• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

To Eat Or Not To Eat..
0

13 posts in this topic

Hello everyone.... I'm 23 and just recently realized I am allergic to gluten. Better late than never I guess but I have had to take ao many different medications and vitamins all for reasons caused by gluten as all of you have experienced I'm sure. The pain, nausea and fatigue alone are going to kill me. My Dr.s are confused so I decided to take matters into my own hands. This is the only thing that makes sense. All of the symptoms I HAVE and all of the other things like fertility and migraines I HAVE problems with too. This has to work life can't be like this it should be enjoyable and I am going to enjoy it once I get this gluten out of my system! Any help or tips would be amazing for a newbie like me! Thank you look forward to talking to most on the forums!

1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hello everyone.... I'm 23 and just recently realized I am allergic to gluten. Better late than never I guess but I have had to take ao many different medications and vitamins all for reasons caused by gluten as all of you have experienced I'm sure. The pain, nausea and fatigue alone are going to kill me. My Dr.s are confused so I decided to take matters into my own hands. This is the only thing that makes sense. All of the symptoms I HAVE and all of the other things like fertility and migraines I HAVE problems with too. This has to work life can't be like this it should be enjoyable and I am going to enjoy it once I get this gluten out of my system! Any help or tips would be amazing for a newbie like me! Thank you look forward to talking to most on the forums!

Welcome to the board!

First suggestion I can think of is have you gluten proofed the kitchen? You don't want to use wood or plastic that has been used for gluten filled foods. You'll also want to avoid any scratched non-stick pans as they hold gluten in the scratch! In my kitchen we have separate areas for the gluten eater (my dad) to put his food. One crumb can make you sick so it's a good idea to have some things separate if you're sharing a kitchen like for example two toasters. You will want one that has never had wheat bread in it.

Some folks suggest using gluten free beauty products, especially lip stick. I use Zuzu makeup and Zoya nail polish. Zoya occasionally has fantastic sales. Kiss My Face is a nice healthy soap.

Shop the perimeter in the grocery store. Fresh fruits and Veggies are naturally gluten free. If you buy frozen or canned veggies check the ingredients sometimes they add wheat. Soy sauce unless it says otherwise has gluten in it! In my main stream grocery store just about all the veggies with sauce have gluten in them. :( If a food lists natural flavors, natural coloring, those can come from gluten plants so you'll have research it.

Check your vitamins and any meds for gluten! You need to check anything you ingest.

Wheat free does not necessarily mean Gluten Free! Always remember that! Wheat, Rye, Barley, Spelt, Malt are all sources of gluten.

Hope this helps some. I'm still a newbie so hopefully some of the wiser more experienced folks will chime in soon.

0

Share this post


Link to post
Share on other sites

Hi and welcome to the board! We're about the same age, and I was just diagnosed with Celiac about three months ago. We're actually pretty lucky for being diagnosed relatively early in life. Many people go their entire lives without realizing they have an intolerance, and a lot of times that results in other medical complications (my great grandmother had stomach cancer when she died, and I're pretty sure she had Celiac). So it's definitely a blessing to have a diagnosis and coping plan now!

This board was an incredible resource for me and I'm very grateful to have had the support, especially right after my diagnosis. Do you have an allergy, intolerance, or Celiac? Feel free to search around and ask questions. There are tons here who can give advice on pretty much anything. And if you wanna drop me a message, I'm always happy to chat about my experiences, too :)

2

Share this post


Link to post
Share on other sites

Hi and welcome to the board! We're about the same age, and I was just diagnosed with Celiac about three months ago. We're actually pretty lucky for being diagnosed relatively early in life. Many people go their entire lives without realizing they have an intolerance, and a lot of times that results in other medical complications (my great grandmother had stomach cancer when she died, and I're pretty sure she had Celiac). So it's definitely a blessing to have a diagnosis and coping plan now!

