Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Help With Getting Info On Fructose Malabsoption/intolerance


gary'sgirl

Recommended Posts

gary'sgirl Explorer

Hi All,

I was wondering if anyone would be willing to help me with finding sources of good information about fructose malabsorption. My natural practitioner thinks that I may have this and I would like to request that my midwife order the hydrogen breath test, but she thinks that all my symptoms are just related to depression and not actual physical symptoms. So, I was hoping to be able to print out some legitimate research that I could bring in to her when I have my appointment on Wednesday.

I have been diagnosed with Celiac for about 20 months now and have tried eliminating all of the most common foods that other celiac sufferers tend to have a hard time with. I also have been on the SCD diet for 9 months and I have had very little - if any - improvement. I know that it's not from CC, because my house is completely gluten free and I call on all my products including toiletries to make sure they are gluten free.

Thanks in advance for any help!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Simona19 Collaborator

Hi All,

I was wondering if anyone would be willing to help me with finding sources of good information about fructose malabsorption. My natural practitioner thinks that I may have this and I would like to request that my midwife order the hydrogen breath test, but she thinks that all my symptoms are just related to depression and not actual physical symptoms. So, I was hoping to be able to print out some legitimate research that I could bring in to her when I have my appointment on Wednesday.

I have been diagnosed with Celiac for about 20 months now and have tried eliminating all of the most common foods that other celiac sufferers tend to have a hard time with. I also have been on the SCD diet for 9 months and I have had very little - if any - improvement. I know that it's not from CC, because my house is completely gluten free and I call on all my products including toiletries to make sure they are gluten free.

Thanks in advance for any help!

Hi!

I have fructose intolerance and I had fructose intolerance breathing test. It was positive for me. The technician tested two gases, not just one. She tested me for methanol too. I had only methanol readings high. The technician gave me to drink 1 cup some special liquid and checked my breath every 20 minutes. I asked her how she will know if I have it. She told me that normal people will have spike in readings only ones at the beginning and fructose intolerant will have twice- Second time after 2-3 hours. Which is the truth. I tried to eat apple and I will have bloating twice, second time ( after 2-3 hours) stronger then ever. Maybe you can try to do the same. Or eat pear, or watermelon. You can find out by yourself, if you have it. With fructose malnutrition you can have bloating, gas, even diarrhea which is similar to celiac disease. When I went gluten free I started to react very strongly to fructose. It is possible that you have it too.

I dont have any material about fructose malnutrition or intolerance. I found all information on internet.

Open Original Shared Link

and I found this: Open Original Shared Link which is scary. This is just for heriditery fructose malabsorption.

Link to comment
Share on other sites
Newtoitall Enthusiast

Open Original Shared Link (Helpfull Blog)

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link (Girl with FM's Blog)

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link ( some comments on High fructose corn syurp free candy)

Open Original Shared Link (Info on the rare hereditary version, if you by chance were curious)

Open Original Shared Link (really well laid out guide of good and bad foods for FM)

Open Original Shared Link (Facebook topic on FM lol)

Open Original Shared Link (Guide to FM and IBS and dealing with it)

Open Original Shared Link (Support grp that had a section on FM)

Open Original Shared Link (pretty detailed site of IBS relating to FM and diet)

ok I actually had more believe it or not,when I first started dealing with all of this I was just sensitive to EVERYthing so I assumed the worst lol

anywhoo I hope something here is what you need, and helps I know dealing with FM isn't easy, the diet sucks at first, sugar withdrawl is a BITCH xD

Link to comment
Share on other sites
gary'sgirl Explorer

Thanks you guys! I'll check out those links. :)

Link to comment
Share on other sites
Simona19 Collaborator

I found one more thing : Open Original Shared Link

Check the list on the right side.

Link to comment
Share on other sites
gf-soph Apprentice

Thanks you guys! I'll check out those links. :)

The single best thing is to join the 'fructose malabsoprtion australia' yahoo group. There you can get access to some recent research papers, including ones that involve scientific explanations of the process and research studies.

The best lists of fructose and fodmap content come from Monash University in Australia, as they are the ones actually testing food. Authors to look out for include Shepderd and Gibson. If there's conflicting info, always go with Monash and Shepherd first, as they are testing and publishing right now. Some of the other information on the net is old and incorrect.

Also, if you search fructose malabsorption here at celiac.com you will find posts from others looking in to the topic.

Link to comment
Share on other sites
Kim69 Apprentice

Yes, look at shepherd works - I happen to live near sues practice in Melbourne Australia. I got dietary advice from her dietitians when I was diagnosed Coeliac and then later with fructose malabsorption and lactose intolerance. Sue was diagnosed with celiac disease when she was studying her masters degree in Dietics.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,193
    • Most Online (within 30 mins)
      7,748

    Kmd2024
    Newest Member
    Kmd2024
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      This might be helpful - from Coeliac UK.   https://www.coeliac.org.uk/information-and-support/coeliac-disease/getting-diagnosed/blood-tests-and-biospy/#:~:text=Usually%2C a biopsy of the,more about diagnosis of children.
    • Scott Adams
      Yes, wheat is common in most soy sauces now because it speeds up the fermenting process.
    • JoeBlow
      For 16 years I have relied on the website glutenfreedrugs.com to determine if a pharmaceutical is gluten-free. The website has been down for at least a week. Does anyone have any information about this outage, the status of the website founder and maintainer pharmacist Steven A. Plogsted or a phone number? I did not get a response for my email to glutenfreedrugs@gmail.com in October of 2022. Steven did respond to my emails in 2012. Thanks.
    • Beverage
      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
    • Beverage
      Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. 
×
×
  • Create New...