This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
Sounds like gluten ataxia, or the form of celiac I have where it also attacks my nervous system and brain. I would get a celiac test if I was you, you have to be eating at least half a slice of bread or a few crackers for 12 weeks before hand and go to your doctor and ask for a full celiac panel. From there you need to be eating it for still and get a endoscope with biopsies to check for intestinal damage. Now to help with the mental issues I will tell your right now a good b-vitamin supplement will help you with the fog and depression a bit. I suggest Liquid Health Stress & Energy and the Neurological support one. Take 1 tbsp each 3 times a day. You will notice a huge difference in it. Being liquid it is easier absorbed by your body, if you have celaic then your intestines will also be damaged making where getting these nutrients is more difficult for you body.
NOW as to the cheesy bread I hear you on that. I love eating Juilans bakery toasted read with dayia cheese on it.... I was using hte provolone for awhile but am now using the almond bread with daiya dairy free swiss. Love a good cheesy toast and egg white open sandwich with some avocado myself. I also posted a recipe in the baking section where you melt the daiya dairy free cheese shreds and mix them in with the flour blend I use that is gluten-free and make cheesy bread rolls out of them. I have a garlic and cheddar one.....you name just inspired the idea of using a bit of turkey bacon in the cheddar biscuit version.....would be epic
my history is the following:
I used to eat a lot of foods with gluten & cheese together.
They would make me seriously happy and and I was extremely content just eating a pizza and bread with cheese and things like this...
Now obviously I'd have cycles... where I eat tons of gluten/cheese foods in combination... feel super content and thats it...
Then the effects would wear off and I had to start a diet.. where I'd do modified versions of fasting or so for a few weeks...
During that phase I'd get very depressed... but after a few weeks of no-gluten... I'd eat bread with cheese again and I felt like I was in heaven.
I'd get extremely high from this stuff... like seriously I'd feel amazing... (I guess it's the morphine like effects of this foods)
but after some when I hit age 22 or so I started to get serious trouble...
I started getting serious neurological issues from it... like I could't put my words together... I'd have paranoia & feel like everything is unreal... I've been diagnosed with numerus psychiatric issues since then...
My main problem right now is that my brain isn't functioning...
I can't comprehend what people are saying and when I want to say something my words don't come easily... Like if I am in a conversation for a longer time this issues is barely noticable at all...
But if I wake up... and I try to talk... there's no way.. if I haven't talked for a while it's like you could ask me and I couldn't comprehend what you say and couldn't put my words together in the way I'd like to...
I feel kinda stupid sometimes... because I know I'm rather smart but when I have a conversation my speech seems very unsophisticated...
I tried to change my diet.. with varying success... like I would feel great in the morning and feel completely depressed in the evening for no apparent reason whatsoever... at all!
And I feel I can attribute this to traces of gluten which feels like this:
When I have traces of gluten inadvertently...
I suddenly feel like everything is kind of unreal around me... I feel depressed in a "opiate withdrawal" kind of way...
I don't know how to explain it... it's just painful in the sense that I can't just enjoy having a conversation... like I have a conversation but I don't feel "the thrill"... everything is totally bland and I just feel depressed in the background... like I don't want to do anything and no matter what I do.. it feels completely pointless because I can't comprehend why I suddenly feel this way...
And it's not like I feel this way 24/7... that's the thing... it comes and goes and comes and goes... sometimes I feel completely fine in the morning or even for 2 days or so.... and then I feel completely like s$#& and devoid off all satisfaction for 3 days where I feel I'm going completely crazy & I can't talk.. can't comprehend... feel super weird when talking to people... and then the next days I just feel suddenly "normal"... like this relaxed and easy-going feeling in your body and wanting to be social and to communicate and just have fun... but then... when I eat some food and I feel it has gluten.. it hits me in a subtle way... where I suddenly loose all joy in life for days... and then it just dissapears... I've been struggling with this for years now and I can't seem to comprehend or get on top of this issue...
Do some of you guys have similar experiences?
Having experienced autoimmune hives (not sure if celiac-related) daily for the last four months (now controlled by a cocktail of antihistamines, thankfully), I would be super diligent about my gluten-free diet if I had DH. What do I mean? Like Squirmingitch indicated -- no eating if you did not prepare it.. The itching can drive you crazy. In my case, I never knew that you can get hives on the soles of your feet.
I hope you feel better soon.
A celiac diagnosis is hard to absorb even for adults. She is old enough to understand and she now knows that she is different (that's so hard when you just want to be like everyone else). There is a grieving period that is normal. Be patient. If things do not improve, get her some help. It might be better to hear it from another trusted adult than from Mom.
You are doing everything right. I know you are loving her and being supportive. Stay strong and do take some time for yourself, even if it is heading to the bookstore for a hour or so or taking a walk.
Within a few months, there should be some improvement. Be sure she gets a follow-up test three months after her diagnosis and then another three months later. Learn more: