• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ive Lost Everything
0

13 posts in this topic

I knew it was coming as my health has really deteriorated my girlfriend has decided to leave me after 5 years. she sed I look like death, skin and bones im now 9stone 126 pounds i used to be 168 pounds ive become disconnected from the world my brain fog has become really bad i have horrible mood swings and im really irritabile and never relaxed.

I am starting to lose the one thing that has got me this far in life HOPE :( my doctor doesnt listen to me anymore he is very dismissive and he thinks im just depressed.

I will never give up on finding out what has made me this ill i have hit rock bottom and i have nothing to losei have been ill from a very young age i was blessed with good health I was blessed with trying to find it :)

I am strictly gluten free, I also have reactions to dairy, tree nuts, soy, sugar, eggs corn wheat.

Does anyone else have nuero symptoms like me and has anyone been tested for mercury poisoning as i have 4 huge dental analgams since childhood i think this is my next step?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Have you seen a rheumatologist? How about an MD/ND? Keep trying. Find a new doctor and create a new door to walk through.

0

Share this post


Link to post
Share on other sites

I had all the same symptoms you list and dozens more. I truly hear your pain in your words.

Do NOT despair. Your continuing symptoms, given the fact that you are gluten free since last August, suggest possible nutritional deficiencies. Are you sure you're not still ingesting gluten somehow?

You may be severely anemic. B-12, folate and iron deficiencies are quite common in celiacs and I suggest having those tested immediately. They are often the cause for mood swings and depression and insomnia. Also, low vitamin D levels will leave someone depressed and feeling "foggy".

If your doctor will not listen, you need to find a new one and fast! It took me 3 years to get a proper diagnosis. Your symptoms need to be taken seriously, hon.

Do not give up hope!!

0

Share this post


Link to post
Share on other sites

I found out why i was losing weight so rapidly and its because i didn't have enough protein and my iron levels were rock bottom. I agree with everyone else definatly get a new doctor, you need to be taken seriously. I went through 5 doctors before i found mine and she got me diagnoses within 2 weeks and found my iron levels were really low and everything else. But with the new diet my protein isn't enough and that causes my low moods, dizziness, and most of all foggyness which i think can be seen as depression when actually i was just not feeling with it at all! There is always hope, it may seem like a long road but you will get there :)

0

Share this post


Link to post
Share on other sites

I had all the same symptoms you list and dozens more. I truly hear your pain in your words.

Do NOT despair. Your continuing symptoms, given the fact that you are gluten free since last August, suggest possible nutritional deficiencies. Are you sure you're not still ingesting gluten somehow?

You may be severely anemic. B-12, folate and iron deficiencies are quite common in celiacs and I suggest having those tested immediately. They are often the cause for mood swings and depression and insomnia. Also, low vitamin D levels will leave someone depressed and feeling "foggy".

If your doctor will not listen, you need to find a new one and fast! It took me 3 years to get a proper diagnosis. Your symptoms need to be taken seriously, hon.

Do not give up hope!!

Thank you so much for the useful information! I admire your resiliance and determination and my heart goes out to you in finding the cause of this debilitating problem :( I have so many dreams of living healthy and enjoying life and it is upseting that i divert all my energy into overcoming my health problems! I have been supplementing calcium vitamin b complex magnesium vitamin D im weary of them as they contain maltodextrin or dextrose at the moment im not supplementing Iron which i will start doing from tomorrow and im going to do a full clear out of my kitchen knifes, forks pans are all getting replaced! Have you not considered heavy metal poisoning for your problems? all my research is leading to Stress, Candida Leaky Gut or heavy metal poisoning all of which im going to addressing one by one until ive found what is causing my body so much distress!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Thank you so much for the useful information! I admire your resiliance and determination and my heart goes out to you in finding the cause of this debilitating problem :( I have so many dreams of living healthy and enjoying life and it is upseting that i divert all my energy into overcoming my health problems! I have been supplementing calcium vitamin b complex magnesium vitamin D im weary of them as they contain maltodextrin or dextrose at the moment im not supplementing Iron which i will start doing from tomorrow and im going to do a full clear out of my kitchen knifes, forks pans are all getting replaced! Have you not considered heavy metal poisoning for your problems? all my research is leading to Stress, Candida Leaky Gut or heavy metal poisoning all of which im going to addressing one by one until ive found what is causing my body so much distress!

