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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Karl Otto

Has Any Of The Older Member ?

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Has any of the older members compared their younger photos of themselves with their current photo? The reason, I bring this up is to compare your original self with your current self.

Yesterday, with the help of my digital files, I collected my older photos in time sequences. When, I was 17, 18, 19, 20, 21, 22, etc... I have noticed how thin, I was back in those days. In some of the years, I was shocked at what I looked like back then. When, I was 22 years old, I was in the US Army on active duty. I was doing exercise each day and doing some weight lifting. I was eating right according to the US Army. I felt sick after every meal back then but, I got tired of the military clinical doctors telling me, I was ok. I was very thin, small chest, no muscle tone on my body, and very under weight all the time. 5 feet, 11 inches tall but, only weighed 125 lbs soaken wet. Now, here I am, 57 years old with a waist size of 31 - 32 and only weighing in at 124 lbs again. I am the same condition as I was back then, again. My picture at the age of 27 and 28 year old showed that my hair was almoste completely grey by the age of 28. To me the signs and symptoms have always been there but, again, no doctor had ever thought to give me a blood tests to find out what was going on over all these years. Doctors gave me, anxiety med, seizure med, heart meds, Kidney med, vitamins, but, none every though of give me a battery of blood tests. I just do not understand it ! Then, the doctors at the emergency room on my 50th birthday decided to give me a battery of blood tests. To determine, I had Celiac Disease and Hyperinsulinism Hypoglycemia. I do not know if I am going to be 60 year old or not. Too much damage has been done by this time in my life. I appriciated the diagnoses of Celiac Disease and Hyperinsulinism Hypoglycemia but, why does it take so long to find this out? I would never have passed this along to my children had I know this information at the age of 18. I would never have thought about having any children at all. I would not have wanted to pass these diseases on to innocent little children.

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I was overweight until I started getting regular exercise the last year in college. Then I've varied here and there, but not more than +/- 10 pounds. (Though t took a few months to get back to that after the baby.)

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Karl you can't fixate on the past and the what may have beens. You need to focus on going forward. There is no reason why if you follow the diet you can not return to a reasonably healthy condition and live to 60 or well beyond.

There are quite of few of us who were as sick or even more sick than you and have returned to health. Eat whole fresh foods, exercise at levels that you can even if it is only walking to the corner and back to start or lifting a 1 lb can 4 or 5 times. If you convince yourself that you will never recover then you won't. Let go of the past all it is doing is hurting you.

I hope you don't tell your children that 'if I knew I wouldn't have had kids' because that could hurt them deeply. Everyone has value no matter how differently abled they are.

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I agree with you. We shouldn't be looking back to the past. But, in my case the past is repeating itself. There it is relavent to this situation. I also agree that the Celiac Disease part of my life has done and is doing better. However, the Hyperinsulinism Hypglycenia is not doing well. The second disease can kill me before, I reach the age of 60 years old. Notice the list on my signature ?

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I do understand why you are wanting to get some context by looking back. If I could suggest that you check out something that might be helpful I would say go look up Robb Wolf's Paleo site. They are doing some incredible things with blood sugar derangement issues. From where I was nearly four years ago to now, I would try to be encouraging to you. I was ready to be done back then. I have never felt better now. I am currently taking a break from having worked in the shop all day doing prep work to weld a prototype together. Four years ago all I could do was sit in a chair staring at the ceiling most days and could barely walk. I am very strict paleo and very low, low carb with lots of good fats. Things have been healing on me that doctors told me were irreversible. You, like all of us once properly diagnosed, are in glorious days of grace. I know it's a battle, especially when you look back and think what could have been if you had only known. I understand that completely. It takes time to heal body, mind and spirit. Be patiently impatient in these new found days of grace.

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I have almost forgot for, the last 5 years, I have not been able to tolerate fats. When ever, I try to boil chicken meat, breast, thighs, or drump sticks. The fat boil out of the meat but, I get really nausea if, I eat the meat. I found that whether the meat is pork, chicken, or beef. It oils or fats come out of it or, it is greasey, these fats and oils make me really sick.

Also, if any spices are used in preparing my food other than Iodine Salt, I also get really sick within minutes. My stomach becomes upset and burns. If I eat only bland foods, I have absolutely no problems at all. If I stay away from all oils and fats I am just fine. The only oil, my body wants or tolerates is Olive Oil only !

