• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Soy Lecithin
0

11 posts in this topic

Do those of you with soy intolerance also have a problem with "soy lecithin" in all cases? This ingredient seems to be in all chocolate except for Enjoy Life Bars and just curious of any of you who are normally sesitive to soy can tolerate this "soy lechithin" in small quantities? Thanks for any insight you might have.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:

I cannot tolerate soy lecithin either. It seemed to be a cumulative effect at first, but now I seem to react to it almost immediately, and if it is in tea, I react to it within minutes.

0

Share this post


Link to post
Share on other sites

If it is in tea, bad news. So far, I'm okay with chocolate coatings--so, very small amounts, in very limited doses, preferably spaced out.

-Daisy

0

Share this post


Link to post
Share on other sites

My daughter has a problem with all soy so she can't handle it in the chocolate, but we did just see that Lindt 90% dark cocoa has no dairy or soy in the ingredients. I loved that one beforehand so we will be trying it soon for the girls and I.

0

Share this post


Link to post
Share on other sites

My daughter has a problem with all soy so she can't handle it in the chocolate, but we did just see that Lindt 90% dark cocoa has no dairy or soy in the ingredients. I loved that one beforehand so we will be trying it soon for the girls and I.

Thanks so much for these replies. Very helpful and based on this will continue to avoid. Thanks for helping me deal with craving that could have had bad consequences and keep me motivated towards healthier way of life! Will look for this Lindt bar, to be sure. :) Thanks Again!

0

Share this post


Link to post
Share on other sites
Ads by Google:


My daughter has a problem with all soy so she can't handle it in the chocolate, but we did just see that Lindt 90% dark cocoa has no dairy or soy in the ingredients. I loved that one beforehand so we will be trying it soon for the girls and I.

News Flash! Wanted to make sure you knew this--when I went to check this bar out on (Company Name Removed - They Spammed This Forum and are Banned) (I have to avoid 8 Main Allergens, not just wheat and soy)--I saw this and wated to let you know: "Safety Information

May contain traces of peanuts / tree nuts/soy bean/milk"

0

Share this post


Link to post
Share on other sites

News Flash! Wanted to make sure you knew this--when I went to check this bar out on (Company Name Removed - They Spammed This Forum and are Banned) (I have to avoid 8 Main Allergens, not just wheat and soy)--I saw this and wated to let you know: "Safety Information

May contain traces of peanuts / tree nuts/soy bean/milk"

Thank you so much! I guess I will have to keep looking:( We are avoiding gluten, dairy, soy, eggs, fish, bananas, sweet potatoes and she can only tolerate little amounts of corn, so thank you again.

0

Share this post


Link to post
Share on other sites

Thank you so much! I guess I will have to keep looking:( We are avoiding gluten, dairy, soy, eggs, fish, bananas, sweet potatoes and she can only tolerate little amounts of corn, so thank you again.

I can relate. It can be so hard to find good products that fit our needs. I found a "protein" bar called NuGo Free Dark Chocolate--it's gluten, soy and dairy free--they actually taste pretty good--decent chocolate flavor especially if you are otherwise limited and have a decent protein profile (I am vegan and have difficulty getting enough each day) they have some ohter flavors as well. I get them on Amazon. If you find any other products that are clean, please advise and I will do the same. Good luck! I feel for you!!!! :)

0

Share this post


Link to post
Share on other sites

Thank you so much! I guess I will have to keep looking:( We are avoiding gluten, dairy, soy, eggs, fish, bananas, sweet potatoes and she can only tolerate little amounts of corn, so thank you again.

I am convinced since tracking the foods that I react to, that there is a BIG difference between organic and non-organic. The two main differences are pesticide residues and GMO's. Pesticide residues create a reaction of their own. Some are neurotoxins, which are some of the worst for me. PAN is a data base to look up fruits and vegetables and find out what they are sprayed with in the US. If you click on each pesticide listed you can see the symptoms caused by them. If they are from out of the country they can very well have DDT on them. That includes chocolate and coffee. DDT's half life in the body is 50 years!

An example is bananas. My mouth breaks out almost immediately with a non-organic banana. If it is truly organic (like I can find in Hawaii grown in a friend's yard) my mouth doesn't break out. Lately, some of the organic bananas I bought at WF made my mouth break out, so don't think they are really organic. Same goes for chocolate. I can tolerate organic, but not non-organic. Also, chocolate is a nut and I think I react to most nuts, some worst than others.

GMO's are another issue. I don't have proof right now, but I have noticed that more people reacting to corn which is mostly GMO now. I don't think our digestive systems were created to handle these different molecules. The newest research on GMO's shows they are showing up in Mom's blood and baby's blood. Yikes. An example is I can eat organic corn tortillas, but react to non-organic ones. Weird. It could be the organic factory has no chance of cross contamination. I am hyper sensitive celiac.