Oh boy, you sound like me...determined to figure it out...and that is a good thing, except it creates more stress and you do not need that. A few words of advice (I learned the hard way)

(1) DON'T start taking iron unless you need it. You need to know IF you are deficient first. Anemia is caused by a B-12 deficiency, a folate def. OR iron def. You need to know what you are dealing with. Plus, dosing with iron will cause constipation---that is the LAST thing you need! :(

(2) Maltodextrin and dextrose are gluten free. At least in this country they are.

The label on any good vitamin should clearly indicate "wheat AND gluten" free.

Check the vitamins. If you are not sure of the ingredients, look at the list of foods that are gluten free before tossing them out.

here is a link:

http://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

(3)There's no need to replace your forks or knives.

Pots and pans that are scratched are of concern--anything with pits, cuts, grooves. Also, wooden cutting boards, wooden utensils, any strainers or colanders and toasters should be replaced.

(4)Please hear me out. I spent thousands of dollars on supplements and 3 years researching all this--leaky gut, candida, heavy metals, blah blah blah..and nothing helped until I stopped the gluten attack.

Start with the basics before you worry about teeth amalgams.

Is every single thing you eat absolutely gluten free?

(5)Consider taking probiotics. They work wonders in "leaky guts" and balance the gut flora, crowd out yeast and reduce inflammation in the gut. I am not kidding...they have helped me immensely!

read this please:

http://www.thefooddoc.com/probiotic_facts

(6). Are you getting enough protein? This is ESSENTIAL.

(7) If you are having digestive issues still, digestive enzymes might help.

(8) as difficult as it is, try to stop stressing. You are right...stress depletes the adrenals and the body.

Once I started the probiotics and the digestive enzymes, and addressed the vitamin deficiencies, I started to heal and the fog has lifted and I gained some weight and things are going in the right direction.

1

Share this post


Link to post
Share on other sites

I wouldn't worry about your fillings yet.

Consider B-12 and other supplements in a sublingual form (under the tongue)

Get some sun if at all possible

Look into the Paleo diet.

What kinds of things have you been eating?

2

Share this post


Link to post
Share on other sites

I have fasted for 2 days and my brain fog has 80% gone! what does this mean?

I normally eat lamb turky, sweet ,spinach, brocolli, carrots, garlic, sprouts

I have large meals and I eat really fast finish a large meal in 10 mins I cant slow down, its a bad habit ive had since childhood. I wonder if thats my problem! I have eaten lamb and spinich today and my brain fog is back!

im in a bad way these days im watching my life waste away im really skinny I cant look at myself in the mirror I have tests lined hair mineral analysis, parasite screening and bacteria balance in the gut. I used to be a sporty active person who got top grades in school and now im just a weak 23 year old with a low exercise intolerance and even remember my telephone number which ive had for years due to this brain fog. :(

0

Share this post


Link to post
Share on other sites

Spinach is a food that is high in salicylates, and many celiacs have problems with salicylates which are found in lots of vegetables and fruits and in other foods.

I have posted a link below to foods that contain salicylates. You might try avoiding them and see if you notice an improvement. Just a thought because I have a sister who has problems with them (and this includes aspirin which is salicylalic acide) :o

http://salicylatesensitivity.com/about/food-guide/

Salicylate Sensitivity

Food Guide

Welcome to the Salicylate Food Guide. This list has been composed out of many lists from a variety of sources and I hope that it will be a complete and helpful guide to you. However, you will notice that some foods are not on the list. If there is something missing from the list it is because it has not been tested for salicylates or there was not enough complete evidence suggesting which category it should go under. I recommend that you avoid items that are not on the list as they may contain salicylate, especially during the elimination diet. After doing the elimination diet you can try out foods not on the list to see if they cause a reaction for you, but I would recommend doing this with caution and under the supervision of a doctor/specialist as anaphylactic shock can occur from introducing too many salicylates into your system at once.

I hope this Food Guide is helpful to you. If you find yourself overwhelmed by how many things contain salicylates and how few things there are that have negligible/low amounts of salicylates check out our Recipe Page for helpful recipes made only from things in the negligible and low......

0

Share this post


Link to post
Share on other sites

I think that the SA idea is worth investigating but I also think fasting is not necessarily wise for you right now, Jay!

