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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Man, Have I Been Glutened!
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28 posts in this topic

This is rant, because I am so ticked off I can spit!

Dadgum it, I have avoided all the gluten free processed stuff for over a year now and 3 days ago I thought I should have had some healing so I thought I would try again. WRONG! I had a bowl of gluten free rice chex with my usual almond milk.

Went down ok, but later that evening came down with the D big time, had it most of that night, most of the next morning. Stomach was sore, felt tired and achey. That lasted all that day, woke up this morning with pain between the shoulder blades that have lasted all day long, have run a low grade fever all day and I have a little blister on the tip of my tongue that has evolved into a swollen tongue and swelling under it and my lower jaw, and just in the last couple of hours have developed a blister on the roof of my mouth. Needless to say the lower half of my face hurts. But hay, the bright side is that I haven't developed any anxiety and/or depression like I used to. :D But that might happen tomorrow, who knows. Just, I would love to have some cereal in the mornings. :(

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Owie owie owie. That pain between the shoulder blades is a big one for me too. It lasts for a couple of weeks when I get glutened. Big hugs, sorry you feel icky.

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Oh no! Sorry to hear this!! :( Crap! ((HUG))

I eat the gluten-free RICE Chex and seem to do okay and I'm pretty sensitive....wonder why you got hit so badly??

gosh, I hope you recover quickly!!

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I tried all the gluten fee chex cereals a year ago and every single one did this to me. I was hoping that I had healed enough I could tolerate it but nope. So, I guess i'll stick with what I do know works for me and no more experimenting. :(

It's tickin me off so bad I feel like cussin, so here goes! Dadgum it dadgum it, dadgum it, dadbless it, son of a biscuit eater and God bless a milk cow! Whew! Feel a little bit better but not much. :D And thanks guys for the well wishes. :)

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I'm sorry you don't feel well and that it was Chex... I eat them all the time and can't imagine if I couldn't.. :unsure:

Feel better!!

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So sorry it zapped you so badly! If I ever find a gluten-free cereal that seems really safe, I swear I'm going to put it up here so darn fast!

Hope it passes soon, and the depression gives you a miss this time.

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I guess there is a bright side. It means that your usual diet has been super gluten free for you to be able to react so seriously to something that really doesn't have all that much cc. I can't eat the rice chex either, and the last time I tried my diet wasn't as free of cc as it is now. I don't know how I'd react if I tried it again.

The last time I tried something processed I got a free sample of a name brand cookie at a celiac support group. I didn't think that it would hurt to have one bite, just to try it. Ha, ha.

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It's tickin me off so bad I feel like cussin, so here goes! Dadgum it dadgum it, dadgum it, dadbless it, son of a biscuit eater and God bless a milk cow! Whew! Feel a little bit better but not much. :D And thanks guys for the well wishes. :)

Wowzers! That must be cussin..Texas style! :lol: ...I admit, I have used words a LOT WORSE than that when I feel lousy(blushing) and they could not be printed here. :lol:

I hope you feel better quickly. I experimented last week with a Snickers bar since everyone seems to think they are okay...what a mistake!! 5 days of skin eruptions, anxiety, insomnia, racing heart...you know the drill...*&^%$#@! :lol:

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Wowzers! That must be cussin..Texas style! :lol: ...I admit, I have used words a LOT WORSE than that when I feel lousy(blushing) and they could not be printed here. :lol:

I hope you feel better quickly. I experimented last week with a Snickers bar since everyone seems to think they are okay...what a mistake!! 5 days of skin eruptions, anxiety, insomnia, racing heart...you know the drill...*&^%$#@! :lol:

:P Actually I can cuss pretty bad to the point I can make a sailor blush. :D But since this is a family friendly forum I thought I ought to tone it down a mite. Those were my granmother's words for cussin. She was so religious I wasn't even allowed to say dang in front of her.

