• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Questions About Starting Workouts Again
0

86 posts in this topic

Hi all,

I was just diagnosed last week (high tTG and positive endoscopy) and I'm very much trying to figure out the "recovery" aspect of Celiac. I feel like I'm getting a handle on the diet (I've been gluten-free for 5 weeks now, doing a whole foods approach), but am a bit lost at the gym. My primary symptoms were, strangely, a chronic fever and cough (stretching back over 10 years), along with muscle stiffness and joint pain. Up until the last 18 months or so, I was able to lift weights and continue cardio (running, walking, and elliptical) fairly well, allowing for periods off when the fever was really strong. But the last year has been very rough, the fever and the fatigue just knocked me off my feet and I pretty much had to stop going to the gym about 6 months ago.

I no longer have the fever or cough, but the fatigue is ongoing and the muscle stiffness is intermittant (as are the GI symptoms). However, I really want to get back to the gym as I've lost 15 pounds (normally I'd be delighted, but I'm sure some of that was muscle). My doctor has encouraged me to "do as much as I feel comfortable with", but "not too much too soon or I'll hold up my recovery." So, I'm trying to figure out what that means. I thought your experience would be helpful. My questions:

1. When you were starting back to the gym, did you take more rest days and do longer/more intense (relatively speaking) workouts on the days you worked out? or do shorter, less intense workouts everyday?

2. Was it better for you to do cardio and weights on the same day or to alternate them to give your body a break? How many days did you start with?

3. What signs did you watch for that let you know that you were overdoing it?

4. Any thing else that you had to alter in your routine?

5. How long did it take you to feel like you were making fitness gains?

Thank you in advance for your help!

Greenling

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I'll be watching this thread with interest. I get severe joint pain along with neuropathy and muscle fatigue, I was thinking of starting working out again but I've had it all flare up again over the last week or so and don't want to push myself into ever decreasing cycles of fatigue and work.

One thing I will say though ( and I'm sure as a long term gym goer you already know this ) rest is vital even when you're fit. I'd imagine with a digestive system that isn't functioning properly, it has to be even more important now as you struggle to absorb the nutrients you need. It's very possible to make great gains without working yourself overly hard, so I would advocate working smart rather than hard.

My partner, who has dairy problems, has recently started accepting that she's not getting any younger and needs to be smart if she wants to keep running. She reduced her daily runs and really focusses each run on something specific she wants to achieve. The gains she has made have been astonishing. From being injury prone and fatigued, she's gone to being extremely energetic, lean and fast. In fact you can see on the weekends when she takes a rest instead of doing her normal long run, she drops in fat percentage and puts on muscle as her body takes the chance to rebuild itself.

Anyway in short, I would imagine that you will ( and I will too ) have to be patient and smart from now on, when it comes to fitness.

0

Share this post


Link to post
Share on other sites

Thanks, NoodleUnit, for your reply. I understand exactly what you mean about things flaring up again. I just had that happen in the last ten days, so I worry I'm overdoing it (but I don't seem to be doing that much). I know that rest is important (and I sleep long and well at night), but I'd be very interested in hearing more details about what your partner did with rest to improve her running. When you say she reduced her daily runs, did she shorten them or do fewer per week or both? What kinds of things does she focus on for each run (I'm assuming speed or distance) when she does workout? I'm guessing we're close to the same age (I'm 41, so I'm not getting any younger either).

It sounds like you have a really good mindset about patience and exercise--I'm working on that. ;) I'll remind myself to "exercise smartly", that's good advice.