Any ideals what causes this?

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Have you had your gall bladder function checked out?

I have a working theory on the whole gut flora damage thing going on in my head but am no researcher. I happen to think that disruption of a healthy gut flora may be a cause of many problems ultimately. Don't know where this fits for you. I know I wasn't digesting fats early on and had a problem with what now seems to be SIBO and yeast overgrowth. I had years of antibiotic overuse way back when and although I was able to live with it while not feeling great, it was a dose of antibiotics that really put me in a complete health tailspin back in 2004. I keep mentioning this to whoever I respond to but Elaine Gottschall's book "Breaking the vicious cycle" is a real eye opener and has helpful explanations of why you need to limit carbs while healing. I did some extraordinary things with some raw foods in order to get my gut flora healthier. It is hard to explain exactly what I did but all I know is that I have never felt this good and I am fifty. This was after a lifetime of always being the sick skinny little kid. Keep digging for the answers.

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I used to have a yeast like infection on the entire length of my tongue. I do not know how it got there since, I did not do anything nasty with it. I took some anti-biotics that the doctor gave me. It went away but, the antibiotics did make me so sick, I had to go to the emergecy room after 4 days of taking them. Today, 5/27/2011 I went into a Hypoglycemic state. My glucose levels dropped all the way down to 63 mg/dl. I was having all sorts of problems at that point. Celiac Disease was the furtherest from my mind at that moment.

However, I can and do tolerate Extra Virgin Olive Oil just fine. I put it on top of my food with every meal. 1 Table spoon full. So, it is not all oils that bother me. At lease, I can eat olive oil without problems.

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Sorry you had a hypo incident today although 63 is not dangerously low it may have been low enough to make you feel a bit off. Have you spoken with a dietian to help get a handle on the ups and lows? You should be able to get a referral from your doctor. I do know that with hypoglycemia you need to eat both carbs and protein frequently to keep things in balance. If you use insulin or other diabetic meds do ask for guidance as when and how to eat needs to be well regulated.

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I used to have a yeast like infection on the entire length of my tongue. I do not know how it got there since, I did not do anything nasty with it. I took some anti-biotics that the doctor gave me. It went away but, the antibiotics did make me so sick, I had to go to the emergecy room after 4 days of taking them. Today, 5/27/2011 I went into a Hypoglycemic state. My glucose levels dropped all the way down to 63 mg/dl. I was having all sorts of problems at that point. Celiac Disease was the furtherest from my mind at that moment.

However, I can and do tolerate Extra Virgin Olive Oil just fine. I put it on top of my food with every meal. 1 Table spoon full. So, it is not all oils that bother me. At lease, I can eat olive oil without problems.

Yeast infections can be secondary to antibiotic use and are not limited to females. Much more common that I think most realize. Of course, this plays right into my theory of antibiotic overuse and its impact on the function of the gut flora. It's a potential origin for the breakdown of the function that may lead to many other complications. Hope you get to feeling better.

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I used to have a yeast like infection on the entire length of my tongue. I do not know how it got there since, I did not do anything nasty with it.

That is offensive. Please refrain.

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I sure hope we live past 60. I am 60 now, diagnosed at 59 and health is returning slowly but steadily. I will admit that I was so darn sick that I was scared I wouldn't make it to 60 so I stayed up till 12:01 on my b'day just to be sure! :rolleyes: I now feel so good that I intend to pack on quite a few more years doing what I love - hiking, camping & kayaking! Life is good. :)

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If we didn't I sure would be six feet under. :rolleyes:

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If we didn't I sure would be six feet under. :rolleyes:

lol. Cheers mushroom! Here's to old age. :D

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lol. Cheers mushroom! Here's to old age. :D

I didn't say anything about OLD!!! :P

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I'n 53, just newly diagnosed, with two terrific daughters. Being diagnosed earlier would not have affected my plan to have children. It would just have made me fight to have them tested when they were younger. One of my daughters was diagnosed just over two years ago following an admission into the intesive care ward as she was so bad. Two and a half years of strict gluten free (not only food but toiletries, make up etc) and she is a healthy vibrant young woman trying to start her own family. My other daughter has just been tested and we're waiting on results.

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I didn't say anything about OLD!!! :P

LOL !! :lol:

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