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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Oh For The Love Of Mike
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NoodleUnit    4

Massive rookie error just now. Fancied an easy meal tonight, so I picked some Uncle Ben's Sweet and Sour. Felt the symptoms come on before I'd finished the plate :( It had no mention of anything gluten wise at all, but on their website it's rather confusingly indicated as not gluten free. The only thing I can imagine that contains gluten in the ingredients is the vinegar.

I'd been doing okay today too. Now I have a night of neurological hell ahead of me, not to mention the next few days. I've been having trouble with other things like dairy and nightshades, but this is the first time in weeks I've been glutened. Have I just reset the healing process to square one?

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GFreeMO    113

Just a minor setback. No biggie. We all make mistakes. Back in the saddle! ;)

For me, I notice that if I do get glutened on accident, the worst thing that I can do is stress about it. It makes things worse.

Feel better!

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kareng    1,992

I have not heard of Uncle Ben's Sweet & Sour. In the US vinegar is apple based unless it says malt. Are you in another country? If it lists soy sauce, that could have wheat in it...Just looked at the UK website and the Sweet & sour sauce clearly lists wheat twice.

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NoodleUnit    4

Thanks :)

The spicy one does list wheat, my one doesn't, yet if you go here:

https://www.marsfoodservices.com/EntreacuteesSides/Products/UNCLEBENSQuickReferenceGuide/tabid/242/Default.aspx#sauce

... then the sauce is listed as not gluten free. All I know is I have very definitely been glutened. Even the back of my eye is burning.

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kareng    1,992

Can you point me to the link kareng? The ingredients on the bottle make no mention of wheat all, in any form.

Your right that was the spicy. My old eyes didn't see that tiny print. The regular doesn't list wheat. Odd. You would think they were the same except for some extra peppers.

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bartfull    565

Probably made in the same vat as the spicy. Cross contamination.

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NoodleUnit    4

Probably made in the same vat as the spicy. Cross contamination.

Makes sense to me. Would explain why they don't check that gluten free box, for sure.

Thanks for the replies folks :)

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NoodleUnit    4

:(

I got done again today. Was assured by the waitress that the chef had said a sausage on my breakfast plate was gluten-free ( the rest of it couldn't have had gluten ), within 20 minutes I was starting to feel glutened, hours later I'm in a fairly bad way with GI symptoms, can't feel two fingers on my right hand ( it's almost as if my pinky and the next finger are taped together ), feel nauseous, extremely agitated ( like I've had waaay too much coffee - anyone else get that? ) and simply can't think straight.

Worse, my partner, probably rightly, thinks I was stupid to have the sausage in the first place, so now I'm in the dog house. I just can't seem to get my head round the idea that I really do have this condition.

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Brooksbelle    4

Newbie here too!

My mistakes have been (in chronological order) Rice Krispies (malt!), Fried Green Tomatoes (breading--DUH!), Modified Food Starch (tricky).

The learning curve is steep--but I'm getting there. Reading a little bit every night to educate myself. Conclusion? Gluten is in about 95% of processed foods. :blink:

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ravenwoodglass    1,218

:(

I got done again today. Was assured by the waitress that the chef had said a sausage on my breakfast plate was gluten-free ( the rest of it couldn't have had gluten ), within 20 minutes I was starting to feel glutened, hours later I'm in a fairly bad way with GI symptoms, can't feel two fingers on my right hand ( it's almost as if my pinky and the next finger are taped together ), feel nauseous, extremely agitated ( like I've had waaay too much coffee - anyone else get that? ) and simply can't think straight.

Worse, my partner, probably rightly, thinks I was stupid to have the sausage in the first place, so now I'm in the dog house. I just can't seem to get my head round the idea that I really do have this condition.

Most sausages are gluten free. Perhaps there are some with gluten but I don't know of any offhand. The problem was more likely, IMHO cross contamination from the grill. Many places cook eggs, pancakes, french toast, bacon and sausage all on the same grill. Even though the grill is usually scraped that would not be enough to prevent CC. It is best if we ask that our food be cooked in a seperate clean pan. There are also some places that add a bit of pancake batter to their scrambled eggs to make them fluffier so if you should order scrambled eggs someplace make sure they don't do that.

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kareng    1,992

Most sausages are gluten free. Perhaps there are some with gluten but I don't know of any offhand. The problem was more likely, IMHO cross contamination from the grill. Many places cook eggs, pancakes, french toast, bacon and sausage all on the same grill. Even though the grill is usually scraped that would not be enough to prevent CC. It is best if we ask that our food be cooked in a seperate clean pan. There are also some places that add a bit of pancake batter to their scrambled eggs to make them fluffier so if you should order scrambled eggs someplace make sure they don't do that.

Actually, I have heard from people in the UK that many sausages are not gluten-free. In the States they almost always are gluten-free.

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NoodleUnit    4

Yeah, unfortunately in the UK you have to be very careful, most sausages are padded out with wheat in some way. There are specific Free From varieties, but otherwise best to avoid it. Which is why I'm annoyed that the chef obviously wasn't switched on. I've been there before and they've always done me right, but this time it was a new chef.

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Fairy Dancer    10

You'd be surprised what they stick gluten in in the UK including the humble banger! Fortunately I rarely consume sausages whether I am eating gluten free or not as I prefer my meat to look as meat should...like err..meat...

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kareng    1,992

gluten free or not as I prefer my meat to look as meat should...like err..meat...

:lol:

Fillers in sausage or hot dogs Is considered cheap and poor quality here in the US.

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