Greenling

0

Share this post


Link to post
Share on other sites

Hi Greenling

She reduced the number of runs she does per week from 5 to 3 and introduced the odd rest weekend where she does nothing ( about once a month ). In place of one of the missing runs she does a weights workout, but I think that's more to make her feel less lazy than actually to have any real effect ;). She does two shortish runs through the week ( 5 miles or so ) and then goes out for two hours or so on a Sunday - currently that 2 hour run is allowing her to cover 14.5 miles. Before she cut down on the runs, her pace was stuck at about 10 minutes per mile over a 2 hour run, she was constantly fatigued and frequently injured. It took a lot of persuading to get her to try cutting down on the number of runs but within two weeks of cutting down she was down in the 9 minute mile range and it;s kept on dropping. At the moment she's just focussing on distance really, although I guess her short runs are more focussed on speed.

I'd add that we have a fat percentage monitor on our scales and you can see on rest weekends that she drops fat but gains weight, meaning that she gains muscle. This happens every single time. she also gets a demonstrable speed boost the following week.

I have to say I'm both proud and envious of her. I was pretty accomplished as a runner and a field hockey player ( tried out for my nation when I was much younger ) in my day, but have struggled with fatigue and injury for years now. I have a fair idea that a lot of that was due to the celiac disease bubbling under and am fairly hopeful that as I recover I can regain a lot of my lost fitness. The irony is that I had been on the road back to fitness last year when I began to get really ill and all of this kicked off. My "work smart not hard" mindset is basically a result of many years of banging my head off a brick wall ;).

0

Share this post


Link to post
Share on other sites

Hi NoodleUnit,

Thank you for the additional info--it helped me piece things together. In the past, I've had symptoms of "overtraining" (and that I now think were due to the Celiac). But this helps me put in perspective my need for "rest" days and gives me ideas on how to schedule my workouts. It sounds like your partner's running really improved (I'm jealous!) and, without hearing about her success, I would have been resistant to cutting back, but now I'm going to figure out a schedule and try it. I'm nowhere near running right now (and I miss it), but I'm thinking about trying 2 run/walk days that are shorter and a longer walk-only day for a couple of weeks. I'm hoping this will allow me to ease back into running, but not make me feel wiped out after a workout (what currently happens).

I'm still going to have to figure out what to do with weights, but baby steps....

As an aside, I talked to a dietician today (my Hy-Vee grocery store has one on-staff) about my crashes after working out mid-morning. She suggested eating 30 grams of protein for breakfast (much more than I have been doing!), due to the malabsorption issues that Celiacs have. So I thought I'd share that information with you. And then she told me not to push too hard. ;) So, maybe if I hear that message enough times, it will sink in. In the meantime, I took a rest day today and feel pretty darn good. I think six weeks of Gluten-free are finally starting to make a consistent difference (I've had 3 "good" days in a row).

Hope you're feeling better also! Thank you again for your post.

Greenling

0

Share this post


Link to post
Share on other sites
Ads by Google:


Glad I can be of some help :). It's something I'm getting my head round round just now too, I think I'll probably do some upper body stuff next week ( my op last month means I can't really do cardio or lower body stuff yet ).

I have two problems at the moment - one is my grip as the neuropathy makes my right hand quite weak, which in turn makes holding weights quite hard, it's fading slowly though, so hopefully I can get back to it soon; the other is fear I guess. Psychologically I'm very apprehensive of putting my body through any more shock. So softly, softly for me. In fact I'm considering trying a fairly energetic form of Tai Chi to see how that works. It's supposed to be quite good for neuro problems, helps with muscle control, relaxation and energy, which is what I need now.

As for running, I can't recommend the couch to 5k schedule highly enough. Before I got ill, I did it and it got me from nothing to running non-stop for 30 mins in about 9 weeks. http://www.coolrunning.com/engine/2/2_3/181.shtml It's very well designed, only involves 3 runs a week and I would say that even if the early days feel easy, as they did for me, stick to the schedule, you'll be surprised how achy you are afterwards :)

0

Share this post


Link to post
Share on other sites

I have two problems at the moment - one is my grip as the neuropathy makes my right hand quite weak, which in turn makes holding weights quite hard, it's fading slowly though, so hopefully I can get back to it soon; the other is fear I guess. Psychologically I'm very apprehensive of putting my body through any more shock. So softly, softly for me. In fact I'm considering trying a fairly energetic form of Tai Chi to see how that works. It's supposed to be quite good for neuro problems, helps with muscle control, relaxation and energy, which is what I need now.

