.

Wow now thats real sick, I don't believe its a coincidence either. Too bad you can't sue the Olive Garden. Last time I got sick was from meds my Dr. gave me. I called the mfg but its hard to get info these days. I had taken 3 pills by then. I wish there was more info on a gluten-free dog. I spend a long time being sick, not touching things, not eating out etc.

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I've been gluten-free for nearly three months and know I was accidentally glutened twice when eating a product that had been marked gluten-free but the manufacturer contacted me and told me it was not. If they had not contacted me I would have had no clue that I was glutened because I don't get sick. On my three-month gluten challenge I did not get sick, even once, even when consuming tons of the stuff. I just spent three weeks in Croatia and Italy, being extremely careful but still don't know whether I was glutened. It would be so hard to have to suffer through glutenings! What is hard for me is that I just don't know (perhaps that will change in the future?!) so do not know what to avoid or change if there is something going on. Weird feeling.

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