For protein, I found a great organic sprouted brown rice powder that is highly bioavailable. I love the vanilla flavor. Super clean. Found it on the internet. Also found a new sprouted tofu by Wildwood for those who tolerate soy beans. I can't usually digest regular tofu, but this one is great. I just finished my second container of it and no reactions! Wow. The sprouting turns the soy bean into a vegetable which is much easier to digest. Then they process it into tofu. So it is a very different product. My blood tests were negative for soy allergies, so think my reactions were because of the digestibility of regular tofu.

0

Share this post


Link to post
Share on other sites

I cannot tolerate soy lecithin either. It seemed to be a cumulative effect at first, but now I seem to react to it almost immediately, and if it is in tea, I react to it within minutes.

Pacific Organic Foods makes a great tasting organic almond milk. Almonds are one of the heaviest sprayed crops and they are all irradiated now (new law), so organic is best. They list on the box "Gluten free". I have been drinking it for 2 or 3 months now with no reactions. Plus it is delicious and low in carbs. I switched from an organic soy milk because the soy milk had too many sugar carbs.

0

Share this post


Link to post
Share on other sites

I seem to be getting this too. Was a gradual build up at first, but now it's within half an hour, I generally have to go lie down for a while, my body starts to ache, neuro symptoms, weakness, headaches and irritability. Most of it goes fairly quickly, but I get left with the neuro stuff for days after. I just got done yesterday by a gluten-free crispbread in fact.

I cannot tolerate soy lecithin either. It seemed to be a cumulative effect at first, but now I seem to react to it almost immediately, and if it is in tea, I react to it within minutes.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,124
    • Total Posts
      929,060
  • Member Statistics

    • Total Members
      63,536
    • Most Online
      3,093

    Newest Member
    MissingPizza
    Joined
  • Popular Now

  • Topics

  • Posts

    • I actually looked into growing my own, I hear they grow GREAT on coffee grounds. Issues is all starting seeds, and spore batches EVERYWHERE are on rye, wheat, and barely seeds. LITERALLY, the standard for growing them is planting the spores on gluten containing grains. Check yourself on this, while mentioned in several articles the gluten protein is not in the grown mushroom cap/plant. If anything I might have issues with gluten at the base or stalk in which case playing it safe by just harvesting the caps and washing them would be good. I just wish they would use something like buckwheat, rice, sorgum, etc for a seed to put the spores on........I know it is paranoia just saying. Side note I have had no issues with the last 7 batches of mushrooms I have purchased, I even tried the overly sensitive nima on a batch of them blended with a smiley, and these where unwashed ones. SO yes it is a hit and miss thing. I found some brands have never given me issues like a few local portabellos, and polar canned. While others from a local farm got me twice with the bella mushrooms.   As to Gemini response, yes I have the same issues with certain foods always making me sick......olives, peanuts, pork, few others, No logical reason I just very sick and start puking violently when I eat them.    I will admit sometimes things make me sick in weird ways almost like gluten but not. Hell last time I spent 4 days on a elimination diet just ot learn it was the oddest things, a batch of rancid almond butter was doing it. I thought it was just overly roasted but fact was it was just starting to go rancid. I know this was not gluten by day 2 as I analyzed the effects which were a little different.  
    • Hi Mermaid's Mom I used to always feel very hot and found it very difficult living in a hot country, which I did a few years ago.   Since my diagnosis and adopting a gluten free diet I've felt cold in a way I never have before.  I don't know if it is a coincidence, but it seems to me a bit too much of a coincidence! I think the first port of call is to check if your daughter has a thyroid issue.   I assumed that was my problem but the TSH and T4 tests say things are good, but my friends on this forum say I need to have other levels looked at so possibly I do have a problem lurking. Problem is that here in the UK it is difficult to have 'a full thyroid panel' under the National Health Service.  If you can get one for your daughter it would be worth a try, I'm sure.    
    • So 3+ weeks gluten-free.  She is on B12 weekly injections, iron and magnesium supplements. She has ALWAYS run hot.  Never - literally never cold. I noticed that she is now sleeping in socks and a hoodie.  Every night. Now during the day she has more than a few times said she is freezing. Now I have ALWAYS been a freezing person.  The only one -everyone else in the family runs hot but me.  I am abnormally cold.  But even I am not cold when she says she is?? Any thoughts?
    • Knowing my luck, the fish would get Celiac disease and I'd have to stop eating them too!!! lolol   Thanks.......
    • You can try some basic tips: Eat a high-protein breakfast. Avoid sugary drinks and fruit juice. Drink water a half hour before meals. Choose weight loss-friendly foods. Eat soluble fiber. Drink tea. Eat mostly whole, unprocessed foods. Eat your food slowly. Don't be so upset. A lot of people don't receive results when they just start their diet. As for that was the same when I started my diet, I start losing weight on the third month. I try to avoid some food and especially coffee I threw away coffee from my life. So I drink only tea, I bought special Tea here. I think you can try it too. Keep going!
  • Upcoming Events