I know you told me you did the testing, but I also wonder if you are just having trouble DIGESTING fats. Lamb is not usually a problem food, but it may be too much for you right now. HYDRATE--lots of water. You may be dehydrated--that causes brain fog too.

Try simple, plain food. Rice. Boiled chicken. You need to eat.

Hang in there, kiddo. When did the doctor say she would get back to you with the results?

2

Share this post


Link to post
Share on other sites

Don't give up bud, hold on to HOPE as tight as you can. I am only 24 years old myself and in the exact same situation. I know all too well how depressing it can be, but it DOES get better, and like many of the great people on these boards have told me - celebrate the small victories, don't dwell on the losses! This community is a wonderful support group and chock full of amazing knowledge. I know I can't make it alone, nor do I expect you to, so continue to reach out and there will be a helping hand to guide you!

There are many things that should be looked into like vitamin levels, candida overgrowth, leaky gut, all that jazz, but I think what's most important is exactly what Irish Heart said - take that advice to heart. The best thing I can recommend to you right now is what I'm currently doing for myself, finding other food intolerances with a rotation diet. There are a couple really great books out there that can help with this process like the one I'm currently reading "The Ultimate Food Allergy Cookbook and Survival Guide" by Nicolette M. Dumke. If you have a local library try to pick it up, it gives great recipes, facts, and advice on how to overcome hidden food allergies and intolerances. Gluten might not be your only problem as it most certainly isn't the only culprit in anyone who's just starting to heal.

My thoughts are with ya, hang in there!

0

Share this post


Link to post
Share on other sites

I seem to react to pesticides. I need to get my produce from select sources. Meat I get in big cuts wrapped at the food processors. The store can't guarantee absolutely gluten free if it is cut there because they do various breaded meats too. It sounds like you are already eating a whole foods diet (produce and meat) which is what I'd recommend. Are you using spices? Some super sensitive celiacs like me have problems with processed spices. I grow my own. I hope you get this figured out soon.

0

Share this post


Link to post
Share on other sites

I knew it was coming as my health has really deteriorated my girlfriend has decided to leave me after 5 years. she sed I look like death, skin and bones im now 9stone 126 pounds i used to be 168 pounds ive become disconnected from the world my brain fog has become really bad i have horrible mood swings and im really irritabile and never relaxed.

I am starting to lose the one thing that has got me this far in life HOPE :( my doctor doesnt listen to me anymore he is very dismissive and he thinks im just depressed.

I will never give up on finding out what has made me this ill i have hit rock bottom and i have nothing to losei have been ill from a very young age i was blessed with good health I was blessed with trying to find it :)

I am strictly gluten free, I also have reactions to dairy, tree nuts, soy, sugar, eggs corn wheat.

Does anyone else have nuero symptoms like me and has anyone been tested for mercury poisoning as i have 4 huge dental analgams since childhood i think this is my next step?

Jay, have you been tested for Lyme disease? You remind me of a guy who came to our GiG meeting last year. He finally got diagnosed with Lyme disease as well as celiac disease and is finally starting to heal up. Lyme disease can present the same way that celiac disease does. If you compare the list of most common 75 symptoms of celiac disease and Lyme, it is pretty much the same list. There is a thread on the forums here about Lyme. If you do get a test, make sure it uses the Western Blot. If your Dr. won't test you at this point, you need to find a Dr. who will.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,794
    • Total Posts
      932,487
  • Member Statistics