I am sorry to hear about the neuropathy as that has to be very frustrating. I was starting to have the very beginnings of that right before I went Gluten-free (I had no idea why my toes and fingers were randomly tingling). I hope that it continues to fade and your hands get back to normal. I think Tai Chi will be good exercise in many ways; I have a friend who takes a class and loves it for the peaceful concentration it gives her. I've promised myself to start stretching this weekend as a prelude to getting back to yoga for much the same reasons.

As for running, I can't recommend the couch to 5k schedule highly enough. Before I got ill, I did it and it got me from nothing to running non-stop for 30 mins in about 9 weeks. http://www.coolrunning.com/engine/2/2_3/181.shtml It's very well designed, only involves 3 runs a week and I would say that even if the early days feel easy, as they did for me, stick to the schedule, you'll be surprised how achy you are afterwards :)

I'd heard of this program before, but hadn't really looked at it closely. I looked it over this morning and it seems very much like something I could manage at this point without being too much. So, bright and early Monday morning, I'm doing Day 1. I'll let you know how it goes.

Have a good, restful weekend!

Greenling

0

Share this post


Link to post
Share on other sites

the other is fear I guess. Psychologically I'm very apprehensive of putting my body through any more shock. So softly, softly for me.

I just realized that I didn't comment on this and it really spoke to me. One of the lessons I learned most strongly over the last ten years (while I had my chronic fever and other symptoms) was "how to be sick." On the bright side, I learned to self-care (good nutrition, lots of sleep, regular exercise as consistently as possible) in order to function while friends my age were ignoring their health. However, I also learned to be a bit of a hermit, and to live within the restrictions that I set for myself too easily. I no longer trust my body to respond well to change, challenges, or stress. So "softly, softly" is quite a good motto now for learning how to live "well". :)

0

Share this post


Link to post
Share on other sites

I have the same problem Greenling. I have had issues for the past 3 years with adrenal stuff. One thing i have learned is that you will overdo it sometimes. I have two things that i have learned.

1. Listen to your body and don't try to force it

2. When in doubt, always do a little less rather than a little more.

0

Share this post


Link to post
Share on other sites

Thanks for the advice. I'm trying to listen to my body and not push so hard (I need to make #2 my mantra or stamp it on my forehead). This weekend has been much more successful in that respect. It's also helped to track the nutrients in my food and up my protein intake. Baby steps.... I'll figure this out slowly, but surely. Good luck to you--three years is a long time for recovery, but I hope it continues.

0

Share this post


Link to post
Share on other sites

Ah no, i have only been off of gluten for 5 months. I was sick for 3 years before i found out about it. =)

0

Share this post


Link to post
Share on other sites

Ah no, i have only been off of gluten for 5 months. I was sick for 3 years before i found out about it. =)

Okay, that makes sense. :) Have your symptoms cleared up in those five months?

0

Share this post


Link to post
Share on other sites

A few quick things my fellow gym-goers:

- Always stretch before lifting weights or exercising (whole body)

- Always stretch after lifting weights or exercising (whole body)

- Worry more about form and less about weight. Even if you have to use the bar by itself

- Take glucosamine for those joints

- Drink 80+ ounces of water a day

1

Share this post


Link to post
Share on other sites

Very good advice, that. ^

I'm taking glucosamine for my joints anyway as I punished my body pretty hard when I was younger. Actually... there's a thing. I was told to stop running and playing hockey for a year when I was 16 because if I carried on I'd never run again. The cartilage in my knees was disintegrating and getting stuck between my knee joints. I wonder if the celiac disease had anything to do with that, all of 24 years ago...

@Greenling have you tried the c25K yet? I'm almost at the point of being allowed to exercise again, 5 weeks after my op. Keen to get started tbh.