And today the backpain is gone but replaced with an all over body ache, itchiness,tingling and some numbness in random areas, slight all day headache and very fatigued. Usually I can drive 8 to 10 hours a day but today I could only manage 6. Thankfully I have a lot of time on this load. But happy to say no anxiety or depression which is a good thing. :)

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:P Actually I can cuss pretty bad to the point I can make a sailor blush. :D But since this is a family friendly forum I thought I ought to tone it down a mite. Those were my granmother's words for cussin. She was so religious I wasn't even allowed to say dang in front of her.

I THOUGHT maybe you were being "restrained" for the forum. :lol: yes, making a sailor blush would be easy for me, too....ah well, we have every right to be pissed off when glutened and feeling yucky. ;)

Any better today, hon??

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I can't eat the Chex either. I think I have tried everything I could find available at the store (not on the internet) and I am reacting to every one. It is very frustrating. I finally threw them out so I couldn't talk my self into them being ok.

I have been making steamed organic brown rice and putting either organic almond mild or organic soy milk on it. It is really delicious. Someone suggested we wash the rice really well, so I have been doing that and not having any reactions. Thanks to whomever said that.

I made a chickpea flour and rice flour recipe yesterday, a dosa recipe someone posted. It was really delicious. I had a reaction though, I think it was the rice flour. Next time I am going to try to make my own flour with rice I wash and dry first.

Don't feel too bad about eating something you react to. I have been gluten free for 10 years and I am still learning. Since I quit eating any "gluten free" foods I have quit having stomach aches and d. and have lost weight for the first time in years. That is a double wow. I think those extra carbs were packing it on.

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The gluten free Chex cereals are made in a separate dedicated facility--so I am wondering--are you SURE it couldn't be anything else? (I'm not saying you aren't hurtin, hon--I'm just trying to help you sort it out)

This guy has an opinion about the BHT they use as a preservative in the chex--as opposed to it being the gluten. see what you think.

http://gluten-free-blog.blogspot.com/2010/01/chex-cereals-gluten-controversy.html

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The gluten free Chex cereals are made in a separate dedicated facility--so I am wondering--are you SURE it couldn't be anything else? (I'm not saying you aren't hurtin, hon--I'm just trying to help you sort it out)

Yes maam, back when I first tried all the chex cereals it was during my elimination diet. And the other day when I tried this cereal I didn't have anything other than my usual stuff I eat every day. Nothing new for a good month until I had these chex, then bam.

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Yes maam, back when I first tried all the chex cereals it was during my elimination diet. And the other day when I tried this cereal I didn't have anything other than my usual stuff I eat every day. Nothing new for a good month until I had these chex, then bam.

look at the link I just posted--maybe it's the BHT?? Are you sensitive to preservatives??

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This guy has an opinion about the BHT they use as a preservative in the chex--as opposed to it being the gluten. see what you think.

http://gluten-free-blog.blogspot.com/2010/01/chex-cereals-gluten-controversy.html

I just read that article. That is very interesting. Now to find other foods with BHT and give that a try. Not really looking forward to it but I would like to know.

Thanks for that Irishheart.

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I just read that article. That is very interesting. Now to find other foods with BHT and give that a try. Not really looking forward to it but I would like to know.

Thanks for that Irishheart.

Just a thought...! hope it's the answer!!

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The gluten free Chex cereals are made in a separate dedicated facility--so I am wondering--are you SURE it couldn't be anything else?

The problem is that the separate dedicated facility is only as good as the raw ingredients that are brought into it. I buy my grains whole and sort and wash them before eating. I have found gluten grains in everything. I have looked through a lot of grains, and I don't doubt that the amount of gluten grains I find are much below 20 ppm in most cases, but for a super sensitive, finding any gluten grains is too much.

In fields they grow different grains in rotation, there are weeds of previous grains, there are gluten grains grown in adjacent fields, they use shared harvesting, storage, and transportation equipment. Things get too mixed up for super sensitives long before these raw materials get into the dedicated facilities.

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Usually I can drive 8 to 10 hours a day but today I could only manage 6. Thankfully I have a lot of time on this load.

Are you a truck driver? I totally respect you for being able to manage this on a super gluten free diet. I was feeling proud managing to go to my nieces wedding 8 hours away.

