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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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So, a few weeks ago I had a major reaction, and I posted hoping you guys could help me sort it out...

I figured it out.

I had been eating fruit snacks with my son, and I had read the box and everything seemed fine...

Until I went a bought a case of them at the case sale at the commissary!

Motts by Brachs fruit snacks: Processed on equipment that may have trace amounts of wheat .

You've got to be kidding me.

Now I have a case of 56... why would the little box not say that?!

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check and see if the individual ones are marked "not for retail sale"

if not complain to the company.

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Sometimes, the companies do not put it down out of fear of not making a sale. I live near a health food and organic store. They have sells personnel come into their store telling them a certain food is gluten free verbally but, it is not written on the label. The company is just trying to make sells and not above using deceptive sales practises to do their job. Rule of thumb here, if it does not say gluten free on the label, I will not even look at it anymore. Then, I read the labels and find out what is in it. When, you have Celiac Disease it is with you for life. Be very careful what you put into your bodies. I am laying here in my hospital bed today because, I found out about my Celiac Disease and Hypoglycemia much too late in life. Yes, the hospital bed is in my personal home but, it is still a hospital bed all the same.

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I don't know why companies do that either and I find it really annoying. I've read a label for Reese's peanut butter cups and it didn't have a warning but when I read a package for the mini reese's peanut butter cups there was a warning that it could contain wheat. So now I don't eat any Reese's.

Maybe they don't have enough space on smaller packages...

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I don't know why companies do that either and I find it really annoying. I've read a label for Reese's peanut butter cups and it didn't have a warning but when I read a package for the mini reese's peanut butter cups there was a warning that it could contain wheat. So now I don't eat any Reese's.

Maybe they don't have enough space on smaller packages...

I have seen info on here that different size Reeses are made on different machines, perhaps even different factories. So the warning might make sense for one size but not the other. Either way, it doesn't hurt you not to eat them. :)

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Sometimes, the companies do not put it down out of fear of not making a sale. I live near a health food and organic store. They have sells personnel come into their store telling them a certain food is gluten free verbally but, it is not written on the label. The company is just trying to make sells and not above using deceptive sales practises to do their job. Rule of thumb here, if it does not say gluten free on the label, I will not even look at it anymore. Then, I read the labels and find out what is in it. When, you have Celiac Disease it is with you for life. Be very careful what you put into your bodies. I am laying here in my hospital bed today because, I found out about my Celiac Disease and Hypoglycemia much too late in life. Yes, the hospital bed is in my personal home but, it is still a hospital bed all the same.

I don't understand the part about it having to say gluten free. I haven't found any rice, fresh fruit or veggies or meat, etc that say gluten free. The things that say gluten free are usually the packaged, processed stuff. If you are that sick you should think of eating some things that don't say gluten free like potatoes, rice, apples, etc. Whole natural type foods.

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I have seen info on here that different size Reeses are made on different machines, perhaps even different factories. So the warning might make sense for one size but not the other. Either way, it doesn't hurt you not to eat them. :)

Huh, I never knew that but I'm horribly addicted to chocolate so any excuse not to eat it is good, lol. If I feel like eating one I'll e-mail the company to be sure though. I don't want to get glutened...

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I personally am very sick with celiac Disease and Hyperinsulinism Hypoglycemia. But, my sons are still very young compared to me when, I was diagnosed. They can still eat things like that. For instance, Annie's cheese and macaroni comes in a packaged box. There is a package of cheese sause in the box. The box says clearly stamped on it gluten free. So, the food can still be packaged and, it can still be healthy to eat. It is made of rice flour and other safe ingredients. Some sausages you can buy at the supermarket are clearly marked gluten free on the package as well. Some yellow cake mixes sold at the grocery stores are also marked gluten free. There is too many articles out there that are gluten free and say so on the label. Why shouldn't people eat them?