0

Share this post


Link to post
Share on other sites

@Greenling have you tried the c25K yet? I'm almost at the point of being allowed to exercise again, 5 weeks after my op. Keen to get started tbh.

Hi NoodleUnit,

I'm going to start the c25K on Monday. I decided to listen to my body and go softly (thank you for that advice!) and wait another week (while I cut out high-lactose products and upped my protein intake). My energy level has improved (yea!) and my GI problems have resolved (logging my food has been very helpful here). So I actually feel like exercising now. Nothing too harsh, but I think the c25K will be gentle enough for the first couple of weeks that I can feel my way. :)

I'm glad that you're going to get to start exercising soon. Are you still going to start with the Tai Chi? Keep me posted and I'll let you know how the c25K goes.

Greenling

1

Share this post


Link to post
Share on other sites

Hi NoodleUnit,

Just thought I'd let you know that the first day of the C25K program went really well today. I even did a few weights and a lot of stretching afterwards. I stopped before I got too tired and feel great now (about 3 hours later). It was soooooo good to work out and ENJOY it.

So, thank you very much for giving me the link to the C25K!! :D Hope you're feeling better.

Greenling

0

Share this post


Link to post
Share on other sites

That's brilliant news Greenling :D I remember being surprised at how much of a burn I got after even just that first run/walk day.

I've just started back at work after 6 weeks convalescence. We went for our usual lunchtime 30 minute walk and it nearly did me in ( I'm still having the neuropathy, which makes my right leg fatigue quickly, it's slowly going away though ). Seems I have a loooong way to go, lol.

0

Share this post


Link to post
Share on other sites

Congratulations on being able to go back to work! And I hope that you enjoyed the walk and didn't suffer any ill effects the next day. Little by little....

I'm taking more rest days, so today I was "off" from exercise, but tomorrow I hope to be back at the gym.

0

Share this post


Link to post
Share on other sites

How're you getting on Greenling? I did my first Tai Chi class on Sunday morning. Not sure about it if I'm honest but I'll give it a few more classes before I make a decision about it. To be fair, I did feel pretty stiff afterwards despite it being mostly very slow moving :)

I do like the idea, I'm hoping that the reality becomes a bit more satisfying soonish. I'm guessing knowing only one step so far is a large part of that feeling though. :)

0

Share this post


Link to post
Share on other sites

How're you getting on Greenling? I did my first Tai Chi class on Sunday morning. Not sure about it if I'm honest but I'll give it a few more classes before I make a decision about it. To be fair, I did feel pretty stiff afterwards despite it being mostly very slow moving :)

I do like the idea, I'm hoping that the reality becomes a bit more satisfying soonish. I'm guessing knowing only one step so far is a large part of that feeling though. :)

I hope the Tai Chi class becomes more what you're hoping for, NoodleUnit. I've always been intrigued by the idea of it, but haven't gotten to try it. I think the mental concentration aspect of it would be good for quieting stress. Hope your muscles loosen up soon (but, hey, they must have gotten some kind of workout).

I'm in Week 2 of the c25k. I did too much on Monday, so I ended up taking three rest days. The run/walk was going so well for me that Monday I decided to finish out the 5K distance--big mistake. Lesson learned! ;) So I'm going back to the prescribed 20 minutes. I may have to stretch Week 2 out a bit--I'll see how tomorrow goes. But I'm making progress.... Slowly, slowly, right?

1

Share this post


Link to post
Share on other sites

Exactly - just remember it's designed around the idea that you just repeat days/weeks if need be. I remember doing much the same as you early on. :)

1

Share this post


Link to post
Share on other sites

That's me got the go ahead to start some gentle exercise... I'm stretching the meaning of gentle to encompass the C25K, I think :) Will probably start at the weekend... if I get a good night's sleep tonight, I may even go tomorrow. How quickly are you recovering from your runs Greenling?