This board was an incredible resource for me and I'm very grateful to have had the support, especially right after my diagnosis. Do you have an allergy, intolerance, or Celiac? Feel free to search around and ask questions. There are tons here who can give advice on pretty much anything. And if you wanna drop me a message, I'm always happy to chat about my experiences, too :)

Thank you so much that is so very true... being diagnosed early is a blessing in disguise. None of the Dr.s I have been to said I have celiac or and intolerance they said I am "sensitive" well it didn't helo when they took my gallbladder out in 2006. I think I am going to live a gluten-free life and not worry about what the docs say and just do what I feel makes me feel better! I appreciate your reply!

0

Share this post


Link to post
Share on other sites

Welcome to the board!

First suggestion I can think of is have you gluten proofed the kitchen? You don't want to use wood or plastic that has been used for gluten filled foods. You'll also want to avoid any scratched non-stick pans as they hold gluten in the scratch! In my kitchen we have separate areas for the gluten eater (my dad) to put his food. One crumb can make you sick so it's a good idea to have some things separate if you're sharing a kitchen like for example two toasters. You will want one that has never had wheat bread in it.

Some folks suggest using gluten free beauty products, especially lip stick. I use Zuzu makeup and Zoya nail polish. Zoya occasionally has fantastic sales. Kiss My Face is a nice healthy soap.

Shop the perimeter in the grocery store. Fresh fruits and Veggies are naturally gluten free. If you buy frozen or canned veggies check the ingredients sometimes they add wheat. Soy sauce unless it says otherwise has gluten in it! In my main stream grocery store just about all the veggies with sauce have gluten in them. :( If a food lists natural flavors, natural coloring, those can come from gluten plants so you'll have research it.

Check your vitamins and any meds for gluten! You need to check anything you ingest.

Wheat free does not necessarily mean Gluten Free! Always remember that! Wheat, Rye, Barley, Spelt, Malt are all sources of gluten.

Hope this helps some. I'm still a newbie so hopefully some of the wiser more experienced folks will chime in soon.

That is an awesome idea!! I will get to cleaning and re-organizing the kitchen and start there. I never thought about the food touching others and contaminating it with gluten. I never even thought about the beauty products either! I have alot to learn haha! You have been most helpful most appreciated!!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Welcome! I have a post on my blog with step by step instructions for getting your house de-contaminated!

I hope it helps:

Going 100% Gluten Free

Thank you so very much!!

0

Share this post


Link to post
Share on other sites




Thank you so much that is so very true... being diagnosed early is a blessing in disguise. None of the Dr.s I have been to said I have celiac or and intolerance they said I am "sensitive" well it didn't helo when they took my gallbladder out in 2006. I think I am going to live a gluten-free life and not worry about what the docs say and just do what I feel makes me feel better! I appreciate your reply!

It's great that you're taking it on yourself to try the diet. I wish my sister would do the same. She tested negative for Celiac, but I'm positive she has a gluten intolerance and possibly casein, too. She just doesn't want to try the diet even though she feels horrible and I told her it could help. :(

0

Share this post


Link to post
Share on other sites

It's great that you're taking it on yourself to try the diet. I wish my sister would do the same. She tested negative for Celiac, but I'm positive she has a gluten intolerance and possibly casein, too. She just doesn't want to try the diet even though she feels horrible and I told her it could help. :(

My brother refuses to even get tested. He developed type 1 diabetes as an adult and has numerous symptoms in addition to family with the disease. He is one of those "I'd rather die" people. :(

0

Share this post


Link to post
Share on other sites

It's great that you're taking it on yourself to try the diet. I wish my sister would do the same. She tested negative for Celiac, but I'm positive she has a gluten intolerance and possibly casein, too. She just doesn't want to try the diet even though she feels horrible and I told her it could help. :(

That is too bad for your sister bc most illneses can be taken care of by diet and it could NEVER hurt to try something new. If you find some neat easy to prepare meals would you mind emailing me the recipe?? Iam going to start my own gluten-free cookbook :)

0

Share this post


Link to post
Share on other sites




My brother refuses to even get tested. He developed type 1 diabetes as an adult and has numerous symptoms in addition to family with the disease. He is one of those "I'd rather die" people. :(

Diabetes is serious I have type 1 and 2 on both my sides of the family! I m sorry your brother is so stubborn its time to look on the bright side! :-)

0

Share this post


Link to post
Share on other sites

My brother refuses to even get tested. He developed type 1 diabetes as an adult and has numerous symptoms in addition to family with the disease. He is one of those "I'd rather die" people. :(

I'm sorry to hear that about your brother.

