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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Another B12 Question
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8 posts in this topic

My husband is B12 deficient and has been getting injections of B12 for about 5 years. His B12 numbers are still quite low. He was tested for celiac (blood test) and the result was negative.

If the B12 is being injected, then it's not going through the intestine - right? Or does it? Could this still be possibly celiac? What else could cause low B12? (He refuses to stop eating gluten until he gets a positive celiac test.)

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How often does he get the injections? The current guideline is once a month, but for a lot of people (including me,) it sometimes takes twice a month. Also, did he get the first several in very close succession when he started getting the injections?

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How often does he get the injections? The current guideline is once a month, but for a lot of people (including me,) it sometimes takes twice a month. Also, did he get the first several in very close succession when he started getting the injections?

He gets them once a month and when he first started, they were closer together. He was very sick/weak/tingly all over by the time we found out about the low B12.

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He should get his injections really close together until his numbers get back to where they need to be, then get them twice a month or so. If you are getting the shots, you are completely bypassing the digestive system, which means that his low levels are from too few injections. Have they ever tested to see if it is truly pernicious anemia?

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We've never been given any explanation for why his B12 is low. His plan is to stop getting the shots altogether to "see what happens". I don't like this plan. He's going to get sick again! I am going to read about pernicious anemia.

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Does he drink any alcohol in any form? If you are having a B12 deficiency issue, alcohol is one of the worst things you can drink. Even a small amount of alcohol can cause your body to consume your B12 reserves overnight as it is used during the metabolism/conversion of the alcohol.

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Does he drink any alcohol in any form? If you are having a B12 deficiency issue, alcohol is one of the worst things you can drink. Even a small amount of alcohol can cause your body to consume your B12 reserves overnight as it is used during the metabolism/conversion of the alcohol.

Certain antibiotics and medications do crazy things to your b12 stores as well. Does he take any medications daily?

I would let your husband know that unless he is a vegan or an alcoholic, he has a health problem that is causing the deficiency and should continue to get the shots. Nerve damage, vertigo and peeing yourself is no fun. If he wants to know what is causing the problem, go to a doctor who is willing to test for pernicious anemia and/or celiac disease.

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Certain antibiotics and medications do crazy things to your b12 stores as well. Does he take any medications daily?

Really good point +1 :) Statin's (cholesterol meds) are some of the worst too! And anti-biotics kill off good and bad bacterials which means the good ones that produce/extract vitamins from carbs.

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