0

Share this post


Link to post
Share on other sites

That's great news, NoodleUnit! I'm so happy for you. :) Maybe we can work our way through the c25k together?? How's the Tai Chi coming along?

I ended up having to take 10 days off from running. I was starting to really search my diet to try and figure out what had brought back my fatigue, foggy head, apathy, etc., plus heat intolerance. Turns out my thyroid medicine was way too high (I have Graves' Disease, so my thyroid was removed two years ago). I've always had to take a megadose of the medicine because my body wouldn't consistently absorb (turns out that was the Celiac). So, now that I know what the problem is, I am overjoyed. Because this is the second time they've lowered my dose in the last two months (since I went Gluten-free), and if my body is absorbing it more efficiently, then I'm HEALING. :D So even though it makes me feel awful, it's a good sign of progress. Anyhow, I've been on the lower dose several days and I'm feeling better, so I went back to the gym this morning. The running was hard, but good. I'm travelling some this weekend and next week, so I'll be repeating Week 2 next week as well (and maybe for one more). But I'm getting there....

Hope your c25k attempts go well! Have a good weekend!

Greenling

1

Share this post


Link to post
Share on other sites

Hi Greenling

Sorry to hear about having to take a 10 day break, it sounds as though you have it sussed though. :) It's amazing that you can track the healing process like that though. Very demonstrable effect of going gluten free. Have you been following Wimbledon? Interesting to learn that Djokovich went gluten free after health issues and his performance just went through the roof. He seems unstoppable now.

As for Tai Chi, I'm going to give it a miss just now. It's not explosive enough for me even when I'm still recuperating. Daft, I know, but I think I need to go back to it when I'm in my 70's or something. :) I'll be doing Day One on Monday providing I can avoid eating anything stupid over the next day or so. Will keep you posted.

0

Share this post


Link to post
Share on other sites

Hi Greenling

Sorry to hear about having to take a 10 day break, it sounds as though you have it sussed though. :) It's amazing that you can track the healing process like that though. Very demonstrable effect of going gluten free. Have you been following Wimbledon? Interesting to learn that Djokovich went gluten free after health issues and his performance just went through the roof. He seems unstoppable now.

I did see that about Djokovich and it's quite amazing. I'm hoping the same happens to me. ;) I do have to say that the running I've been able to do is already faster than my best effort before (I was verrrry slow) and it's less effort (even starting back). So I do think there's a lot to be said for Gluten-free enhancing workouts (after a fashion).

As for Tai Chi, I'm going to give it a miss just now. It's not explosive enough for me even when I'm still recuperating. Daft, I know, but I think I need to go back to it when I'm in my 70's or something. :) I'll be doing Day One on Monday providing I can avoid eating anything stupid over the next day or so. Will keep you posted.