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The problem is that the separate dedicated facility is only as good as the raw ingredients that are brought into it. I buy my grains whole and sort and wash them before eating. I have found gluten grains in everything. I have looked through a lot of grains, and I don't doubt that the amount of gluten grains I find are much below 20 ppm in most cases, but for a super sensitive, finding any gluten grains is too much.

In fields they grow different grains in rotation, there are weeds of previous grains, there are gluten grains grown in adjacent fields, they use shared harvesting, storage, and transportation equipment. Things get too mixed up for super sensitives long before these raw materials get into the dedicated facilities.

I understand all that and you are probably right. That's the "maddening part" of trying to use so-called "gluten free products". From what I have learned, there is no such thing as 100% gluten free because of cross-contamination, no matter how many precautions are taken.

I also have some trouble with things considered "gluten free" and react to them as well. Much to my dismay. :unsure:

I was just suggesting other factors that may be at play. TXgal works hard at keeping her diet really clean, I know--- and she really wanted that bowl of cereal :) for some variety.

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I have been waiting for a year to try gluten free rice chex, and goshdarned if I haven't reacted badly to them too. Not a gluten reaction, but bad D - the chex are I think the only "new" addition to my diet. I had already decided not to have any this morning before I saw this thread. Will report back on possible BHT reaction.

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I tried all the gluten fee chex cereals a year ago and every single one did this to me. I was hoping that I had healed enough I could tolerate it but nope. So, I guess i'll stick with what I do know works for me and no more experimenting. :(

It's tickin me off so bad I feel like cussin, so here goes! Dadgum it dadgum it, dadgum it, dadbless it, son of a biscuit eater and God bless a milk cow! Whew! Feel a little bit better but not much. :D And thanks guys for the well wishes. :)

Well...Golly! Gosh! My goodness sakes!

Hope your feeling better today!

( that was a really poor attempt at cussing!)

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I have been waiting for a year to try gluten free rice chex, and goshdarned if I haven't reacted badly to them too. Not a gluten reaction, but bad D - the chex are I think the only "new" addition to my diet. I had already decided not to have any this morning before I saw this thread. Will report back on possible BHT reaction.

"BHA, BHT, and TBHQ

BHA and BHT have been used, as food additives, in food products, with some restrictions, since the late 1950s. TBHQ is a more recent addition to the list of antioxidants allowed in food, in Europe, it became an accepted antioxidant for food use in 2004.

Their full names are:

BHA: Butylated hydroxyanisole (E320)

BHT: Butylated hydroxytoluene (E321)

TBHQ: Tertiary-butyl hydroquinone (E319)

There is nothing

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If it helps...I eat Nature's Path organic "Crispy Rice"...like Rice Krispies. I eat it every morning, and while I haven't gotten ALL of the kinks out of my diet...I've been good with them. I may have a problem when I consume too much rice in general, but I do not have issues with the cereal. They are pretty good, and I usually mix berries or bananas and almond milk in with them. I am learning the hard way that I appear to be very sensitive, so maybe you will be okay too? I buy them at Whole Foods, but here is the website www.naturespath.com. If any of you eat this and have a reaction...PLEASE DO TELL! I think that you'd be okay though...

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I've had to quit the chex too. I find they make me very shaky and weak- almost a hypoglycemic reaction but I only have it with the chex, not when I eat other sweet things like homemade cookies, so I don't think it's actual hypoglycemia.

It's a bummer, too. Cinnamon chex are really delicious.

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If it helps...I eat Nature's Path organic "Crispy Rice"...like Rice Krispies. I eat it every morning, and while I haven't gotten ALL of the kinks out of my diet...I've been good with them. I may have a problem when I consume too much rice in general, but I do not have issues with the cereal. They are pretty good, and I usually mix berries or bananas and almond milk in with them. I am learning the hard way that I appear to be very sensitive, so maybe you will be okay too? I buy them at Whole Foods, but here is the website www.naturespath.com. If any of you eat this and have a reaction...PLEASE DO TELL! I think that you'd be okay though...

I've been eating the Nature's Path rice and corn cereals, and no reaction so far :) I mix currents, nuts and flaked coconut with it, tastes awesome :) Would also be interested if anyone reacts to this?

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