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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Rash
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killernj13    9

Hello,

I've had some occasions of a bad rash on my legs and stomach while experiencing severe diarrhea. Does this sound like symptoms of DH? I'm not sure if I was exposed to gluten when these occuried.

I was tested for a peanut allergy (which was negative) since it was at a time I was snacking on nuts heavily.

The allergist actually said he knew of no rash symptoms related to celiac disease.

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KaitiUSA    7

The allergist must not know about celiac disease. It could be DH. Is it itchy?

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Carriefaith    5
I'm not sure if I was exposed to gluten when these occuried.
Are you on the gluten-free diet? If not, then the rash could come at anytime.

If the rash it kinda itchy and red then it is most likely dh. I think that if you are having diarrhea and a dh like rash then you should be tesed for celiac disease. You can also get the rashes biopsied to see if it is dh.

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lovegrov    148

Although DH can appear anywhere, the stomach and legs would not be common sites, particularly the stomach. I can't remember ever having it on my stomach in 20 years. My DH looked like blisters filled with clear fluid and was EXTREMELY itchy. I never really thought of it as a rash.

richard

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KaitiUSA    7

I was not diagnosed with DH but I do think I have it because I get itchy bumps when I am exposed to gluten. I usually get them on my knees/thighs/elbows/and stomach. So it can happen even though it may be rare to see bumps in those places.

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Carriefaith    5

I have developed little rashy spots on my skin during my last 2 gluten accidents. The first time they appeared on my elbow, leg, upper arm, and neck. The second time I only had 2 on my left leg. I also have not been diagnosed with dh, but I believe that this could be dh or a skin reaction to wheat (since I also have a wheat allergy).

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killernj13    9

Thanks - for all the replys.

Answers to some of the questions:

Yes - I was on the gluten free diet (about 95% of the time) and I have already been diagnosed with celiac disease.

My allergist knew I was diagnosed with celiac disease but he obviously did not know about DH. Maybe I need to find a new allergist? He kept going back to the peanut allergy even though all my tests were negative.

I haven't had an outbreak recently and yes the rash was itchy. I also have been more diligent about my gluten-free diet lately. Since my GI doctor read me the riot act.

I guess my main question is - do you have to be exposed to gluten for the effects of DH to arise or can they just happend at anytime?

Thanks again,

Kevin

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KaitiUSA    7

There is no time limit on when it will come. Some people may see the DH immediately after they are exposed to gluten and others may not. I personally get the symptoms immediately but not usually the DH. That usually comes a few days after I have accidentally ingested it.

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