I can understand Tai Chi not being enough. I feel like I want to GO now that I'm getting better. I'll be re-doing Week 2 starting Wednesday (providing I don't mess up with food while travelling--I'm a little nervous about it). I'll look forward to hearing about your Week 1. Good luck!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,421
    • Total Posts
      930,467
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi! I've just been recently diagnosed as Celiac through the whole biopsy-shebang, and I have a little bit of insight on the whole diagnosis thing and how I was eventually diagnosed, and my advice for you. Brace yourself, this might be a bit long, but it might be worth the read and I promise I will eventually get to the point. If you don't want the huge story, skip to the long line of capital As: I first saw my doctor when I had a few problems swallowing. I've compared it to when you're nervous and you feel like you have a lump in your throat - but after I eat and (sometimes) drink. I just mentioned briefly it to my family doctor when I was addressing another issue, but right away he referred me to a gastroenterologist and ordered a barium swallow x-ray test. The x-ray came back completely normal, and so the g.e. then suspected GERD, put me on acid blockers to see if they would work, no harm done sort of thing. The only thing I got out of the acid blockers were the side effects, so it was back to square 1. The g.e. said that the next test he could do was an upper endoscopy with biopsies. (hint: the celiac test!) Wanting to find a solution to my problems, the endoscopy was scheduled. Pretty painless, I was in and out in a day, but the results took much much longer. Biopsies, or the little pieces of my esophagus, stomach, and small intestine, were sent to the lab, and they came back clean. I didn't really go back to the g.e. for a whole year after that because life became busy, I wasn't prompted to follow up, and I just dismissed the swallowing problems the best I could and went on my way. Now, I've never been huge on the gluten, big bread-y sandwiches or croissants or pies were never foods that I super "enjoyed". I wouldn't feel bad after eating them, I just didn't like the taste of bread so much, but I loved cookies, cake and a lot of other things that do have gluten in them. I lead a lowish gluten life but I wasn't really monitoring it that way. Everything changed when I got really nasty (systemic) poison ivy. My eyes were swollen shut, and the rash was everywhere. I almost went to the hospital, but cooped out at the family doctor's place and got a script for prednisone (a steroid). But, I found that after I had tapered off the steroids, I had magically become lactose intolerant. So back to the family doctor again probably because I broke my toe or something, but we also got to talk about this magical lactose intolerance business (because I love anything dairy and it was indeed devastating). He was surprised as there is literally no correlation between steroids and becoming lactose intolerant. He asked me if I still had the swallowing problems, which I did, and so it was back to the g.e. for round 3. because my family doctor "does not believe in coincidences". Meeting with the G.E., he mainly addressed the swallowing problems telling me that he had done what he could to diagnose with the technology that we had at the highly specialized hospital that we were at, and I would have to travel about 3 hours away to see a different doctor who would do some tests involving the muscles in the esophagus. But right before I was about to leave, we started talking about lactose intolerance. He brought up other foods that I was avoiding (if any), and then the conversation went to gluten. I mentioned that I had an aunt that was gluten-sensitive. He advised that I do the blood test that can show an indication of celiac whenever in the future. I decided to do it that day. At this point in time, I was not eating much gluten because of the fact that it was personal preference. The normal range for values in this test is from 0 to 20. A few weeks later, I learned that I scored a 35. A second upper endoscopy with biopsies was scheduled, but this time I was told to eat a moderate amount of gluten everyday before the procedure. I ate about two slices of bread per day, which is more than I normally would. I was normal for the first two-three weeks of the gluten plus diet, but then I became really sick. I started getting the normal celiac symptoms, like diarrhea and extreme tiredness. Near the end, I had debilitating stomach pain and I was 2 times more asleep than awake each day. I couldn't do the 2 pieces of bread a day some days, but the pain was still there. I knew that I wouldn't ever have to force myself to eat bread for a test ever again. I was called a few days before my endoscopy telling me that a kid in a worse state than me had to take the OR during my time. I forced myself to eat more bread for another month and a half. The day finally came. I was diagnosed celiac, which I have concluded to be initiated by (1) the steroids/poison ivy and (2) the gluten binge fest.  AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA Celiac Disease isn't completely understood yet. Most of the time if you weren't showing symptoms when you were a baby (so your case) it means that celiac was/could be triggered by an event in your life that causes stress on the body (like stress, physical injury, etc.).  