    • Total Members
      64,281
    • Most Online
      3,093

    Newest Member
    Michaeldp
    Joined
  • Popular Now

  • Topics

  • Posts

    • Sounds like gluten ataxia, or the form of celiac I have where it also attacks my nervous system and brain. I would get a celiac test if I was you, you have to be eating at least half a slice of bread or a few crackers for 12 weeks before hand and go to your doctor and ask for a full celiac panel. From there you need to be eating it for still and get a endoscope with biopsies to check for intestinal damage. Now to help with the mental issues I will tell your right now a good b-vitamin supplement will help you with the fog and depression a bit. I suggest Liquid Health Stress & Energy and the Neurological support one. Take 1 tbsp each 3 times a day. You will notice a huge difference in it. Being liquid it is easier absorbed by your body, if you have celaic then your intestines will also be damaged making where getting these nutrients is more difficult for you body. NOW as to the cheesy bread I hear you on that. I love eating Juilans bakery toasted read with dayia cheese on it.... I was using hte provolone for awhile but am now using the almond bread with daiya dairy free swiss. Love a good cheesy toast and egg white open sandwich with some avocado myself. I also posted a recipe in the baking section where you melt the daiya dairy free cheese shreds and mix them in with the flour blend I use that is gluten-free and make cheesy bread rolls out of them. I have a garlic and cheddar one.....you name just inspired the idea of using a bit of turkey bacon in the cheddar biscuit version.....would be epic
    • Hi,   my history is the following: I used to eat a lot of foods with gluten & cheese together. They would make me seriously happy and and I was extremely content just eating a pizza and bread with cheese and things like this... Now obviously I'd have cycles... where I eat tons of gluten/cheese foods in combination... feel super content and thats it... Then the effects would wear off and I had to start a diet.. where I'd do modified versions of fasting or so for a few weeks... During that phase I'd get very depressed... but after a few weeks of no-gluten... I'd eat bread with cheese again and I felt like I was in heaven. I'd get extremely high from this stuff... like seriously I'd feel amazing... (I guess it's the morphine like effects of this foods)  but after some when I hit age 22 or so I started to get serious trouble... ....   I started getting serious neurological issues from it... like I could't put my words together... I'd have paranoia & feel like everything is unreal... I've been diagnosed with numerus psychiatric issues since then... My main problem right now is that my brain isn't functioning... I can't comprehend what people are saying and when I want to say something my words don't come easily... Like if I am in a conversation for a longer time this issues is barely noticable at all... But if I wake up... and I try to talk... there's no way.. if I haven't talked for a while it's like you could ask me and I couldn't comprehend what you say and couldn't put my words together in the way I'd like to... I feel kinda stupid sometimes... because I know I'm rather smart but when I have a conversation my speech seems very unsophisticated... --- I tried to change my diet.. with varying success... like I would feel great in the morning and feel completely depressed in the evening for no apparent reason whatsoever... at all! And I feel I can attribute this to traces of gluten which feels like this:   ---- When I have traces of gluten inadvertently... I suddenly feel like everything is kind of unreal around me... I feel depressed in a "opiate withdrawal" kind of way... I don't know how to explain it... it's just painful in the sense that I can't just enjoy having a conversation... like I have a conversation but I don't feel "the thrill"... everything is totally bland and I just feel depressed in the background... like I don't want to do anything and no matter what I do.. it feels completely pointless because I can't comprehend why I suddenly feel this way...    And it's not like I feel this way 24/7... that's the thing... it comes and goes and comes and goes... sometimes I feel completely fine in the morning or even for 2 days or so.... and then I feel completely like s$#& and devoid off all satisfaction for 3 days where I feel I'm going completely crazy & I can't talk.. can't comprehend... feel super weird when talking to people... and then the next days I just feel suddenly "normal"... like this relaxed and easy-going feeling in your body and wanting to be social and to communicate and just have fun... but then... when I eat some food and I feel it has gluten.. it hits me in a subtle way... where I suddenly loose all joy in life for days... and then it just dissapears... I've been struggling with this for years now and I can't seem to comprehend or get on top of this issue... Do some of you guys have similar experiences?        
    • Having experienced autoimmune hives (not sure if celiac-related) daily for the last four months (now controlled by a cocktail of antihistamines, thankfully), I would be super diligent about my gluten-free diet if I had DH.  What do I mean?  Like Squirmingitch indicated -- no eating if you did not prepare it..  The itching can drive you crazy.  In my case, I never knew that you can get hives on the soles of your feet.   I hope you feel better soon.  
    • A celiac diagnosis is hard to absorb even for adults.  She is old enough to understand and she now knows that she is different (that's so hard when you just want to be like everyone else).  There is a grieving period that is normal.   Be patient.  If things do not improve, get her some help.  It might be better to hear it from another trusted adult than from Mom.  You are doing everything right.  I know you are loving her and being supportive.  Stay strong and do take some time for yourself, even if it is heading to the bookstore for a hour or so or taking a walk.   Within a few months, there should be some improvement.  Be sure she gets a follow-up test three months after her diagnosis and then another three months later.  Learn more: http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/ Hugs!  
    • Can you get her to drink Ensure high protein? I mix the vanilla one with my favorite chocolate drink so it tastes the way I like. What foods does she currently eat?  
  • Upcoming Events