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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

"tasting" Gluten
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5 posts in this topic

I noticed something really interesting lately-- if I eat something that contains gluten now, I can often tell while chewing it. It does not have a particular metallic or bitter taste to me, but (this is weird) it almost feels "dead" in my mouth. Does anyone else have this, or have other gluten "tasting" experiences? It's such a weird thing to say, but if I eat a gluten free cookie, it's as if the flavors come alive in my mouth while chewing, but if I eat a cookie with gluten, I can definitely tell because the flavors don't come alive, and it's like they just sit there in my mouth, dead.

That sounds so bizarre when I actually say it.

I had this experience again today with a free kielbasa sample at my local deli. I had no idea it would have gluten, but after putting it into my mouth I swallowed a tiny bit but then spit it out because I'm beginning to completely trust the "dead" sensation. A few minutes later, my stomach started to gurgle. Looking it up at home, I learned that many kielbasas do indeed contain gluten.

So weird.

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I haven't noticed this, but I have to be super careful because I get so sick, so I don't think I HAVE had any major gluten cc, you know?

However, one thing I remember reading about a few months back was a study where they swabbed a little gluten inside the check and checked for anti-bodies at certain intervals. Within a few minutes, celiacs were already producing antibodies in response to the gluten. I could totally believe the body would have a reaction to gluten in a way you could detect.

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I occurred to me after I posted that maybe it has something to do with saliva enzymes breaking down the food, so I looked it up.

Apparently researchers at Boston University and Harvard might be one step ahead of me? They've found some enzymes in saliva that seem to break down gluten as you chew.

Could what I'm experiencing be the lack of an enzyme to break down a major component in the food, i.e. gluten? Maybe that would create the sensation that the food is just "sitting there" in my mouth-- it's not being broken down by my saliva.

It's crazy to think about, but it's definitely the coolest explanation I've encountered :)

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I have noticed the funny taste too. I can also smell it too though. There is a distinct smell I smell when my son has just eaten something with gluten in it. I also tasted it this weekend when I was eating something that was supposedly gluten-free that I don't think was. I think it had gluten cau I'm sicker than a dog right now and an emotional wreck (all my symptoms from beforenI went gluten-free). I suppose I sound looney that I can smell and taste it. Lol

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