The positive result that you got from the blood test doesn't automatically mean celiac, but it could. Here's some options: Talk to your doctor (or a different doctor) or even a specialist gastroenterologist (you can get a referral from a family doctor (general physician)) and see if you can do the blood test again, you have to have some kind of gluten for this to work in advance, so if you don't want to break your gluten-free streak, than don't really invest in this option. If you feel comfortable, you could even ask to do this test under a few scenarios (no gluten (now) and after a gluten binge, compare results). If you do this test and your indication is low off gluten and then high after gluten, I'd probably skip the biopsy. That's a strong enough sign that you don't need to put yourself through the painful-gluten binge. Maybe this is what that first doctor just assumed. But having that test when you haven't had any gluten could make the difference - it acts as a control. Go straight to the biopsy. You could do this, but I'd probably do the blood test first. I went through a lot of stress with the gluten-binge that you have to do to get an accurate result, you would also be breaking your gluten-free diet that may/may not be helping you right now. Do nothing, stay on your gluten free diet hoping that it is helping you. But if you are not celiac or gluten-sensitive (celiac before it starts to wreck your small intestine), going gluten free isn't healthy - you can do some research on this if it interests you. If you feel bad/unhealthy after going gluten free it's probably a sign. Good luck, also know that you might come to a point of stress in your life that can start celiac's destructive path. Ultimately, it is your body, and you should not feel forced or hesitate to act on health issues that impact you.
    • I'm sorry that life is so hard right now. Really.  I can't imagine working 3 jobs and trying to manage this terrible illness.  I think about American society and their obsession with food often.  Whenever you look at the internet, there are all these fabulous gluten-free recipes, but when you don't have time or money to cook these things, a simple gluten-free lifestyle is just that - simple. There isn't a lot of variety, so it's kind of boring. But, I guess I have gotten used to being boring. I just eat corn chex and fruit or yogurt for breakfast. I eat a lot of eggs, beans, rice, corn tortillas, nuts, chicken, fruit and veggies.  A loaf of gluten-free bread will last me 4-6 months in the freezer.  I buy a bag of dried beans for $1.29, I soak them overnight, and put them in the crockpot the next day. I add different spices, sometimes chicken and Voila! - dinner is ready when I get home from a long day. Family gatherings are miserable and I haven't quite figured out the best way to deal yet. If my grandmother were still alive, I imagine she would be a lot like yours - well-meaning but not really able to understand the nitty-gritty.   I just reassure my family that I am fine and that they really shouldn't do anything special for me. I bring a bag of Hershey's kisses or other gluten-free candy I can nibble on along with my meal and then I try to treat myself to a nicer home cooked meal later in the week when I have time to cook - because who has time to cook during Christmas???? And, I agree with knitty knitty. If someone else in your family/friends were gluten-free for medical reasons, it would make socializing a bit easier. One of my husband's good friends is NCGS. When we get together as a group, we can make each other special dishes and it helps to feel less isolated.  Good luck!  
    • Hi!  Um, please forgive my quirky sense of humor..... Celiac Disease is genetic... All first degree relatives of people diagnosed with Celiac Disease should be tested for the disease, too.  Gall bladder problems are often associated with Celiac Disease.  Your diagnosis might save your whole family from further medical problems as they age and the disease progresses... You need to set a good example if relatives are similarly diagnosed.... and then everybody will have to eat gluten free at family gatherings....  
    • That's what I thought!  My father has gluten sensitivity and I almost regret telling the doctor that because I feel that made her jump to conclusions because of that.  He never had the biopsy either.  I feel like doctors think it's just easier to say it's celiac when they show a gluten sensitivity to avoid additional testing, even if that diagnosis doesn't make any sense at all.  My doctor didn't even offer the biopsy, and said the blood work was enough.  Should I seek a third opinion?  I mean, I've been gluten free for 9 months...
    • It will prolong your life....celiac is a autoimmune disease that  causes your own immune system to attack you. The longer your eating gluten the worse it gets, I mean all kinds of other autoimmune disease, food allergies, food intolances. One day you could lose the ablity to eat carbs, or sugars, or become randomly allergic to tomatoes or corn all cause you decided not to be on road to healing I am not kidding here. I am allergic to corn, can not process meats, have another autoimmune disease that makes it so I can not eat dairy or CARBS/SUGARS.   I wish I could go back in time and go on a gluten-free diet a decade ago. Worse that could happen you could develop cancer or other complications and yes we have had this happen to a member before on our forums. Think of it like this your just changing brand here I will give you some links to some gluten-free foods, and how to order them, You can even order alot of them online this should help simplify it for you. I suggest thrive, amazon, or one of hte other links from there, Many you can order from the manufacture. https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/  
  • Upcoming Events