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I personally am very sick with celiac Disease and Hyperinsulinism Hypoglycemia. But, my sons are still very young compared to me when, I was diagnosed. They can still eat things like that. For instance, Annie's cheese and macaroni comes in a packaged box. There is a package of cheese sause in the box. The box says clearly stamped on it gluten free. So, the food can still be packaged and, it can still be healthy to eat. It is made of rice flour and other safe ingredients. Some sausages you can buy at the supermarket are clearly marked gluten free on the package as well. Some yellow cake mixes sold at the grocery stores are also marked gluten free. There is too many articles out there that are gluten free and say so on the label. Why shouldn't people eat them?

You should NOT eat only packaged items labeled gluten free because there is no current regulation of the term "gluten free". Those items may not have any gluten added but they can still contain small amounts of gluten. Even if a law were made that gluten-free labeled items have to be tested for gluten, the most sensisitve test detects 5 PPM. There is no way of knowing if it has 4 PPM of gluten. Some people react to less than 5 PPM gluten. Many "gluten free" labeled products make celiacs very sick. For some people when they eat a processed gluten-free food the first time they have no reaction, but eating it several times along with other packaged gluten-free items that could have very low levels of gluten has a culmulative effect. Eventually they will feel very sick and not be able to figure out where it is coming from. Plus those items that you mention have almost no nutritional value. Foods that are naturally gluten-free like fruits and veggies, plain rice, sweet potatoes, quinoa, beans etc. are much better for helping your body heal and can speed your recovery. Things like cake and gluten-free macaroni and cheese should be a once in a while treat, NOT a staple of your diet.

Fianlly, I don't know your age or your other health problems that keep you in a hospital bed currently, but you very likely could a recover enough to get out of that hospital bed someday. I was bedridden with pain from the gluten, slept most of the day, unable to read because my memory was so bad, unable to drive under dr's orders, had seizures and many, many other symptoms typical of severe malnutrition like my hair falling out. It took about 6 months for me to get my energy back to the point where I was able to do basic things again like cooking a meal or folding laundry. But my energy and my health has come back like a miracle on the gluten-free diet. I'm 1 year and 5 months gltuen free now and enjoying life. I still get very ill if i get any small amoutn of gluten and I'm battling other food allergies now and possible thyroid issuse, but I feel better than I ever have ibn my whole life. It may take longer for you but it will happen faster (in my opinion) if you eat mostly healthy foods that are gluten-free in their natural state.

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First off, I have a rebutal for you. According to my imediate relatives, I have had this condition all my life, ever since, I was baby. Since, we came from a dirt poor family and could go to the doctors. We had to deal with our illnesses and disease the best way we could. Back then, we did things by comon sense and trial and error method. That is what poor white and Native American People did to survive.

I was born with Hyperinsulinism Hypoglycemia and Celiac Disease as well. My mother was diagnosed before she died at the tender age of 82 years. To late for her, though.

I inherited the disease from her, plus she had a blood condition that doctors could not diagnose back then correctly. Now, days they call it Hyperinsulinism Hypoglycemia. Look it up on the web next time.

I must test my blood at least 6 times a day to check on my glucose levels and, still I get very low blood sugar counts that run down as low as 55 mg/dl at lease once a day or every other day. I have to weigh how much natural and refined sugars in eat piece of food I put into my mouth. I have to weigh how much vitamins and what kind of vitamins are in each foods I eat.

Celiac people have to watch out for gluten hidden in their foods at all times and, I understand this. Most people even with Celiac Disease have other health problems attached to their Celiac Disease. Very rarely does Celiac Disease and Hypoglycemia come along by themselves. Most of us have other health problem besides the Celiac Disease. Diabetes, Hypoglycemia, Food Allergies, Preservitives allergies, etc..... What your neighbor is able to tolerate with his Celiac Disease may not work for you at all. Keep that in mind. There is no one shoe fits-all here people.

Since, my three conditons have not been dealt with properly over these long years, I have other complications to deal with now that, you people do not know about or ever heard of. Please try and keep that in mind as well.

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