My sister is in a really hard position because she's a pastry chef and is around flour all the time. She actually told me one day, "I think I do have a gluten intolerance - but I like cake too much." :( She's living with my father right now, and I've told him that she needs to get retested in two years because she's genetically predisposed to it. But even if it is an intolerance and not Celiac, the intolerance won't show up on the Celiac panel. :unsure:

I wish she could just come live with me for a few months and I'd show her how easy and delicious a gluten free diet can be.

0

Share this post


Link to post
Share on other sites

That is too bad for your sister bc most illneses can be taken care of by diet and it could NEVER hurt to try something new. If you find some neat easy to prepare meals would you mind emailing me the recipe?? Iam going to start my own gluten-free cookbook :)

I cook tons of really easy gluten-free meals. Most of the things I made before my diagnosis were actually naturally gluten-free, and the baking has been a pretty smooth switch. What kind of recipes are you looking for?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,341
    • Total Posts
      935,585
  • Member Statistics

    • Total Members
      65,004
    • Most Online
      3,093

    Newest Member
    susa
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thankyou squirmingitch that is useful info, i have decided to go ahead with the endo and biopsy but i know what you mean there are still alot of people out there who still think celiac is not serious and thinks it is a choice. I have a 11 year old daughter and i think it would be foolish not to go the whole hog with this has it would help her in later life if i have the gold standard confirmation as im sure some docs still dismiss it because they do not specialise in this subject.
    • Furthermore, getting a positive on the endoscopy will leave no doubt either in your mind nor in the minds of the rest of your family or friends. All first degree relatives of celiacs need to be tested every 2 or 3 years in the absence of symptoms & immediately if symptoms present since celiac can present at ANY age. So your parents, siblings & your children will need to be tested. Believe me, there is oftentimes a TON of pushback by family members simply because they don't want to have celiac so they stick their heads in the sand & say you're off your rocker, refuse to get tested because they say they don't have it and you don't have a concrete diagnosis so how can you be sure they need to be tested? Friends can be even more doubtful. People are really, really doubtful of people who don't have an ironclad diagnosis. I think it's stupid of them to be so negative & questioning what you know to be true but they are. I mean, when you say you are diabetic, no one doubts that you are, no one questions your diagnosis and everyone respects the implications of diabetes but that is not the case with celiacs. I think it must be that people can not conceive of never eating wheat flour again for life. They can easily accept a diabetics diet but not a celiacs. Yet they will grill you as if they are experts in celiac disease unless you can tell them you've had the full nine yards of testing & ARE, no doubt about it, celiac.
    • Hi ch88, You could try going nightshade free to see if it helps your arthritis.  It might help.  The common food nightshades are potatoes, tomatoes, peppers, eggplant, turmeric and paprika.  If you try nightshade free for one month that should be enough time to know if it helps IMHO. Sweet potatoes/yams are ok, as they are not nightshades.
    • Thankyou both of you for your advice, i will have the endoscopy will just have to wait, my blood tests were not hitting the roof with reading but a low to medium result, dont want to be one of them people who have gone gluten free with no need, however i do show typical symptons of celiac but no overwhelming symptons apart from feeling nauseous and crampy at times, and extreme tiredness. There is soooo much to learn
    • You are normal!  All the things you are going through are normal for someone with celiac disease....probably with any life changing illness.  What you need is patience.  Most here take a year to heal or longer due to setbacks on the diet or healing from systemic damage.  The nervous system seems to take the longest.  Ask your doctor to check you for any deficiencies.  No sense guessing what you might need.  It is a common and recommended practice to check for vitamin and mineral deficiencies.   http://www.cureceliacdisease.org/faq/what-common-nutrient-deficiencies-might-an-adult-experience-prior-to-diagnosis/ Once healed, you might not need any supplements, if you eat a wide and varied healthy diet.  
  • Upcoming Events